Hair breakdown! Tell me it comes back

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Hair breakdown! Tell me it comes back

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  • LisaAnn
    LisaAnn Member Posts: 28
    edited April 2008

    Just need some words of encouragement that hair does grow back! I just did my second infusion of 6 (TCH) and look like a freak! I was coping pretty well until it hit me this morning! I will be wearing this wig for a year??????? I won't let my husband or kids or friends see me without a wig or cap on! Please assure me that it will grow back!

    Tears :(

  • wendyk13
    wendyk13 Member Posts: 1,600
    edited April 2008

    Oh Lisa.....



    I finished Taxotere and Carbo on 5/9/2007 and had my last Herceptin on 1/23/2008. I've had a hair cut (only one to shape it as I want it to grow out), it's about 5-6 inches long most places and I have been coloring it since last July. And I am back to complaining about bad hair days which I swore I would never do! AND....I think I am going to keep it short as I look younger!!!!!! I stopped wearing wigs in mid-December and it was short, but cute.



    Honey...it comes back! Mine came back a strange color but I fixed that and it came back thicker and with a slight curl...which is great.



    Hugs!!!!!!

  • FLtricia
    FLtricia Member Posts: 140
    edited April 2008

    LisaAnn,

    It will come back!

    I and many others here know exactly how you are feeling.  My onc told me my chemo (CMF) would only make my hair thin out.  I had my first infusion a few weeks before Christmas 2006, and Christmas eve it was coming out in handfuls.  I was devastated.  Losing my hair was just as hard on me as everything else.  We feel "robbed" of our health, our normal life, and then to top it off we lose the hair.

    I never went completely bald, just big patches of bald, and what remained was like straw.  Scarves and wigs were my friends.

    When I finished treatment it took 2-3 months to have peach-fuzz enough to cover bald spots.  The new hair was so soft and healthy, and curly, too!  I am now one year out from treatment, and last haircut I had to have it thinned.

    So, you can look forward to shiny, healthy, maybe curly, and maybe even a new color hair.

    You are not a freak, nor do you look like one.  You look like a brave women doing what she must to re-gain her health.  Lift your head up, get some pretty scarves, and walk with pride.  You will prevail!! 

  • vhqh
    vhqh Member Posts: 535
    edited April 2008

    I ended 5 rounds of TCH in February, I stopped wearing my hat last week.  My hair is short, very, very short, but I don't have bare skin shining through any more.  Mine was long when I started and I am going to keep it short, I've had several people tell me I look younger and it is soo much easier to take care of.

  • sybilvox
    sybilvox Member Posts: 12
    edited April 2008

    Hi Lisa"Ann,

    Yes sweetie - your hair will come back.  Mine was gone 15 days after A/C - March 2007.  I guess it starting growing back in December and now I have a full head of Curly hair!  Never a day in my 47 years did I have any curl in my hair, but now it's been over 5 months and it is crazy curly!  I said I wouldn't complain & I don't, but I will be thankful if(please) it straightens out, and I will probably keep it short.

    You'll be fine in no time, just look around here at our fellow sisters and we will all support you.

    Love,

    Sybil 

  • twink
    twink Member Posts: 1,574
    edited April 2008

    LisaAnn, believe me sweetie, it comes back.  For many of us it comes back beautifully... thick and curly.  Here's a few pics of where I was at this time last year, as I approached the end of Taxotere. 

    Before I finished on May 24th, I had a five o'clock shadow. 

    By mid-September, I was going wigless. 

    I had my first haircut before Christmas.

    Now, just over one year since my hair fell out it's back, full, healthy and my baldness is a distant memory.  You'll be looking back on this time in your life soon too... perhaps not fondly but knowing that you can cope with almost anything if you can cope with being a bald woman.

    hugs.

  • otter
    otter Member Posts: 6,099
    edited April 2008

    Hey, twink, nice pics!  I'm on day 19 of round one of TC, and I'm pretty much bald.  I didn't shave my head--I wanted to see how long it would last.  Well, it lasts about 19 days.  I look like a waif, bald on top but with wispy, thin fringe for bangs and on the sides.

    I just pretend it's one of those "falls" you can buy, and I put on a cap and dangly earrings and go with it.  Today I was shopping and a clerk asked to see my driver's license.  She looked at it, and looked at me (wearing my cap), and said, "Your hair used to be a lot longer."  I said yes, that's true--I used to have hair, but now it's gone.  She said, "No!  It doesn't look gone."  I laughed and said it was, but I wasn't planning to take off my cap to show her.  Anyway, we ended up having a nice conversation about chemo and BC and getting along with living.

    At first I was afraid to leave the house because of the Chernobyl-victim look.  Now, I've decided I have to get out and do the things I'm used to doing, hair or no hair.  (I still haven't bought a wig.)  And, it's OK.  Nobody stares.  If they do, I don't care anymore.  I'll admit that I still can't go bareheaded.  I was trying on some hats today, and I had to look around to be sure nobody was watching as I took off my cap.  I'm afraid they'll think I have mange.

    otter

    Edited to add:  I am going around bare-headed at home all the time.  My dh doesn't care--he is very supportive of me.  I think if he did object or react to my hairlessness (with any reaction besides hugging me), I probably ought to reassess our relationship. 

  • twink
    twink Member Posts: 1,574
    edited April 2008

    Awww otter...mange?  I'm sure you're a bald beauty, wisps notwithstanding Wink.

    It does pass... even though it doesn't pass quickly enough when you're in the moment.  You're a braver woman than I .... I didn't do the bald look (I had 5 wigs, including one I called my 'hot babe' wig.... long, blonde... mmhmm).  I had pictures taken for posterity's sake but didn't want anybody to see me bald... even at home, I'd wear a beanie.

    Thanks otter.

  • lag
    lag Member Posts: 209
    edited April 2008

    LisaAnn

     It does come back honey. Ya know that was the one thing that bothered me the most about the whole ordeal of going through treatment. Im not saying that to scare you I just wanted you to know that it bothered me to but here I am four years later and hair longer than it was before I even started treatment.

    Nice pictures twink-they are adorable!!

    Have a nice night ladies..!!!!!!!!

    lag

  • LorenaB
    LorenaB Member Posts: 937
    edited April 2008

    LisaAnn, I am just about a week ahead of you.  Last week was my no-hair breakdown.  For me, what helped me to get past the stage of total trauma was to find a temporary fix that felt like ME.  I ordered a "hat with hair" -- really a half-wig -- from headcovers.com, and a few cute hats.  The fake hair is curly and the same color as my real hair, and when I put it on and put the the hat on my head, I saw myself in the mirror for the first time in a week.  It looks more natural than any of the three wigs that I bought.  Of course, if the hat blows off in a strong wind I'll look really silly, with a huge bald spot on the top of my head!

    I'm not saying that my solution would work for you necessarily -- just that finding a headcover you can live with can make a difference.  Last week, knowing that it would grow back eventually was not much comfort.  Being bald is horrible, there is no question about it.  But a few days ago, I thought I would FEEL horrible until it grew back.  Not true!  What a relief.

  • twingle99
    twingle99 Member Posts: 42
    edited April 2008
    YES! Your hair will grow back. Your family and friends LOVE you please don't be ashamed of them seeing you with no hair. You will feel so much better without having to worry about that. I finished 4 rounds of ac and 4 rounds of taxotere in March 2006 . i had my first haircut in July. How do you post pictures. I haven't been here in over a year???
  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited April 2008

    If you remember last summer Robin Roberts from GMA had surgery and started chemo in Sept or Oct. Yesterday, she went on the air without her wig. You can watch her and see how quickly it grows.

    sheila

  • LisaSDCA
    LisaSDCA Member Posts: 2,230
    edited April 2008

    Hon - it won't be a year. It will grow back. Even if you decide to wear a wig during your hairless times, that time ends faster than you might think. Your hair starts growing back as soon as that poison stops being pumped into you. As tough as this week is, seeing the stubble turn into teensy hair, turn into something you can run your fingers through, turn nto something long enugh to bend - it's a blast!Laughing

    I had my last needle the first week of July 2007. My bilat. mastectomy and DIEP recon. was the last week of Sept. 2007. That's twelve weeks. I never wore cover again after that (well, except for warmth in the wintertime!). Yes, my hair was short, but it was there and fully covering my head, and kinda sharp-lookin'. Tongue out The fact of my hospitaliztion and recovery time helped me set a 'drop dead' date - I mean, I wasn't going to fuss with a wig or hat when I had four drains! 

    As Twink's pictures show, it's an evolution that happens pretty rapidly. I flew 3000 miles to a familyy funeral the 3rd week of Nov. and my distant relations thought my 'haircut' was intentional because they were unaware of my diagnosis. They loved it. I loved that I could be ready to go in 10 minutes flat each morning - no hair care routine

    Anyway - long way of saying that yes, this is a nasty, tough time. But don't resign yourself to enduring a year of it. My experience was 6 months with scarf, cap, hat or wig of choice. Then freedom once again. And mine did come in darker and curlier, but not really curly - so that's another aspect of adventure. What will you get?!? Wink

    {{{hugs}}}

    Lisa

  • sherryw
    sherryw Member Posts: 172
    edited April 2008

    LisaAnn

    Oh, we can all relate to how you are feeling right now.  I also came on here and asked the same question.  It was not quite a year for me.  I have so much hair now that people can't believe I had lost it all 3 years ago.  I tried the wig thing for a while but it just wasn't me, so  I went with wearing a hat.

    I did not let anyone except my hubby see me bald.  He really helped me through the whole hair falling out time, we cried together.  You know, saying how he loved me and not my hair, etc.  I suggest to a least let your hubby share this with you, I am sure he will be able to help you through it. 

    Even though it was probably the worst thing I ever had to go through, I think now it was a small thing to go through to be able to live longer.

    sherry

  • otter
    otter Member Posts: 6,099
    edited April 2008

    Hey, everybody,

    Someone posted this link over on another part of the BCO boards (the "Moving Beyond Cancer" topic).  I couldn't resist posting it here, because of the questions about hair re-growth.  The person in the photos was recovering after chemotherapy, and she had her hair re-growth chronicled by photographs.  Someone said they were taken every week, but I don't know that for sure.  Maybe it says somewhere in the text.

    Anyway, the links on this web page show progressive hair growth after chemo:

    http://www.karinstack.com/hs/hair.html

    otter 

  • snowyday
    snowyday Member Posts: 1,478
    edited April 2008

    LisaAnne your hair will come back it feel awful but it will come back. Twinks pictures are great, her hair is coming in alot faster than mine, I want to find that Hair Fertilizer that Robin Roberts was talking about, my sister is going to Port Huron if anyone knows the real name of it and where to get it could you let me know. 

    I was really surprised at how fast RR's hair is growing, I remember her in Fashion show when she did her dare and her head was shiny smooth I'm sure that was only a few months ago and now she is going wigless, looks great and she uses the hair fertilizer, if it can make her hair grow like that I really want to try it. Losing our hair can be so damn hard I didn't where a wig I stuck with scarves because the wigs bothered me, and around the house I went bald but I live alone so thats probably why it didn't bother me so much. But I sort of like it short I might just keep it short but find a stye that I can manage.  Cheers to hair and hairless, we will all get through this.

  • NancyD
    NancyD Member Posts: 3,562
    edited April 2008

    It did say it was weekly...so with fifty photos, it's almost a year.  I noticed a slight regression between weeks 11 and 12. Not sure if it was just a "hat hair" day, or maybe she had a slight cut to even things up.

    So according to this, I won't have any decent length hair (which to me, is at least to my chin) for at least a year from now, maybe longer.

  • Diana63
    Diana63 Member Posts: 773
    edited April 2008

    Lisa, I started AC in Jan 2008, it all fell out by the second treatment. I started taxol in March, I have a little bit of fuzz already.

    It will grow back sweetie, in the mean time remember.......

    You are not your hair Laughing, you are a beautiful, strong woman.

    Click me

     http://www.youtube.com/watch?v=bZd1KeZhjfU

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