Starting chemo Sept 05

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  • Liezel
    Liezel Member Posts: 192
    edited May 2008

    Hi Leanne, gr8 to hear from you again.  I saw the pics, and they are really absolutely gorgeous.  You should be proud of them...

    We are in the same position with Connor.  Some days I think it has worked, and other days I think it has been a waste of time.  One on one he is fine, but he battles in groups.  His play therapist does not really know what to do.  I am thinking to move him to an OT who does group work.  It is very frustrating though.  Good luck to you.  The medication issue is difficult.  I spoke to a teacher the other day who also resisted it for years with her daughter.  One day her daughter told her that her brain takes her mind away and does not bring it back.  She then started her on Ritalin, and the difference has been HUGE.  It is amazing to see this girl's self confidence blossom for the first time. 

    Riley 3 already?  Wow!  Enjoy the day with him.  Just love his curls....

    I am well.  Lots of love to all!

    Liezel

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  • txred9876
    txred9876 Member Posts: 392
    edited May 2008

    leanne,

    Of course we will pray for your friend. What is her first name? As you can see from my post of a couple weeks ago....prayers do work!

    I am glad you are doing well.

    Tina

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  • Pegk
    Pegk Member Posts: 389
    edited May 2008

    Greetings September Sisters

    You are all in my prayers and of course anyone else who is having a tough time.That includes anyone who is suffering including those who love us. It must be so difficult being a child and not really understanding what is going on with those that they depend on. You mothers of young children are especially in my thoughts and prayers.



    I had a great weekend in Boston crewing for the Avon Walk there. One of my team members compiled some of our photos.



    http://www.youtube.com/user/amberstang



    It was long hours (I had to report at 4am on Saturday) but very satisfying to cheer on the Boston walkers. I was at Quick Stop B which had an Irish Pub theme. In addition to givng out water and Gatorade (sorry no Guiness) we gave out green beads and shamrock stickers. Of course, I met several survivors and heard many inspirational stories.

    I will be walking myself again in NY in October. I have new respect for the planning and organization that supports these events.



    I hope all is well with you. I'll be looking for those photos from Cyprus, Sandra.



    Peggy





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  • sholroyd
    sholroyd Member Posts: 288
    edited June 2008

    I will certainly send my thoughts to your friend Leanne. Can you also please send healing thoughts to my brother-in-law, at age 38 he has 99.9% been diagnosed with testicular C - he is in that awful waiting stage to have it removed and find out his treatment plan - his wife is in bits and he is trying to put a brave face on things - it is early days and I am feeling very positive for him.

    I have fathomed facebook Leanne and looked at your pictures - all beautiful.  Peg I have also looked at the youtube video - I am amazed at the very inventive costumes - you must be absolutely shattered but very satisfied from the event - I will be watching for your October news.

      

    Susan how's things with your family, particularly your sister now surgery is over?  You are very much in my thoughts Susan as are Liezel and Leanne with deliberations on the best way forward for their very handsome boys - I also saw Connor on Facebook Liezel.

    How's Gina at the moment?

    Nicole - have I missed an update?

    Anyway, brighter things - I am trying this picture (reduced through photobucket) - if someone confirms this is OK (not too small) I will post one that shows me in my glory - a fabulous wedding and much enjoyed holiday.

    Well an early night for me - work tomorrow - I am not planning anything at the moment - I will get very bored - Oh I have something to be doing on 27 June haven't I???!!!

    Speak soon.

    Sandra from the UK

    My son, son-in-law, eldest daughter, daughter

    2 grandsons

     25473Holroyd-Reading048.jpg Wedding1 picture by sholroyd

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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited June 2008

    Hi All,

    So much has been happening lately, I am simply exhausted. Starting with the fun stuff... the wedding in Scotland was a blast. We took a sleeper train with a berth, and a working sink in the cabin! At the wedding there were lots of men in kilts, salmon prepared five ways, venison, cousins, friends, and lots of scottish dancing. How much fun. We were so far north, that the sun didn't go down until about 11:30 pm. We enjoyed traveling around the North of Scotland for several days. I managed to drive on the left with a stick shift without banging into anything!

    My father is not recovering from surgery well. He is in a nursing home now trying to get stronger. He has simply lost huge blocks of his memory. I am not sure where this will end up. I have just returned from spending two days with him, and though he is now able to walk, his mental state is so changed.

    My sister had her surgery, and is recovering really well. She can actually talk, and is fully understandable. She is relearning how to swallow, and I have spent a night with her, and made poached salmon and overcooked fresh pasta, and she was able to eat this. Yesterday was her set of checkups and she heard her pathology report. The lymph involvement was greater than expected, so they will add another chemo to her cocktail. For her, chemo is a radiology enabler. They say that the chemo will get the cancer dancing, and the radiation will zap it. She will start this next phase in two weeks.

    Since returning from Scotland, I have only spent two nights [not consecutive] at home. There is so much need right now. But I will stay put for a little bit since Lauren is coming home from her year abroad this weekend, and I will need to help her get re-settled in the parental house.

    Now, I am going to crawl into my bed and try to get rested again.

    *susan* 

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  • sholroyd
    sholroyd Member Posts: 288
    edited June 2008

    Susan, if possible, remember to aim for a little bit of Susan time - my thoughts are with you and your family.  Please say "Hello" to Lauren from me.

    Sandra from the UK

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  • tinkermax
    tinkermax Member Posts: 269
    edited June 2008

    Hi lovely sept sisters

    3 years today since diagnosis :)

    it seems amazing doesnt it.....how the time has flown

    hugs to all

    maxine

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  • txred9876
    txred9876 Member Posts: 392
    edited June 2008

    Susan,

    Sometimes we need to step back and take a deep breath for ourselves. You and your family are in my prayers. I hope your daughter gets settled in quickly.

    My own daughter Naomi (she will be 18 in sept) is back home for a few days and then she is going to head cross country from Austin, tx to Grants Pass, Or. (alone....stubborn little sh*t!) She has friends in Phoenix so I sure hope she takes the time to rest up there for a day or so. It has been an interesting few weeks... first she got stuck in Reno (mechanical failure and they wanted to put her up in a hotel and fly her out standby the next day....not hearing from her that she is 17 and cannot rent a motel room!) She called her friend whom drove the 5 hours to get her and she stayed with him until yesterday morning when she flew home. Her plans all along were to drive back after her trip to Reno to visit her grandmother but they just got delayed. I was hoping she would stay but it is time for her to grow her wings and fly! It is really hard for me to let her do that but one thing good that has come out of all this is he has convinced her to go on to college! I sure hope that turns out the way it needs to be.

    Ok enough of the poor me stuff....there are those of you who have much greater worries then a child growing up!

    Maxine,

    Congrats on the 3 year mark...mine is coming up quick. I am not sure what date to use. I know now my cancer was there starting the 4th of July weekend but did not get formally diagnosed due to the inflamatory until aug 10th. I look at the 4th of July weekend as my date.

    Tina

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  • foxxf
    foxxf Member Posts: 171
    edited June 2008

    Hi all,

    Hope you are all well. Sorry I haven't posted in a while I went to the surgon and all is good. He was quite convinced that it was just a fibroid and we should check it again in 6 months, I told him 3 months will be fine thanks so we will check again in August.

    Other than that  all good, It keeps bloody raining and I am sooooooo over it! Not quite as bad as your mid west though. Prayers for anyone with family out there.

    Chat soon

    NicoleSmile

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  • txred9876
    txred9876 Member Posts: 392
    edited June 2008

    Nicole,

     That is good news! Keep us posted.

    Well my daughter made it safe and sound, but much quicker then I expected. Only one warning and one speeding ticket later!....children will be children!

    tina

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  • Pegk
    Pegk Member Posts: 389
    edited June 2008

    I had an onc appt. today and I don't have to go back until November! WOO HOO!

    I would like to say cancer is gone but not forgotten. I still have a mammo coming up.



    Things are pretty good in my corner of the world. My older daughter is in Paris studying photograpy for a month. My younger one is home, working for the summer and going with me to see Ringo Starr at Bethel Woods (the site of the 1967 Woodstock concert which has been turned into a beautiful performing arts center) on Saturday. I've always said I want to see a Beatle at some time in my life.



    I've been catching up on all of your activities as we're all moving into the 3 year anniversaries-some setbacks but overall, pretty good.



    Leanne, I loved looking at your photos of New Zealand on Facebook. I hope Sandra will be posting some more from Cyprus, and Susan from Scotland. I'd love to see photos from any of you. Your homes, your towns your families.

    I've posted some photos from last weekend when my husband and I went to New Orleans. They say you can share by posting a link. Let me try:

    http://www.facebook.com/album.php?aid=29801&l=e0d3d&id=578243296



    Be well. You're all in my prayers for continued improving health for you and your loved ones.

    Peggy





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  • sholroyd
    sholroyd Member Posts: 288
    edited June 2008

    You asked Peg ;-)  Here is the link of some pictures I am sharing through Shutterfly - hopefully it will give you a feel of our lovely wedding.

    http://www.facebook.com/album.php?aid=29801&l=e0d3d&id=578243296

    I have had a daughter return home (not the one who has just got married J  My ‘career minded' girl has decided to rent her house out and asked if she could come back to live with us for approximately 6 months in order to save some money with the view of going off backpacking for 6 months next year - I will worry terrible - a son in Afghanistan and a daughter only God knows where.  I am thinking my son is drinking too much, he has been working now well over 4 years and all he has to show is a car (not new) - he is 24 now and I think he needs to be growing up a little and stop being Jack the lad all the time - what are your thoughts? battles with him, heart-to-heart - let him get on with it??  We all have kid worries from time to time.

    I have had a barrage of tests this week.  CT scan, bloods to make sure I am up for this planned reconstruction op on Thursday.  Susan my urine sample showed up that I am a passive smoker - they would not do the op if I was still smoking.  I just about reached the weight they advised me to 82 kgsm (phew) - all so very hard.   I have also had my ‘normal' checks and all my bloods are fine, I am due for a bone density scan but nor until July for mammogram - I only get one every 2 years - any value in getting one done privately do you think?   I am not being seen again for 12 month.

    Susan - how go things?

    Well I have taken a sleeping tablet tonight so my spelling is probably awful and my words may well not make sense.  I am so bogged down with work qt the moment I really need a good night's sleep so I can get up early and get on.  I am getting quit excited now at the prospect of a new boobie.

    Nicole - good news but great that you asked for 3 months check and not 6. 

    Speak soon

    Sandra from the UK

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  • sholroyd
    sholroyd Member Posts: 288
    edited June 2008

    You asked Peg ;-)  Here is the link of some pictures I am sharing through Shutterfly - hopefully it will give you a feel of our lovely wedding.

    http://www.facebook.com/album.php?aid=29801&l=e0d3d&id=578243296

    I have had a daughter return home (not the one who has just got married J  My ‘career minded' girl has decided to rent her house out and asked if she could come back to live with us for approximately 6 months in order to save some money with the view of going off backpacking for 6 months next year - I will worry terrible - a son in Afghanistan and a daughter only God knows where.  I am thinking my son is drinking too much, he has been working now well over 4 years and all he has to show is a car (not new) - he is 24 now and I think he needs to be growing up a little and stop being Jack the lad all the time - what are your thoughts? battles with him, heart-to-heart - let him get on with it??  We all have kid worries from time to time.

    I have had a barrage of tests this week.  CT scan, bloods to make sure I am up for this planned reconstruction op on Thursday.  Susan my urine sample showed up that I am a passive smoker - they would not do the op if I was still smoking.  I just about reached the weight they advised me to 82 kg (phew) - all so very hard.   I have also had my ‘normal' checks and all my bloods are fine, I am due for a bone density scan but nor until July for mammogram - I only get one every 2 years - any value in getting one done privately do you think?   I am not being seen again for 12 month.

    Susan - how go things?

    Well I have taken a sleeping tablet tonight so my spelling is probably awful and my words may well not make sense.  I am so bogged down with work qt the moment I really need a good night's sleep so I can get up early and get on.  I am getting quit excited now at the prospect of a new boobie.

    Nicole - good news but great that you asked for 3 months check and not 6. 

    Speak soon

    Sandra from the UK

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  • sholroyd
    sholroyd Member Posts: 288
    edited June 2008

    You asked Peg ;-)  Here is the link of some pictures I am sharing through Shutterfly - hopefully it will give you a feel of our lovely wedding.

    http://www.facebook.com/album.php?aid=29801&l=e0d3d&id=578243296

    I have had a daughter return home (not the one who has just got married J  My ‘career minded' girl has decided to rent her house out and asked if she could come back to live with us for approximately 6 months in order to save some money with the view of going off backpacking for 6 months next year - I will worry terrible - a son in Afghanistan and a daughter only God knows where.  I am thinking my son is drinking too much, he has been working now well over 4 years and all he has to show is a car (not new) - he is 24 now and I think he needs to be growing up a little and stop being Jack the lad all the time - what are your thoughts? battles with him, heart-to-heart - let him get on with it??  We all have kid worries from time to time.

    I have had a barrage of tests this week.  CT scan, bloods to make sure I am up for this planned reconstruction op on Thursday.  Susan my urine sample showed up that I am a passive smoker - they would not do the op if I was still smoking.  I just about reached the weight they advised me to 82 kg (phew) - all so very hard.   I have also had my ‘normal' checks and all my bloods are fine, I am due for a bone density scan but nor until July for mammogram - I only get one every 2 years - any value in getting one done privately do you think?   I am not being seen again for 12 month.

    Susan - how go things?

    Well I have taken a sleeping tablet tonight so my spelling is probably awful and my words may well not make sense.  I am so bogged down with work qt the moment I really need a good night's sleep so I can get up early and get on.  I am getting quit excited now at the prospect of a new boobie.

    Nicole - good news but great that you asked for 3 months check and not 6. 

    Speak soon

    Sandra from the UK

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  • Pegk
    Pegk Member Posts: 389
    edited June 2008

    Try again Sandra, You copied my link. I'd love to see your pictures.



    I didn't realize that you had a son in Afghanistan. Is he in the military? I pray for all the young men and women who got caught up in that mess. Is it a different son with the drinking problem? Is he still at home? Does he have a job that he doesn't like? I think you should probably start with a heart-to-heart, then get on with some tough love. Maybe another adult who he respects that isn't in his family could talk to him.

    Is your daughter considering a career change? Is that why she feels she has to get away for awhile?

    My daughters are still very dependant on us. Even Laura's adventure in Paris is structured by the classes she's taking. We're in touch by email and even phone fairly regularly. The summer between my Junior and Senior year I went off to Japan by myself and visited a group of students who had visited my college. My parents didn't hear from me until they got an occasional postcard. The world is a different place now.

    I hope your tests went well and you have smooth sailing and a quick recovery from your recon.

    I'm going away on a location shoot for my show, but I'll be checking back for those pictures.

    Peggy

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  • sholroyd
    sholroyd Member Posts: 288
    edited June 2008

    Such a plonker that I am - try this one Peg.....

    http://share.shutterfly.com/action/welcome?sid=8AYsWThy2atWQC&emid=sharshar&linkid=link5

    My son is in Royal Marines - not in Afghan yet but is being threatened with posting in September. He hasn't got a 'real' drink problem, just a silly drink problem and I think the marines have encouraged a drinking culture - such a waste of money.  My daughter gets unsettled in any job after a couple of years - she is doing OK though.

     My tests are OK and I have to ring to see if there is a bed free at 10.30 am wit a view to going ionb around 2.00 pm I reckon - we'll see.

     Have a good trip Peg - speak soon.

    Sandraa from the UK

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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited June 2008

    Sandra, just love the photos! I haven't put the Scotland pictures up on the web anywhere yet. Will let everyone know when I do.

    Life has been pretty overwhelming here since I returned. Lots of traveling between patients. Spent much of last week with my sister, taking her back and forth to the hospital. She had surgery for a PEG tube [oh yuck], didn't do well with the pre-surgery drugs and then a week later developed a terrible infection. Unfortunately, my sister lives one hour from my house. So each time, I drive an hour to her house, an hour back to the hospital [which is 3 miles from my house], back out to her house, and then back to mine. Four hours per trip!

    Today, she has her first radiation and Monday will begin the weekly chemo infusions. At this point, my Mom is taking over her care for the most part. I will be responsible for her for only about 3 days, and we actually don't expect her to need anything on those days.

    Phew! Good news is the kid is home and already working at her two jobs. She hasn't lived with us full time in a couple of years now, and we have done a good job of readjusting all of our expectations.

    Peg, have a great photo shoot. Work is drying up around here. I may have to consider doing some travel to get more. Just the nature of the economy right now.

    Best to all..... 

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  • leannem
    leannem Member Posts: 137
    edited June 2008

    Hi all!!

     Wow look at these flash new boards! Very fancy Cool

    All is well in my end of the world- Scott was home for 8 days which was lovely although has now gone back for another 15 weeks!! That will take forever to end I am sure. The kids had such a great time with him home and were pretty well behaved! Their behaviour goes out the window when he leaves so I am back to hourly battles with the terrors!

    I was just thinking this morning about all of us coming up to our 3yr anniversary- how exciting! I am slowly starting to think more into the future now. I think because off all my "liver mets/not mets" drama it has taken me longer to trust I am "well" and make plans for the future.

    I have to go and get these boys organised for school/kindy but wanted to jump on and let you know I think of  you all heaps!!

    xoxooxoo 

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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited June 2008

    bumping us past those stupid day by day posts

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  • txred9876
    txred9876 Member Posts: 392
    edited June 2008

    this sure is a strange new setup....something to get used to!

    This weekend will be the 3rd anniversary of my symptoms showing up (the redness on my breast that turned out to be inflammatory breast cancer). I am trying not to think about it and have a good time with my husband.  It is his birthday on the 4th of July.

    have a save and happy holiday!

    Tina

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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited July 2008

    Life is so strange right now. Spending a lot of time in the hospital district, right where I had treatments. Sister is across the street daily at Dana Farber, and today my daughter had her first appointment with an "adult" doctor. Right in the lobby of my hospital.

    Will be spending more time with my sister, creating blender meals to keep her strong, until she needs her feeding tube. I wouldn't wish this cancer on anyone.

    Be well my friends.... 

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  • sholroyd
    sholroyd Member Posts: 288
    edited July 2008

    Hi all, just to let you know I am back home after reconstructive surgery - DIEP flap - 8.5 hours surgery and I feel like very yuk and in pain as we speak - however I am more than happy with the treatment I received and especially my new booby, it is much better looking than I anticipated.

    Susan, your life sounds awful at the moment watching and helping with your sister's treatment - my kid has come back home too, she has asked if she can come home for about 6 months - she is renting her house out with a view to getting some money together to travel - like you we are not doing so bad at ‘adjusting' but I (and am sure my daughter does too) bite my lip and count to ten - just how she does the washing drives me mad.  I have our yearly Spanish student coming to stay on 22 July for 3 weeks so I am going to have a really busy household again  - hope I am not worn out and manage to enjoy the situation.

    Leanne, I feel having my boob (or something very similar - LoL) back will help me move on - that's the plan.

    Tina, make it a pleasure to look at your boobies - give them a 3-year celebration pamper session - however you see fit ??!!!???

    Anyway, I have just taken a sleeping tablet so am probably typing all rubbish now - night night, sleep tight from Sandra in the UK - here's to hoping I can at least bend down to put some washing in the machine or pick up aything I drop.

    Keep updating with your news - wish some old regulars would return and let us know they are doing OK - Ausimum, Marg etc etc etc

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  • Pegk
    Pegk Member Posts: 389
    edited July 2008

    "Wow! This new setup looks so serious. I guess I'll get used to it.

     I've been so busy lately and here it is the 4th of July and I'm all alone. Both my husband and daughter are working and my town chose to have its Independance Day celebration last night and I worked until after 11:00! Anyway it feels good to putter around in my garden and my house.

     

     

    Sandra, Congratulations and welcome to your new boob. I hope you have a speedy recovery. I loved looking at your photos. The wedding party looked beautiful.

     

    Courage, Susan. Your sister is lucky to have you there to bring her comfort and encouragement.

     

    This is what I've been up to:

    a location shoot at a horse farm near Rhinebeck NY. It was beautiful, but unfortunately it was a night shoot so the viewing public won't get to see much of the area. I worked from 3:00pm to daylight. I must be feeling better because I don't think I could have done this last year.   

     

    [" mce_src="Photobucket" alt="" border="" hspace="" vspace="" width="" height="" align="" />

     

    The other one was  at Letchworth State Park in NY and luckily it was all shot in the daytime because the scenery was spectacular. Two actors were sent over the falls in a red rubber raft . Luckily they were played by dummies (which I dressed) so they lived to act another day.

     

    I  Photobucket" alt="" border="" hspace="" vspace="" width="" height="" align="" /> 

      I second Sandra's wish. We've come a long way together. Let's keep in touch.

    Peggy 

     

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  • Calico
    Calico Member Posts: 1,108
    edited July 2008

    Hi everybody,

    just a quick check in, will report back with more later.

    I am still so sad since Shepgirl's death, it sort of gave me a "there is no hope" attitude. Knowledge and willpower seem nothing to this disease.
    I limit my time on the boards.

    My onc visit is Monday (just TM's but the lurking fear with lung nodule and bone spot - all probably nothing as of last PET) is with me.

    My daughter had her surgery and is sort of pain free but with lots of restrictions and no weight bearing yet. She will have to be very careful for at least half a year. Again hospital stay was draining do to her need of her own blood and a reaction...grrrr...She's healing and I am so thankful for that.

    Next hurdle and I will check in sooner.

    Pats on the back to all of us on upcoming 3 years.

    Your avatars are gorgeous.

    Send me good vibes please, I ask for 'happy pills' this time

    God Bless

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  • sholroyd
    sholroyd Member Posts: 288
    edited July 2008

    Calico - fully understand your feelings - I went through the same feelings (as I guess each and every one of us has) as I mentioned before when my auntie lost the battle along with a young girl at the hospital - we CAN'T go through our life worrying like crazy, we HAVE a life to LIVE, we HAVE to be POSITIVE and have POSITIVE thoughts, the niggles must be quickly put aside, no, not put, KICKED aside. Gina is a brick isn't she, so much to contend with - does she have many down days?

    Peg, your job sounds so exciting - do you get to meet many famous people?  Who have you enjoyed meeting the most if so?

    I am feeling much more upbeat today, albeit obviously still sore - my new addition is much better than I had expected - really missing my soak in my bubble bath - but I am not complaining THIS was my choice, well sort of I suppose - wouldn't have had to have it if hadn't had the other - I am waffling, sorry.

    Have a good weekend.

    Sandra from the UK xx

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  • Liezel
    Liezel Member Posts: 192
    edited July 2008

     Hi Everybody,

     Just got back from a 10 day holiday to the changed boards! Looks very smart!  Great to catch up with everybody.  Leeann, it must have been great to have Scott home!  Susan, I stand in awe of you!  You are going through so much now.  How is your Dad?  Good luck with everything on your plate, and the work issue - same here.  I am sending you lots of positive vibes from here.

    Peg, lovely pics!  Calico, good luck with your tests.  I can relate - we try hard not to worry, but it is always a nightmare.  Thinking of you, and enjoy the happy pills!

     Sandra, wow, so much happening.  Can't wait to go look at the pics.  Take it slow now.  It takes a while to heal, but I am sure you and your new addition will soon feel right as rain.

    We spend a glorious 2 days in a game park - no lion or rhino sightings, but had an elephant 1 meter away from us!  It was huge and smelly, and I was so scared!  Kept snapping away, and then saw afterwards our camera is broken!  So no pics of this wonderfull memory.  Then went onto the Wild Coast, where we spend a week at a resort.  It was very rustic, but they fed us well, and we spent a lot of time fishing.  Still recovering from the long trip back - about 1500 kms one way, and losing the extra weight will take a while!  Connor's 5th birthday tomorrow!  He is so excited.  We are going to buy his gift today, and he has been working for the last 2 months to save enough money to buy a Ben10 watch, so he is very excited! 

     I hope you all keep well. 

    Liezel

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  • Calico
    Calico Member Posts: 1,108
    edited July 2008

    Hi all,

    blood is okay, TM's are in normal range but higher than last time which scares the **** out of me, especially since the onc mentioned 'lets do another PET'....I thought I am done?!....He said the last one was abnormal!!! WTH....he wasn't worried then...tried to calm me then about the new found bone spot in Feb. that was there all along since dx and stable, per radiologist "a met less likely"....grrrrr......So I just went from 4 months visits to three again. (actually due to rescheduling I was even at 5 months with this one.....)

    Cheech.....maybe all my questions got him thinking? concerned because I am scared?....Of course now every bone is hurting, I've been pounding the trail like there is no tomorrow to strengthen my bone density.....add underarm pain but no nodes and I am a mess....did not ask for happy pills, read much side effects and wanted to ask but was so flabbergasted at upcoming PET...I forgot my name lol....no seriously.... I want my TM's to be in the low normal range.....lower than at surgery but no such luck. I know it is a normal range but.....

    I am up until 5 am in the morning thinking....I drive myself nuts with insomnia.....sorry for the whining.....I could just run from myself......

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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited July 2008

    Made it through the 3-year anniversary of my surgery yesterday. Today went to Dana Farber to be with my sister during her second infusion. I met with the staff nutricionist so I can begin planning her menus. My sister wants to keep eating by mouth as long as possible. She will supplement with the feeding tube when that becomes neccessary, and eventually only the feeding tube will be possible.

    The lists I was given with protein contents of foods was really fascinating. Not at all what I expected. Thank goodness she has decided to begin eating some beef and fish. Can't imagine how we would manage to get to 100 grams a day otherwise.

    Finally, hoping that this hot and very humid weather will break soon. I am melting here in Boston. 

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  • sholroyd
    sholroyd Member Posts: 288
    edited July 2008

    Calico - needless to say we are all here for you to vent whenever you wish, need to - you have to be positive though and try and get a decent night's sleep even if you have to resort to help with this from time to time; things always seem at their worst when tired - will be with you at your next PET scan appointment so nothing would dare to show up!!!

    Susan - so much but I can see you now, cool as a cucumber and dealing with everything despite the heat - you're are a wonderful sister.  I am off to London again in September, with my 3 girlfriends as we do every year.  Hugs to you Susan xxxxxxxxxxx

    Hi Liezel, welcome back - what a shame about the camera, still can't erase memories though (shame we can't erase the bad ones) - glad you had a good time; sure Connor will have fun with his Ben10 watch - my grandsons talk about this, currently it is also some lego somethingorother they keep going on about.  They are coming to see me today and I am going to venture out first time post surgery for a small walk.

    I am marking some GCSE Science papers online at the moment so I had better get cracking - not doing them as quick as I would otherwise - my computer seat is the place I feel most comfortable currently - it supports the places that need it - mainly back and tum.

    Speak soon.

    Sandra from the UK.

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  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited July 2008

    Susan...

    It has been a long time since we had lunch..so much has happened to you since then, I am so sorry to hear all this news...sending hugs from San Diego

    SoCal 

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