Positive Girls Club

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  • Leeayn
    Leeayn Member Posts: 40
    edited May 2008

    Is there another way than to be positive?  :) 

    I'm often told how "Brave" I am to be going through the surgeries and chemo.  I don't feel brave at all, it's something that has to be done to live!  Like I tell them, I have 2 choices - I can crawl in the corner, cover up and stay there and not come out OR I can accept it and go on with my life.  Option one is not really an option in my case! 

    I know God is in control and he will not let me down. 

    I didn't want cancer, chemo and I don't want radiation, but ...  you have to play with the hand you are dealt!  I chose to deal with it in a positive way.  It could be so much worse, I have a 6% recurrence rate once all the chemo and radiation is done, I want to live to see my grandkids someday!  I will fight for my life, and what a fight it has been.  I call it my "Journey" rather than my battle with cancer.  Sounds more positive. 

    yes, I have been asked too if I was in denial, I'm too peppy and can laugh about it.  I have to be, I have a wonderful husband and 2 grown daughters and I have to be strong.  Oh now don't get me wrong, there are times I just break down and cry.  I cried when I went to get my 2nd round of chemo, I saw the building and just lost it.  I knew it was ok to cry.  I didn't get my chemo due to an infection and was a little bummed, but got over it.  Had to be positive, I'm alive! 

    Focus on the positive, you have to look for it at times, but it's there, just keep looking  :)

    Fighting Cancer with Dignity and Grace!

    <><  Keeping the Faith  <><

    www.caringbridge.org/visit/leeaynbyrd

  • dkmaustx
    dkmaustx Member Posts: 363
    edited May 2008

    Hi, Leeayn, and welcome. You seem to be handling this "journey" as well as you can. I got the "brave" speech from friends a few times over the past 18 months, and how I was an inspiration to them. It can be a hard role to live up to. Now that I'm almost 11 months out of chemo, I mostly get the "your hair is really growing" comments.

    There are days I feel like a brave inspiration to all my friends, and then I hear about someone who has survived for more than 20 years or had more complications than I did and realize that I have a long way to go.

    I think that life, even without BC, is too short to be a doom and gloom worry wart. I made a point to get out and do some of my regular routine throughout chemo and radiation. Keeping the "normal" activities in my life helped me to keep a positive outlook.

    Many of us check in Friday with something positive that happened that week. Please come back and tell about your week if you get the chance.

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited May 2008

    Leann, welcome to the club of positive attitude. I also had the positive attitude April 07 when I got the dreaded news. I just lied about the positive attitude from the start, at first I cried, then I said where do we go from here. I have had very good experiences with my doctors and surgeries. People have also told me that I am brave to face cancer with a smile on my face. My cancer was found early so the surgery took care of everything and no chemo or rads.

    Positive for me, Sunday will be my 1st anniversary from my bilat surgery. I have had the tattoos done by my ps in April 08, but looking to going to Asheville to a cosmetic pigmentologist to check out the tatts and see if she can adjust them any to look even better than they do now.

    I was on vacation last week and unable to post my positives. Last weekend we went to a Vanity Fair outlet and I actually bought 2 pocket books at the Liz Claiborne store on sale.

    Hope all stay positive.

    Sheila

  • dkmaustx
    dkmaustx Member Posts: 363
    edited June 2008

    Hi All,

    I don't have much to say this week except that I had a lovely weekend.

    Friday after my Water Aerobics class, my hubby and I went out for lunch at a local Italian place. After reading the description of Chicken Picata on the menu, I decided to get it. I did have to ask to waiter why there was no pasta mentioned with it. He said it was one of their low-carb items and, it didn't include pasta. Perfect for my new carb controlling ways.

    Then this morning, the regular yoga instructor had to leave and asked another one who happened to be in class to take over for her. The Sub did a great job. If her class wasn't at 6 am on Tuesdays, I'd probably try her class again. After class a lady came up to me and told how well she thought I was doing in class today. I certainly feel better since I started yoga, but it's nice for someone else to notice my progress.

    Have a good week and I hope you can stay out of the heat. Here in Austin, it's predicted to be in the upper 90s all this next week.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2008

    Hi Sheila and everyone!  Sorry Sheila, it has been awhile since we talked and I have been on group.  It has been such a long hard struggle with life in general.  And yes, I too had the appearance of positive, but I think it is normal, because I think generally we all are positive, but we all have the dumpy days.  Nights especially are hard for me.  Having multiple health issues doens't make it easier and lack of sleep is a basic contributor of depression and sadness.  My hubby and I always laugh because I can always tell when I am just plain tired...I start crying and intermixed with the tears and sobs are big yawns...then we laugh and I get some sleep.  I finished my herceptin tx. in April and go back for my first check up in a few weeks.  The mastecomy (right only) seems to have got the cancer.  Then my gall bladder acted up...ugh...but that seems to be under control.  But with summer heat coming it makes everything harder for me...I have post polio and fibromyalgia and while the PTSD and acute anxiety disorder is very much under control and I feel like I have my identity back, I struggle with loss of independence and that dern wheelchair is hard to adjust to...but i have picked lup my needlework with ferver, amgetting out more and just overall feeling much better...but those nights are still tough most of the time....

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited June 2008

    It has been a long week.

    We in NC are in the middle of another heat wave with no rain in sight. AC at house on the fritz, AC in the car on the fritz. not much positive going on with me.

    But it is FRIDAY!!!

    I have made it one year out from my surgery!

    Sheila

  • dkmaustx
    dkmaustx Member Posts: 363
    edited June 2008

    My positive for this week is similar to yours, Sheila. My refrigerator went on the fritz. We were able to find a new one on Friday, and it will be delivered on Sunday. Funny the fridges at the 3 stores we looked at were all about the same price, but we picked the one that could be delivered the soonest.

    Here in Austin we are getting the heat and very little rain. If it does wet the sidewalk with a bit of rain, it only raises the humidity, and it feels like a sauna outside.

    The visit to my primary care doc seemed to go alright on Tuesday, but they haven't called with any of the test results yet. This next week I have my Bone Density done and then I see the onocologist on the 17th.

    Take care all of you. See you next week.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2008

    My positive for the week is:

    Even though our spring has not completely sprung yet and it has been cool and rainy...I have been busy planting new plants and playing in my rose gardens...

    And the best of all???? last night I discovered my favorite rose has one perfect bloom!!!! of course I had to cut it and bring it in the house, it smells soooooo wonderful....my rose gardens will be bursting with color and smell soon as all of the bushes have tons of buds...I cant wait!!!

    Today is bright and sunny so will do yard work again, but this week wont take me so long...my riding lawn mower stopped working so have been mowing with a push mower (not that I cant use the excercise) but dang I have a 1/4 acre of grass to mow!!!!! took me all afternoon to mow....I bought a new rider this week so will only take me about an hour....

    I look forward to seeing many positives from everyone this coming week!!!!!

    Jule

  • lilgrace
    lilgrace Member Posts: 12
    edited June 2008

    I am new here... but I support the positive girls club.  I've had my breakdowns too...  I think though the worst is actually the reactions from others, how different they treat me when I'm the same person!   That makes me more upset than anything else.   I am me, I've always been, and I'm going to keep on going.   

    I am an artist, I have been painting since I was little, and so I have begun a painting now that I've had some sufficient time to recover and heal about how whole I feel in myself but how I see myself reflected in other people's faces.   How they expect the worst.   How de-humanizing that reaction is.   People see the cancer, not the person.  I'm not sure if we can post images like this, but I'd be happy to share my color study sketches if it is allowed.

    I think fighting this through my artwork has been the best way for me to recover emotionally.   The concept took 245 sketches for it to feel right - now I am ready to paint.   I hope you ladies are finding a good way to release those emotions and feelings to a loved one or by doing something you love.     

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited June 2008

    Lilgrace, glad you found a way to be positive during a very unpositive disease. I use my quilting and crocheting to help get through this. I crochet a fuzzy hat for the chemo patients in the area to wear to cover their bald heads, I did not need chemo.

    I have not posted in a while. Here in NC we are still in drought conditions, over the weekend we got a little rain but it was spotty, some areas got it and some areas didn't. I got to work on the mystery quilt this weekend that my quilt guild is handing out the directions a little at a time. It is looking interesting coming from someone who wants to have all their ducks in a row before starting any project.

    Sheila

  • lilgrace
    lilgrace Member Posts: 12
    edited June 2008

    Thank you Shiela.    I hope the drought breaks for you soon.

    I am still very reluctant to talk about it, but it is easier to say for me in painting.   I only have told a few close friends still...   but this way of expression suits me better.

    Sounds wonderful what you do - I did not have chemo either, which was a huge relief.  My hair was mid-back when I was dx on 01.17.2008..   I donated 15 inches before my lumpectomy.   I was glad I did that - made washing and care post op a lot easier.   I think we all find some little ways to give back, I feel very grateful for life and for what I have now, sometimes it takes a big moment to notice the small things.  I am still very young, and sometimes I worry about sexiness and those things, but my boyfriend has been so supportive throughout, I could not ask for a better partner to help me through this.   He makes me feel beautiful every day.

    If showing artworks like this is not allowed, I apologize...  but I feel like maybe this forum might understand my sketches better than anyone else.

    http://i81.photobucket.com/albums/j203/sillypaintbrush/BC_colorstudy_17.jpg

    I am painting this for me, and for any of you who may have felt the same way.   Courage on your journey, all of us are beautiful! 

  • pip57
    pip57 Member Posts: 12,401
    edited June 2008

    How have I missed this thread?  There are so many conversations about not being positive that I was starting to wonder what was wrong with me.  I am thankful for tamoxifen and femera and forgive the medical field for not making it se free. I did not like my chemo but am glad that it was an option. Radiation has its long term problems, but at least it is a lot better than it used to be. I have wonderful docs, and if I didn't, they would be gone.  It is what it is and I chose not to be miserable...except for those moments when the fear and doubt rear their ugly heads.  Then I express those emotions and get on with it.

     MissShapen, I am not at all surprised to find you here.

    Lilgrace, your painting is absolutely breath taking.  There are so many levels to it that I can relate to.  You are very, very talented.  Can we see more?

    Here is my positive for this week. I worked 4 days in a row and, although I am quite tired, I DID IT!  

  • lilgrace
    lilgrace Member Posts: 12
    edited June 2008

     Prettyinpink, congratulations!  I really hear you about the choosing part...   I let myself cry and be upset, mad at everything... and then take a big breath and force myself to see the good too.   See all the things that I am not going to miss out on that I now have a sense to be thankful for.

    I haven't talked about this online until now, I'm a little shy about it.  I worry a lot about people thinking I'm not capable of painting anymore.   My deviantART site is here..   http://mynti.deviantart.com.

    I will post the finished BC painting there when I have completed it :)   It may take me a month or six but I'm going to finish, I am determined to do this.

     Big hugs,

    Gracie 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2008

    Hi PIP!! How nice of you to greet me so! You're too kind. In fact, I've been neglecting my positive pals terribly! But I'm back!! :-) Pink, I am so glad to see you here... your attitude sounds very much like mine. I try to take life as it comes and face it head on. I'm a very positive person, but of course I have my times where I sit and bawl my eyes out, too. After I get done crying, I brush myself off and find something amusing to carry on with.... Life is a gift and I don't want to waste the days I have being mopey! ;-)

    gracie, welcome to the PGC! Your painting is awesome!! I love, love, love it!! So insightful and profound. You are so talented and have so much to share. I am so glad you found us! Thanks so much for sharing that painting.

    Sheila, we're getting lots of rain right above you in Virginia. Maybe you need to work a little bit harder on that rain dance. ;)

    Jule, congrats on the NED news. That's always a relief!

     So... my positives: 1.Work went really well tonight and I had anticipated a very rough night.

    2. I have company coming this weekend which forced me to drag all my recycle junk out to the curb. LOL

    LOL  Love to you all!!

     Miss S

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited June 2008

    It actually is the Bermuda high off the coast that is pushing all the rain to the north into Va. We have been in an extreme or exceptional drought for almost a year. In April, we thought that we were going to get a break, we had rain 4 or 5 weekends in a row but May came along with record high temps and no rain. they got some rain yesterday in Charlotte but none here in the Foothills. When we were having all that rain I couldn't get anyone to mow my grass, I finally got somebody to mow 2 weeks ago, now it is dried up and brown.

    I do have another sort of positive, my son, who signed up in 2004 for 6 yrs in the Navy will be coming home in the fall for good. He has injured his knee and failed the PRT (Physical required training) and the weigh in, because of that they will be releasing him from his contract 1.5 yrs early with an honorable discharge. Since he has been in 4 yrs he also will get his GI benefits.

    Sheila

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2008

    Wow Sheila,

    Im sorry to hear he is hurt but glad to hear he will be closer to home with you....

    Its done the normal weather thing here but a little worse than usual this year....it keeps going from 60-70 degree weather to 80-90 degree over night, then we wake one morning and we are getting rained on....no happy medium right now...

    I was hoping it would stay a little on the cooler side for a couple more weeks as my white roses are in full bloom. I have had them for about 10 years and have never been able to cut a bouquet of them because as the petals begin to open the weather hits the high temps and turns them brown on the edges....this year I thought I might just get one bouquet but nope, weather has its own ideas....

    Hope everyone is having a wonderful week....Im at work already this morning so need to actually do what they pay me for so will check back a little later...

    Jule

  • jrp
    jrp Member Posts: 21
    edited June 2008

    Hi,

    So glad to hear about someone else enjoying their garden -- good luck on those white roses.  Now if I can just keep the gypsy moth infestation at bay this summer - that is, before the Japanese beetles come in.  OK, enough of that.  Yesterday, I picked my first black raspberries from a bed I established last summer.  YUM!  There is such peace in grazing through the berry patch each morning for my breakfast.  Food for my soul.  If anyone is interested in reading a book written by someone who really loved the garden refuge she created around her home, please pick up the following book by Dominique Browning, "Paths of Desire, The Passions of a Suburban Gardener."

    Enjoy your day!!

    Jan

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited June 2008

    Jule, John was active in soccer since he was 8 or 9 and played middle and high school soccer. While in High school, his knee would get sore and he would wear an ace wrap on it. About a year ago his knee started hurting when he had to climb the mast to work on the equipment at the top, the doctor wanted him to do therapy but they were getting ready for deployment and no time for therapy. He tried to exercise on the elliptical machines and exercise bikes while on deployment, but his knee hurt when he put on the resistance. He did pass the push-ups and sit-ups but failed the 2 mile run. The new doctor on the ship would not work with him to get him a medical waver for the bad knee that would forgive his pt and weight. He is checking into a security job here locally with a friend who is in the National Guard as an MP.

    I also need to get back to what they pay me to do at work.

    Sheila

  • lilgrace
    lilgrace Member Posts: 12
    edited June 2008

     Miss S - thank you.   I hope the finished piece will be my best work I've done yet.   I want to show I am still capable of painting and improving my techniques. 

    Sheila - I hope your son makes it home safe and recovers well from his injury.

     Jule - make sure not to prune your rose leaves at all during the summer heat.   They use fuel much faster in hotter weather.   To keep from burning on the edges you might try shading them during the hottest part of the day when the sun is glaring down and have someone mist the leaves with some water at late afternoon/evening to give the petals and leaves some humidity.  Humidity around the leaves also deters mites and aphids from arriving on your rose bush when it's dry weather.  Don't mist during the day though.   It can burn the leaves.    My mom is a horticulturalist and I guess I picked up a fair bit from her.   Hehe.    The other trick you can do that is a lot easier than all that is to cut the white roses before they've fully opened up and put them in a vase of water with a bit of plant food.   They'll open up in your house out of direct sun, and probably not get the brown edges. 

  • dkmaustx
    dkmaustx Member Posts: 363
    edited June 2008

    Hi and welcome to the new posters. My check up with my med oncololgist went well on June 17, but when I told him how much my back had been hurting he decided to send me for a Total Bone Scan. I get that tomorrow.  My Bone Density on June 10 was well within the normal range. I couldn't remember my exact height, though. When at the oncologist, I had the med asst measure me, and I was a half inch taller than I remembered. Since I'm not shrinking, I guess I WON'T worry about losing bone density. Ah, the fun of taking Aromasin.

    I feeling much better today after my massage. My therapist really worked out the kinks and aches I've been having the past few weeks. I'll be glad to have the bone scan over and done with so maybe the doc will give something for when the pain flares up.

    Gracie, that was a moving picture that you painted. Keep up the beautiful work.

    Sheila, I sure you'll be happy to have your son home for good. I'm sorry that it's his injury that's making it possible.

    Jule, I hear you on the weather. We've been High and Dry here for a couple of months now. The weather forecasters just tease us by putting in 10-20% chances of rain some days. I expect it to cool off sometime around October or November. What a diifference a year makes. Last year at this time we were having floods in nearby towns.

    Catch you later.

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited June 2008

    How are all the positive girls doing this week? Debbie glad to hear that your bone density is good. They discussed removing my ovaries but because of previous spine surgery, they want to keep my ovaries in as long as possible to prevent bone loss, just frequent tests for oc.

    Jule, I know about the weather, we are in another dry summer. Last summer through the winter we were in an exceptional drought, this past spring we got rain every weekend for about 5 weekends in a row that took us out of the exceptional range to the severe range but the rains stopped in May. we are back in exceptional drought again. Have had a few hit/miss showers, mostly missing my area.

    I went back to my ps for the followup after my last tattoo session and he said it was time for the 'after picts' then he said that he wants to put my case photos (before and after) in his album that they show new patients going through bc. Of course I said yes to putting them int the case album. If my successful reconstruction helps others decide what to do when going through the same thing, I think that it is great.

    Sheila

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2008

    Happy 4th of July to all you PG out there. I hope everyone had fun celebrating and took some time to say a prayer for our men and women who are serving/have served in the armed forces!

    My positive this week was getting recognized at work for doing an excellent job during a big transition period (talk about who moved my cheese!). Anyway, my company held my position for me for 8 months last year while I got 4 surgeries, multiple biopsies and scans, chemo, and rads. I am very grateful to them and it makes me feel good to know I can pay them back by doing good work. I'm thankful that my cancer tx did not disable me to the point of being unable to perform adequately at work. I know that definitely happens sometimes.

    I hope everyone has a great weekend!!

    Miss S

  • pip57
    pip57 Member Posts: 12,401
    edited July 2008

    I hope all of you American girls are having a fun holiday weekend.  We had ours in Canada last weekend and, now that the kids have grown, we didn't  participate in the celebrations like we used to.

    My positive for this week is that the weather was perfect and I got to spend time on my beloved front porch. It is so calming for me to sit in my wicker rocker, listening to the birds and watching the wind blowing through the tree tops.  An occasional snort from the grazing horses and the neighbors' kids laughing in the distance and I feel that all is well.

    I hope all is well with everyone else. 

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited July 2008

    I had a good 4th of July. We went to my mil's house for lunch and swimming. Then that evening we went to the local mall to view the community fireworks and got home and some of my neighbors had fired off personal fireworks and scared my poor dog. When we got home she was a nervous wreck. Bassett's are prone to slobber especially when upset and her whole lower jaw to her collar was wet.

    We had some showers through the weekend but it was good considering we are experiencing exceptional drought conditions.

    My ps has given me the ok to only see him once a year and I visited a 'local' (75 miles away) cosmetic tattoo artist last week and she is correcting the color on my areola's that I didn't like from the ps office. so I had a great week last week.

    Sheila

  • Gorilla12
    Gorilla12 Member Posts: 63
    edited July 2008

    Hi All,

    Today is my 44th birthday and in two more days it will be 3 years since I beat this beast!!!! I was triple negative. Just wanted to share some good news Cool

    Take care!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2008

    Gorilla

    HAPPY B-DAY!!!!!!!! and of course, HAPPY CANCERVERSARY!!!!!!!!!!!!!!!!!!!!!!!

    It is so wonderful to hear good things like this...

    I know its not Friday but since Ive missed the last couple of them Im going to post today.

    My positives for the last few weeks:

    1) Spring has finally sprung here and summer ROARED in....our temps went from rainy 70's to HOT, HOT, HOT - 90's to 100 degrees + almost over night!!!

    2) my roses are blooming and absolutely beautiful.

    3) David and I have been seeing each other for a couple of months now and things are progressing to new levels between us daily. Such a wonderful man!!!! I sure wish I had him around when I was going through tx...he is the most understanding guy I've ever met!!!!

    4) Our usual 4th of July family get together was held at someone else's house this year......YE HAW!!!! Ive done it for the last few years so was nice to have the break. The 4th is a huge event for my family so it grows to as many at 60-70 people when you count adults and kids!!!!

    Gotta run.

    Hugs to everyone and its wonderful to see so many great positives for everyone this past couple of weeks and more wonderful to see new ladies joining us here!!!

    Hugs to all

    Jule

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited July 2008

    gorilla - i echo Jule - Happy B-day and Happy Cancerversary!

    We like to share good news. My new areolas are healing nicely and look better. she (makeupchicknc)  said that when she is finished they will look 'fabulous'

    Sheila

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2008

    WTG gorilla~! congrats~!

    Miss S

  • dkmaustx
    dkmaustx Member Posts: 363
    edited July 2008

    Hi to all of you, sorry it's been a while since I posted. I've had some positives over the past couple of weeks.

    July 2 marked one year since I finished chemo, and on July 9 I got my first real hair cut. The stylist basically shaped up the style without taking too much off the top and sides. Today I blowed it dry and styled it myself. It looks really nice.

    The Total Bone Scan showed that I have arthritis nearly everywhere but no worries about spreading cancer. The onc gave me a prescription for pain meds when I need them. Already my back seems to be relaxing a bit.

    In about a week I'll be meeting some of the ladies from my Chemo thread in person. We have a little schedule of who is meeting who and the hugs we'll be giving and receiving. I can hardly wait to see all of them.

    Take care and I check back.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2008

    Sure is quiet around here!!!!! You all do know that Friday is tomorrow dont chya????

    My positives:

    Wow, Im not sure I can list them all!!!

    My man and I are going to look at a property tonight...Ive always wanted to live in the area and this place is just about as perfect as we can get for us.....much excitement going!!!!!!!!!!!

    I get to play with my 4 month old nephew today after work....Ive only seen him once and he is about the cutiest thing on this earth!!!!

    Two of my grandkids will be coming to stay the night with me Friday night.....my granddaughter is 9 yrs old and such a sweet thing!!!! David (my man) had to go out of town for the next couple of weeks so is only home a day or two at a time....Lily (my granddaughter) called earlier this week and said that she knows Im sad & lonely with David gone so she was volunteering to come stay with me so I wont be lonely.....My daughter said I have "sucker" stamped on my forehead....she said the entire time Lily was talking to me and telling me how sad she is that Im lonely she had that Cheshire Cat grin on her face.....what a gem that little girl is!!!!!!!

    Well, gotta run as Im at work this morning but look forward to coming back and seeing whats going on with you all...I didn have time to read but will do it soon to check on you.

    Hugs

    Jule

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