The Chemosabe March Cruise

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  • Keenie
    Keenie Member Posts: 258
    edited May 2008

    Hi all,

    Hope everyone is feeling well. My DD and I just got back from a long weekend of shopping in the USA. Very fun and bargains to boot!



    Nancy, I feel so badly for your friend. Those chemo drugs are just so nasty and I hope the docs figure out how to make things better. I agree that we're all so blessed to be better than a year ago. I'm going for my second real hair cut tomorrow. I can't believe it.

    Lots of prayers for all!

    Christine ;-)

  • Keenie
    Keenie Member Posts: 258
    edited May 2008

    Hi all,

    Hope everyone is feeling well. My DD and I just got back from a long weekend of shopping in the USA. Very fun and bargains to boot!



    Nancy, I feel so badly for your friend. Those chemo drugs are just so nasty and I hope the docs figure out how to make things better. I agree that we're all so blessed to be better than a year ago. I'm going for my second real hair cut tomorrow. I can't believe it.

    Lots of prayers for all!

    Christine ;-)

  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited May 2008

    Christine...glad you had fun and found so many bargains in the USA!  Good luck with the hair cut.

    Nancy

  • LisaSDCA
    LisaSDCA Member Posts: 2,230
    edited May 2008

    Hi Chemosabe sisters - I read along with you all on this thread and enjoy those of you who post elsewhere, but I know it's been a long time since I checked in. Not since Jaque died - for my own silly reasons. But this day I have some news that my March sisters will understand better than most.

    For the first time since my diagnosis in Jan., 2007 I can feel sure I am NED. My HMO doesn't do any scans at initial staging nor any after chemo. Due to some annoying and persistent symptoms, my onc. finally ordered one that was done on Monday.My PET/CT scan results just came in. NORMAL - NO EVIDENCE OF DISEASE  This is so wonderful. Now I know the chemo worked. If I can do it for two more years I will have a really good chance of outliving this. Triple negative breast cancer is very high risk in the first three years, and BRCA-1+ in the first two years even more so. So now I know I have made it so far, so good. I actually feel I can let go of cancer fear for a year at least. That I can have some confidence again in my body. Does that make any sense?

    Hugs to all,

    Lisa

  • maxgirl
    maxgirl Member Posts: 407
    edited May 2008

    Lisa: Wonderful news about the all-clear!!  That's so nice to have it off your shoulders and mind for a good time to come.  Congratulations! 

    I can relate on the triple neg feelings of threat. My HMO doesn't do PET scans either, but since they test to a fare-thee-well when I have any symptoms, I guess I'm getting scanned part by part.  

    Keenie: Sounds like a fun shopping trip.  I wonder how many people around the world go to other countries to go shopping?

    Congrats on the second haircut!  Mine has been trimmed twice, but it's still pretty disappointing on top.  I might get a pixie cut just so I'll have some style and not just a badly grown out mop. 

    Nancy:  I'm so sorry about your friend.  I don't know what you can do to get him to be more pro-active about his medical care.  It seems to be a matter of temperament.  Some people get too anxious to hear any medical details, but maybe knowing that he doesn't have to suffer will motivate him.   

  • marshabel
    marshabel Member Posts: 142
    edited May 2008

    WOOHOOOO FOR YOU, LISA!!!!!!!

    Get busy and do some relaxing, girl!   I suggest a vacation, a REAL cruise, etc.  Really, I'm so happy for ya!

    Marsha 

  • Keenie
    Keenie Member Posts: 258
    edited May 2008

    Lisa! Awesome news! What a blessing for you to be able to relax and enjoy your good health and not be fearful. It makes perfect sense to me! I'm not Triple Neg and I still have days of worry, so you must have been under considerable stress. And I like Marsha's idea of a real cruise. A totally great idea.



    And as far as our shopping trip went, we were just trying to bolster the US economy a bit. ;-) We Canadians have always enjoyed visiting the stores you guys have that we don't. Like Super Target. Oh my goodness! We spent 3 hours in there.



    Enjoy your week, girls. You get a holiday next week, right?!

    Christine ;-)

  • marshabel
    marshabel Member Posts: 142
    edited May 2008

    Christine - yes, we like our Super Target!Laughing Thanks for the well wishes, too!

    Marsha 

  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited May 2008

    Lisa, I'm so happy for you and I agree---do something really special for yourself.  Celebrate!!!!

    Christine, you are so right Super Target----great!!!

  • rosebud1962
    rosebud1962 Member Posts: 196
    edited May 2008

    We just love those three little letters..N.E.D!  Congrads Lisa now you can get on with it..life.  Cool

    Nancy, I am sorry for your friend and I hope he starts to feel better soon.  Some people are just not ready for information on their cancer and bury their head in sand and hope it goes away.  I know I did.  It took me about a month to come to terms with this and I still didn't ask questions.  You ladys would write down to the exact letter what you had and I couldn't even remember what I had.  I just didn't want to.  It's a hard thing to let go and say you are in this kind of  situation and try as you might, unless they except it, they won't take much help.  I know I didn't.

  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited May 2008

    Thanks Rosebud for your comments...you are probably right on the money.  I'm sure his doctors are doing everything they can and I'll just have to be here if they need me.  I guess that it is all a crap shoot anyway.

    Marsha...how are you doing?  Still doing chemo?  My prayers are with you.

    Nancy

  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited May 2008

    Hope everyone has a wonderful Memorial Day Weekend!!!!

    Booked that cruise yet Lisa?

  • Angelflight
    Angelflight Member Posts: 163
    edited May 2008

    Keenie,

    I'm glad you and the DD had a nice time on your shopping trip.  Nothing like spending a little $$$ to help the soul......lol 

    Nancy,

    I know the feeling you're going through with the friend.  My friend and her mother both are being totally casual about this whole thing.  I can't seem to shake them up to get educated about this.

    Meanwhile Kaiser has been waiting for the Her2 test results from the friends mast. surgery almost 3 months ago.  We've been to the oncologist appt. already 2 times and it wasn't ready.  He told the daughter to follow up with the Dr. and see what's the hold up.  She told me last week we have an appt. on the 29th.  I said "did they get the results back yet?"  She hadn't even bothered to check on it.  They are wanting to start her chemo but Kaiser is dragging their feet and they don't seem to be concerned.  In fact the girlfriend is leaving for 2 weeks vacation and said she'd deal with it when they came back.................is she insane or what???????????? 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2008

    Wow, I blinked a couple of times and there are two whole pages of stuff!

    Lisa, congrats! I am so happy to hear that you are NED. Yes, I agree, you can finally exhale and get back to life for a while. I had my PET in Dec, because my onc didn't want me to have to pay (hee) and I was so happy when mine came back clear! I'm so glad you shared this with us.

    Keenie and maxie - two haircuts already??? Wow! I need a haircut... I'm looking a bit like a redneck. :-) It's definitely my first and I only need one because chemo fried my hair and my bangs (only) are a frizzy bush!

    Marsha, how are you holding up through your treatments? I think of you all the time and pray for you. I hope you're not getting very many SE.

    Nancy, it's good to see you. Sorry about your friends. I have a work friend whose husband just had whole brain radiation. Eek! Wicked stuff. Cancer seems to be all around us.

    Good to see you, too, angel and rosebud. It does seem surreal to think we were all getting chemo a year ago and helping each other through the rotten symptoms. Has anyone ever heard from Dawn?

    I post some on the Moving Beyond thread and Humor and Games. I'm drawn here even though I don't see my favorite chemo friends very often. Please take care of yourselves.

    Love you all,

    Miss S

  • Keenie
    Keenie Member Posts: 258
    edited May 2008

    Hi Angel,

    I think getting the dx of cancer affects people so differently. I have two friends who are survivors and they both were very helpful to me, sharing information about their tx, and recommending stuff to read. I am one of those people who went on-line and to the book store to get as much information as I could. And I found this awesome site, too. Of course, there were times when I just couldn't read anymore - it was scaring me and making me more nervous. A friend of my sis-in-law has pretty much done the minimal tx for her bc - no chemo, just rads - and her dx was very similar to mine. I wanted to have all the tx I could to kick cancer's butt. I think knowledge is power. Plus I'm a huge control freak. That's part of the lesson of bc for me. Let go and let God take it. Still learning. . .

    Happy Long Weekend, American Sisters!

    Christine ;-)

  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited May 2008

    Found us on page 3.

    I wanted to recommend a book, The Middle Place by Kelly Corrigan.  As she calls it "that silver time when parenthood and childhood overlap".  She is a young mother who finds she has breast cancer and then her father is diagnosed with cancer.  She has quite a sense of humor.  She has a web site, www.CircusofCancer.org, where you can see her read some of the excerpts from the book.  Hope you enjoy, I did.

    Nancy

  • Keenie
    Keenie Member Posts: 258
    edited June 2008

    Hi,

    We're on page 3, so I'm going to post a funny story from Kindergarten.



    Brennen, who is very cute and very "5 years old", said to me, Mrs. L., do you do your hair everyday?

    I said, yes, I do it everyday - don't you think it looks like it?

    Brennen looks at me sideways and says, not so much.



    I had to smile. My hair has really grown since the beginning of the school year and it's pretty curly, so maybe I need to spend a bit more time on it. To keep Brennen happy.

    Hope everyone is well!

    Christine ;-)

  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited June 2008

    Christine, love your hair story....I used to love that show "Kids Say the Darndest Things".  If you ever need an Albert Einestein look alike for your class let me know because my hair looks just like his.  Brennen would have alot to say, lol.

    Hope you have a good weekend,

    Nancy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2008

    LOL you guys are cracking me up. My hair looks okay, except right smack in the middle of the front. There my hair is thin, fly-away, and frizzy. I use gel, mousse, spray, etc, but still I see a frizzy poof whenever I look in the mirror. So, I look like Albert's sister.

    Miss S

    PS thanks for the book recommendation, Nancy. Looks really good!

  • Keenie
    Keenie Member Posts: 258
    edited June 2008

    Well, I guess we need to thankful we have hair to do. Well, I try to look like I've done my hair ;-)

    I'm going for my next check up on Friday and I have to admit, I'm a little stressed. I guess it won't ever be the same. My hip has been sore too, and so I've got all these nagging thoughts in my head. Need to give it over to the Lord and settle down.

    Hope everyone has a great week,

    Christine ;-)

  • maxgirl
    maxgirl Member Posts: 407
    edited June 2008

    Christine:  Ack -- another wait for the all clear -- it certainly takes a toll on the nervous system, doesn't it?  In those anxious moments, I try to tune in to the energy from all the people I love who are praying and pulling for me.

    Love the Brennan story! 

    MissS: The front of your hair sounds like mine. The rest of it looks OK, but the top is pathetic.  I got it colored and the gray didn't pick up the color too well -- the stylist blamed the chemo. 

    Nancy: Thanks for the book recommendation -- I'll check it out. 

  • marshabel
    marshabel Member Posts: 142
    edited June 2008

    That's it!  Albert Einstein! And here I thought I looked like Doc Brown in "Back to the Future."

    Marsha 

  • playwriter
    playwriter Member Posts: 316
    edited June 2008

    hi guys, just checking in. had a m'gram and a BSGI on Wednesday. M'gram was clear, PTL, but BSGI showed something on the right breast, and the radiologist ordered an MRI, which i'll have on hte 24th. the nurse says it's probably a fibroidenoma or scarring from my tx, but better safe than sorry.

  • playwriter
    playwriter Member Posts: 316
    edited June 2008

    lisa, congrats on the NED! that's such a great feeling! it's nice to hear from y'all.

    sorry i don't post more. i do think about y'all and hope you're doing well. i heard from Bettye a few weeks ago. she was in houston for a checkup, and was doing well.

  • playwriter
    playwriter Member Posts: 316
    edited June 2008

    my funny kindergartener story:

    my DD2 just graduated from kinder, and a few months into the school year, i was hanging out in the classroom, because it was DD2's turn to bring snacks, and i'd delivered them for her. i told one of the boys, "You know, I used to have long hair like your teacher." He looks at me disbelievingly. "But," I say, "mine is growing back, see?" And I lift my ball cap to show him my crew cut. He looks at me consideringly, and says, "You look better with the hat."

  • playwriter
    playwriter Member Posts: 316
    edited June 2008

    Do y'all add your favorite conversations to your home page on breastcancer.org? that's what i've done, so after i log in, i click on "my home page", and this thread is listed, among others. very easy to access.

  • maxgirl
    maxgirl Member Posts: 407
    edited June 2008

    Funny story, playwriter! Laughing 

    Hope your next test gives you the all-clear, too.  It may be chemo brain, but I don't remember seeing BSGI  before.

    Thanks for the tip on the home page -- that will save me a lot of hunting.

    Having a lazy day when I really shouldn't... 

  • Keenie
    Keenie Member Posts: 258
    edited June 2008

    Hi Terri,

    Nice to hear from you. Love the hair story from Kinderland. We'll be praying for you on the 24th. What is BSGI?



    I had my 6 month check up at the doc yesterday and both my breasts and lymphs are clear. I'll have another Mammo and Ultrasound in December. He was thorough! He's my neighbour as well as my doc, so we always laugh about him "feeling my up" every 6 months. Luckily, I'm also friends with his wife!



    Hope everyone enjoys the weekend. I'll be doing report cards, cos in Canada we teach until the VERY end of June.

    Christine ;-)



  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited June 2008

    Marsha, Terri and Maxgirl nice to hear from you.  Marsha hows the chemo...are you done?

    Terri..will be thinking of you and saying prayers for the 24th.  Let us know how things go.  What is a BSGI?

    Christine..congratulations on the all clear!  Isn't that a nice feeling?

    Well, I went today for my mamo...everything is a okay...to say I'm happy would be an understatement.  I'm still getting Herceptin every week...only 6 more.  Going to onco office every week has not really let me get away from the BC monster yet but I look forward to August.  Question for you ladies...my BS today told me that they were only going to do a mamo once a year from now on, they will do breast exams every 6 months and no they don't do MRI unless something shows up on the mamo.  I had invasive lobular and I think most people with this alternate between mamo and MRI every six months.  I'm sorry I don't remember did anyone else have lobular???? If so what is your BS doing?  Wondering if I just need to find another BS.

    Hugs and prayers to everyone,

    Nancy

  • Keenie
    Keenie Member Posts: 258
    edited June 2008

    Hi Nancy - great feeling for great news!

    I've been given the same advice - mammo and ultrasound once a year and breast exam every 6 months. I see my onc again in June 2009. No MRI was recommended either. Tamoxifen for 4 more years.



    What about others?

    Christine

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