new LCIS dx

Hi Tonya!



I am certainly no moderator! I try to handle a lot of my unusual health problems by trying to learn as much as I can about them. I think that replying to some of the newbies helps me deal with my own anxieties on some level. I read papers that some ILC women suggested.



I'm a hospital pharmacist, and many moons ago, had a few short term jobs as a research tech in biochemistry.



I think you have to be careful what sources you use to get information. While the information from a magazine aimed at the general public may be easy to read, it usually has been interpreted by someone who is not well trained about the disease, or science in general. (Obviously, breastcancer.org does not fit in this category.) Peer reviewed journals are in general the highest quality-this means that fellow researchers in the area have reviewed the articles and have 'passed muster'. (Some journals are NOT peer reviewed.) By reading the research articles, you also get to see what kind of data they use to come to their conclusion. You can see if their 'unusual' means 1 in 10, or 1 in 10,000, or 200 ever found, or if their conclusions are based on 30 patients.



I will like to learn more about E-cadherin because I was recently diagnosed with another disease that is often associated with E-cadherin negativity. I don't have a 'big picture' feeling about it yet, but I did see that some other cancers can loose their E-cadherin activity. E-cadherin is a protein found on the outside of (some) cells that allows cells to attach to each other (adhere). (I know cell biologists like to make bad jokes out of names they call things. For example, there is a protein that is associated with DNA called histones. Then they found proteins that were associated with the histones, and they called them hertones. Then they found other particles associated with these and called them---nu bodies.)



Gotta go. I am so glad that this forum is here for us to discuss the info we get from this uncertain disease, and how we deal with it.

Hi Misty,

Keeping you in my prayers for tomorrows MRI.  How soon will you have the results??

Bren

Misty--I always say "be not afraid, I go before you always" repeatedly in my head before every procedure; it helps me to stay centered and calm. Praying for God's peace for you

Anne 

I know this is a horribly anxious time for you. Hang in there. We'll be here for you no matter what happens.

Misty, I am so glad you have this MRI behind you. I sent you an email to your inbox (not through here) to check on you. Catch up with me. I have my MRI results. Still waiting on the re-excision to be scheduled. I see the surgeon on Thursday. Wow this has been going on for 3 months and still no conclusion. Chat soon!

Karen