things that made you happier about your decision
Comments
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I should start by saying that I've been pretty happy with my unreconstructed, left-breastless body from the beginning. However, a small incident a couple of nights ago sort of crystallized things. It got me thinking and wondering whether others had also experienced similar "aha" moments. (It also occurs to me that reading about such things may be helpful for women who are still sorting out the decision whether or not to reconstruct.)
So, anyhow. I'm a pretty serious runner, and go for weekly runs with a semi-organized group. Apart from my first post-surgery run, when I chickened out at the last minute and stuffed a wadded up bandana in my running bra, I never wear a form when I run. Afterwards, I change out of my sweaty clothes and go braless under a dry shirt.
Last Thursday night, after the run, I casually mentioned something about chemo to one of the other (male) regulars. He looked at me in astonishment - turns out he had no idea I had breast cancer. And he's been seeing me almost every week since my mastectomy!
There were times post-surgery when I wondered if I was kidding myself by thinking I looked "normal" without a form or prosthesis. Were people looking away? Thinking I was weird? Was I making them uncomfortable? etc. etc. If this guy is any indication, they weren't even noticing.
Anyone else have any stories in a similar vein?
Linda
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I think we are our own worst critics.
Things that are the focus of our own attention barely make it into other people's notice -- because they're too busy thinking about themselves!
Can you beat the guy in a race?
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Linda,
I am a fairly serious runner as well. However even when I would go out in the early dark morning, I would put in a sock..haha. I would have never gone out in public with out something, a fluffy or whatever to fill out my left side. I don't think that I am vein, but I am also a very full D cup! It would be very noticeable. When I would come home after work or whenever, I always went without anything in my bra.
I have since had reconstruction. And I have to say...I am very happy with my results.
I agree with Rose, most people don't notice, what we think they would.
Lisa
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Sorry, I forgot to mention, with my fluffy in (I never got a prothesis) nobody ever noticed anything different.
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I was talking to a woman yesterday at the cancer center while waiting for my baseline CT/PET scan. I mentioned I had bilateral mastectomies.
She looked at me in astonishment, stared at my chest (I was going commando - no prostheses), said she didn't notice I was breastless, and stated she still wouldn't be able to tell, just though I was very small busted.
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Rose, I think you're absolutely right. We (well, some of us, some of the time) torment ourselves with self-consciousness, when the rest of the world doesn't even notice. I mean, if anyone is going to be checking out a sweaty female runner's chest, wouldn't it be a sweaty male runner? I just thought it was funny that this guy was totally clueless about my mastectomy. (And yes, in response to your question, I always beat him in races, even though he's ten years younger than I am.)
To me, it reenforces how the decision to reconstruct or not really does need to come from ourselves, and not from concern about the image we project to the world.
Lisa, I laughed at your sock story. Maybe we should start another thread about the oddball items that have been pressed into service as temporary prostheses . . .
Linda
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I'm glad to hear you can leave him in the dust!
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I did not reconstruct and have had lots of confirming moments. Now, when I run I wear a mast. bra with a form. I only go formless when I am home-usually before bed. Not a self-conscious issue-just the forms I have are so comfortable that I don't have a problem wearing them all day.
I think my biggest confirming moments are when people ask me which side is the bc side. No one can tell.
Other confirming moments- an old boyfriend seeing me and telling how hot I looked, People asking me who did my reconstruction, knowing a few people who have had big issues with healing from reconstruction, and of course, my husband telling me how hot I am and saying, "you know, if I didn't know, I would never be able to tell." Oh and also those times at night when I take off the form and realize that during the day I was not thinking that the right side was fake.
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We went to visit my brother/sister-in-law 2 weeks ago.
I always go flat. I haven't even purchased forms.
I was a bit nervous to see their reaction and almost cried when I heard my sister-in-law say..
"hey, I know gals with boobs that look as flat naturally...plus, don't the women with reconstruction look unreal after a certain age...who is 60+ with pert boobs!"
That really put it in perspective for me!
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Wallycat,
I had a bilateral (one at a time, actually), with reconstruction. I hope I'm around when I'm 60! If people are making comments about my boobs being too perky, I would care less! I'll be too happy to just be here. And somehow I think (and this is just me) that the women who don't get reconstruction are just braver than I am.
Bobbie
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Lewing and all you Sisters,
I just had a bilateral last week. With the exception of dealing with 4 #$%! drains, I am amazed that I feel so well, and not as devestated as I imagined. All the information I got from these boards like your encouraging comments above helped prepare me I am sure.
It might not be the same if I were younger, but heck at 64 going "flat", isn't too bad. In fact in certain clothes, I look like one of those flat "French Models". Who would have thought.
I hope in the next few weeks I can be like caaclark and say I have found comfortable forms.
May I ask caaclark, what you wear, and where you got them?
Thanks everyone for you comments.
Dakota
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I'm new to the board, but an oldie with cancer compared to all of you it seems. My cancer was in 2001, IDC over 3 cm, uneven margins left side, Stage 3, 6 pos lyphs, ER+,Her2-; left mast, chemo, rads, Femara for 5 years and rt. mast 2003. I chose no reconstruction because of lots of surgeries for other things prior to and also a bad immune system (lupus/sarcoid). I am 61 girls and my boobs are perky (sorry!). I love it and I can be any size I want to be depending on the situation. I went flat at first, but lots of people were uncomfortable and I could feel it. I guess because I had 38D's prior to and I am more than just flat now - sort of caved in esp. on left side.
Also, I feel vulnerable now without anything on which is why I wanted to see what others felt. I think those who have not gone through this feel that I probably look like a guy underneath the clothes, but that's not true. They have more 'meat' if you will or 'padding' under their skin than I do which is why I feel vulnerable. As for image, at my age that never even entered my mind. I was glad to just be rid of the cancer. As for where I get mine -- a boutique that specializes in them and replace them every two years with bras. They feel just like mine. I'm totally used to and unaware that they are not real - honestly. Sometime I'll share some funny stories though that happened in the beginning. I wish you all well and hope to get on here again. Gippy
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Gippy,
Welcome to this forum! I know what you mean about feeling vulnerable. I'm slim but was nicely endowed with large B/small C breasts before breast cancer. My surgeon did a beautiful job on my bilateral mastectomy--the surface is even and the scars are totally symmetrical--but my ribs are very much in evidence and, with (hopefully) no breast tissue and virtually no fat to cover them, my chest feels very vulnerable. When I don't feel like wearing my silicone breast forms, I still wear lightweight non-silicone forms in a camisole or little bralette, just so there's something soft and protective there.
Since you're very happy with your breast forms (prostheses), would you mind sharing what kind you use? I'm always interested in what works for others. And I'm always looking for good options to recommend on my non-profit website, BreastFree.org. You might enjoy checking out my site--many women on this board contributed personal stories and photos to it--though it sounds as if you don't need any help living breast-free!
Dakota,
Congrats on being on the other side of surgery. I'm so glad you've had an easy recovery. One suggestion--don't rush too fast into silicone breast forms. I got fitted at four weeks and later wished I'd waited six or eight. I was still sensitive and not as healed as I thought. Although I bought the forms, I couldn't wear them comfortably for a while. And I wound up exchanging my forms for others because I couldn't really quite judge what would work long-term at that early stage. Everyone's different and I've heard of some women who are fitted as early as two weeks out. So listen to your own body.
I hope Carol will chime in because she's so knowledgeable. I know she recently purchased a contact form, which she loves. I'm planning to follow in her footsteps as soon as my insurance allows. But, as your fitter will probably tell you, your skin has to be healed before you wear one of those (at least six months, maybe a year). I've had radiation, which is why I've hesitated. But my radiation was in 2003 (my bilats were in 2006) and my skin looks good, so I think I'm ready to give the contact forms a try.
To answer the question of this post, I guess what's made me happiest about my decision is how much of a non-issue it is with those who know about my surgery (pretty much everyone who knows me). I worried that people would look at me funny, be afraid to hug me, feel sorry for me. My impression is that most people totally forget about it and don't hesitate to hug me as close as ever--including my DH (LOL)!
Another thing that's changed, ironically, is that I now wear more revealing tops than before. I was always a conservative dresser and living in Boston, which is a rather staid place, it pretty much never occurred to me to show any cleavage. I did like tight, fitted tees, but I rarely wore low-cut tank tops or low-cut tops at all. Since my surgery, I love wearing tank tops and other low-cut tops. I've found some good clingy material (like Chicos travellers tops)--when I bend over, there's no gap, so I don't worry about people seeing more than I want to show. So, paradoxically, losing my breasts has given me a greater sense of freedom about dressing than before.
Barbara
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Bobbie,
I actually feel like the women who did reconstruction are the braver/stronger ones!! I was just too chicken to deal with possible pain and more cutting/hospital yuck. I'm very black/white and dislike grey area and reconstruction is a grey area because you don't know if you'll be the few with complications or not.
We all do what is within our comfort level and we are all brave to even have to make these decisions and not fall apart. I agree...boobs or no boobs, I just want to be around long enough to whine about getting breast cancer
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Wallycat,
I think you are so right. Sometimes I like to think that I've somehow made the "braver" choice by not having reconstruction. But then I realize that makes no sense--I'm still concerned about my appearance and in fact always wear breast forms and like to look as if I have nice perky breasts at the age of 59. If I chose to go flat, I would still care about how I looked and probably would fancy myself as imitating some gorgeous flat-chested model.
Choosing not to reconstruct was more a matter of figuring out what was right for me. My reconstruction options were limited as I'd had rads to one side, I was terrified of long surgery and, like you, feared complications. And, vain woman that I am, I didn't want any more scars. I'm glad that we live at a time when a variety of options are available. And, as you said, the unfortunate cards we were dealt has required all of us, recon or no-recon alike, to muster up our courage and move forward.
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Now that I'm foob-less, I would love to not wear any bra or prosthesis, but I find myself conscious of people's eyes when I'm talking to them, to see if they are looking at my chest. Since I went through the reconstruction process, my ribs are pushed in more, and the removal surgery wasn't good. The surgeon left me with saggy skin and wierd, puckery scars.
I haven't found a bra and prosthesis yet that is totally comfortable, but my moments of being happy with my decision to deconstruct come when I take off my bra. When I had my expanders and saline implants, I felt like I wanted to rip those suckers off my chest, they were so heavy and tight and bothersome.
sally
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I was driving down the street past the Women's Center where I had the mammo that located my cancer, and I suddenly thought how relieved I am not to do mammos anymore. I know, in a discussion of courage and fortitude like this thread has become, my relief at no more mammos is wimpy. But for me it's real. Also, when any of my doctors (onc, PCP, gyn) do "breast" exams, I don't worry that they've missed something, because there's no longer dense breast tissue for lousy lumps to hide out in.
Small items, maybe, but I'm grateful for them.
Binney
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Hi Girls,
I am always more than happy to share whatever knowledge I may have that can help in this process.
I am almost 2 1/2 years out from diagnosis and I now how several forms. I will just list them below:
1. ABC 1048-the first form I got. A good form that really matches my left (non mast) side. Must be worn in a mast. bra. My fitter recommended it and she was right. I left the store wearing it thinking, "Why would I ever consider reconstructing when this looks and feels so good?"
2. Amoena Tria Swimform 129.- I wear this one for exercise and for swimming. Looks and feels good. Different from the other forms since it is more hollow in the back, I guess so that it functions well in water.
3. My favorite so far: Amoena Tresia Contact form-I love, love, love this one. I did not get this until a year after the mast. It sticks directly to the skin and you can wear a regular bra. Must be taken off at night and washed and rinsed so that the sticky stuff stays sticky. Feels a little strange when you first take it off- until you get used to the sensation. Does NOT hurt-just feels weird when you are partly numb.
Lastly-I stopped in to see my fitter last week and she showed me another contact (stick on) form. I did not try it on since she did not have my size but it felt and looked great. I think it was Trulife-but I am not certain about that. She is ordering one for me and I cannot wait to see how it works.
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Barbara-
Yeah, I am the same as you. Everyone who knows me, knows that one boob was removed and one was not. I am sure that information makes some uncomfortable but it does not bother me so I don't mind if they know. Besides, once someone knows you have had breast cancer you are then in a great position to educate them.
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Erica,
Thank you for your words of encouragement, and the caution to wait before getting any final forms. I am anxious to get on with this, but you are right as I will only be 3 weeks post surgery when I check out my local Mastectomy Boutique.
The pillow fluff that comes with the camisoles isn't what I want, perhaps something lightweight with a little more form to start out with. Not being handy at anything "crafty" I get sooo frustrated pushing that fluffy stuff around to look like more than 2 huge lumps on my chest.
So far, with just a little fluid build up,and the usual pinches, and pins, the recovery is proceding smoothly. Should be back to work after 2 weeks are up. I am thankful.
caaclark..
thank you for sharing the history of your "form exploration". I will check some of your suggestions with my fitter next week.
I must say, I know there will be times when I wear my black sleeveless turtlenecks that a form will be needed. (that audry hepburn look you know ..haha.) But I have been going around flat with comfort in public where no one really even notices. I find I am only uncomfortable around people who know I recently have had the bi-lateral. They are talking to me with encouragement, but looking at my chest. I have to believe that with time, this will not be an issue.
Dakota
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Dakota,
I agree with you about the "pillow fluff." Some women like it, but I always felt it looked lumpy on me. I hope I'm not repeating myself ad nauseum, as I've mentioned this before, but I find the unweighted Amoena Style 126 Leisure Forms give me a nice shape and are very comfortable. I continue to use them for exercise and casual wear. Most fitters carry them or other equivalent forms, so that might tide you over for a few weeks until you feel ready for silicone forms.
Barbara
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Erica,
Hope your Memorial day week end was relaxing. Mine sure was just hanging around with family.
Actually the Amoena Style 126 I have written down from all my web searching. I go to the visit the "Boutique" tomorrow to just check things out. You know, like what they have available, getting familiar with the staff, etc etc. As you said, it is too soon for serious purchases, but I may come home with style 126, or something with a bit more form than the fluff. Just got a new dress to wear to a fancy wedding shower, and flat or fluff just doesn't do it. Jeez, I remember when I was a kid my older sister was so flat chested she used to wear what were called falsies.... those foam rubber jobs we as kids used to like to run around with on our heads to tease her. Sure could use a pair now... guess they're right, what goes around comes around.
Dakota
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Hi All:
I am new to the board. I just wanted to add my two-cents to the non-reconstruction issue. I am SO happy that I did not opt for reconstruction. I just wish my surgeon had taken my wishes a tad more seriously, as he left rather more skin than I really wanted "just in case" I might change my mind later. But I will not. First of all, I healed up super fast and was able to take off for Europe just five weeks after surgery. Now, at 3 months post-op, I am completely recovered and totally ok with the scar and how I look in the buff--cute, just rather lop-sided. But even more than that, I LOVE my prosthesis (Amoena Natura Light 2A). I am actually much more comfortable with it on than off, and I look terrific. (IMHO). I have a little bit of cleavage, and I can wear some low cut sexy stuff and it's very amusing to catch people staring at me wondering what's what. Ha! I'm sure they think I had a little work done. Let them wonder.
As a former medical malpractice investagor for an insurance company, I read way too many horror stories in my job about reconstructions and implants gone awry. Granted, the vast majority of the time the surgery has a good outcome, but when it doesn't, it can be ghastly. Since I scar badly and my body has issues with foreign substances, I thought it likely I might be one of those small number of women who end up with massive infections and grief. I just didn't want to go there. Mastectomy and Chemo are enough of a challenge.
Another issue--and I haven't seen that addressed here, is that if you have a single mastectomy, reconstruction will still leave you lop-sided: with one very firm little puppy and another one that droops to your waist unless you opt for more reconstruction. Life is just way too short.
A guess a sense of humor helps
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I finally found some runners! I am between my "lumpectomy" that did not have clear margins and my mastectomy. I am thinking that a reconstructed breast to match my 34D will be heavy while running. I don't really like running with what I currently have so am thinking of no reconstruction. I am worried about triathlons and finding something to wear for swim,bike,run.
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debiker-
If you get one of the swim forms they can function as a regular form also. I wear the same form for swimming as I do for exercising. It fits well in a sports bra and in a mast. suit.
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I had a mastectomy 18 years ago at the age of 37. I didn't have reconstruction, because I didn't want to deal with more surgery. I knew that if I had any complications that I wouldn't have the patience to deal with it, especially since my survival didn't depend upon it. I do admire women with the fortitude to go through the whole process, though.
I have never been emotionally bothered by having a missing breast. I have always felt, that as a woman and a human being, I'm more than the sum of my body parts. I am a size 34D and wear a breast form when I go out because I'm too lopsided without and my clothes fit better. Also, I have never been the type to draw unecessary attention to myself. Now, that I am older, I wish that I had had a bilateral because I feel like it would be so freeing to be able to go braless more often.
~elaine~
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this is helpful to hear. I am thinking braless is good. I will see the plastic surgeon however I think bilateral is the way I want to go.
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I am in the throes of this decision right now so maybe you gals can help me. I am having a unilateral on Aug 6th and am leaning towards no reconstruction. I'm active, travel is my passion and I don't want to be restricted by more surgeries and recoveries. I just want this over with (mast and whatever comes after--that isn't clear yet) and be able to get on with living... I don't particularly care how I look naked (am 51, married, hubby insists its my choice and whatever I decide is fine by him.) But I do want to look normal in clothes and be able to swim, bike, go to the gym..
one concern I have about prosthesis is how well they match up to your natural breast...I am not inclined to get a bilateral just for the heck of it, as there is no sign of disease in my other breast and no family history. I am a C cup...will I be able to get something that will, at least, look somewhat normal with clothes? I really can't get a handle on the whole prosthesis thing... How uncomfortable are they? Will they pop out at the beach at some embarrasing moment?
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Dear jc135,
I had a mastectomy in March, and did not want reconstruction. I have had my fitted breast form for about two months now. I can't begin to tell you how pleased I am with this decision, and how completely comfortable I feel and how great I look. I have an Amoena ($300) form that is very comfortable and an exact match for my other breast. It tucks neatly into the bra and never moves around or bothers me. I have another less expensive form I use for sports and swimming, and it seems to work fine too. It was the right decision for me. I have no awareness of any difference in the way my breasts feel or look.
That being said, it is also true that I am only a B cup, and I do think these breast forms are heavier and more problematic for the better endowed. Some women do complain of heat and slippage.
One thing to consider is that if you go for reconstruction, you still will not have a perfect matched set when you are braless. One will be perky, and one will not, though they will hopefully match when you are in a bra.
Hope this is of some help. These are not easy decisions to make. Good luck with it.
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