anyone ever consider not going thru the chemo

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anyone ever consider not going thru the chemo

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  • cbme123
    cbme123 Member Posts: 19
    edited May 2008

    Hi all,  in a wierd spot right now.  supposed to start chemo Thursday, but am truly overwhelmed by everything.  Had a bi lateral mastectomy 4 weeks ago, one sentinel node positive, total lymph node dissection under left arm (I'm left handed) other nodes were clean.  TC chemo is scheduled, 4 treatments 3 weeks apart, and I am considering stopping.  Tired of overwhelming fearful feelings, the discomfort, family is fighting (husband and kids).  I am normally a strong no whine woman, lol.  Believe it or not.  Thanks for listening.  Love and good wishes to all of you.  C

  • SpunkyGirl
    SpunkyGirl Member Posts: 1,568
    edited May 2008

    Carla,

    Girl, you have every right to feel overwhelmed and tired, and you have a license to complain about it anytime!  But the best thing you can do for yourself is to take this one treatment at a time.  During the times I felt most overwhelmed, I realized that I wasn't taking it one day at a time, and that's what you have to do.  The husband and kids are probably fighting because maybe they feel the stress of what is going on too, and that's their way of coping.  Make sure you tell them what you need, and that you expect them to make YOU their first priority, not fighting each other.

    The treatments are important in your battle to win against this cancer.  You can do it!

    Hugs and Best Wishes,

    Bobbie

  • meliaanne
    meliaanne Member Posts: 682
    edited May 2008

    Sweetie, I am the biggest wuss on the planet, and I did it. You can too. Just take baby steps. Don't look at it as a regime of treatments; just tackle one at a time. You deserve the best that medical science can offer. I think I was in shock the entire six months of chemo; I look back at it and am stunned at what I did. But I just did one tiny thing at a time. And you can too. Just remember, you have had babies. You can certainly do this!

  • otter
    otter Member Posts: 6,099
    edited May 2008

    Carla, a lot of us considered not going through chemo.  Many of us with ER+ HER2- tumors (and no positive nodes) seriously thought about it; some of us were even given a "choice" of chemo or no chemo.  Most oncos can provide statistics of the likelihood of recurrence of a tumor, comparing chemo vs. no chemo.

    That said, I think it's standard procedure to recommend chemo for someone who had a positive node--even just one.  That means the cancer has spread beyond the breast, and there really is no telling how far it's gone.  Chemo is a good way to kill off any stray cells that did escape from the breast and go elsewhere.

    But I think you knew all that, right?  You didn't say in this post whether your tumor was ER+ and/or over-expressed HER2.  You also didn't give the size or grade of your tumor, or whether it had been Oncotype tested (if ER+).  Those are important considerations in the debate.  Maybe you mentioned those in a different post.

    This whole BC thing is very scary.  We would all agree with you there.  But, most of us would tell you that chemo is not nearly as scary as the alternative of facing a much greater likelihood that your cancer will return.  Now is the time to attack it--not later, once it has reappeared in your liver or bones.

    Please don't bail out on this.  You can do it.  I'm halfway through the exact same chemo regimen you will be getting.  My 3rd tx is on May 14, and I'm actually looking forward to it, in a weird way.  It means I'll be nearly done, and I can get on with my life.

    Hugs,

    otter 

  • otter
    otter Member Posts: 6,099
    edited May 2008

    Carla, I just went back and checked your other posts.  Last time you posted, you were wondering whether you should shave your head before starting chemo. My advice is to just take these things one step at a time, and don't worry about stuff so far in advance.  There's plenty of time to do what needs to be done.

    otter 

  • Harley44
    Harley44 Member Posts: 5,446
    edited May 2008

    Carla,

    I also had 4 txs of Taxotere & Cytoxan. and I am the biggest chicken, so if I can do it, so can you.  I think that  Bobbie is right...you need to try to only think about this one step at a time.  That is the only way I got through it, really.

    As I went through all the different phases of my treatment, I realized that it really wasn't all that bad, really.  Now I won't lie, chemo isn't fun, but it is DOABLE. 

    There are threads to help you cope with each different type of chemo, and if they haven't started one yet for May, you can start one.  It really helped me, knowing that others were going through similar tx and we could give each other advice and support when needed.

    Try to remember that if you try to keep up with your se's, you will be ahead of the game.  Here is what I did... whenever my onc nurse told me to do something to avoid a particular se, I did it... For example, if you get Neulasta shot the day after your tx, I did, and the onc nurse told me to take Claritin for 3 or 4 days after getting the Neulasta shot.  It helped to prevent any bone pains you may get from the Neulasta shot...  I never had any trouble with that, because I took the Claritin as instructed.  They suggest that you take REGULAR Claritin, not Claritin D.

    I'll be thinking about you... Hang in there!

    Good Luck!!

    Hugs,

    Harley

    P.S.  If you like, you can pm me, and I would be glad to chat with you more.  I know it's scary, but YOU CAN DO IT!!

  • tiff2008
    tiff2008 Member Posts: 278
    edited May 2008

    Carla, I actually had a choice of doing chemo or not.  I chose chemo because I want to use everything out there to prevent it from reoccuring.  I remember right before my first tx, I wanted to not do it because I was really scared of what might happen (the unknown).  My first tx was April 26 and it wasn't as bad as I thought!  Now I'm more prepared for the next 3.  I try to look at it as 1 step at a time, hard to do sometimes but it helps.  The step I'm going through now is the hair thing, I cut it really short right after the 1st tx, today is day 14 and I still have my hair but I know my days are numbered.  My husband is going to shave it this week....I'll be glad for this step to be over!  Don't give up, stick with it...you CAN do this!  Keep in touch with us, we're all in it together!!!!  Tiff

  • angie27
    angie27 Member Posts: 863
    edited May 2008

    Hi, Carla

    I have to come in here and tell you, that I dont think anyone was more scare than me, not to do chemo, I cry and cry and even thought about running away from it all, but you know what, I did'nt, and the reason for that is very clear, just like everyone else has explain here, the time to get rid of those lingering cancer cells is now, not later, please don't do this to yourself, you are worth, fighting now, and not to have any regrets later. In my mind being an Insurance Broker, I can tell you that :"Chemo is our insurance policy against Breast Cancer"

  • Binney4
    Binney4 Member Posts: 8,609
    edited May 2008

    Hi, Carla,

    My thoughts exactly. How could anyone not want out? All the negatives loom up in your mind, and the positives don't come with guarantees -- what kind of idiot would walk into this willingly?! None of us is that nuts.

    We painted the whole interior of the house once. It was awful. Everything got piled into the centers of the rooms and covered with old stained sheets, and I couldn't find anything for days, and everything stunk from the paint and from all of us sweating while we worked, and the meals were all thrown together slop, and all our relationships were untangling. And then somehow we were done and moved everything back in place and it was fine again. Better even, much better. But the in-between, that was hard.

    This is too. But it gets much better. And in the meantime we're all here with you.

    Hang in there, Carla!

    Binney 

  • sims2addict
    sims2addict Member Posts: 24
    edited May 2008

    Hi Carla,

    I feel the same way. I was just told I would have to have chemo, and I have to have it before surgery do to the size of my tumor.  I'm terrified, but if it's the only way to ensure life, I will have to do it.  I agree with the ladies here, take it one day at a time.  This is not something you will have to do for the rest of your life. Hang in there, and best of luck to you on a great recovery!  

  • myheidiscrapbooking
    myheidiscrapbooking Member Posts: 245
    edited May 2008


    Carla, you have to do it. You have children who need their mother. You need to give them the best chance of you being in their lives in the future.

    Heidi

  • cbme123
    cbme123 Member Posts: 19
    edited May 2008

    Hi all!  Thank you so much for your support.  I had my first treatment Thursday, so it is now day 2 afterwards.  Besides a little fatigue and tummy ache, not so bad.  Know the hair issue will be next but wigs and turbans are on notice!  Happy Mom's Day to all.  In the midst of all this I lost my mom 2 months ago, but feel her around me so strongly, encouraging me.  It is the same feeling we get from this wonderful healing site.  My love and thanks to all of you.  Carla   ps..what do you do for the tummy aches?

  • lamb6303
    lamb6303 Member Posts: 3
    edited May 2008

    Hi Carla, I started chemo TAC x6 in April. I had my second treatment on May 1.  I have really been battling with the decision as well.  I was nauseated for the first 5 days after the first treatment and constipation was awful.  I really wanted to tell my Dr what he could do with the chemo.  The 2nd treatment was not quite as bad, but still felt bad and had stomach issues for 8 days.  2 down and 4 to go. Whew....We can do this!!  I have decided to ask the dr for anti depressant meds.  It is hard dealing with the emotional ups and downs. maybe that will help. 

    PPA  - Prayer and a Positive attitude.

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