If you have just been diagnosed....

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  • Nana1014
    Nana1014 Member Posts: 1
    edited April 2008
    I have been on a few sites since I was diagnosed last week.  This is wonderful to know that I am asking and thinking about some of the very things you all are sharing.  I have Invasive Ductal Carcemoma 1.8, I don't know my pathologist report yet.  I did go for an MRI and have to go this week for a biopsy on node that showed something.  This is all alot to take in isn't it? 
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    mlvaughan.....Hi there, sorry your joining the club and sorry you didn't get an answer. I am not familiar with your type of cancer but can I suggest that you post your question on a new thread? That way everyone will see it and hopefully someone can help you out. Sorry again I could not answer you but someone will. Hang in there.

  • sims2addict
    sims2addict Member Posts: 24
    edited April 2008

    thank you crazydaisy, I'll do that.

  • UPNORTH-MISSY2
    UPNORTH-MISSY2 Member Posts: 1
    edited April 2008

    In November of2007 I went to a obgyn to have a lump checked in my right breast he said it felt like a gland  keep an eye on it if it didn't go away in few months come back he then put me on hormones for another problem and i was on my way.In January of 08 I found another lump under my right arm so went to another doctor which checked both lumps and sent me for mammo and to surgeon. The surgeon did needle biopsy which showed cancer. Was diognosed with invasive ductal carcenoma (stage 2)in January 2008. Due to my family history of breast cancer I decided on a full masectomy having all the nodes under my arm removed. After path report came back the lump was 2cm. and 1 of 8 nodes tested was positive.I have had a few complications after surgery my infusion port that was placed during surgery became infected with staph after my 1st chemo so it had to be removed then 3 weeks later surgery again to be put back in.  I have had 4 treatments of chemo with two drugs have 4 treatments left with taxol with no radiation. Should be done with all treatments in June then just checks with oncologist if all goes well on path to recovery and cancer free.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    Anyone suffering from breast cancer must know that there are many other things they can do to beat the battle of breast cancer. I have had bone cancer and I must tell you natural treatments work more effectively than chemotherapy. The doctors told me they couldn't do anymore for me, so I followed the advise of Phillip Day and I am still here today. There is hope for everyone please just read what I have to say!

    I have beaten cancer without so much as a doctors help, and so have eight other I know of whom are willing to prove it. That's right the cure is through natural supplements. Has anyone heard of Phillip Day? I wouldn't have expected you to. The battle in defeating cancer is over, it has been won, already. There are many natural treatments available which can allow one to beat the disease. In fact I am one of them, I beat it when the doctors could do no more. There have been tens of thousands many of which were told hey could do no more they were terminal and through these natural good health ways they are still alive. Phillip Day and his books show that many scientists and researchers have found natural ways to beat cancer itself. The books are a collection of many studies conducted my world renown scientists and doctors. For further information I found this site yesterday- not as well versed as it could be but  good site http://www.cancerfightingstrategies.com/ Further information is on Linus Pauling the multiple Nobel prize winner for science said in 1994 " All people should know that cancer in our society today is basically a fraud." It is known that the reason for cancer is the pollutants and chemicals in our environments foods, shampoos, etc. There are natural ways to cleanse the body of these. Things such as vitamin B17 found to be absent on all cancer sufferers is to be taken- it is found in apricot kernels. What is interesting is that the selling of apricot kernels has been made illegal by the government in the USA. Why may you ask- that's the very question we are all asking, why would they ban apricot kernels- the only true source of B17 vitamins? This one factor amoung others shows that one can rid of cancer, like me who is living three years after I shouldn't be am here to show it is proof it works. I was shown this when my cousin's friend had turned to natural supplements against the doctors wishes and is alive and well today. Phillip Day's books must be bought, you can find them on websites. The real reason why we have chemotherapy is that it is such a successful market for business a multi billion dollar industry in western countries like here in Australia.  Doctors go to school and are taught about the drugs that are available, not natural treatments. I promise with all my heart this is true, I know that you all have a chance- Please find out more about these things it has saved me and can change anyone's lives.

    Faithfully Michelle- free of cancer.

    P.S Just try it its natural - it wont hurt.

  • Beesie
    Beesie Member Posts: 12,240
    edited April 2008
    To anyone newly diagnosed or currently going through treatment, just my suggestion but I think it's probably best to ignore the above post from MikeyBB (and his 25 other identical posts from this evening).  There are no miracle cancer cures.
  • cfarmer
    cfarmer Member Posts: 2
    edited April 2008
    I dont understand my pathology report
     
  • cfarmer
    cfarmer Member Posts: 2
    edited April 2008
    I was diagnosed on the 16th of April. My tumor is 2.4 cm and I dont know what that means is it big I am very scared I have people I can turn to but I dont know how to talk about it.I still have to see an oncologist and find out what we are going to do next. the doctors are already talking about a mastectomy and getting some lymph nodes.I am scared to death Frown 
  • Tricie
    Tricie Member Posts: 9
    edited April 2008

    Hi, I am new to this site. I was looking for information as I have just been diagnosed. I'm 39 years old, my mom had breast cancer but I never thought it would happen to me. I had an open biopsy last Thursday and the doctor told me at the time that he believed it was cancer. I'm still waiting to see the report but my primary doctor called me this morning and the only thing I can remember her saying is grade 3. She didn't really explain anything to me and my follow up with the surgeon isn't until Wednesday. I'm feeling really overwhelmed and can't stop crying.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    Tricie.....Hi .....I am so sorry you had to find your way here. I'm sorry you lost your mom to this as well. Sometimes when we're scared we don't remember everything the docs may say. When you go on wednesday, take some paper and a pen to write stuff down or take someone with you who can do it for you. It helps to write down your questions before hand too. When the surgeon goes over your pathology, don't feel rushed, it's hard to listen and hear things when your scared so have him explain things to you clearly......ask if you don't and start asking for copies of all your reports as well. Being where you are right now is scary and difficult ((((HUGS))). It's hard to wait and wait is what we do a lot of. You should also ask your doctor about gene testing since your mother had BC. Hang in there sweetie, deep breaths and one thing at a time. Let us know how it goes and come back often, we're here for you.

  • Tricie
    Tricie Member Posts: 9
    edited April 2008

    Thank you crazydaisy. I appreciate your kind words and support. Actually, my mom passed as a result of a stroke but BC was among the many medical challenges she had. She got sick around the same age I am now with heart disease, BC came later, and I worry that my life is starting down the same path. All of this is so sureal. I feel like I should be doing something right away and the waiting is killing me. Given that my cancer is a grade 3 will that speed up my timeline for treatment? I spoke with my surgeon yesterday and have an appointment with him tomorrow. He has already recommended a mastectomy. This seems like such a radical course of action. I thought there would be other treatments options available. I plan to get another opinion but I don't want to delay treatment. I was told the next step is to have a PET scan. What should I expect this to be like?? Thank you again. I'm glad there are people like yourselves willing to help and offer support.  

  • anitab
    anitab Member Posts: 1
    edited April 2008

    nancy75  My sister was also recently diagnosed with breast cancer stage 2.  My sisters and I have each taken time to be with her and her family through the surgery and now she is starting chemo. She had her first treatment and she is about to go to the hairdressers for the head shave as she is starting to lose her hair in clumps.  How do we cheer her up for this part. This seems like the hardest part for her. I want to help her and cheer her up but how?  I thought of sending flowers but I don't know. Any suggestions.

  • ethansmimi
    ethansmimi Member Posts: 2
    edited May 2008

    Missy, I was diagnosed on Monday of this week with infiltrating ductal carcinoma, my tumor was stage 2 and i have another biopsy scheduled to check the lymnodes.  My tumor was 2.5cm at the greatest dimension and after removal my doctor had sucessfully removed it and had very good margins all around. 

    They are suggesting no need for masectomy unless i so choose, i am facing radiation and chemo....lots of anxiety here!

  • KKing
    KKing Member Posts: 425
    edited May 2008

    hello ...just diagnosed in april.. had surgery and waiting for pathology report.. fell like I will go crazy.... any suggestions

  • frustrated2
    frustrated2 Member Posts: 67
    edited May 2008

    mellowyellow37

    Hi, I am new to this site, but thought I may be able to help a littel.  I am also in upstate NY and I was just diagnosed last week with breast cancer.  I have a surgeon who is affiliated with Albany Med. and he and the hospital have been great up to this point.  I had a surgical biopsy this last Thursday and it was the best experience I have had at a hospital.  For me it has been less than a month since I found the lump, been diagnosed, had two biopsy's and he is ready to do my mastectomy in the next couple of weeks.  He has already discussed reconstruction and I am seeing the plastic surgeon this week.  For me the fact that my doctor has been aggressive has been a real plus for me.  I want to get it all taken care of before it spreads any further.  I am still Young and want to have some of my summer left to have a little fun!!

    I am also familiar with Samaritian Hospitals Cancer Center and it is also great.  Hope it helps a little. 

  • frustrated2
    frustrated2 Member Posts: 67
    edited May 2008

    Hi everyone doing this in reverse a little since I have already posted a response but here goes my introduction:

    I found my lump at the beginning of April.  Since it was kind of large and a little painful I did not see my doctor right away thinking is was just a bruise or something.  It all came on so fast. 

    April 14 saw my primary care DR he said it was cysts but would send me for an ultrasound

    April 18 went for the ultrasound--they then did a mammogram on the spot and set me up for an appointment with a surgeon

    April 21 saw the surgeon and had a needle biopsy

    April 23 had an MRI

    April 28 was told I had DCIS two areas one 2.2x.44x1.3cm the other .82x.46x.69 (they feel much bigger to me)

    April 29 my 32 brithday  (what a gift!!)

    May 1 surgical biopsy confirming the cancer.

    I am now awaiting the pathology report from the surgery.  I do know that enough of the breast is involved along with the nipple so that a lumpectomy just isn't worth my time.  I am going for reconstruction at the time of the mastectomy and will see the plastic surgeon this week to get the info on that.  Since I am so young and BC runs in my family I am going to have a double mastectomy.  However my DR wont do both breasts at the same time.  He thinks that with the size of my breasts that the risk of blood loss is too great.  Did anyone else run into this problem as well?  I just thought it would be one less surgery to have it all done at once. 

    As strong of a front as I put up I just can't help having these feelings of "Why Me?"  "Can anything else just go wrong in my life?"  I am 32 single and have no children and as much as I ache to have children one day now I wonder if I should.  I have the support of my family and friends to help me get through this I know but I just feel so alone sometimes.  I kind of wish I had a spouse to help lift the extra burdens of everyday life off of me.  I know I am going to get through this there is way to many things I want to do, but I feel more down than up most days.

  • Jule
    Jule Member Posts: 250
    edited May 2008

    hi Frustrated. I feel that you and I have been mirroring each other. I found my lump April 14 and went to the doctor on the 15th of April, ultrasounds, mri, biopsy, etc....now I am currently waiting to determine surgery and chemo needs. I have already seen the surgeon, but I am seeing the oncologist Wednesday and the plastic surgeon on Thursday.  We did talk about bilateral surgery when I was at the surgeon's office, but he did not mention any issue with blood loss. I have no idea what that is about, although I guess it could make sense.  I feel for you...I also feel that I am all alone even though I am married and I have two young children. You know, a lot of people offer to help you out, take them up on it. Go to a stupid, funny movie, go shopping, enjoy the weather, and do things if you can. I think my biggest issue is that I can't sleep at night which affects how well I function and cope. My doctor offerred meds to help me sleep. Are you sleeping at night? If not, have you spoken with your doctor?

  • StaceyR
    StaceyR Member Posts: 136
    edited May 2008

    Frustrated2,  I can relate a little bit to what you're going through.  I turned 34 two weeks after my diagnosis, and I'm also single and childless.  It's definitely a lot to take in.  One nice thing is that it sounds like your treatment process is moving along quickly.  I found my lump in January and only had sugery in late April - I won't tell you to be grateful for that, but I would *love* if my own journey was proceeding at that pace.  Waiting is the worst part.

    When I first got my diagnosis, I joked that I was going to do "a Sheryl Crow" - a break-up, breast cancer, adopt a baby, put out an album.  I've got the first two down, and well, we'll see about the other two (I'm not much of a singer!).  I sincerely hope for you that you're able to get some perspective on this.  It is definitely a challenge to overcome, but it is something that a lot of women successfully navigate their way through and come out strong and healthy on the other side.  That's my plan.  You can do it, too.

  • frustrated2
    frustrated2 Member Posts: 67
    edited May 2008

    StaceyR  I am sorry to have to meet you here but I am glad to have someone who is going through some of the same things I am.  I don't know how you have done it with such a time laps between finding the lump and having surgery.  I would have gone completely nuts.  I know I will get through this one step at a time but I don't have any patients, so I want it to be over now.  I hear that keeping a journal of the journey is helpful.  Maybe I could turn it into a book?  That could be a good way to end all this.  Hang in there StaceyR and keep me updated on your progress.

    Jule  again sorry to have met you here.  I just feel sometimes as if I got the raw deal in life.  But you are right I need to get out more and just try to have some fun.  My friends and family have been great and as I get deeper into this I know I am going to need them more.  I am just so independent that it is hard to not have control of this.  I have not had any trouble sleeping but I have this overwhelming feeling that I should not have to work.  That I have the right to stay home and just take care of me.  But I need the insurance and the rent needs to get paid.  Do you think that maybe the stress is whats keeping you up at night?  I have had some problems with sleep in the past and they can give you some sleep aids that wont leave you regretting it in the morning.  Keep me posted on how your doing.

  • Jule
    Jule Member Posts: 250
    edited May 2008

    Frustrated2,

    The lack of control is the worst thing I think. It drives me crazy to be waiting to see what is going to happen next. I know that the other day I was dealing with a call at work, and I got off the phone thinking that seriously this is not that important! I know what you mean about feeling that you shouldn't be at work! I also need the insurance and I also love my job when I am not dealing tedious crap. I do think that it is stress-if I wake up at night, I am up the rest of the night right now. My doctor did offer, but right now I am taking Benadryl when I need to sleep. The problem is that if I fall asleep quick without taking it, I don't want to take it in the middle of the night and then try to get up on time in the morning...especially with getting my children ready.  Whatever.....I hope you had a good day.

  • kaejon
    kaejon Member Posts: 7
    edited May 2008

    i've just been dc yesterday, but my surgeon said he can't tell what stage until he does the lumpectomy. we're scheduled for it on the 16th of may. there's no radiation therepy, just a dye injected the day before that's supposed to go to the lymph node next in line if the cancer spreads. all the others that i've about does radiation. has anybody heard of this?

  • frustrated2
    frustrated2 Member Posts: 67
    edited May 2008

    Keajon--Sorry to hear of your diagnosis.  I have heard of the dye injection but am not too familiar with it.  My Dr is also saying no radiation.  Hang in there and ask lots of questions.

    Jule--Benadryl works great.  Sorry you are still not sleeping well.  I got the results of my biopsy yesterday.  The second one.  It showed that it is DCIS and that the surounding skin and nipple were clean.  I think I caught it before it spread.  I see the plastic surgeon tomorrow and should have surgery next week.  I am so ready for this to me over with.

  • otter
    otter Member Posts: 6,099
    edited May 2008

    kaejon,

    I think you might be thinking of two different kinds of "radiation."  It sounds like you will be having a "sentinel node biopsy" (SNB) at the time of your lumpectomy.  The SNB involves injection of a dye that will move from the breast tissue into the lymph nodes under the arm.  The surgeon will identify which lymph node(s) contain the dye, and will remove them.  Those are the "sentinel nodes"--the first ones in line to collect lymph and other material from the breast, so the first ones that might contain stray cancer cells.

    For the SNB, some surgeons just inject a blue dye.  Others use a radioactive compound that can be detected with a Geiger counter-like instrument during surgery.  Many surgeons use both the dye and the radioactive marker. In any case, the marker material is eliminated from the body pretty quickly.  There is no "irradiation" of your breast--the radioactive material that's injected just leaves a trail and marks the sentinel nodes like the blue dye does; and then it's gone.

    The other type of "radiation" you  might be thinking of is radiation therapy--using a beam of radiation to kill cancer cells.  This is not done with an injection.  It's done with a machine that is kind of like an X-ray machine.  You lie on a table and the machine emits a beam of radiation onto your breast tissue.  This form of radiation is used routinely in women that have had a lumpectomy.  It is seldom needed after a mastectomy; but because removal of just the "lump" of tumor tissue can leave stray cancer cells behind, radiation therapy is needed to be sure they are all killed.  I know of very few women who have lumpectomies and do not get radiation therapy afterward.  The radiation therapy is not done until several weeks after the surgery, though.

    Please do not worry.  (Easy to say, right?)  Ask your surgeon about these things, or call and ask his/her nurse.  They should be able to answer all your questions.  If not, then be sure to post on these boards and we'll try.

    otter 

  • Jojo34
    Jojo34 Member Posts: 5
    edited May 2008

    HI - having third surgery within 3 weeks, getting frustrated, it seems to be more and more each time, am having mastectomy RB, I asked them to do it last time but would not. My children are stressing more and more each time I have to go for surgery. I just want to get on with it and get back to our normal lives!! Will be going for scans blah blah I am over hospitals, but know I have a couple of months at least for it to be my second home. Just frustrated, frustrated and frustrated.

  • frustrated2
    frustrated2 Member Posts: 67
    edited May 2008

    jojo--Hang in there and remember it will all be over before you know it.  Did you opt for the bilateral mastectomy and they would not do both breasts at the same time?  I asked the DR to do both of mine at the same time but he refused.  Just wondering if you had run into the same problem.  Just keep looking forward, it will all come to an end soon.

  • ivylass
    ivylass Member Posts: 1
    edited May 2008

    Hi, I'm new.  I was diagnosed on Tuesday.  I have a precancerous lesion (Atypical Ductal Hyperplasia) and a tumor (Infiltrating Ductal Carcinoma.)

    I'm 40, no history in my family except for an aunt on my father's side.

    I go for an MRI next week, then two appts with the oncologists, then an appt on May 29 with my surgeon, and then I guess we'll find out if it's bye-bye to the whole breast or just part of it.

    I feel fine.  The tumor is less than 2cm.

    Everyone at work has been great, my husband is very supportive, but every time I think that I might have to have a mastectomy I lose it.

  • Jojo34
    Jojo34 Member Posts: 5
    edited May 2008

    Hi

    frustrated2 - Rb is the initial "need to do" mastectomy, my mum and her sister have had BC in the last 4 years, I am 34 and have asked if they will do Lb at the same time . I have not had an answer yet. It does not seem to be the done thing here in Australia - It was not even mentioned at "sorry we have to do surgey again" consult. So not sure if they will even do it at all.

    Onwards and upwards. 

  • jezza
    jezza Member Posts: 698
    edited May 2008

    Hi jojo

    I am in Aust. I had a prophylactic mastectomy on my right breast 6 months after my Lb mast. It took me that long to decide.I had expanders put in at time of mast.

    I had never heard of the blood loss issue. My mum had a bilateral mast. and had no problems.

    I have sent you a private message. Go to MY HOME at top of page to retrieve it.

    Hugs

    jezza

  • Shirlann
    Shirlann Member Posts: 3,302
    edited May 2008

    Well, generally, size is certainly a component.  They like to find these critters as little as possible.  BUT, Dr. Susan Love in her book mentions that often a pin sized cancer will metastasize and a great big, lazy one is taken out and never seen again. 

    I think this "unknown" or lack of "for sure" answers in cancer treatment is what drives us all nuts.

    I have yet to see the breast cancer that is not described aggressive, although certainly, some are worse than others.  And the part about invasive, that is the very definition of our cancers.  They have invaded other tissue.  DCIS, the best of all diagnoses, is merely cancer of the breast "in situ", or, latin for "in place".  These have not spread out of the spot they started in.  Almost all of us have cancers that are out of the original spot, into other tissues.  This is not a severe worry.  The thing we all dread and worry about is spread to Lungs, Liver, Bones, Brain, that is the fear we all have.  Many, many women have positive lymph nodes.  This is a worry too.  But the lymph nodes are all over the body and are made to stop things from moving to other places.  This is their job and this is what they have done if they are positive.  This is not an ideal diagnosis, but does not mean doom.

    We had one gal with a large tumor and 27 out of 27 nodes were positive.  I spoke with her recently and she has been fine for 7 years.  One just doesn't know.

    Gentle hugs, Shirlann  

  • frustrated2
    frustrated2 Member Posts: 67
    edited May 2008

    Hi Jojo

    I had initially wanted them to do both at the same time but now I am thinking that it would be less pain and easier recovery although it will be two surgeries and more time out of work.  I am just to independent to not be able to do for myself.  I am already having to give up too much control over things.  Hope things are coming together for you.

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