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jacqueline56551
jacqueline56551 Member Posts: 48

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  • jacqueline56551
    jacqueline56551 Member Posts: 48
    edited April 2008

     Hi everyone!!!

    Did anyone listen to the Triple Negative Conference held by the "Living Beyond BC" website? I missed it today and was wondering if anyone has any new info to share.

    Thanks, Jacqueline

  • LisaSDCA
    LisaSDCA Member Posts: 2,230
    edited April 2008

    I listened to it. It was good. I heard nothing I hadn't heard before. The speaker, a Dr. Carey (sp?) from UNC, was pleasant. She encouraged checking into clinical trials via clinicaltrials.gov and trialcheck.org. Also mentioned that 2 Erbitux trials (epidermal growth factor inhibitor) will be reported at the ASCO meeting coming up soon. She mentioned a CALGB trial that has an arm incorporating Carboplatin and Avastin into the neoadjuvant setting for triple negative patients, but I haven't found that one yet (just curious - I would have jumped at it myself a year ago)

    One point that the lecturer made in no uncertain terms, which I do not think gets said often enough in oncology offices "My patients are NOT responsible for if their cancer comes back or not - there is no data to support that - NONE." She said this in response to those questioning whether the extra-low-fat diet was desirable or do-able, how lifestyle affects recurrence, etc. It is not something you do or don't do, or don't do well enough. No blaming the patient in her practice!

     Lisa

  • janekhaldy
    janekhaldy Member Posts: 33
    edited April 2008

    I too, missed the seminar. Has anyone seen it posted somewhere?

  • marshabel
    marshabel Member Posts: 142
    edited April 2008

    I listened to it, too. I agree with Lisa that there wasn't too much new info, but still found it encouraging that they were even having a conference about triple negs!

    Janekhaldy - if you go to the LBBC website, they replay their conferences for 30 days so that you can listen. Although, I did get an email from them yesterday saying that their site was down, so don't know if it is fixed yet.

    Marsha 

  • jacqueline56551
    jacqueline56551 Member Posts: 48
    edited April 2008

    Hi Lisa, Jan and Marsha; Thanks so much for taking the time to give me the conference information.

    Jacqueline 

  • kbugmom
    kbugmom Member Posts: 15,189
    edited April 2008

    Dr. Lisa Carey from unc chapel hill is my dr. She is wonderful and listens and cares. I did erbitux once almost died . She told me if my scans are not so good will go to next chemo that there is a trial starting next month. We will see and continue to pray and believe.

  • jacqueline56551
    jacqueline56551 Member Posts: 48
    edited April 2008

    kbugmom; I hope that your scans are ok. Will think of you.

    Jacqueline 

  • Analemma
    Analemma Member Posts: 1,622
    edited April 2008

    You can listen to a replay of the conference with this link (hope it works)>

    If you were unable to listen today or would like to hear the teleconference again, you may access a free online replay from 2 pm on April 19 until May 18. If your computer does not have a media player installed, you may download a free copy at the website of Real Player or Windows Media Player.

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