CT false positives?

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  • pod1257
    pod1257 Member Posts: 262
    edited April 2008

    I had a CT yesterday and it came back, "they found something."

    Has anyone else had a positive CT scan and then come to find out it is really nothing?

    I am a stage 1 IDC survivor, almost 2yrs out. The CT was for a problem totally unrelated to breast cancer and in a place you wouldn't find mets for IDC, hormone + breast cancer. My internist ordered the test and I didn't even tell my oncologist. ( I won't go into the boring details, but suffice it to say, I am having another test next wk). 

    I am so discouraged and scared. I was lucky with the breast ca and have an excellent prognosis and thought I was out of the woods and could start enjoying life again. -But am now worried I have a new totally unrelated cancer.Frown I know anything is possible, but how could this be?

    Looking for encouragement that CT scans can be wrong.

    Thanks for any advice.

    Julie

  • vhqh
    vhqh Member Posts: 535
    edited April 2008

    I had liver lesions show up on the CT that turned out to be benign, what didn't show up was a bone met, both the CT and bone scans missed that one, a PET scan found it.  An MRI was then done and it showed severe thinning of the bone in that spot that a plain old fashioned xray proved was false. 

    Don't let yourself get too bent out of shape yet, these scans are wonderful diagnostic tools but they are far from being perfect.

  • pod1257
    pod1257 Member Posts: 262
    edited April 2008

    Thanks,

    It's nice to know it might be negative. - I've been scared out of my mind since last week. The day after the CT, I was just shaking all day.

    I'm having an endoscopy Tuesday. I am still very scared and wish I had done the test last, wk, as they offered to get me in. Thank God, Tuesday is almost here, as I don't think I can take much more of this waiting.

    Julie

  • GoodMommy
    GoodMommy Member Posts: 294
    edited April 2008

    Hi Pod,

    When I was diagnosed in 2005, they did the typical tests before my bi-lat. mastectomy including a CT scan.  They found some hypodensities on the liver.  I was 53 years old.  This became a long story which I won't go into here; but my oncs office wanted me to cancel surgery which was going to be done the next day on a Saturday because my breast surgeon and I are friends.  The oncs office wanted an ultrasound of the liver.  My son was in medical school at the time and before the surgery the next day, he met me at the hospital to view the ultrasound and asked to see the CT scan.  They couldn't find the hypodensities on the ultrasound and the radiologist told my son that if it were her mother she would advise her to go through with the surgery because at 50 years old almost everyone has something on the liver usually fatty deposits.  She said that if it weren't for the bc, more than likely they wouldn't even be concerned about them.  I hope this helps and I also hope that you get good news on Tuesday.  So far, my liver is fine.  By the way, I'm from St. Charles, MO.  Who is your oncologist and what hospital are you going to?

    God bless,

    Chris

  • pod1257
    pod1257 Member Posts: 262
    edited April 2008

    Thanks Chris, for the info and good wishes for Tuesday.

    I am from the Wildwood area and Dr Susan Luedke is my onc. and Dr. Diane Radford was my breast surgeon. I go to the St. Louis Cancer and Breast Institute.

    The test is at Advanced Endoscopy with Dr. Tdorsik.

    I am still stressing a little but am going to leave it to God. Luckily I am the 1st one scheduled, so I will know something soon.Smile

    Julie

  • mrimike
    mrimike Member Posts: 4
    edited April 2008

    From someone who works in radiology (MRI) I can tell you you that we find benign things all the time.  The more scans you have the more suspicious things will pop up.  Most of them are nothing and you can drive your self crazy if you have too many of them.  Most people that work in radiology wont get in the scanner themselves because of this very reason. 

  • GoodMommy
    GoodMommy Member Posts: 294
    edited April 2008

    Julie,

    Dr. Luedke is my oncologist now.  I switched to her after my chemo treatments.  She is wonderful.  My breast surgeon was David Meiners from St. John's.  Everyone at the Cancer Institute really have it together.  We built a home in Augusta about 5 years ago.  Tomorrow, when I go to Mass I will pray for a good outcome.

    God bless,

    Chris

  • pod1257
    pod1257 Member Posts: 262
    edited April 2008

    Praise God in heaven and earth!!

    My results were beneign!!- Your prayers must have worked, Chris.Smile

    DH husband and I went to celebrate at Mcdonalds with the works (hamburgers, fires and regular soda). Whats a little fat, sodium and high sugar soda, when your this happy!

    They were looking for possible stomach cancer. Anything is possible but I didn't fit the profile at all for this type of cancer and no symptoms. Ladies, if you do an elective CT, think twice as it can open up a whole new can of worms and unnecessary emotional pain and terror.

    Thanks for your input and encouragement.

    Blessings,

    Julie

  • GoodMommy
    GoodMommy Member Posts: 294
    edited April 2008

    Julie,

    I'm so happy for you.  When you have a diagnosis of cancer, anything a little different sends up a red flag.  About a year ago, when I went for my routine dental check and cleaning; the dentist had me come back because he said that one side of my soft palate looked a little paler than the other and he wanted to rule out oral cancer.  I've never smoked a day in my life and bc doesn't spread there.  The hygenist even asked what area he was concerned about.

    Anyway, after 2 weeks of worry, it turned out to be nothing.

    I'm so happy for your good outcome.

    God bless,

    Chris

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