Tingling in Hands After Taking Arimidex

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Anonymous
Anonymous Member Posts: 1,376
Tingling in Hands After Taking Arimidex

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2008

    I have been taking Arimidex for about 6 months and had only slights aches and pains.  My right hand goes to sleep easily now and especially when I try to sleep.  Is anyone else having a problem with tingling in their hands after taking Arimidex for several months?

  • Patti3
    Patti3 Member Posts: 53
    edited May 2008

    Hey Melissa, yes that happened to me..was tested for carpal tunnell and it came back positive, but in the hand that didnt hurt much!!  There is absolutely no reason for me to have carpal tunnel, I believe it was the arimidex..I stopped taking it in February, and my hands no longer fall asleep..back then, I slept with the over the counter splints for many months, they did help..but now Im even lifting light weights at the gym, and no pain at all...

    Best wishes to you,

    patti

  • Coltsneck
    Coltsneck Member Posts: 180
    edited May 2008

    I have had periodic tingling in the fingers and carpal tunnel like pain that comes and goes.  It is a known side effect of Arimidex.  I haven't sought treatment because it doesn't bother me often enough or badly enough to see a doctor.

  • Coltsneck
    Coltsneck Member Posts: 180
    edited May 2008

    I have had periodic tingling in the fingers and carpal tunnel like pain that comes and goes.  It is a known side effect of Arimidex.  I haven't sought treatment because it doesn't bother me often enough or badly enough to see a doctor.

  • Coltsneck
    Coltsneck Member Posts: 180
    edited May 2008

    I have had periodic tingling in the fingers and carpal tunnel like pain that comes and goes.  It is a known side effect of Arimidex.  I haven't sought treatment because it doesn't bother me often enough or badly enough to see a doctor.

  • Coltsneck
    Coltsneck Member Posts: 180
    edited May 2008

    I have had periodic tingling in the fingers and carpal tunnel like pain that comes and goes.  It is a known side effect of Arimidex.  I haven't sought treatment because it doesn't bother me often enough or badly enough to see a doctor.

  • shrink
    shrink Member Posts: 936
    edited May 2008

    Coltsneck - I've checked the side effects of Arimidex and cannot find tingling listed.  Can you tell me where you saw it or heard about it?  My doctor thinks it has nothing to do with cancer, chemo, radiation, surgery or Arimidex.

  • karen1956
    karen1956 Member Posts: 6,503
    edited May 2008

    Melissa - I developed carpel tunnel in both hands after 5 months on Arimidex.  It was Dx as severe in right hand and moderate in left.  I had surgery on right hand as was starting to have nerve damage.  A short time later, I called Astra Zeneca and found out that they had just listed CTS as a side effect (this was in Feb or March 07).  When I went off the AI's for a few months (on tamox and then a break from it all), the tingling and CTS in left hand went away and range of motion improved in right.  I started back on AI's (Aromasin) in July 07 and the CTS has stayed away - of course there are other complaints.  CTS is listed as a "rare" side effect but it does not happen.  I never had it prior to chemo and AI's.  Sorry for being so long winded. All the best to you. 

  • karen1956
    karen1956 Member Posts: 6,503
    edited May 2008

    Melissa - I developed carpel tunnel in both hands after 5 months on Arimidex.  It was Dx as severe in right hand and moderate in left.  I had surgery on right hand as was starting to have nerve damage.  A short time later, I called Astra Zeneca and found out that they had just listed CTS as a side effect (this was in Feb or March 07).  When I went off the AI's for a few months (on tamox and then a break from it all), the tingling and CTS in left hand went away and range of motion improved in right.  I started back on AI's (Aromasin) in July 07 and the CTS has stayed away - of course there are other complaints.  CTS is listed as a "rare" side effect but it does not happen.  I never had it prior to chemo and AI's.  Sorry for being so long winded. All the best to you. 

  • SueTacoma
    SueTacoma Member Posts: 69
    edited May 2008

    I have been on Arimidex for about 6 weeks, now I have problems with my fingers -- 3 fingers feel really hot from time to time, also feel the tingling.  My PCP suspected it is carpal tunnell, but I think it could be Arimidex.

    Sue

  • SueTacoma
    SueTacoma Member Posts: 69
    edited May 2008

    I have been on Arimidex for about 6 weeks, now I have problems with my fingers -- 3 fingers feel really hot from time to time, also feel the tingling.  My PCP suspected it is carpal tunnell, but I think it could be Arimidex.

    Sue

  • SueTacoma
    SueTacoma Member Posts: 69
    edited May 2008

    I have been on Arimidex for about 6 weeks, now I have problems with my fingers -- 3 fingers feel really hot from time to time, also feel the tingling.  My PCP suspected it is carpal tunnell, but I think it could be Arimidex.

    Sue

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2008

    Hi Melissa,

    I too had issues with the tingling and CT type symptoms while I was on Arimidex.

    Hope your weather has gotten more springish.....

    Hugs

    Jule

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2008

    You guys are wonderful.  I can ask my onc and he doesn't know anything about the tingling.  I can ask you guys and you can tell me about anything.  I love this website!! 

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited May 2008

    This is from the "Adverse Events" section of the prescribing info on Arimidex--the very tiny print sheet that comes with the bottle that the doctors (supposedly) use for info about a drug:

    "Patients receiving ARIMIDEX had an increase in joint disorders (including arthritis, arthrosis, and arthralgia) compared with patients receving tamoxifen." 

    "Arthritis is inflammation of one or more joints, which results in pain, swelling, stiffness, and limited movement. There are over 100 different types of arthritis."  (Medline Plus Medical Encyclopedia)

    Arthrosis is "a degenerative disease of a joint"  (Medline Plus Medical Dictionary)

    Arthralgia is "pain in one or more joints"  (Medline Plus Medical Dictionary)

    "Parasthesia" is also a listed side effect of Arimidex.  This is "a sensation of pricking, tingling, or creeping on the skin having no objective cause and usually associated with injury or irritation of a sensory nerve or nerve root" (Medline Plus Medical Dictionary)

    If these don't describe carpal tunnel syndrome (a condition caused by compression of the median nerve in the carpal tunnel and characterized especially by weakness, pain, and disturbances of sensation in the hand and fingers -- abbreviation CTS--Medline Plus Medical Dictionary) I don't know what does!  The carpal tunnel is a bony structure where several bone come together in the wrist joint, with nerves running right through the middle of it.  Arimidex affects both the bones and the nerves, so tell your doctor to read his homework! 

  • notme
    notme Member Posts: 161
    edited May 2008

    YES!!!   I refer to my hands now as "the paddles".  They both vibrate frequently, especially the right.  The are stiff.  I have several trigger fingers and shooting pains in my hands and some finger joints.  The problems started 4 months after starting Arimidex and has continued to worsen.

    My onc says the tingling is not the Arimidex, but admits that the joint pain is.  I've been getting tested by a neurologist (EMG) who says I do not have CTS, but pinched nerves C5,6,7,and 8 due to a muscle spasm. I've been getting physical therapy, but it has not helped. 

    It's good to know that it's not just me!

    I'm afraid to try Femara.  SE of it is stroke!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2008

    I finally found a medication that works for the tingling in your hands due to the AIs.  Neurontin works great and decreases the hot flashes.  It took two visits to my doctor to convince him to give me the Neurontin.  Also, it is not habit forming.

  • tinkerbell
    tinkerbell Member Posts: 2
    edited June 2008

    hi there

    yes, i get that sometimes too, tingling in the hands.  i've been on arimidex for over a year.  Nothing to worry about 

  • Texgirl
    Texgirl Member Posts: 211
    edited June 2008

    developed C.T. syndrome about 6 months into Arimidex. I,too, called Astra Zeneca and received the same info. ..that it had been added to the list of s.e.

    I saw a hand surgeon who spec. in CT.I was dx'd with it. He did pt. teaching..ways to stop curling your hands inward as u sleep...or w/ your hands bent back..also  encouraged the wrist splint that I wore almost 1 yr.  I rec'd about 4 cortisone inj. during this time . He did not want to do surgery unless absolutely necessary.

    I d/c'd the Arimidex in Sept. '07 and by Jan. ..my last cortisone inj. was given and I have not had any issues since. I do not have to wear the brace at night time. I was also someone who had no risk factors for CT.

  • Texgirl
    Texgirl Member Posts: 211
    edited June 2008

    developed C.T. syndrome about 6 months into Arimidex. I,too, called Astra Zeneca and received the same info. ..that it had been added to the list of s.e.

    I saw a hand surgeon who spec. in CT.I was dx'd with it. He did pt. teaching..ways to stop curling your hands inward as u sleep...or w/ your hands bent back..also  encouraged the wrist splint that I wore almost 1 yr.  I rec'd about 4 cortisone inj. during this time . He did not want to do surgery unless absolutely necessary.

    I d/c'd the Arimidex in Sept. '07 and by Jan. ..my last cortisone inj. was given and I have not had any issues since. I do not have to wear the brace at night time. I was also someone who had no risk factors for CT.

  • melissaga
    melissaga Member Posts: 16
    edited June 2008

    I'm another one that developed these issues while on Arimidex. I was initially treated for bilateral carpal tunnel syndrome but after reading here about others experiences, I spoke with both Astra-Zeneca (the manufacturer) and my oncologist. I also had no risk factors and no symptoms prior.  I ended up going off Arimidex and my symptoms eventually went away completely. I'm now on tamoxifen and doing well. :) 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2008

    I am trying a new medicine, Neurontin, for the tingling and it is working great.  Also, it decreases hot flashes which helps me to sleep.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2008

    The Neurontin is still working great.  It helps me to sleep well and the tingling in my hands has stopped. 

  • smirasky
    smirasky Member Posts: 5
    edited June 2008

    I was on Arimidex for only 1 month when the CT was waking me up at night.  I found relief by not taking it, but was afraid of a recurrence.  I am currently taking Aromosin and the CT only bothers me once in a while.  I do have some tingling in the feet also, but nothing I cannot live with.  I do take 1 naproxin per day to deal with joint aches.  However, I turned 60 this year, so I guess some of that is to be expected.  I intend to mention the Neurontin to my oncologist on my next appointment.

  • Yorkie
    Yorkie Member Posts: 5
    edited June 2008
    I started taking Arimidex in October of '05 after completing chemo.  Within a month or two my hands and feet were tingling and numb whenever I raised them.  I couldn't type at the computer for any length of time or cross my legs without complete loss of sensation.   My GP was convinced it was carpal tunnel, although I'd had that before and the symptoms were completely different.  The oncologist said it was a rare, but not unknown, side effect of Arimidex, and had me stop taking it for two weeks.  The symptoms went away instantly.  He switched me to Aromasin, which I've been on for nearly three years now.  I have a little of the tingling, but it's nowhere near as bad.  Good luck!
  • Chinneymae
    Chinneymae Member Posts: 339
    edited July 2013

    I've only been taking Arimidex for a couple of weeks. I have had tingling in my fingers. My onco did tell me that Arimidex can cause carpal tunnel, especially if you work with computers (which I do).

  • pattithenurse
    pattithenurse Member Posts: 82
    edited July 2013

    I too have only been on this med for 2 weeks,and I now have tingling in my hands. I can feel tightness in my wrists and my toes are hurting. GEESH!! A couple of my fingers are "clicking". I'm not too sure about all of this? I can't imagine years of this getting worse?!

  • codavis
    codavis Member Posts: 122
    edited July 2013

    I started taking Arimidex ~ 1 year ago. I had joint pain, severe hot flashes (which I've had since chemo) and several other side effects that I was sure were because of the AI--tingly hands and feet, inability to lose even a pound, blurry vision, foggy brain, and aches and pains. I'm only 47 and my quality of life was not great. So I asked my onc if I could take a break. He didn't want me to, but agreed to two months off. It's been a month, and I haven't notice a difference in the side effects. I still wake up with my left hand asleep nearly every day, my feed tingly when I walk, and my right elbow hurts worse now than it did before. 
    I'm very surprised to see this thread, and wonder if the numbness is from Arimidex after all.

    Has anyone taken a break or switched to another AI, and had the side effects linger longer than a month before they finally went away?

  • DocBabs
    DocBabs Member Posts: 775
    edited July 2013

    Add me to the list. Six months after starting Arimidex I developed severe tingling and numbness of both hands left more than right though I am right handed. As the numbness would dissipate there would be severe pain. I saw a hand specialist and had a nerve conduction test done, quite painful I might add, and results were severe CTS in the left and moderate in the right. I stopped the Arimidex and had surgery and I' m happy to report that my left hand is perfect and the right has gotten much better so I'm holding off on surgery mainly because I' m in the middle of a tennis tournament and don't want to stop to recuperate.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2019

    I'm glad I found this thread. I've noticed tingling now and then in my left arm and hand (I had a lumpectomy in my left breast). Thing is about left side tingling is that you sit there any wonder if it's the beginning of a heart attack. But reading this thread makes me feel less worried.

    I had a bilateral mammogram July 1 (OUCH) and now my left breast feels heavy. Is that normal? Could it be from all the pressure from the mammogram, which was negative btw.

    I'm mostly tired from Anastrozole but admit that I don't do my daily walking like I used to. I really have to motivate myself especially in light of the effects Anastrozole can have on the bones and joints.

    I'd like to point out that the tingling happens primarily when I'm sitting. I use my computer and phone a lot. I've read crossing your legs can cause tingling and I do cross them a lot when I work sitting on my easy chair.

    Overall, if I have other affects from Anastrozole, they are not much different that those associated with old age so it's difficult to pinpoint which aches and pains come from which. I do get a hot flash and flushing maybe 1-2 times a month.

    Thanks everyone for sharing their experiences. It is helpful this thread has given me some answers to questions I've been having.

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