Genetic counseling questions

Options
kathryni
kathryni Member Posts: 73
edited June 2014 in High Risk for Breast Cancer
Genetic counseling questions
· Share on FacebookShare on Twitter

Comments

  • kathryni
    kathryni Member Posts: 73
    edited May 2008

    I had my 3rd (and final surgical) follow up with my surgeon for an excisional biopsy (found typical and atypical ductal hyperplasias) and I asked her about genetic counseling (because I'm only 24 years old). She said it seemed like a good idea and thought that the BRCA test might be especially smart given that my father's side of the family has no women in it aside from my grandmother (who is alive and well), my sister (age 27) and I, so the genes could easily be hiding there.



    But, she also said that there are almost no genetic counselors in town, so I'm kind of stuck. Does anyone know a good place I can search for one? We are still rebuilding much of the medical community here, but if there's someone in Baton Rouge or somewhere else nearby, it might be workable. It's not really urgent, but it's something I'd rather have done sooner than later. If nothing else than just to know. I can deal with information, even bad news, but I can't deal with what feels like a lifetime now of not knowing.



    Kat

    · Share on FacebookShare on Twitter
  • wishiwere
    wishiwere Member Posts: 3,793
    edited May 2008

    This link will take you to a site that you can search for one by zip code.  hope it helps. 

    http://www.nsgc.org/resourcelink.cfm

    When I entered Baton Rouge, 2 came up, but I had to enter 100 miles radius.  It was same for me in my area.  Both were about and hour and half from here :(

    · Share on FacebookShare on Twitter
  • Msklapkin
    Msklapkin Member Posts: 208
    edited May 2008

    Hi Wish

    You can also try website-facingourrisk.org

    It is a webiste specifically to deal with BRCA- you may find women in your area who can help.

    My oncologist worked with a genetic cousellor and she was quite helpful, so an oncologist may be another source.

    Good luck- I wish more BS would discuss genetic testing BEFORE our surgeries.

    I did mine before my axillary node dissection and chose double mastectomy with reconstruction all at the same time

    Susan

    · Share on FacebookShare on Twitter

Categories