Think before you pink

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  • carlin
    carlin Member Posts: 39
    edited April 2008

    Barbara

                Thank-you. That is where your money should go.

     Any time you have a large corp ( like komen) you have a problem. The really sad thing is its not komen's money being pledged its our money that we give being pledged. 

                 What was the last disease that they have cured?

                  Just wiped it off the face of the earth?

    Unless it makes money it doesn't happen!!!!!!!!!!!

    Give your money to who you feel would benefit the most from. I no longer  give to the heavy hitters.   

    Barb I'm with you...................................

  • Bugs
    Bugs Member Posts: 1,719
    edited April 2008

    Barbara,

    AMEN!  We are really lacking in the immediate help we need when going through treatment.  I am a single mother that made just a tad over the limit to qualify for reduced or free lunches for my son.  I had some mysterious deposits into his account..so I had an angel.  But what if I hadn't?

    Bugs

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    Amen!

    Some focus needs to be spent on those women and families who will be bankrupted by this.  Like me, there are many women who find themselves unemployed.  Luckily, I have savings to get me through, but if I didn't - there's nothing.  No Social Security because you're not "sick enough" to qualify - treatment usually lasts less than the year minimum.  In my state, I wouldn't qualify for any help because I own a home and have a 401k.  To get any help, I'd need to lose my home and liquidate everything.  It's bad enough to lose your breast, but to lose everything? Don't know about the rest of you, but I worked hard to get where I am, and will continue to, but it's kind of daunting to think I'm starting over at my age.

    I said the same thing in a thread one time and got blasted by a nameless person because I should be grateful for not being homeless and how much worse others had it than me that others would be happy to be in my situation!  BC hits us hard in the pocket book, doesn't it?

  • AlaskaDeb
    AlaskaDeb Member Posts: 2,601
    edited April 2008

    I am really fearful that I will live just long enough to bankrupt my family.....kind of sick that we have to worry about it, but it is a reality.....

  • rferraris
    rferraris Member Posts: 191
    edited April 2008

    Barbara,

    My family is a huge Komen supporter and we do buy some of the cause related marketing items.  Things that we buy on a weekly basis at the grocery store like toilet paper, yogurt (we eat lots), spaghetti noodles etc.  Would I like the $500 vacuum cleaner you bet but mine just broke and my hubby ran down to Lowe's to fix it and came home with an Eureka ($130)  It the everyday items that I will buy because I've sat at the Komen National Conference and have heard from the CEO's of these companies their desire and commitment to a word without breast cancer.

    Just a side note.  My oldest son (11-6th grade) has worn a "Find the Cure" rubber bracelet to school everyday since I was dx in June 2006.  He never takes it off...sleeping, swimming, showering.  I've heard other kids ask him why he wears that pick bracelet and he says "My mom had breast cancer and I won't take it off until there is a cure."  So in his innocence he is getting the word out there.  Don't you think these other boys talk to their moms about breast cancer?  What a simple act and who know he just might save a life by wearing that 50 cent bracelet.


    Rachel

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    Rachel, your son ROCKS!

  • BarbaraS
    BarbaraS Member Posts: 67
    edited April 2008

    Rachel, you have a great son - .  I am blessed with family and friends who are making this less traumatic to the bank accounts .  They've bought my groceries, cat and dog food, my sister-in-law also showed up with the money for my mortgage payment when I first lost my job.

    My daughter has received so much support at college - and from virtual strangers.  One of her professors is even trying to find more financial aid so she can stay next year.   

    Deb -  so sorry that you have to worry about bankrupting your family when the focus should be on getting you to ned.  I've been reading your posts since I joined and love your humor - reminds me of my own family.  Wish I were there to give you a huge hug.

    Rocktober - blasted for saying this? What a hateful thing to say. It's sad that other women here don't have empathy for anyone else.  The hardest thing for me to read on here are the posts from others who are having a hard time financially, don't have emotional support, and those who don't have access to the wonderful facilities that are in my area.

    Maybe we should all write to Hillary (and the rest of the candidates) - she came up with the plan to cure this - she needs input from those of us going through it (without the money and influential friends) to  see that along with the cure, we (and everyone with cancer) need other things too.  Hey, maybe I just found my next job as a political activist.

    I do and will still give small amounts to Komen (they have done a lot in some places), but  the majority will go to the Ellie Fund here. Of course, first I have to get some money to give.

    Barbara 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    Rocktober - blasted for saying this? What a hateful thing to say. It's sad that other women here don't have empathy for anyone else.  The hardest thing for me to read on here are the posts from others who are having a hard time financially, don't have emotional support, and those who don't have access to the wonderful facilities that are in my area.

    Barbara, thank you.  Yes, PinkRibbon Amy thought/thinks I was whining by my complaint.  It's hard being a single parent who doesn't get child support. The economy and since I am in sales, has really hit me hard .... along with lots of others.

  • Analemma
    Analemma Member Posts: 1,622
    edited April 2008

    Hi, I skipped over the early posts in this thread, so if I'm out of sync, that's why.

    I just wanted to vent about all the pink ribbons.  A lady at church gave me a gift bag a couple of weeks ago.  Eight cans of pink ribbon soup and a box of pinkribbon macaroni.  Her card said "you deserve it."   WTF????  I figure she spent maybe five dollars.

    I find I have a hard time giving a civil thank you for pink ribbon stuff.  I got a pink ribbon exercise towel, a pink ribbon flower arrangement, and a framed pink ribbon needlepoint.   Do they think I freakin' forgot what I'm suffering from?

    I hate pink.  I never liked pink, but I really hate it now.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008
    Isn't something better than nothing?
  • badboob67
    badboob67 Member Posts: 2,780
    edited April 2008

    I'm not going to get into the debate over Komen, but I will say that there is no help whatsoever available from my Komen affiliate to uninsured/underinsured women in need of screening or care for bc--even stage IV. I had the mistaken impression that at least a portion of my donations in the past had some direct impact on women with bc. Now I know better.

    Here's my latest gripe about the overuse/exploitation of the pink ribbon:  Just last week I went to be re-fit for a prosthesis and bra. After visiting the fitter, my mom and I went to a department store. The store had a HUGE lingerie/bra department--probably 50 or more separate racks with bras. I decided to see if there were any mastectomy bras or if there was one available to have a pocket sewn into. As I was looking, my eye was drawn to a rack of bras that were sporting a large hang-tag bearing a pink ribbon. "Oh, cool!," thought I, "Here's a company paying attention to my needs!" I walked over to investigate. Nope, not a single mastectomy bra and the others were all underwired and inappropriate for a post-surgical sans reconstruction bc patient. They did, however, tout that "a portion" of the purchase price would be donated to a pink ribbon charity.

    It just hit me wrong. I know that in the past I probably would have been more inclined to purchase a pink-ribbon bra if I were choosing between similar items and one bore the pink ribbon. I just find it highly insulting that this company is using the pink ribbon as a marketing tool and not even addressing those of us for whom the pink ribbon has become more of a noose than a symbol of hope.

    I'm probably too sensitive about it, but that's how I feel.

  • paige-allyson
    paige-allyson Member Posts: 781
    edited April 2008

    BadB- I think the problem is not that you are too sensitive but that these businesses are not sensitive enough. I feel the same way. In addition to the problems faced by uninsured/underinsured women I am very frustrated by the lack of emphasis on prevention of bc. Not much money in that for anyone.

  • snowyday
    snowyday Member Posts: 1,478
    edited April 2008

    Felicia the article rocks!!! I've been complaining about pink for so long now, thank you.  Junie, I chuckled at your luncheon tale with the red hats, good for you to be forthright, they should have listened, but maybe you got through to a few.  Naberthmom I'm going to check out the sight you recommended, so thanks everyone great thread.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    I am disgusted this week with the price for drugs even tho I am insured. You'd think that ONE of these organizations would help us to keep the price down so we can afford our medication.  The insurance asked if I qualified for Medi-Cal.  I don't, I make too much because that's how they calculate it ... by income! Hello?!!!  What about the fact that I pay a reasonable mortgage, no child support, day care bill up the ying-yang, car payment on a car with tons of miles and gas at $4 a gallon AND pay over $450 a month for health care.  Not including co-pays and vitamins that I must take: CALCIUM, VIT D, MULTI VITAMIN.  ... Those aren't cheap every month either.

    How about a Susan Komen or Avon pharmacy that we could go into and get our monthly supply at significant savings or free??? 

  • althea
    althea Member Posts: 1,595
    edited April 2008

    I would love to know of a nonprofit organization that helps bc survivers pay their medical expenses.  There's a line of providers who want money from me.  I was surprised that only one of them showed up on my credit report in '06.  Never got around to checking it in '07. 

    I truly question whether a cure or way to prevent cancer will be discovered during this time when drug companies are firmly seated on a throne of big piles of cash and infiltrating all aspects of medicine from congress to medical schools.  Perhaps donations would be of more benefit to help people get through the financial devastation.  It certainly devastated me.  I managed to preserve my retirement account when I got divorced, but a mere two years later, bc burned through it all and then some.  

    <> 
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    My brother's girlfriend was dx'd with breast cancer when she was going through a divorce and without insurance. Her Dr's contacted Komen and they paid for all of her treatments.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    Wow!  That's awesome.  I had forgotten about her, how is she doing??

  • badboob67
    badboob67 Member Posts: 2,780
    edited April 2008

    I have a wikispace where I am working on gathering and posting sources of aid/assistance for bc patients. Althea, perhaps there is a source there that could help you.  The address is in my signature line.

    Rocktober, a Komen or Avon subsidized pharmacy would be AWESOME!!!! Where is there suggestion box?  I bet if they were suddenly innundated with the same suggestion from thousands of bc.org posters, they might consider it.

    (((HUGS))))
    Diane

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    Whoever is good at writing a petition, maybe Gina aka nosurrender, or you, Diane .... could make one up due to the recent changes in all the health care providers and we could sign it and send it off to them!!

  • yellowrose
    yellowrose Member Posts: 886
    edited September 2010

    I have to agree, a subsidized pharmacy would be a blessing to so many AND a very visible way to support women and men fighting the battle.  It would be great publicity for the organization, too.  It would of course need to be mail-order to reach into every community.  I'll sign a petition for it!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    Mail order would be easier on so many of us with the price of gas these days!

  • badboob67
    badboob67 Member Posts: 2,780
    edited April 2008

    I can't promise anything right now (rads fatigue...aghhhhh!), but I do know there is a place online where you can create a petition for people to sign electronically.  If I can get something up there, I'll let you all know. 

    Diane 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    Diane, I hope you feel better soon.

    My health care provider, Kaiser, has a dept, Member Services, that helped me with my grievance. They wrote the letter after interviewing me for about 10 mins and then they submitted it. It was quite easy.  I hope it works.  Just make sure you get to their offices when they aren't at lunch ... the whole office closes and you have to wait for them to come back!!!!

  • Maryiz
    Maryiz Member Posts: 975
    edited July 2008

    Hi, all, my feeling is that whatever stage you are in, the cure must be our objective.  Even if you are stage 0, don't you have the fear in the back of your mind that it may come back?  Wouldn't you all like the piece of mind of a cure?  As far as early detection, great, but you still have to deal with misdiagnosis, women that maybe didn't go for that yearly mammogram because someone else was sick in their family and they were taking care of them.  How about the indigent, they may not be able to afford a mammogram.  And last, the very young, who are told, don't worry till you are 40.  Not true always.  As far as cancer, breast cancer, 1 in 8 women, not acceptable.  That is why it is getting more attention.  Women are dying young from this disease.  Lastly, 1 in 3 people will face some sort of cancer in their lifetime.  We need a cure for cancer.  Let's go for cures, we will take the bandaids in the meantime, but aspire for a cure.  Love to you all facing this disease and its devastation.  Mary

  • pinoideae
    pinoideae Member Posts: 1,271
    edited July 2008

    I like the colour pink, but I dislike the fact that it reminds me of bc everywhere I go.  I can't even buy my favourite ice cream now without the pink lid on it.  If I wear pink am I a walking adertisement for bc? geesh

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2008

    I liked the color pink - even before breast cancer.  Nothing like a pink jacket with grey or black pants/skirt.  There is a color for each kind of cancer - but I would bet no one knows what those colors mean.  Yet they know Pink is for breast cancer.

    We need to keep people informed, but I do hate when companies are making profits off a pink instead of donating more money.  I think we have made great strides with preventative medicine, yet I read that some women who are Stage 4 are thinking about quitting treatment because of the cost.  I sure would like to see more money going to help women through treatment.

    I saw a silly commercial the other day.  Has anyone heard of Pedegg?  Supposed to get rid of callus on your feet.  They now have a pink one in honor of breast cancer.  I cant remember the amount they were donating but it was so minimal it wouldnt even help one person get through treatment.  Its stuff like this that makes me crazy.

    Nicki

  • snowyday
    snowyday Member Posts: 1,478
    edited July 2008

    I had written a couple months ago about flipping out in Walmart ( I call it Wally World). I was leaving the store walking down the middle isle when I came upon PINK CASHMERE toiltet paper and I got so angry I started cursing and swearing, luckily a kind older lady came up to me and put her arm around me and said I understand.  I say lucky because I was so angry that I was ready to kick to TP all over at that point, and my cursing around children really wasn't a smart thing to do.  But get this they will donate 50cents if you mail in a UPC code, I'm thinking WTF it's 52 cents for a bloody stamp in Canada, that makes sense.  Hate the pink campaigns with a passion.

  • Maryiz
    Maryiz Member Posts: 975
    edited July 2008

    Just to add fuel to this fire, take a look through some of your magazines.  I think it's funny that some of them are printed in pink now. Do you think it might be to suggest breast cancer funding?  I am noticing it more and more.  On a positive note, I live in Connecticut and one of the local oil companies has a pink truck with the breast cancer logo.  I think it is for a family member.  I laugh every time I see one of those drivers in a pink oil truck.  Love to you all, Mary

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2008

    OK - October is coming again - and I hate to beat a dead horse here, but the pink wash is starting already. Why can't the companies who cap their donations (even if it is $10 billion) just write a blinking check to their bc agency of choice and be done with it? It's like they are using the "awww! I wanna help find a cure!" factor to get people to purchase their crap and fatten their bottom lines. I feel like I'm being pimped...

    I again saw pink Parker Pens - retailing for $4.95 - in Walmart yesterday. 25¢ of that almost $5 purchase goes to a bc org, BUT they cap it at $100,000. Grateful - because it's $100,000 more than was in the research pot than before - but just making the damn thing pink and putting a ribbon on the package will probably net them a cool million in sales.

    Ugh! Pisses me off so f*cking much!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2008

    How about if they donatedd the $ and then advertised it ...  Thanks to all of you, we donated 10% of our profits which equalled:  $___________  .   I don't buy pink just because.  Some of the items that are being made are cheap and it's embarrassing ... some of the items belong in the gumball machine!

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