ok... I'm ready for some input
Comments
-
History.... diagnosed with stage 3c March 2007... large tumor, triple neg.8.5cm, and lymph, skin, & vascular involvement. 6 rounds of TAC, had a complete clinical response to treatment at the time of surgery (modified rt breast masect.), 6 weeks of radiation. First 3month check up ..... cancer found in a lymph node but NOT in the breast.... I'm a patient with MDAnderson and while I do think they are a great at what they do... I'm just not feeling so great about things at this point. Has anyone had any experience like this before or is my luck just that bad?????
-
I am so sorry that you are going through this. I just wanted to come and give you a BIG HUG. We are here for you. I have not gone through that. But I am sure someone will come that has been through this. I wish you all the luck in the world.
Shelly
-
Hi MMC,
I'm so sorry about your recurrence. I had a lymph node recurrence but my circumstances were different. I was wondering if you had BRCA testing. I have seen others who were BRCA1 and had similar situations to yours. There is emerging evidence that BRCA1 cancers may respond better to platinum chemotherapy than taxols. Not many oncologists treat BRCA cancers differently but there is evidence that there may be good reason for them to do so. I know of two women who had your situation (both BRCA 1 positive) and they are doing great!
Feel free to e-mail me at: sueanddan@att.net if you'd like to chat or be connected to them.
Hugs and love,
Sue
-
Hi MMC,
Sometimes it is just "bad luck" when dealing with BC. I too was treated with all the normal standards of care yet still had a recurrence 18 mos later.
I did my reading and research, got good and angry, and started talking to more Docs. Even at the best centers some Docs are better than others!
It may give you piece of mind to talk with some other Docs, get second or third opinions just to be sure it is only "bad luck" and not something that was missed.
I know how hard it is to face another battle just when we were starting to believe the worst was behind you.
Stay strong and keep fighting!
Valerie
-
SHELLY, THANKS SO MUCH FOR YOUR BIG HUG...IT DOES BRING ME MUCH COMFORT KNOWING THAT OTHERS CARE.
SUE, I HAVE NOT HAD BRACA TESTING AND TRUTHFULLY I DONT REALLY UNDERSTAND WHAT IT IS AND WHAT INFO IS GAINED FROM IT BUT WOULD APPRECIATE ANY INFO. I WOULD LOVE TO BE CONNECTED WITH YOUR TWO FRIENDS AND WILL PM YOU FOR MORE INFO.
VALERIE.... I'M HEADING TO MDA TODAY AND WILL BE THERE THIS WHOLE WEEK, HOPEFULLY I WILL GET A BETTER UNDERSTANDING OF MY SITUATION AND IF I DONT FEEL COMPLETLEY SATISFIED I AM GOING TO ASK FOR ANOTHER OPINION.
THANKS TO ALL FOR THINKING OF ME AND PLEASE KNOW THAT I WILL KEEP YOU EACH IN MY THOUGHTS AND PRAYERS.
MARY (LEMONPIE)
-
Mary,
Good luck this week at MD and I hope you get resolution of what the primary tumor is. Are you are having the MRI guided biopsy this week? Praying for B9 reults again. I know your previous biopsies on these lumps were b9. I also had BCRA testing done and luckily they were negative. I did them because I have two girls and I wanted to make a decision about a bilat. Even though it turned out negative, I am still going for a bilat. Let us know how things go.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team