Who's the youngest?

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rferraris
rferraris Member Posts: 191
edited June 2014 in Young With Breast Cancer
Who's the youngest?
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  • rferraris
    rferraris Member Posts: 191
    edited May 2008

    I was dx at the age of 35 almost 2 years ago.  Recently a 21 yr old was dx in our area.  My heart breaks for her and her family.  She has received A LOT of media attention but the focus has become on her and not early detection, self exams or clincial exams.  The word now is the GMA is sending her to NY so they can do a story on her.  I know we all "deal" in different ways.  I just hate that she doesn't realize the opportunity that she has right now!  She has complained that she can't talk to anyone because those of us that are 30 don't understand, not even the 22 year old understands what she is going through?!?!?!

    Is there anyone out there 21 that can help me understand her? 

  • joykeeperorg
    joykeeperorg Member Posts: 154
    edited May 2008
    I was 23 when I was dx with stage IIIA bc there is a 19 yrs old here in San Antonio that was dx also she loves talking about it cause she says it causes awarness. We are still in the same age range. I dont know what her specific complaints are about, but I HATE BEING SO YOUNG! Its like nobody focuses on the fact that we have bc but that we are SO YOUNG that gets so annoying. Not being able to go to support groups cause everyone in there is double the age all the attention is now on the 20 something yr old. I hate the fact that my self esteem got so low cause my hair an boobs are gone and dating is so out of the question cause we think what guy would want to deal with this! You think you have your whole life ahead of you an the whole having babies might be out of the question also. Its just a lot to deal with at such a young age its hard to understand it all. I have talked to a lot of women about bc I have used the publicity that I have got her as a positive note and started a non profit foundation with my mom. If she would like someone to talk to let me know here is my email crc0214@yahoo.com I hope I have helped a lil!
  • BethNY
    BethNY Member Posts: 2,710
    edited May 2008

    Why do you think she doesn't realize the opportunity she has?

    If you're talking about this 21 year old talking about the importance of early detection, well, that's silly.  B/C early detection doesn't really apply when you're in your 20's.  We don't get mammos.  Maybe half of the girls out there in their 20's know how to do a BSE, and even when they feel something, more than half of them are dismissed by doctors, and insurance won't cover ultrasounds and MRI's.

    I think it's hard to be thrust in the spotlight when you're newly diagnosed.  I began speaking in public after my first year out from dx.  Your perspective changes so much throughout the course of that first year.

    Like this young girl, I was so angry when I was dx at 26.  I was pissed, and thought NO ONE understood what I was feeling.  That I didn't care about some 50 year old woman that had the chance to get married and have babies, and have breasts and hair at a crucial time in her life.

    I was so angry.

    And then, it went away.  B/c I learned that everyone walks this journey, and no matter where you are at in life, we all have to overcome incredible obstacles to get through cancer.

    I bet the media is eating up this girl, b/c of her age.  That truly disgusts me.

    I hope she finds comfort soon.  I know for me, before I found the young survivors coaltion I felt all alone.  And when I went to my first YSC conference, it was an awe inspiring experience.  To be surrounded by 1000 other young girls my age, all with cancer- I just felt so normal-- as wacky as that sounds.

    I wish this girl all the best, and I hope she does find somone to connect with through her journey.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2008

    Heather from Yakima, WA came to this site dx with bc and she was only 16 yrs old. She was on the Oprah show.

  • sandi-louise
    sandi-louise Member Posts: 15
    edited May 2008

    im 18 years old and a mother of 1 who is 35 weeks pregnant. i dont no as of yet if i have breast cancer. biopsy on the 20th. would like to here from others in a situaton like mine.

  • sofeemay
    sofeemay Member Posts: 33
    edited May 2008

    Hey guys! I was dx with stage IIB breast cancer in jan.07 at the age of 27. No family history of breat cancer or any cancer in matter of fact. So I had had chemo..it didn't work..so then i had a mastectomy in sept.07. I had radiation in oct.2007. In november I was told was cancer free. Just last  week a ct showed that I have lung mets. My scan spread :(. Now I am stage IV. Which totally sucks. I have to start chemo again on friday. On top of all this I lost a kidney in 2004. I've been sick pretty much since I've been 20 with different things. I just get worse and worse news every year. Well, thanks for listening. Sending everyone love and hugs. WE WELL BEAT THIS !!!

  • rferraris
    rferraris Member Posts: 191
    edited May 2008

    I have learned that she is a Sr. and a communications major and went after the media.  Her boyfriend proposed last week in front of the cameras at Relay for Life.

  • harleyhoney
    harleyhoney Member Posts: 65
    edited May 2008

    Any young girl can go to the young survival coalition for peer support. A support community for young girls diagnosed with breast cancer. There are many women there in their early 20's. They have functions and retreats and things all over the country. They have a web site http://www.youngsurvival.org/ Myspace also has a whole community of young survivors some as young as 19 at time of diagnosis.

    Be Well,

    Stacy

  • msvirgo828
    msvirgo828 Member Posts: 69
    edited May 2008

    Well I was diagnoised at 25. It's hard. I felt like and still feel like a lab rat. Most test have been done on women post menopausal over 40. The doctors sound like they are guessing becasue a womans body in her early 20's is different at 40. But to answer your question from my point of view most woman at 40 have lived life to a certain degree as a WOMAN. At 21 your just beginning....and to be sidetracked and watch your friends move on to get married, have babies, be sexy (and you can still be sexy but it's hard) etc.. I dont mind talkin about it because it spreads awareness that you can be under 40 young as she is 21 and get breast cancer.

  • gogators
    gogators Member Posts: 39
    edited May 2008

    I am definately not the youngest at 34, but I live in a relatively small community and when I went to the rad onc office for the first time (not getting tx yet, it was a consult before I found out that I had to have chemo), it was as if they had seen an alien.  I am the youngest bc patient they have ever treated.  Most of the patients at the onc office are senior citizens also, I guess I'm used to it having lived here for so long, but sometimes I feel as if I truly have different issues than they do (yet others, I feel as if we are dealing with the exact same issues...weird).  I haven't even found a support group that i can attend as they all occur during normal working hours.

    Just my 2 cents to the question.  Tina

  • hikari
    hikari Member Posts: 1
    edited May 2008

    I was diagnosed when I was 22, that was 3 years ago, it was a shock to me and my family, since bc is very unlikely when you are young. BUt so far, God is good, I am now married, :), but still we are worried on some complications of bc like ovarian cysts or something. But still there's hope . :)

  • allblackfan
    allblackfan Member Posts: 1
    edited May 2008

    My daughter was 16 when diagnosed. We have no family history of breast cancer, but we do have bowel cancer on my Mum's side and brain, carcinoma and uterine cancer on my Dad's. We do have a family history of very large breasts that come with regular monthly lumps and the occasional cysts. When she first went to the Doctor to have the lump checked I thought it would be nothing, just a cyst or fatty tissues.How wrong I was !

    That was nearly 2 and a half years ago. The tumour and infected lymph nodes were removed and then she commenced the chemo, radiation and hormone treatments.

    The oncologist thought that based on the size of the tumour it may have started to develop when she was 14.

    During treatment we heard of a young girl who had been diagnosed with cancer at the age of 14. She had a strong family history of this cancer so the recommendation was for her to have a double mastectomy without delay.

    My daughter completed her final year at school while on treatment, got great marks and also held down a part-time job. Now she is at Uni studying medicine and refuses to go down the 'what if it comes back trail' ..........but that little niggle visits me every now and then.

  • SandyAust
    SandyAust Member Posts: 393
    edited May 2008

    Yes Beth I remember really well your angry comments about how dare some 40 and 50 year old go on about how hard breast cancer is when you were never going to breast feed.  At the time I found your remarks really upsetting at my grand old age of 36.  In fact I have never been able to forget that post, I wish I could. I guess I was envious of those who had the luxury of being selfish and thinking only of themselves.  I felt these people didn't understand what it was like to have two little four year old hearts depending on you.  The thought of dying and leaving your children behind IMHO is the worst fear imaginable.  I actually wished I hadn't had children so they wouldn't have to suffer.

    By the way I have recently turned 40 and I have to admit it did cross my mind "Well I guess it doesn't matter if the cancer comes back now I am old enough to have it".  However I don't plan on going down that path again I have two eight year olds to raise.

    Also any suggestion that a woman in her 30s and 40s doesn't care about being sexy is riduculous.

    I don't know what it is like to be 50 and 60 and have breast cancer.  However I am aware that these ladies know what it is like to be my age.  You don't forget.  My Mum died of cancer last year at the age of 64.  She should have had another 20 years.  Her death was a tragedy.

    We all cope in our own ways. I hope that young girl finds someone to talk to.  Maybe someone her age who as a cancer other than breast cancer.  Lots of young people get other cancers.

    Take care,

    Sandy

  • BethNY
    BethNY Member Posts: 2,710
    edited May 2008
    Thanks for making me feel like a lump of poo sandy. Frown
  • ellie2006
    ellie2006 Member Posts: 9
    edited May 2008

    i was 28 when i found out. in march 2008 i had both my breast removed. i had dcis on both sides.

    i live in northern new york.  in the begining it was hard to talk about, i felt dirty like it was something i did to myself.

    i am 30 now and going under recontrion. its so important to talk about it, when shes ready, she will feel so much  better! i know i did.

  • SandyAust
    SandyAust Member Posts: 393
    edited May 2008

    Sorry Beth, I really am.  I am just glad that I have finally been brave enough to say how I felt at the time, and probably still do.  Previously it has festered.  Hopefully now I can move on.  I admire your journey.  You have been angry, you have let go and now you are working to help others.  Good for you.

    I really just wish there was a cure for this disease.  I saw on the recurrence board that LabradorSandra has just passed.  She was forty and had two young boys.  It is so sad. 

    I wasn't exactly an angel when this happened to me.  In fact I was really selfish towards my husband.  I got really angry with him for burdening me with his tears (nasty eh).  I said to him that I wasn't worried about leaving him behind as he would be upset for a while and then he would find someone else. I said I was just worried about my kids.  What a nice lady I was!!

    I am still working out my niche and how I am going to respond to the fact that this happened to me, and happens to so many others.  For me I think it will somehow be related to finding a cure.

    By the way there is an organisation in Australia called Canteen.  It provides support for young people aged 12 to 24 with cancer.  Does a similar organisation exist in the US?  This might help the young lady in the original post.

    Take care,

    Sandy

  • BethNY
    BethNY Member Posts: 2,710
    edited May 2008

    Yes... it's called www.planetcancer.org

    it's an awesome web site for teens and young adults with cancer.

  • BethNY
    BethNY Member Posts: 2,710
    edited May 2008

    Of course I can't stop thinking about this Sandy-- that you've held on to that post for so long...

    I just wanted to make sure you knew how it all started...

    that a woman who was 50, (who ironicly, I've become friends with since) came to this portion of the boards, and complained that b/c she looked young, and felt young, that she should be able to post in the young womens section.

    Mind you, she was a newbie, and really had no clue that the young womens forum had a lot of people in their 20's with BC.

    Her post outraged me.  I was so angry, and it was a culmination of that, combined with the looks of pity I got at the doctors office, the fact that I didn't know if  a man would love me after mastectomies, the fact that I was just starting out in my adult life and then what could've been the best years were robbed.

    I was so angry....

    But I was so wrong.  Because I learned so much-- that it didn't matter what age you were-- I wrote a post a year later to a young girl that was angry about the same thing.

    I explained to her, who had the harder cross to bare... the 24 year old that was single, the 40 year old with young babies, or the 50 year old with mets and 5 grandkids...

    the answer was simple-- it sucks all around.  Yes, the issues are different, but there's no need to be angry with those that are on the same path as you...

    It was the best lesson that came from cancer.  It taught be about empathy, and about supporting women from all walks of life, that I never would've met.

    Letting go of the anger wasn't easy-- but it's so much worse to hold on to it.  Now, I am angry at cancer.  For taking away lives that weren't done living.  I turned my anger into a passion to help others.

    I think it was something I had to go through.  And all these years later, it's amazing to know that those words affected you and I never knew.  I wish I would have known.

    The moral though- is that cancer doesn't discriminate.  And we each walk our own journey, and it changes us in different ways.  At the end of the day, we're all looking for the same result.

  • SandyAust
    SandyAust Member Posts: 393
    edited May 2008

    I think if this had happened to me at 26 rather than 36 I would have had very similar feelings.  Although I was married at 23 after meeting my husband at 18. 

    This conversation is very helpful.  It is good to try to understand other people's journeys. Obviously my journey is most poignant to me because I am the one who is living it, but I am aware that many others walk this path.

    I actually think a lot about the ladies who worry about not being able to have children after breast cancer and try to put myself in their place.  It is hard for me to do because I have children and I decided not to have the much wanted third child because of the fear of not being there to raise him or her.  As I said I also wished I hadn't had my children when first diagnosed because I didn't want them to suffer.  However if I was childless I think I would have felt exactly the same way as many other young ladies do.  The worry and the yearning must be so difficult.  Empathy is important.

    Cancer is definitely a learning experience but quite frankly I have had enough of the lesson.  In the past four years I have been through a mastectomy, chemo, a second serious life-limiting illness and 11 months ago I lost my mother to cancer.  I am totally over it. 

    Although I would say I am not really holding on to a lot of anger.  I wasn't really very angry in the first place, just frightened.  That post did upset me but it was a long time ago and I am really pleased to have talked to you about it now.

    Take care Beth,

    Sandy

  • SandyAust
    SandyAust Member Posts: 393
    edited May 2008

    Actually on reflection I am angry.  I am angry that my mother is dead. It really p*sses me off.  I try not to think about it too much.  Sorry off topic I know but I was just thinking about the anger thing.

  • RoxanneNJ31
    RoxanneNJ31 Member Posts: 180
    edited May 2008

    I was dxed at 31 with stage 2b er+/pr- her2-. no real family history and did the brac-2 test and didn't have the gene. I am now 34 with stage iv breast cancer but holding no strong.  This diease really sucks...... Its a real shame that the ages are getting younger and younger and no one really talks about change in the way that early dection is done. Even though Mamo's aren't for us younger women there is a Breast MRi machine that can detect in young dense breasts.  The government should make it mandatory every few years after 18 that women should have it done and make the insurance companies mandated to have these tests done.  Early detection is one of intergral parts in saving lives. Cure is key.

    Roxanne

  • RoxanneNJ31
    RoxanneNJ31 Member Posts: 180
    edited May 2008

    I was dxed at 31 with stage 2b er+/pr- her2-. no real family history and did the brac-2 test and didn't have the gene. I am now 34 with stage iv breast cancer but holding no strong.  This diease really sucks...... Its a real shame that the ages are getting younger and younger and no one really talks about change in the way that early dection is done. Even though Mamo's aren't for us younger women there is a Breast MRi machine that can detect in young dense breasts.  The government should make it mandatory every few years after 18 that women should have it done and make the insurance companies mandated to have these tests done.  Early detection is one of intergral parts in saving lives. Cure is key.

    Roxanne

  • nash
    nash Member Posts: 2,600
    edited May 2008

    Sandy, hugs to you about your mom. My Stage IV bc mom just died in February. We were on active treatment together for the past year--kept saying we really should've signed up for spa treatments instead. Cancer also took my dad, my father-in-law, my grandfather and my uncle/godfather. It's getting really wearisome, and like you, I try not to think about it too much.

  • SandyAust
    SandyAust Member Posts: 393
    edited June 2008

    Nash and hugs to you too.  I am sorry about your Mum and all the other family members you have lost.  What a tough time you have had!

    Roxanne I am sorry about your diagnosis.  I agree with what you said about early detection in younger women (a mammogram showed my breasts as healthy a mere ten months before one of them got "chopped off"). 

    I also wholeheartedly agree that a cure is the key.

    Take care,

    Sandy

  • jennys87
    jennys87 Member Posts: 2
    edited June 2008

    I am 24 years old (25 on 6/21) and I was just diagnosed with breast cancer on Thursday.  I had just had a lumpectomy on 5/23 but was assured it was just tissue that would be benign so didn't even think of the possibility that it was cancer even though there is a lot of breast cancer on my father's side.  The part that upsets me the most is not that I have cancer but I have been told my whole life (by doctors) that the family history did not mean much since it was on my father's side.

    While we are waiting on all of the test results I went and meet with a fertility specialist today.  We discussed freezing one of my ovaries and/or embryos. I was wondering if any of you ladies have seen a fertility specialist. It was one of the first things my oncologist suggested to me. We are waiting on immediate surgery or treatment because they did a genetic test on me to see if I have the "cancer gene". If I have the gene then I will have a total mastectomy instead of another lumpectomy.

  • BethNY
    BethNY Member Posts: 2,710
    edited June 2008

    jenny sorry you've joined our club.  There's a lot of information coming at you right now, and I know its overwhelming- so you want to make sure you fully take time to think things through.

    First, finding out if you're BRCA positive does have a TON of bearing on what you will ultimately decide about your breasts and ovaries. So it's important to get that done first.

    Second, are you married and were you ready to start a family?  If so you can harvest eggs, and have your partner donate sperm and freeze the embryos.  Then you can have treatment and get preggers later, or if you scroll up to the thread I'm pregnant by rels77a, you will see that she did all of that, then had her ovaires removed, finished treatment, and is now pregnant after having the embryo emplanted.

    If you are single, you may want to stop and take a step back before you start freezing eggs.  The ONLY advantage to getting breast cancer so young, is that it is HIGHLY likely that your ovaries will bounce back very soon after chemo.  I was dx at age 26, and during chemo my periods stopped, but within 6 weeks of finishing they came back, and they have come back every 28 days ever since.  I am fertile as can be.

    The difference in a girl thats dx at age 35, is that the chemopause may actually push her body into early menopause, and it may be much harder for someone her age to get pregnant...

    You should talk to your ONC and GYN about this.  Find a GYN that is very well versed in breast cancer in young women.

    Also, check out www.youngsurvival.org and www.fertilehope.org for more info.

  • CaNatalie
    CaNatalie Member Posts: 70
    edited June 2008

    Hi Jenny-

    I was dx at nine months ago at age 27. My family history of breast cancer also came from my dads side.

    I went to a fertility specialist after being dx and it really helped clear up some questions. I ended up doing chemo first (then bilateral mastectomies) so we were able to squeeze in one quick round of egg harvesting. Like Beth said-depending on your current relationship status might influence your decisions and options. Also, your receptor status (estrogen and progesterone) might play a factor as well. It has been my experience that different doctors (oncologists and fertility specialists) can have differing opinions on fertility if your cancer is estrogen/progesterone related.

    But most of all, I wanted to tell you that since joining this cancer club I have met some really inspiring women. I have met several that did not have kids and went on to have kids after cancer. So, don't lose hope! Come here often and you will receive lots of support to get you through this upcoming rollercoaster.

    Natalie

    P.S. Feel free to PM me if you want to talk more =)!

  • heatherof5
    heatherof5 Member Posts: 39
    edited June 2008

    hi there,

     i am new here and i am 31 and have 3 small children with a lumpectomy and a possible profylactic mastactomy on the way.  i wanted to suggest to all of you younger ladies out there to view the lifetime movie based on the book by the same name "why i wore red lipstick to my mastectomy" it is a great uplifting light hearted story that i found inspirational.  i would like to talk to anyone out there about their experiences with genetic testing, prof. mastect. and how you dealt with it.

    thanks

    heather 

  • LorenaB
    LorenaB Member Posts: 937
    edited June 2008

    Heather, have you gotten the results of the genetic testing yet?  I would not make a decision about a prophylactic mastectomy until getting those results.  I had a lumpectomy first (a few weeks after diagnosis) and then found out that I was BRCA negative (phew).  It turns out that I still need to have a mastectomy because after two surgeries they could not get clean margins, but I am just going to have a unilateral since the risk of bc on the other side is relatively small (but higher for women who are younger at the first bc diagnosis).  Since I am very large-breasted (DDD cup) I decided to get a reduction on the other side at the same time as my mastectomy, and they will look at the tissue they remove from that side.  I'm hoping it will be totally clear and then I'll be more confident in my decision not to remove that breast. 

     You should definitely look into options for reconstruction if you do decide to have the mast.  As a relatively young person (I'm 41) I decided that I want to live the other half of my life with a breast that feels as natural as possible, so after I heal from radiation I am going to have a DIEP flap reconstruction.  It's a very personal decision but it's worth exploring all the options.

    My cousin sent me that book and I've just started it.  Thanks for the recommendation, I'll have to keep reading!

    Good luck and HUGS to you!

    Lauren

  • BethNY
    BethNY Member Posts: 2,710
    edited June 2008

    Heather, I was BRCA neg, and still opted for a prophy mast on the good side, because I was 26 when I was diagnosed, and I wanted a matching new set, and also, I didn't want to think about cancer in my breasts again.

    You can find a TON of info on reconstruction at www.breastreconstruction.org

    let us know when you get the results.

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