35, double mastectomy with reconstruction

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Christy530
Christy530 Member Posts: 11
edited June 2014 in Young With Breast Cancer
35, double mastectomy with reconstruction

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  • Christy530
    Christy530 Member Posts: 11
    edited April 2008

    Hi everyone! Just looking for someone to talk to who understands what I am going through.  I am 35 was diagnosed about 7 weeks ago and am 1 week post surgery.  I had a double mastectomy with a bilateral tram reconstruction.

    I have 2 children-ages 5 and 3. 

    I see the doctor again on Thursday to discuss the chemo options....

    Having a lot of emotions and feelings currently. Looking to talk to someone who is in the same age bracket who has had the same things done and knows what I'm going through.

    Thanks


    Christy

  • rdawud
    rdawud Member Posts: 52
    edited April 2008

    Hi Christy,



    I'm also 35 and was diagnosed in Jan.08. I had a Mastectomy in Feb 08 with immediate reconstruction. I have two kids 11 and 5. I know exactly what you are feeling.





    Ro

  • rdawud
    rdawud Member Posts: 52
    edited April 2008

    Christy,





    Please feel free to ask questions. I hope I can help.





    Ro

  • suebee92
    suebee92 Member Posts: 85
    edited April 2008

    Hi Christy! I'm 34 and was diagnosed two weeks before my birthday. Feb. 1st and I have a 13 yr. old and a 8yr old. Had my bilateral mastectomy with tissue expanders on March 24th. Four weeks out and feeling better with the whole thing. It's hard to express what your going through and family and friends are great but only others who have been through it really understand. Just keep your head up and a smile on your face. It'll be okay! Everyone has fears of the unknown but you just have to believe.

  • mplscello
    mplscello Member Posts: 50
    edited April 2008

    Hi!

    I was diagnosed right around my 35th birthday, no tram but double mastectomy with silicone implants.  I had 4 rounds of A/C chemo and 12 rounds of Taxol, and radiation.

    That was over 6 years ago, and now I'm 41 and happily married with a 9-month-old daughter.

    I can't relate to your having kids while going through treatment, but I'm happy to listen or help any way I can!

    take care,

    LeeAnn

  • joykeeperorg
    joykeeperorg Member Posts: 154
    edited May 2008

    Hello I was dx at 23 last year in Aug. I dont have kids Frown yet but hopefully one day I will be blessed with a lil one. I had a bi lat mast no recon cause of radiation so I have to wait til about the end of this year next year to start to think about it. I did dose dense chemo (every 2 wks). I wish you the best of luck! Keeping the fight up for you and your family take care! Im here to listen! No matter what!

  • mbpetit
    mbpetit Member Posts: 66
    edited May 2008

    Hi Christy -

    I am 38 and was dx in nov. 2007.  I have a 5-year old daughter.  Hang in there.  My main concern when I was first diagnosed was my daughter and not being able to care for her, or what to do when I lost my hair.  Kids are so adaptable though...it is unbelievable.  She has handled things so well.

    Good luck at your appt.  I had dose-dense chemo that just ended in April (HOORAY)  I had 4 rounds of A/C and then 4 rounds of Taxol and started Herceptin infusions every 3 weeks for a year...damn HER2 +.

    If you have any questions let me know...this board is a great resource full of wonderful and knowledgeable people. 

  • nash
    nash Member Posts: 2,600
    edited May 2008

    Hi, Christy. I was diagnosed at age 38, when my kids were 8 and 5. Got through surgery, chemo and rads and now am on tamoxifen. Through all this, my stage IV bc mom was living with us, so the kids were dragged to the cancer center an awful lot. She passed away in February, right when I was finishing up radiation. As horrible as the past year has been, I have to say things are starting to settle back down now, and I'm starting to see glimpses of my nice, boring, suburban mother life starting to come back. I'm sure the same will happen for you. You've come to a great place for support--let us know what the onc said about chemo for you.

  • mom2sgk
    mom2sgk Member Posts: 1
    edited May 2008

    I am 35 diagnosed Nov 07. Had 20 weeks chemo to shrink the cancer before surgery; 4 A/C 12 weekly taxol. Had lumpectomy 5/12. Margins clear of cancer but not pre-cancer cells. Now may be having double mastectomy due to finding calcifications on the other side (waiting for pathology from biopsy). I handled the chemo very well with very little nausea.

  • PaminFL
    PaminFL Member Posts: 231
    edited February 2010

    Hi.  I'm 35 and was just dx in May.  I have 2 boys ages 5 years and 9 months old.  I found my lump while breastfeeding my 9 mnth old and was diagnosed as having mastitis.  Over the course of the next 6 months I visited the same doc 4 times and my concerns were brushed aside.  Finally the last visit I demanded a referal for a mamogram.... and needless to say... here I am.  I just don't understand.  Ive always been healthy and I'm fit (in the gym 5 x's a week).  No cancers/illnesses run in my family, other than an aunt who was dx last year at age 72 (no masect. or chemo... just rads).  I've read that "breast cancer does not discriminate" and that couldn't be a more true statement.  I am just starting this long journey and very scared.  I have seen so many posts from so many truly amazing women on this site who sound so strong... I can only hope to have half the strenth that they have.  So far all I know is that mine is IDC stage 2 grade 3 with negitive (receptors?) positive node.  I will have to do chemo, then double masectomy, then radiation.  (They are talking about doing the reconstruction once I finish my rads.)  I get my port in tommorrow morning.  They are also doing a 2nd core biopsy.  (I transferred to a better cancer center and the specimens of the slides the other cancer center sent were "crushed and poorly preserved".  Also, they didn't even send a slide over showing the positive node.... now do you see why I changed cancer centers???).  I have had the worst luck with doctors since the begining of this ordeal.  However, the team of doctors that I'm being treated by now are a wonderful group and I feel very comfortable (as comfortable as one could feel in this situation) with them.  I see alot of the posts on this thread are a few months old and I'm wondering how all of you are coming along.  Keep us updated.  Best of luck to you all.   ((((( HUGS ))))    

  • kelty
    kelty Member Posts: 80
    edited January 2009

    hi, I'm also 35 and diagnosed of  grade 3 IDC on 01/06/2009. I have a 3 month baby son and a toddler daughter who's almost 3 yrs old.  My mastectomy is scheduled on 01/16/2009 and then the doctors will meet and decide what type of treatment I should go through. I'm very nervous right now since some of the test results are not back yet.  But I'm glad to find this group. Your guys give me hope and courage to face whatever is ahead.

  • amysmom
    amysmom Member Posts: 2
    edited January 2009

    kelty- hang in there.....I was diagnosed 9/07 age 36 with grade 3 IDC, stage 2.  ER+, Her2 +.  I had mastectomy, chemo and radiation and 1 yr total of Herceptin.  It is an emotional rollercoaster but on that gets easier to deal with.  I pray a LOT when I have my bad moments!!  Oh - I also had a 2 yr old when diagnosed!  That was probably the toughest part!!  If you have any questions let me know!!  Good luck!

  • Auddie1
    Auddie1 Member Posts: 5
    edited January 2009

    Hello! I was 33 when diagnosed with grade 3 IDC, ER+, PR+, Her2+ as well, in Dec. '07.  I had chemo, then bilateral masectomy, then radiation and about to finish my year of Herceptin - which makes me very nervous...  It is a rollercoaster, but as amysmom said, it gets easier to deal with as time goes on. I found that, for better or worse, once I was into treatment and it became something regular, I felt a lot more normal, less scared. Part of it was everything wasn't so new, part of it was I felt I was actually doing something to battle the cancer.  My children were 4, 18mos and 18 mos when I was diagnosed. I remember the hardest part of that day was that I didn't want to go home and see them, I couldn't look at them and face what I could lose. But I did, and they and my husband really kept me going. Kids are great - tiring, but wonderful - during all of this - the fact that the first time my kids saw me without my hair they noticed, said cool, and then we went on with life - that made me feel good.

  • lexislove
    lexislove Member Posts: 2,645
    edited January 2009

    Hello all!

    I'm 31, married and have a 3 year old daughter. I was diagnosed when I was 30 and my daughter was just about to turn 2. I have finished all my treatment including Herceptin on Nov 17 2008.

    I've had my port out.. * thank god * and I am continuing with Tamoxifen, Lupron and Zometa.

    I'm glad to see I'm not alone in all of this.

    Auddie1, Congrats on almost completing the Herceptin. I was nervous too about finishing, but you'll see when you don't go back untill your 3 month check up you get thrown back into "mommy hood" and the fear lessens. As hard as it was to have gone through all this with a toddler, looking back I don't know what I would have done without her. She kept me in a routine and not to focus so much on the treatment ect. I just had my 1st, 3 month check yesterday. Nervous YES! But so happy when I walked out those doors. You will be ok too Smile

  • Auddie1
    Auddie1 Member Posts: 5
    edited January 2009

    Thanks lexislove! The idea of those 3 mos check-up is kind of driving me crazy right now - I know that every time, even if I'm not suspecting anything - well I guess we all face that and just have to go in and do it, and as you said, it will feel so good to walk out the doors of the cancer center and not have to go back for awhile. Even three months will seem like a break although I'm currently just going every 3 weeks for the Herceptin.  I am still contemplating getting my port taken out once the Herceptin is done - I HATE needles and though I might keep it in since there will still be the 3 mos blood tests.  It doesn't bother me much now  (except when one of my kids is climbing over me and accidentally hits me right where it is!) but you sound so relieved to have it out - maybe I'll reconsider. 

    I also had my ovaries removed when they did my mascetomy, so I'm on Femara now. I see you are taking Zometa - I have been talking to my onc about prescribing it given the latest news that's come out, but she still says no, it's not "standard" yet....

  • kathya
    kathya Member Posts: 9
    edited January 2009

    Hi, all.  I was 37 with a 7 year old and 4 year old twins when I was diagnosed with Stage IIIA breast cancer.  I had chemo, a bone marrow transplant as part of a clinical trial, radiation, bilateral mastectomies with TRAM reconstruction, radiation, and 10 years of Tamaoxifen and femara.  10 years later I'm here, with my kids in high school and no evidence of disease.  See?  There is hope!  Kathy

  • lexislove
    lexislove Member Posts: 2,645
    edited January 2009

    Thanks Kathya!!!

    Love to hear those stories! You give us all hope!Smile

  • kelty
    kelty Member Posts: 80
    edited January 2009

    Kathy, Thanks for sharing your story!

  • jac3
    jac3 Member Posts: 4
    edited January 2009

    I was 25 when I found out I had breast cancer. I am now 31 and doing great. I had some really hard days, but had a wonder family for support. My husband went with me for all of my appts and asked the questions I was afraid to ask. Keep your chin up and remember that a bubble bath and a book can turn a bad day into a great day.

  • Auddie1
    Auddie1 Member Posts: 5
    edited January 2009

    Wow - thanks Kathya - that is inspiring!  It's hard to remember that it is possible to just move on forward with this, it's so easy to let the fear and anxiety take over. So thanks for sharing and helping us to remember that there is hope.

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