Jan 2008--Ain't it Great?

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  • golfer779
    golfer779 Member Posts: 1,378
    edited May 2008

    Home from skating, the ds' partner took a pretty good tumble, whacked his knoggin and neck, thank god for helmets!!!  His dad, (the coach) took him in for a check.  Hate to see a skater go down, especially when you hear helmet and floor hitting.  He was totally bummed as they were having a pizza feed after practice for a celebration of the weekends results.  The ds and I took 1/2 pie down to the clinic for them to enjoy once he was headed home.  Sounded like he will be okay, probably just a very sore neck.

    Kris, looks like your flying solo tomorrow, time to erase one more txt, and lets hope for minimal se's.  Sorry but you've got your own tab!

    Carla, your sounding stronger each time we hear from you.  Another good weekend with your dd's, gotta love that for mom's weekend.

    Tina, wouldn't Kimberly be surprised to hang that open sign and have some Jewels show up!!!  So glad to hear your b-day/mom's day was a good one.  Citrus Chicken (that could be a tough one to guess a SP), seems like there's been a bit of chicken eating going on the last few months. 

    Kimberly, I'm so making an appt for a massage this week.  So an advantage of a "vertible" and being bald, no bad hair there.  Sounds like you all are in for some more hot weather later in the week.  I was chatting with the "prego" friend in Redding just a few hours ago, supposedly it may hit triple digits up there.

    How cool to have such nice compliments when being scrutinized under the bright lights and magnifying glass.  How I wish I had used a moisturizer with SPF so many years back.  I'm paying for that now!  It took my Mom to get Melanoma for me to get a clue.  Funny on the whole body skin thing ... I swear I'm not half as dry skinned as I normally would be throughout the winter months.  Gotta like that and not having to shave but a few lingering hairs on the legs and pits is a pretty good beni as well.  Oh how we look for the positive spin on things!!!

    Okay, back to watching DWTS ... !

    Carol

  • RN2teach
    RN2teach Member Posts: 312
    edited May 2008

    Morning, girls,

    I'm heading out to vote in WV's primary and then spend the day washing cars. I'll go straight from the car wash to rads. I'm hoping that I can get to the P.O. before it closes as I still haven't sent anything to my SP yet--having a little trouble getting it all together. I'm starting to feel badly for my SP... I know what a boost it is to get that first little surprise.

    Don't have time for a lot of shout-outs--I'll try to catch up with that this evening.

    Kris- thinking of you today as you head to the chemo bar.

    Carla- so good to hear from you. Glad you're doing well and had a nice mother's day.

    Kimberly and Carol- not sure what I posted that gave the impression that I was still doing chemo. I finished on April 25 with Taxol and started rads on May 6. No double whammy for me--rads is enough for now!

    LJ- loved the photo, thanks for sharing that! And, are you kidding? Cats are people, tooWink. I've had cats since I was a little girl. Have always loved their spirit.

    In fact, my cats were more attentive to me on mom's day than the two children I carried for 9 months, nursed, diapered and nutured for years... My two teenagers totally forgot me on Sunday. Ah well, I know teens are like that... just didn't expect that from mine--esp. this year. Talk about kicking you when you're down...

    Julie- I loved reading about your Mom's day. Give that ds of yours another hug from me!

    Gotta go. Try to check in tonite.

    Paula

  • chj127
    chj127 Member Posts: 382
    edited May 2008

    Hi everyone - thanks to SISKimberly for the nudge last week.  Sorry I've been absent.  I have been spending time over at the Taxotere & Cytoxin thread.  I was having a really hard time keeping up with all of you (you are all so chatty!) and got a bit down when many of you finished and my treatments just seemed to go on and on and on. I have been lurking some, because I still do feel a connection to all of you.  Laughing

    So yes, I finally had my last tx on May 7th.  It was relatively uneventful. I went through the usual lousy weekend and am back to work today.  I had a hard time regaining my energy from tx #5 also, and was a bit depressed about that for a while.  I assume it will take me a good bit of time to recover from my 6th and final tx, but at least it is the final one.  All together now: wahoo!!

    In the meantime, I think I mentioned in here a while ago about how we had been trying to sell our house.  Well, a buyer came out of nowhere very suddenly, and so we are finally going to move (just 20 miles away) next Monday.  I am so happy that this is finally happening, even though it's been really hard dealing with chemo and packing simultaneously.  Thank God for friends who bring food and who otherwise help.  I think we are in good shape, but this will be a marathon week for sure.  I work a little, rest a little (and repeat as necessary). So next week looks like this:

    Mon - movers take the furniture (we've moved the vast majority of everything else).  Move the 4 cats (this will probably be the hardest thing we do!!)

    Tues - clean up the old house, get the remaining stuff out

    Wed - go to closing on the old house

    Thurs - see the radiation oncologist for simulation (no vacation from bc)

    Fri and the whole Memorial Day weekend - rest, celebrate, rest, celebrate (and repeat as necessary!)

    Then begin radiation the following week.

    Yes, life is nuts sometimes, but it will be good to own only one house, be done with chemo, and get on with a new and different life.  The change of scenery will be a positive for both dh & I, I am sure.

    Thanks again for not forgetting about me!

    CHJ

    P.S. almost forgot - I went back for my 6 month followup mammogram and check with the surgeon yesterday.  Everything is OK, come back in 6 months.  Whew!

  • SISKimberly
    SISKimberly Member Posts: 762
    edited May 2008

    Good Morning Jewels,


    So, it’s going to be 88 degrees today, then up to upper 90’s tomorrow, and then on Thursday and Friday 100 degrees. It’s going to be a hot summer, I think.

    I hope everyone else is experiencing beautiful weather. I know that parts of Arkansas, Oklahoma, Missouri, and Tennessee have been suffering from tornados and bad weather in previous days. I hope all our Jewels in those areas are well.

    Tina- I’m so glad you had a wonderful b-day and Mom’s Day.

    For the Jewels, the Open sign is always up.Laughing

    Oh, I’m glad you don’t know who your SP is yet. That makes it more fun. MMM, the name of that chicken recipe sounds great. Let us know how it turns out. Some of us will have it easier than others figuring out their SPs, I think, due to post marks. 


    Carol and I (I’m speaking for you, Carol. Hope that’s OK) are both very happy to have gotten this going knowing how much having something to look forward to and to help us keep more in touch would be beneficial as people some finished treatments and others continued.

    Carol- Hey, I would so love to hang the sign and have some Jewels show up.

    Ouch on the crunch of the head and neck for your ds’s partner. Glad he’s OK.

    I DVR’d DWTS, so I have to watch that some time today.

    True about not messing up the hair with the ‘vertible’, but have to remember to put sunscreen on the melon.Wink

    Paula- OK, apparently I misunderstood something you wrote and led Carol down the wrong path. Embarassed  I thought you were done, but when you told Maz you were two weeks out from you last tx, I read it as two more weeks until your last tx for some reason. Of course, now that I read it again, of course you meant two weeks from the last tx. Geez, and I’m the Language Arts teacher. You suppose chemo has damaged my brain cells?Surprised

    I love cats, too. I’ve had cats all of my adult life, but my dh is allergic, so when the last of my three kitties left the building, I’ve been without a furry companion.

    How appropriate to be writing right after Paula’s discussion of kitties being people, too, CHJ.  You know that once you are a Jewel, you are always a Jewel. I’m glad you feel a connection here and that you found a thread that is more ‘your speed’. We are a chatty bunch, aren’t we? And feeling like you were being left behind is totally understandable. The good news is that we are all in different stages of tx and able to be there for those who will come behind us, so know you’re always welcome here to get rads info and support. Both D1 and Peg are done.

    WhooHoo on being done as of May 7th. Yeah, expect it to take at least as long as you were in treatment to recover. Be patient with yourself.

    Wow, you do have a lot going on. Congrats on your house being sold!!!!  The universe is wise. That buyer didn’t come out of nowhere, he/she came because it was the right time. It will be wonderful to have a new place to start a new the new chapter in your life.

    Make sure to update me on your new address. Just PM me, OK?

    Well, what to do today?  I love having so much time to just do what I want to do.

    Check back later. SIS Kimberly


  • LilWarrior
    LilWarrior Member Posts: 268
    edited May 2008

    Hi Ladies, I went to the Dr on Friday - still no chemo.  I had a test done on my  estrogen and I am producing way too much - which is bad.  So he is continuing tamoxifen and then I get another shot in the stomach to help more estrogen.  Then in June or July we will attack with chemo.  The Dr called me at home on Saturday to talk to me again and I told him - you have to keep me around for at least another 10 years and he said I will.  Can you believe that!  My Doctor promised me something.. He ha.

    Tina - I graduate in Oct 08, and I cant wait.  In July I start my last level and  cant wait.  Sorry so late - Happy Belated Birthday - and you should celebrate each day as if its your birthday - remember that! 

    I will cry like a big baby when I graduate.  Its something in life I finally did well and finished.  My Mom and God will be so proud of me!!!!  

    I hope you Mothers had a Happy Mothers Day!

    Once again Ladies I put you on my prayers list - so please continue to ask others to pray for me too.  God bless.

    xoxox

    Dana 

  • Determined1
    Determined1 Member Posts: 806
    edited May 2008

    Hey there, Jewels.

    Trying to get back to normal-purple boob and all.  I'll admit, though, I'm completely fried.  All this running around and thinking has me wiped out.  I don't know how you working Jewels do it.  A reminder to me what SHEROES you all truly are.

    Wow, Julie, sounds like the ds is getting honors all around.  First for wrestling, then for being such a great ds on Mother's Day.  Must've been superior parenting...

    Oops, Carol, LOL!  Didn't even make the weepies connection.  Glad you're smiling about it today.

    WVgirl, you sound stronger than you ever have.  You go, girl.  (Yeah, I have noticed that men are at the start of our problems!  Ha!)

    Hope your dh time was sublime last night, KathyL.  How nice to have a "routine" day.  How's your energy holding up?  (Maybe you younger Jewels will have the advantage on that score.)

    SIS Kimberly-Loved the pet segue in your shout to LJ13.  That kind of stuff always appeals to me for some reason (I know, I'm a total nerd).  Interesting thought about chemo and our skin.  It's hard for me to believe that chemo helped any part of my body, but it's possible.  Maybe I should sacrifice myself and get a facial and see if I get any compliments...  (All in the name of science, of course.)

    Hooray for Paula!  I'm big into exercising my right to vote (and I like politics, but I'll refrain from getting into them here).  Glad to see you went out to be heard!  My motto is, "If you don't vote, you can't complain."

    CHJ-So glad you checked in with us.  And you had so much to share!  Congrats on getting the housing issue settled.  I know it will be painful next week (I HATE moving), but you guys will be so glad to be in a new place.  I think you're right, a change in scenery will do your souls good.  Hang in on the rads.  I just finished mine and I will say about the only advice I can give is exercise, lotion, and hydration.  It really is easy compared to chemo.  A big WoooHooo to you on the clean mammo!

    Hey, LWDana, glad to hear your doc is staying on top of things for you.  Bummer to have the chemo postponed, but it sounds like you're in good hands.  Keep fighting.  We don't call you LW for nothing!

    I need to watch my tivo'd DWTS, too.  Maybe I'll toddle off and do that now...

    D1

  • KathyL
    KathyL Member Posts: 534
    edited May 2008

    Kimberly:  Glad the massage was relaxing.  Maybe chemo CAN have some positives if your skin benefited from it.  Wish I could say the same of mine... but it is clearing up somewhat now that I've been done for a while.

    Tina:  The recipe from your SP sounds yummy.  What a great idea!

    Carol:  Thank God for helmets!  Can't wait to see what my ds will be into when he's older... will cause many gray hairs for me I'm sure (hey, at least I'll have some hair then).  Dh played ice hockey, football, and baseball, plus he golfs so I doubt my son will be doing anything dull.

    Paula:  Don't feel bad, I haven't gotten my act together yet to send my poor SP anything yet either.  I have ideas, just need time to go shop.  I'm sure our SPs will be happy when they get something regardless of the wait.

    CHJ:  Glad to see you're back over here.  I lurk on the TC thread still, but spend pretty much all my time here now since I'm done chemo.  Congrats again on finishing, and on your upcoming big move!

    Dana:  Good to see your post and glad to hear school is continuing for you.  I guess it's also good to have a break from chemo for a few months??? Not sure about how you feel about that...

    D1:  I am surprised that my energy level seems pretty good these days.  Don't know if it's my age, or the fact that I'm almost 8 weeks out from my last tx now-but it's nice regardless.  The only thing I notice is that I still get winded when walking real fast or going up a lot of steps.  I'm sure it's b/c my RBCs are still low.  And so crappy--- I still can't hear out of my ear!  I have to call my GP for a follow up appt.-on my list of to-dos.  While we're on the subject of recovery... how are your nails and hair status?  I never did have any nail issues.  I just notice some horizontal lines as they're growing out.  I lost my brows completely at about 6-7 weeks out, but they're starting to grow back in now.  Lashes went almost completely (about 5 on each eye now), but I do see some new "sprouts" coming in.  Hair on my head is getting there... not enough for me to ditch the wig yet, but I have hope...

    That's it for me tonight Jewels.  Going to go watch the tail end of AI.  As for DWTS, I think Marisa's next.

    Oh, I got my PS's gift today (how could I forget that?!)-so cool.  She must know I love to eat (did I put that on my card?  I should have!).  It was a package of gourmet pasta and sauces, and it has a recipe in it, too with a wine suggestion.  No, it's not Kimberly (I don't think so at least unless she got really crafty with the return address!).  I think I know who it is, but not positive yet, so I'm holding off on guessing for now.  But, thank you SP-I love it and can't wait to eat!!!

    Have "off" tomorrow-not really.  2 meetings for the new job, another lunch, and then a meeting with my "old" office.  Whew!

  • wvgirl
    wvgirl Member Posts: 196
    edited May 2008
  • golfer779
    golfer779 Member Posts: 1,378
    edited May 2008

    Wow, where did the day go?  Finally getting a chance to check in, won't be up to shout outs tonight, I don't have the energy of Paula to stay up to the wee hours to post, and the tummy is not a happy camper tonight.

    Spent a bit of time today on the ol' cel phone at work (what would I do without it), set up a time on Sunday to meet with Kalen and my other acquaintance (Debra) who was recently diagnosed, I mentioned about her a few days ago.   Debra told me this morning that she had an appt with the same onc that I see.  Long story short, she was also recommended a regimen of CMF.  Must be a Washington favorite.  She is getting a second opinion as well on Friday.  I'll be as anxious as she is to hear what the other doc recommends.  I was happy to tell her how tolerable the txt is, in comparison to what you all have went through, even though 6 months is a long time.

    Kathy, I would have bet on Sis Kimberly with that SP gift as well. 

    Hitting the tub and bed early, will probably be watching DWTS through my eyelids.   Looking forward to a morning with no cytoxan pills tomorrow, and 14 days of chemo holiday!  I'll be hitting the home stretch soon! 

    Know I'm thinking of "ya all", maybe I'll be able to sneak a peak at work tomorrow.

    Carol

  • LilWarrior
    LilWarrior Member Posts: 268
    edited May 2008

    Kathy and D1 - thanks! Its nice to get a break from chemo, but you know sometimes in your little head you wonder if that is good or not; but as always I try to leave it all in Gods hands. 

    WVgirl - that is so cute the little hamster.  He ha - brings me back to childhood days when I had one.  He ha! I havent been keeping up on all the post but I hope you are staying STRONG and not allowing anyone to bully you or to take you down, look in the mirror and say I am beautiful inside and out and I dont deserve this - God didnt create me to be put on this earth to be taken for granted.  Okay!  Wink

    Hope all you Ladies are doing great - off to study! I cant wait till my life is normal again!  What is normal???  He ha.  I think I would be bored out my mind if I didnt have school and Cancer! LOL - its just so much funnnnnnnn!  He he....

    Ta Ta for now..

    Dana Lil Warrior 

  • JulieK_11_30_07
    JulieK_11_30_07 Member Posts: 260
    edited May 2008

    Hi Jewels - it's after 1:00 a.m. and I can't sleep tonight. Guess I'm anxious for my surgery tomorrow. I got tons done today, so I'm much less stressed about things around the house and with school. That's a good thing!!

    Yes, the ds came through for Mom's day --- he made me very proud. His letter was so thoughtful and full of quite a lot of insight for a 12-year old! Makes me think I might have gotten through to him a few weeks ago - let's hope!

    It was the hubby getting the Hall of Fame award for wrestling - his high school team was inducted last night. It was a very nice banquet and quite a few of his team made it, which was really cool. He was one of the captains and was really hoping that several of the guys would come.

    Carla - so good to hear from you!! Glad you're doing so well and you seem to have made some important decisions. Good for you!!

    Kimberly - your spa day sounds wonderful!! I need to schedule a time for a good massage soon. Sounds like you might have a house full of Jewels once you get that "open" sign up!!

    Carol - Congrats to the ds on making it to Nationals!! How cool! Glad to hear his skate partner is okay - sounds like that was quite a crash! You're so sweet to take him and his dad pizza since they missed the after-practice party!!

    Tina - glad you had a nice birthday and Mom's day all in one! We had yucky weather and are still having it! It's supposed to rain pretty much all week here and has been storming most of the day and night today.

    Paula - I don't know how you do it! Hope the fundraisers all go well for you and you're getting close to your goal! Get some rest when you can!

    CHJ - Welcome back! You've been missed! Congrats on selling the house - sounds like you'll be pretty busy for a while with all the moving! Glad you have good help! Also congrats on finishing chemo - woooohooooo for you!!!

    Kathy and Paula - I'm right there with you both on not getting the SP surprise mailed off yet! I haven't had time to get out and get what I want to get - now it'll be even longer with my surgery tomorrow. I haven't forgotten you - whoever you may be!!

    Dana - you sound like you're staying strong, girl - glad your doc is on top of things. Good luck with all of your studying!

    D1 - hope your purple boob heals up quickly and you get some relief soon.

    Well, girls, I'm gonna try getting some sleep. We're heading out about 9:15 in the morning - my surgery is about an hour ½ away in St. Louis area and the construction is atrocious over there now - hoping we don't hit any major traffic. I'll be back in touch as soon as I can - they're keeping me overnight since we live so far away so the surgeon can check on me in the morning on Thursday before sending me home.

    Take care all!!

    Julie

  • golfer779
    golfer779 Member Posts: 1,378
    edited May 2008

    A Very Good Morning Shout Out to ....

    Wendy, time to scratch another txt off, and to Sheebas ... last one, gotta like that!!!  All the best to you both for a uneventful day at the lounge. 

    Julie, thinking of you as well today, hoping that all goes well with your surgery and your back on the mend real soon.  I bet you'll sleep good tonight!!!

    Off to work, this work thing can really get in a gals way, too many things I'd rather be doing ... !!!

    Carol

  • SISKimberly
    SISKimberly Member Posts: 762
    edited May 2008
    Good Morning Gals,
    So, I finally started my vision board yesty. I still need some pics, but it’s coming together. Now, I need to find some frames.

    My appt. with the rads doc is today apparently. The gal who called to set it up told me the 15th and said the office would send me paperwork to fill out and bring with me. No paperwork has arrived, and I got a call yesty to confirm my appt. for this morning.  Hmmm. Not a very organized sounding office. Glad it’s just a consult.

    LWDana- Hey, it’s good to hear from you, and heck yeah you’re going to be around for at least 10 more years!!!

    October will be here before you know it, and you’ll be graduated and done with chemo, too. Yippee.

    D1- I seem to have a thing with pet segways, as I did it again with CHJ who is pictured with her cat and who posted right after Paula’s post about cats. I don’t think noticing and appreciating a good segway is weird at all, but then look who you’re talking to. HeeHee

    I would totally sacrifice yourself for the sake of researching this theory’s accuracy. Get a facial…oh heck, get a massage, too, while you’re at it. Couldn’t hurt to have the skin of the whole body checked out as well. Of course, laying on your stomach with purple Frankenboob may not yet be comfortable.

    I’m with you about not knowing how our working girls do it.
    I’m tired just thinking about going back to work.

    Kathy- Awesome SP gift. Sghetti for dinner tonight, eh?
    I think Marissa is gone, too. I didn’t watch last night, but it is DVR’d.  Sounds like you’re doing well as far as recovery except for the ear still being unable to hear. I wonder what is up with that.

    Have a good “off” day. It sounds kind of busy to me, but if you say it’s an “off” day, then I’ll go with that.

    Carla- How cute is that?  ((((HUGS)))) right back at ya!

    Carol- Sorry to hear about your tummy, but yeah on the 14 day break!!!! WHooHoo!!!! 

    That’s so great that you, Kalen, and Debbie are going to have a chance to get together. It is interesting how oncologists have their leanings towards treatments. It will be worthy of note to see what the other onc recommends.

    Hope you got some rest last night.  (Oh, your post this morning sounded down right perky, so I guess you got some good sleep.)

    Julie- Thinking of you today, girl. Good thing you’ll be able to catch up on your sleep during surgery and recovery since you were up past 1am. Glad you got all your stuff done so you don’t have to worry about it.
    Just say, “Yeah” for Foobies.  Another step towards finishing this journey!!!!

    Go get ‘em Wendy and Sheebas. Yeah for the last one, Sheebas!!!!

    I sent a PM to both Wendy and Sheebas when I was doing an MIA check, but haven’t heard back from either, yet.  Hope all is well.

    I’ll let you know how the rads appt. went when I get back. I think I’ll do a little shopping today and use the malls air conditioning.

    SIS Kimberly

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2008

    Glad you all enjoyed the Olympic photo.

    Kimberly, I believe the PET results will be available perhaps today (maybe yesterday). I have to remember to call the Onco. to see what's up.

    At the softball game, Team USA played a pro women's softball team named the Washington Glory. Several of the Team USA players also play on the Glory. It was a close game (most opponents of Team USA go down quick and go down hard ...), but Team USA won 1-0.

    I played some softball in years past. Played in the pre-teen years and was pretty good, made local All Stars. Then a back injury at 13 sidelined me (I was paralyzed for a few weeks). I never quite got back all my strength, speed, and flexibility. However, I played some more in my 20s and 30s. Finally, the joints were complaining too much.

    It was somewhat bittersweet watching the game. I so felt the pull to be out on the field, but then was reminded of the years that time has piled on, the cancer that has taken my strength ... felt a bit like a broken down thoroughbred watching the big race. Then I remembered that I had my young strong years of playing and enjoying the game from the grassy side, and it was ok. It was just a wistful moment, you know how you get those once in a while. 

  • Determined1
    Determined1 Member Posts: 806
    edited May 2008

    Wow, I'm pooped today.  The morning was spent getting the house cleaned up.  Then I drove out to the airport to meet my sister, who was flying through DC on her way to London for her job.  She had a 4 hour layover, so I picked her up and then we went to a nearby shopping area to walk around and landed in a restaurant to get a drink and chat.  Then I took her back to the airport and drove home during rush hour (yuck).  Now I'm tired and ready to repair to the tv to watch some tivo'd action.

    Been thinking about Julie all day long.  I hope everything's going okay.  It'll be a long wait for her report since they're keeping her overnight...

    KathyL-Sounds like you're coming around really quickly.  Although the ear thing would make me crazy.  Hope when you call the doc, you'll get some relief.  My nails are still a mess (my sister said they were "scary.").  Good thing I have polish on my toes and don't have to look at them every day.  Eyebrows, leg, pit and pubic hair are coming in rapidly.  Eyelashes are totally non-existent on the lower lid (well, I think I may have 5 on each eye-sad when you can actually count them), and show no signs of coming back.  Hair on the head is very slow.  I'm going to keep my hair appointment on Friday to see if there's anything that can be done about it.  Maybe if we can color it, it would show...

    I got a gift from my SP today, it had a wine theme, too (it's a book filled with info to help me enjoy the wine experience)!  I think either SIS Kimberly is having an effect on all of us, or all the wine conversations we've had around here have given the SPs some ideas...

    Oh yeah, Carol, a chemo holiday!!  You deserve it. That was such a "good eggy" thing to take pizza to the ds's partner after his fall.

    LWDana-I'm with you-what IS normal????

    Urgh.  The appointment switcheroo is so frustrating, isn't it, SIS Kimberly?  Good thing none of us has a life that interferes!  Undecided I'll be interested to hear what they recommend you do and why.  I also want to hear what you plan to do with the information.

    I got a certificate to a spa for Valentine's Day this year.  Dh thought I'd want a massage when I finished all of this, but I can't have a regular massage for a couple of years because of the le.  So I thought I'd look into aroma therapy, but maybe I'll have enough for a facial, too.  I'll have to check.

    Wistful moments.  Yeah, LJ13, I know what you mean.  At first they're hard, but then you have to refocus and remember that the reason you feel wistful is because at one time you were in the thick of the activity and got so much pleasure from it.  Then you can turn your attention to the good memories.  And I don't think cancer necessarily will preclude us from participating in the things we love.  I think sometimes it's more just the passage of time that makes us move on.  But the good news is that by moving on, we make ourselves available to new experiences.  So, as Vettegal would say, "it's all good."

    Congrats to Sheebas for the last tx today!!!  And I hope everything went okay for Wendy in the lounge.

    Tomorrow is Deb's big day.  Last one, Deb!!!  FUBC!!!!

    D1

  • KathyL
    KathyL Member Posts: 534
    edited May 2008

    Hi Jewels!  Another busy day-- yeah, right... it was a "day off", but still not a crazy pace so I did OK.  My "old office" is going to let me do 1-2 evenings a week.  I am happy b/c this means I can still see some of my patients, keep up on skills, and keep my NP license I worked so hard for.  Yea!  But one things I've learned through BC is not to over-extend myself, so I will be keeping close tabs on the "extra" time I do there.

    Anyway, just wanted to say hi to Julie and hoping her surgery went well.

    Catch y'all later. 

  • Cathy-CA
    Cathy-CA Member Posts: 686
    edited May 2008

    Had my "final markings" today for rads.  I had thought when they said tattoos it would be with a hot needle and would hurt at least a little.  I'm not sure exactly what they did, but it seemed like they took a tiny pin and pushed some ink into my skin.  You can barely see the three they did and if I hadn't been told they were doing it, I wouldn't have felt anything.  So, for any of you who still have this coming up, it is so not a big deal.

    Dana -- keep up the good work in school.  It will be over before you know it.

    D1 -- I know all about the scary nails.  My finger nails are a mess, but I figure this too shall pass.  I may go ahead and start painting them in a few weeks just to hid the dark ridges.  I'm lucky that I've always had strong nails, so haven't had a problem with tearing or breaking.

    Kimberly -- I don't know what it is about rads offices, but mine is definitely the weakest link in the this whole process.  I was fortunate to get a standing time for rads that works very well with my schedule, but they sure aren't organized. 

    Julie -- sending good thoughts you way that surgery went well and you have an easy recovery.

  • SISKimberly
    SISKimberly Member Posts: 762
    edited May 2008

    Good afternoon/early evening Jewels,

    Well, I’m back from my day out. Took the ds to get his books for summer session and had lunch, got my picture frames for my vision board, and got some new capris at Kohls, buy one get one free, can’t beat that!

    Oh, yeah, and I saw the radiological oncologist. I wasn’t looking forward to heading into that environment after feeling so darn free, but she was very nice and explained all the reasons why I should consider rads. Being high risk, I have a 30% chance of recurrence and rads may decrease that chance to maybe 10% -these are relative numbers. This I knew from my research. My dh was with me, and after our meeting was all said and done, he and I were still not convinced this was the way to go.

    There were two things the onc. was basing her decision on:
    lymph involvement and the margins of one of my tumors.

    She told us that the lymph involvement was 40% and anything over 20% is recommended for rads.  My dh stated later to me, “so if your surgeon had taken more than 10 lymph nodes, that 4 of 10, or 40%, would have dropped, so how is that even a legitimate measure of deciding treatment?”  Good point.

    She also told me that the margins of the tumor at 7:30 were not clear at the chest wall. My surgeon didn’t say a word about not having clear margins when she went over my pathology report.

    I just looked at my path report again and the front of the report states the tumor of concern for the onc. is 0.3cm from the margin. According to my research, surgeons prefer at least 1 millimeter, or 0.1cm, from affected areas to the margin. 0.3cm is more than 0.1cm, right? So, again, I have to say, the dh and I are not convinced this is a reason to do rads. I’ll be calling my surgeon tomorrow to just check in with her about her interpretation of my path as I know she would have stated her concern if there weren’t clear margins.

    OK, moving on…

    Carol- Thanks for calling to check in with me about my appt. and for supporting me in my decision.  I know you and the other Jewels care about me, and that is worth so much in my book.

    LJ13- Sounds like the softball game was a great game. I totally understand the nostalgia thing. Being a dancer, I see wonderful dancing shows on stage or like DWTS and So You Think You Can Dance, and it just takes me back to when dancing was a big part of my life. Sigh….great times, great memories, and so glad I had the chance to experience that.

    Did you call the doc?

    D1- Wow, you had a busy day. No wonder you’re pooped.  Pour yourself a little glass of wine and watch something tivo’d.  I wonder which wine goes well with TV? Maybe you could look that up in your new book.Laughing

    Go for the aroma therapy during the facial!

    Kathy- Glad you had a good ‘off’ day. I’m glad you’ll be able to keep your NP license clear with the hours at the old office, and agree wholeheartedly about watching that you don’t over extend yourself.

    OK Deb, go get ‘em tomorrow. WhooHoo on it being the last one!!!!Smile

    SIS Kimberly

    Hey, CathyCa, we must have been composing at the same time. Glad the appt. times work with your schedule and that your tats aren't too noticeable, and certainly hope that the techs are way better organized than the front office. 

  • joteach
    joteach Member Posts: 116
    edited May 2008

    Good evening Jewels,

    Just had suntan #7 today. I also saw the rad onc - it was postponed from Monday. I'm beginning to show a little pink and had some itching yesterday. I have been using the aquaphor but he gave me a sample of Xclair cream which is a prescription. More creamy and not as greasy as the aquaphor. Everything going pretty well so far. I have had some fatigue but not too bad yet.

    I'm working full time so that's probably part of it. The onc nurse told me to do some walking which I intend to do more of. They also have a free 3 month membership to a health/gym club for cancer patients

    which I am going to take advanage of.

    I'm anxious to see the results show of AI tonight. Last night on DWTS was no shocker. Marisa seemed to know she wwould be the one going home.

    Later,

    Joan

  • tinalee123
    tinalee123 Member Posts: 112
    edited May 2008

    Good evening Jewels.

    Just a quick hello.  Been a busy week at work for me, going into the office everyday to take a technical course.   

    Julie, been thinking of you all day and hope things went according to plan.  Check in when you can!

    Lovely day here today.  Had some rain and sunshine, then all of a sudden the trees are leafing out!  Where the heck did those come from??  Heard on the radio there were snow showers in far northern MN.  Just a reminder that our possible snow season continues until the end of May.   Tongue out

    Hope you're all well.  

    Tina 

  • golfer779
    golfer779 Member Posts: 1,378
    edited May 2008

    Holy Toledo, finally got the chance to read the post tonight, been going like a wild woman since sun up. 

    Big news in our house, the ds got his first "real" job.  Spent an hour (which I hadn't expected), talking with the manager (who happens to be his aunt), at a local restaurant.  I really thought that she would probably put him on a list for potential openings at some point.  Well the ds came back to the car which I was waiting in and had a schedule for the weekend to be a busser.  Works Friday night, Sat night  and Sunday as well (will be in training mode).  We have one busy beaver as he had already commited to working in the neighbors yard tomorrow and in his grandma's yard Sat morning.  Oh, the real life, no more lounging for hours surfing MySpace!!!  Our small town has a yearly festival (Viking Fest) this weekend, so the town will be packed as well as the restaurant, should be interesting for the ds.

    Kimberly, the dh and I just got back from dinner out, we we're discussing a bit about our conversation this afternoon.  The question you proposed to me as to how close is close with my margins came up.  You'd think I would have known the numbers, whipped out the path report when we got home, and my margin stated that the margin is .5cm on the front page of the report and then states .2cm on the last page of the report at the chest wall for invasive carcinoma.  It also states that LCIS is present at the ink deep margin.  With that said, the dh suggested and I agreed that we should also get a second opinion with a radiologist.  Not thinking that I'll opt out of rads, but another opinion doesn't cost much but some time!

    Julie, definitely been thinking of you today, hope your resting well this evening and get a restful night in the hospital.

    Looks like another Jewel has something to celebrate come tomorrow, way to go Deb, congrats on this being your last visit to Chemotiniville!!!

    Hate to be the "party pooper" but with as slow as I am with typing my shout outs, I'll have to pass again tonight, the 5:00 wakeup is already calling my name, I'll never make it through AI tonight! 

    Know that my fellow Jewels are all on my mind often, and I wish the best to you all.

    Pleasant dreams, Carol

  • RN2teach
    RN2teach Member Posts: 312
    edited May 2008

    Good morning Jewels,

    I have been in major sleep mode here for the past 3 days. By the time I get home from rads all I can think of is a soak in the tub and my pjs! Fell asleep during DWTS both nights and never saw the end of Team USA vs Tenn. last night.

    The fundraisers on Tuesday were exhausting, but well worth the effort-- we're $1,000 closer to our goal. I think we have about $4,000 to go... We have a few donations forthcoming--so hoping that Friday's McHOSA night is our LAST fundraiser!

    Julie- I've had you on my mind and in my prayers. Hope your surgery went well!

    CHJ- good to hear from you. Sounds like life is going to get hectic with the moves. Sending wishes for good weather and lots of energy for the tasks ahead.

    Kathy- I'm glad things are going well with you on the work front. Do be diligent in taking care of yourself. I worry about you with those babies at home. Smile Guess that's why we have them when we're young...

    LJ- watching for your post on that PET scan. Fingers and toes crossed for a good report.

    D1- sounds like a good outing with your ds.

    So, the nails are still funky, too? Bless your heart, girl! Is there a se that you missed?? Not many, I'll bet-- thank God its all over but the healing!

    CathyCA- I agree on the tats. Mine are tiny specks (barely visible). I felt them, but it was a quick pinchy feeling--nothing major.

    Joan- oh no! Red already? Keep me posted on the new cream. I've had some itching last 2 days.

    Tina- Hope the snow stays north of you!

    Kimberly and Carol- I am praying for both of you as you make the decision to rads or not to rads. Both of your margins are tiny--even if they are outside the acceptable range... I'm glad you're getting the second ops. I'm behind you both, my sisters, in whatever you decide. Best wishes to you both!

    OK, so I totally blew off my start time at work this morning so that I could post. My boss is sooo kind to me--I really shouldn't take advantage of that! We're having a "company picnic" for the students, so no class time this morning. I'd better head out, though. Lots of prep to do for the festivities. Students will arrive at 9am...

    Have a good day, all.

    Paula

  • SISKimberly
    SISKimberly Member Posts: 762
    edited May 2008

    Good Morning Jewels,


    Before I say anything else, got an email from CarolC. She’s been overwhelmed with bc txs and se’s, losing her job in March, and the fears of financially not being able to keep up on bills and her insurance. Lots on her plate. The good news is she just accepted a job offer. She wants me to extend her best wishes to all of you and to apologize for being MIA, which I told her not even to worry about as we certainly understand.  She’ll try to check in when she’s able to manage it.

    Hey Joan- Glad to hear your rads is going well so far and that the onc was able to give you a cream to lube the boob that will give you more relief that Aquafore.

    Score on the gym membership!!!

    Tina- Technical course, eh?  Sounds too much for my brain at this moment. Seeing as you are transitioning from working at home, can you wear jammies and fuzzy slippers to training, or do you suppose they’d frown upon that?Surprised

    Snow until the end of May?  I have been sheltered! I thought living in Lake Tahoe during my 6th-12th grades was experiencing a ‘real’ winter. Guess not.

    Carol-  Speaking of ‘real’, WhooHoo to the ds on his first real job, not that mowing lawns and stuff isn’t a real job.

    The Viking Festival. That sounds interesting. My family’s origins show that we were Vikings who settled in Normandy, and then moved into Scotland.

    I agree that a second opinion is never unwise (Oooh, a double negative. Shame on me). My onc told me I certainly could get a second opinion, but that she knew they’d tell me the same thing she did. I respect her honesty, but will check with my surgeon as I said earlier just to double check.

    Hope you got some much needed sleep, my friend.

    Paula- With all that you’re doing, just finishing chemo, and now doing rads, no wonder you’re in sleep mode. Glad you got to take a little time this morning.  Hope your company picnic goes well and that your McDonalds fundraiser gets you to your goal when added to private donations coming in.

    Thanks for your support regarding rads.  It is such a crap shoot, isn’t it?  I just have to believe that asking lots of questions and getting lots of information is all I can do to feel confident in my decision in the end.

    Julie- Thinking about you and hoping the new foobies are not causing you too much discomfort.

    I have to drop my ‘stang off today at the dealer. The damper that should switch from defrost mode to vent mode isn’t working, so air conditioning only comes out of the defrost vents at the windshield and some air on the floor, but nothing out of the vents.  Not going to work in the 100 degree weather we are going to experience over the next 4 days.

    Have a good day ladies. I’ll check in later.

    SIS Kimberly

  • golfer779
    golfer779 Member Posts: 1,378
    edited May 2008

    Good Morning/Afternoon Ladies,

    Trying to get a little puter time here at work ... we'll see how long this will last, before I'm dispatched out.

    Paula, sounds like you may need some Paula time, good for you on going in a little late, you've been such a trooper for the last few months, and it sounds as if your "higher ups" have appreciated your efforts. 

    So the cats we're more appreciative of Mom on Mother's day then the kids this year ... sounds so much like my own teen.  Hoping one day my own ds figures out that the world is not just about him. 

    Carol (CHJ), glad you popped in to let us know how you've been doing.  My oh my, you've have been a very busy gal, I could not imagine the amount of work involved with moving, and doing it while undergoing txts is to be commended.  Sure hope that once the move is made you'll have some good down time to relax. 

    Will be interested to hear your rad simulation experience as well if you get a chance.

    Dana, I may have missed something along the line, but why did your onc stop any chemo txts?  Sounds like your tolerating the tamo pretty well, any chance you had a blood test to see if your body is metabolizing the drug? 

    D1, havn't had time to check out the music you suggested.  Maybe tonight I'll make some time.  I got my marigolds planted, the ds squared away with a job, so its Carol time tonight (planning on a good long walk) after work with my brother and friend. 

    That was cool you we're able to share a visit with your sister, I bet you covered alot in the 4 hours you had together.  It must be nice to not have to plan your day around a doc visit.

    Time to use that gc for the spa, it all sounds good to me.

    Kathy, noted a couple of gals saying they we're "sorry" about not getting SP goodies in the mail.  The last thing I'm sure any of us would want is to have put extra stress on any of our sister friends when it comes to the SP gig.  My thought is when the time works for you (and others), the time is right.  No Worries!!!

    Just wait, as your youngsters get older the activities seem endless that they can be involved in.  Looks like you've already started with your daughter and dance.  The fun is just starting!!!

    So any improvement with the ear? 

    Julie, hoping for a smooth ride home (no bumps or potholes), and that you got some much needed sleep last night.  Oh yeah, how can you get good sleep when those darn "nurses" (sorry our Jewel nurses), have to wake you to check bp, or temp. 

    LJ, any word on your PET results, I like the idea of no news is good news and I'm sticking with it.

    I played softball from age 13 to 35.  Met my now dh when I turned 35 and decided I liked to spend more time with him than the ladies on the ballfield, so retired my mitt and bought golf clubs.  That darn baseball swing has done nothing good for my golf game!  Ever swung a golf club?  

    Cathy, so did your rad doc do a CT scan prior to your simulation appt?  My rad doc wanted me to wait atleast 2 weeks after chemo to let some of the drugs work there way out of my body.

    Been getting any walks in?  I need to get back into the groove of things.  I felt so much better over the last month while I was much more active, where have we heard that before?

    Joan, on the exercise front ... I'm going with D1's theory which sounds like your rad docs suggestion to keep moving.  So getting red after round #7, Yikes !!! how many more to go?

    Tina, I'm with you, this work stuff gets in a gals way!  Sounds like your staying busy as ever.  Check in when you can, there are still a few of us hanging on!

    Okay, I feel better atleast reading the post and getting caught up somewhat, looking forward to some really decent weather here in the PNW, looks like shorts weather for the walk tonight, "LIFE IS GOOD"!!! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2008

    Carol and gang, that's right, no news on the PET scan, trying to leave a message at the Onc's office is an exercise in frustration.

    I've never played golf, but went to a driving range one time and hit a bunch of balls. I know exactly what you mean about the bat swing being counter-productive. All I could hit with the golf club was line drives ... couldn't get any loft in the ball. I was afraid to come up on the ball on the tee, was afraid I'd hit the ground and snap the club or something. 

  • PAlady
    PAlady Member Posts: 176
    edited May 2008

    Hi  Jewels,

    I am sitting at the airport getting ready to leave for a girls weekend to the beach. I am flying down to Charlotte, NC to meet up with some dear friends. DH and I lived there for 8 years and moved back here 5 years ago. Tomorrow, 6 of us are driving down to Charleston, SC for the weekend. I will stay in Charlotte then until Tuesday. I am so looking forward to some warm weather and sunshine!

    I did want to wish Tina a happy belated birthday and Carol, congrats to ds for making nationals. That is quite impressive!  Julie, been thinking of you and hoping your surgery went well.

    I  hope everyone has a good weekend.

  • golfer779
    golfer779 Member Posts: 1,378
    edited May 2008

    Norma, have a well deserved weekend full of fun, don't do anything I wouldn't do !!!  Don't tell my boss that I'm on-line during work hours, (he's in SC himself, hitting the links with some golf buddies)!!!

    Keep the "gals" out of the sun, but let the rest of your body soak up some good ol' Vit D.

    Here's to a great time!

    Kimberly, thanks for the update on CarolC, I'll be sending positive vibes her way that things start to turnaround for her.  Life works in mysterious ways adding insult to injury for too many of us. 

    I sent off a e-mail to Jennifer who has been MIA as well, havn't heard anything from her.  I go back to the theory that no news is good news.   

    Okay, back to why I'm at work, must get something done, although my lack of interest at my work is taking its toll.

    Carol

  • KathyL
    KathyL Member Posts: 534
    edited May 2008

    So reading about everyone's rads tattoos... you'd think this would be more exciting-I mean can't they make them look cute at least?  Like a star, or heart, or smiley face???  I joked with my PS asking her if she did any breast tattooing other than nipples.  She said no, she's really only good at circles! Hee hee hee.

    Joan:  No shocker to me either on DWTS and also AI.  I hope David Cook wins it all on AI.  Bonus for you with the free gym membership-that's really nice!

    Kimberly:  Glad to hear your appointment went well.  At least they didn't present you with info that threw you for a loop.  So, will you get another opinion, or are you OK with all you've heard?  I too hate statistics -fuzzy numbers-- plus there's always one who will defy the majority anyway!

    Just read further and see you're going to talk with your surgeon...

    Carol:  No change in my ear.  My GP has decided to send me to a specialist (Sheesh!  Another one!).  She didn't see me, just decided this after I called with my questions.  Ever get the feeling us BC patients make generalists nervous? I have an appt. the 27th to get a hearing test and will be seen by an ENT doc after that (all in the same day).  I'm thinking (and hoping I'm right) that it's just fluid stuck in the Eustachian tube.

    Oh, ladies, I'm just too tired tonight to write to everyone... but I've read the posts, and do think of each of you. 

    dh is leaving very early Saturday AM for a 5 day business trip to Boston.  He's never been gone that long.  I think I miss him already (sorry to be sappy).  Thank goodness my mom is coming to my rescue again and will be down until Tuesday to help with the kids.

    TTFN!

  • wvgirl
    wvgirl Member Posts: 196
    edited May 2008

    Giving a quick hello to each and everyone. I hope everyone is doing well.

    Julie K I hope your surgery went well. Sending get well wishes your way.

    I treated myself to a massage last week. It was sooo nice. Was my very first one. I will be going back for more.

    Say onc yesterday He wants me to have a MRI for the new lumps found. I will have it after my last chemo which is June 6th. He does not seem to worried. So neither am I.

    I am to see surgeon within the next month to decided whey surgery will be.

    I went to Support Group last night. There was a guest speaker there Topic was Chemo Brain. The speaker was a neurologist in the oncology field. He and my onc did a study involving b/c patients and the effects of chemo effecting the brain.

    Oh work has been so busy. I work in Morgantown (Collage town) for the water company. The phones have been ringing non stop from mooring to quiting time. We have 4 lines and 4 that are on hold waiting to ring in. And we have lack of help. Students moving in,out or from apt to apt. We are busy like this the whole month of May.

    I am whipped out when I get home.

    My dear Mom brought over homemade apple dumplings. My Aunt and her 2 friends will make about 200 and will see them for the relay for life (along with ice cream) Last year they made over 400.00 Just by selling them.

    Well gonna go get ready for bed.

    I will be tackling the Red Devil  (A/C)tomorrow                   

     Take Care

    CARLA

  • Determined1
    Determined1 Member Posts: 806
    edited May 2008

    Hey Gang,

    Don't want you to think I no longer love you.  But today has been super busy.  Good news on the le front--my arm (from elbow to shoulder) has decreased in size 1.5 cm.  Since my arms are so skinny, this is HUGE!!!  I've been celebrating all afternoon--calling my family and so on.  Sorry to be so selfish today.  I hate le and this is good news.  My legu says maybe I'll get to the point where I wear my garment and sleeve every other day (this is her life-long goal for me).  Sounds almost normal to me.  (God, this whole thing has skewed my sense of normal, hasn't it?)

    Anyway, I'll be back to see what you all are up to soon.  If I remember correctly, no one is in the lounge tomorrow.  So let's celebrate our days off!!!!

    D1

    Carol, be sure you check out Tegan and Sara (dd is listening to them next to me--good stuff) and The Weepies (when you're up to that!).

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