Jan 2008--Ain't it Great?

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  • golfer779
    golfer779 Member Posts: 1,378
    edited April 2008

    Evening Jewels,

    Sitting here in my spot (yep the reclincer), just had to strip one layer of clothing off, why the heck those great waves of heat hit in the eve is interesting to me.  Between that and a funky tummy tonight, the tacos the dh made will have to be passed by me tonight.  Sipping on a lovely "Sprite", no legs and not much bouquet to this baby.

    Any hoooo .... a few shout outs tonight

    First to those we havn't heard from in a while, hope that your all doing well.  CarolC, we havn't heard from you in a while, if your able just let us know your okay!  This post gets overwhelming so know that there's no need for a long shout outs from anybody just a quick hello would be great.

    Jenn, hoping that your hearing the fog horn and your back among the living real soon.

    Kathy, we've stayed both at the Point at South Mountain and the Pointe at Squaw Peak and liked them both.  We've had dinner up at the Hilton at Tapatio Cliffs in a great restaraunt with a super view of the valley.  There is a golf course there as well which I'm sure your dh as well as mine would like.  The prices are really quite reasonable when you go in the off season, gotta like that.

    Boy, I could not imagine the internal stress of your job on top of everything else.  I'm confident that something positive will come of the whole situation, and if you choose another employer they will be so lucky to have you.  

    D1- hey I'll fire the book by Deanna Favre off to you tomorrow.  Just read another one, by Fran Drescher over the weekend.  She had a bout with uterine cancer, one more story with a happy ending. 

    The hubby thought you needed to add a "J" to your "PB" ... we weren't too ingenious, only came up with Pink Boobed Jewel!   I was wondering how the scars would react to a sun burn, my longest incision is actually looking pretty decent to date, hate to have it get all screwed up, but I'll do what I have to do.

    Paula, got your zip squared away at the PO today.  Breezed right in and out of the PO, I kinda expected to wait in some serious lines with it being drop dead tax day.  Hope your feeling a bit better each day, you seem to just keep plugging along even when your feeling not to up to snuff. 

    Julie, bummer that your still feeling cruddy, hoping that your hump day will be better so you'll be ready for Thurs.

    Dana, glad you'll be able to focus your energy on healing and not with other problems with classmates.

    Sheshe, talk about a plate full, I think the bc gods should know that we're dealing with plenty, and to add a sinus/uti infection is just not fair.  Sending healing vibes your way.  I don't think we used them all up on Kimberly as of yet!!!

    Kimberly, wow was surprised to read about your onc/infusion deal.  I was under the impression that you always had somebody with you during your txts.  I find that although I had been given an I-touch from the dh for my txt days, I end up bs'ing with whomever I go with and never have pulled out the Ipod.  Glad that for your final hooray of chemo you can share it with a loved one for more than a 10 min chat. 

    Called Seattle Cancer Care today, tried to make an appt for a consult with the onc there to discuss hormone/ooph options.  Kinda ticked me off that I gave my phone number and they never did call me back.  Figuring it will be time to start coming up with a game plan in the next couple months.  I'll also be talking with my onc that I'm currently seeing to discuss my options although last time I brought it up he didn't appear to want to discuss it.  I think I like the idea of a second opinion with the female doc who maybe can relate to the situation a bit more. 

    Cathy, love to hear of an uneventful infusion.  Between you and D1 I'm feeling the need to start exercising again. 

    I can't remember if I had mentioned to you that a gal I know at work walked the San Diego 3 Day last year, she said the route was absolutely beautiful along the coast.  Probably nothing you don't know!!!  This year she is walking in Boston.   She's planning on a different city each year.   

    Tina, took note of your ds and working.  I need to be encouraging/pushing my ds to do the same.  He has a couple of lawn mowing jobs of the neighbors, but its time to do more come the summer months.  Mom's pockets are not going to be full of cash for gas!

    Speaking of the ds, he's asking why I'm sitting here fanning myself, don't think he would really get the menopause thing! 

    My little boy has gotten himself what I would call his first girlfriend.  She's the older lady, all of 17, and a real cutie!  Kinda nice to have someone that can drive to our house, not so sure how tickled I'll be when the ds can drive in 3 weeks and he's not hanging out with her under our roof!!!!

    We're re-watching DWTS, my eyelids last night missed half the show, will probably have to record the show tonight as well.

    CHJ and Wendy, kick some cancer booty tomorrow.

    Night all,

    Carol

  • golfer779
    golfer779 Member Posts: 1,378
    edited April 2008

    Hey Kimberly, this site seems a little screwed up the last couple of days, wondering if your still backing up our adventure (post) on a separate file?



    I swear when we're all old and gray (yes with hair), this would be a hoot n'annie to read.



    Hope you all have a se free day, back after work....



    Carol

  • SISKimberly
    SISKimberly Member Posts: 762
    edited April 2008

    Morning Jewels,

    Has anyone gotten weird computer code stuff when they tried to log in and then navigate? It’s moving slow again today.

    Ahhh well, maybe it is just a reminder to us all to just go with the flow eh?



    So, I’ve had this chubby little Robin Red Breast flapping against the dining room window for two day now trying to get at something that’s caught its eye. I have a clear vase of silk sunflowers on the table, and the vase is filled with glass marbles. Thought maybe he was drawn to the color or the shine, so I took it off the table. Low and behold, he gave up. I’m thinking of buying him a sunflower at the store and seeing what he does with it.



    Tina- WhooHoo on getting out of the freezing zone. Here’s to a steady climb in temperature from here on out.



    Congratulations on your ds’s early conclusion of his Senior year. My son did an early graduation, too. Will he walk with his class in June? Does he have plans for college, community college or otherwise? It took my son several years to finally decide college was the right thing to do if he wanted to live on more than minimum wage. He started and stopped community college a few times and worked, went to the Navy, but was discharged on a medical, then worked full time, and finally two years ago decided to go to college full-time. He’ll be 25 in August and won’t finish his degree for another year or so, but at least he’s on the right track. Each in their own time.



    Speaking of D1’s recipe, my twin sis called me last night to tell me that one of her colleagues at work who reminds her of our mom wants to make my dh and I dinner for Thursday night. She’s making us lasagne and salad for my twin to deliver to us. Isn’t that so sweet? I’ve only met this gal one time, but Kath shares all of my updates with her coworkers, so they all feel like they know me she says.





    Paula- Wow, $30,000 is a lot to have to raise. I hope your school board recognizes your efforts, having already raised $20,000, and kicks in a good portion of what you need. Have you applied to your local Target for funding? Target give 5% back to the community, so that might be a source of money, and good PR for Target.



    Carol- Sorry to hear your tummy is funky, and you’re right about Sprite not having any legs or bouquet. FUSE!!!! So, was it a Cream of Wheat night?



    Good for you getting a second opinion on the ooph/hormone thing. I’m all for having all the information you can get in order to make the best choice for yourself.



    Oh, when the boy finds that first girlfriend, it is so hard on us Mom’s. You want to let them grow up, but to see them holding hands and hugging and kissing on a girl is just so…grown up-like. It just hits you like a ton of bricks…things are never going to be the same.



    I’ll tell you though, since my son has gotten to be older…in his 20’s… he’s like my equal instead of my son if that makes sense. It’s kind of cool.



    Yep, I’ve been saving the pages. No worries.

    Is your tool bar missing? The one that lets you do smiley faces and such? Mine is gone.



    Like Carol said, to all of you who haven’t posted for whatever reason, we are all thinking of you and hoping you’ll check in just to let us know you’re OK. Don’t feel you have to shout out to everyone while trying to catch up…it’s too overwhelming. We just want to know how you’re doing.



    To those suffering se’s due to infusions, rest easy knowing we’re here for you at the edge of the fog waiting with hot chocolate and warm blankets to wrap around you. We’ll sit with you around the fire and wait with you until you’re energy returns.



    This is my philosophy of life. It’s been working itself out right on this site, and has decided now is the time to emerge and be known.



    “Right now, at this moment, is all that is known. The past has offered me lessons to learn, and if I didn’t learn them, I know I will be presented with them again, so there is no need to constantly look back to review what was. Looking back only manages to keep me stuck. The future, although alluring, wants to pull me into a void of unknown. Living there will only keep me entangled in the ‘what if’s’ and that is a waste of my precious life energy. There is only the now, where everything is as it should be. “Now” resides within “known”, so right now, in this present moment, is where I choose to reside.”



    SIS Kimberly



  • JulieK_11_30_07
    JulieK_11_30_07 Member Posts: 260
    edited April 2008

    Hi Jewels --

    Had my appt with my onc yesty and found out my red count/hemoglobin was way low. I got a shot before leaving and seem to have a little more energy today. My white counts were apparently perfect. I think I might be dragging a bit knowing that I have #6 tomorrow -- and my LAST!!!! Pretty pumped about that!

    Kimberly - read about your cancer center/onc's office. My infusion center is at my onc's office, but it's a huge room with big windows and a beautiful view. They do not allow anyone but patients back there, which I don't like! Sure would make the treatment go faster if I could chat with a buddy. The chairs are positioned in a way that it's kind of hard to chat with any of the other patients, so I just pretty much keep to myself and read or nap while I'm there.

    So glad you're back - you've definitely been missed! I hope you continue to feel better every day!

    Carol and others facing the lovely night sweats - yep, I've dealt with those for the last two years after my hysterectomy. Mine had pretty much stopped a few months before my diagnosis. Now, since doing chemo, I have them again. I read in one of my pamphlets about the chemo drugs I'm getting that they can cause night sweats. I'm guessing that, plus the chemopause some of you are having, would be the cause. I haven't had the hot flashes again - but when I did have them, they came anytime during the day or night!

    Therese - sounds like you've been a crazy woman with all of your work and errands!! Remember to stop and rest every now and then - you're still recovering!

    Kathy - I'm with you on the TM pre-programs! Those things are a joke!! I usually just set mine where I'm comfortable and work with the incline and speed as I walk. Of course, it's been MONTHS since I've been on it!! Looking forward to getting some energy back so I can actually work out - never thought I'd say that!

    I'm sorry you've been struggling with what to do about your job. Sounds like you've made the right decision to do what's best for you. You need to find somewhere that you are appreciated and have co-workers that are worthy of you!! I'm sure you'll find something that will make you happier!

    Thanks for the info on resorts! I'll check them out - I think all the ones you listed are very reasonable!! I'm up for anything - just so we all get to meet!

    SheShe - sorry you've been feeling so bad. I hope you get some meds that help!

    WVGirl - so glad you checked in! We've been worried about you. Stop back in when you can and let us know how things are going.

    Dana - I'm glad you got things worked out with the girl in your class. Sounds like she has some personal issues she's working out.

    D1 - so glad you got the green light for your trip in May!! That will be a great celebration for you!!

    Paula - hope you're feeling okay! You've been busy lately!! Wow! $30,000!!!!??? That's a lot of money to raise!! Good luck!

    Wendy & CHJ - Hope you both have uneventful tx's today and may the se's be minimal!

    Well - here's a story for you all - so much for the "proud parent" moment I had last Friday! My ds saved up his money to buy himself a new airsoft gun (like a BB gun, but pumps air or something). It came in on Monday so he and dh were outside after they got home last night testing it. Ds came inside, into our tv room where I was sitting working on my laptop. He was talking about how far it goes, blah, blah, blah.  Then he proceeds to aim it at our TV - a brand new LCD flat panel that we bought last month with my National Board Certification stipend. I said "Tyler, don't you dare shoot at that tv!" He said, "Mom, the clip's out - it's empty." I said, "Don't do it -- you're gonna think it's empty and it's not, don't you dare do it." Then CLICK -- he shot at the TV and, low and behold, there WAS a BB in the chamber and now our brand new tv has a dent where it hit the screen and there's a big white vertical stripe, with green and red lines running the length of the tv - not to mention what looks like a bullet hole crack where it hit!! I was beside myself all last night - he's 12 and should know better!!! How do you teach kids common sense b/c my ds doesn't appear to have any!! My dh called this morning after talking to Philips repair and it's going to cost over $500 more than the stupid tv cost to fix it!!!!! Needless to say, my dear son will be working his butt off from now until the end of the year to pay for it! So, that was the drama in my house last night - such fun! Yell

    Okay, girls - I have to get some scheduling done for school. Hope everyone has a good Wednesday!!

    {{{{{HUGS}}}}}!!!

    Julie

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    Get that boy into a gun safety class, pronto.

    I know it's not a real gun. That's the best time to teach the primary rules of safety. 1. Always keep the gun pointed in a safe direction. 2. Always check to make sure the gun is not loaded (even if you THINK you know it's not loaded. 3. Keep your fingers off the trigger until you are ready to shoot at the target. 

  • JulieK_11_30_07
    JulieK_11_30_07 Member Posts: 260
    edited April 2008

    LJ - the sad thing is he's already taken a gun safety class and passed with flying colors!!!!! No common sense - period!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    Oh my Julie.

    Well, making him pay for it is probably going to burn the lesson into memory!

    Thank goodness it was "just" the tv.

  • Determined1
    Determined1 Member Posts: 806
    edited April 2008

    Okay, LJ, you had me col (cackling out loud) at the suggestion of the gun safety class, pronto!  Thanks for the release. :)

    Yep, Julie, that kid's gonna be working that one off.  My college girl backed the car through the closed garage door shortly after getting her license a few years ago.  It wasn't totally her fault, as the door had been on the fritz, but she worked off the cost and had to do all the painting on the replacement parts for the garage (under my watchful eye, which was probably worse than the painting itself).  Amazingly, she's been really attentive to things garage door-related since.  Ds will learn from this.  (But I'm really sorry about the tv--I would have had a FIT!)

    KathyL--you're awesome with the med info.  Thank goodness you're a Jewel!  Hey, how are those nails?

    SIS Kimberly--My sisters and I discussed the possibility of meeting in Chicago over the weekend of July 11-13.  One of my sisters lives in WI, so that's always a good, central place for us.  Did I ever tell you that my sisters are twins, too?  I'm the older singleton.  Sounds just like your sib set-up, unless you have other sibs that aren't invited to the 2nd City partay...  So I'm reading about your robin and realized that I'm attracted to sunflowers and that I'm a little red-breasted myself now...

    Tinalee--Hooray for Spring!!!  You sound just like me with the "you gotta be productive" approach to teens.  I was pleasantly surprised this week when college girl called to announce that she'd received an offer of an internship position in the US Senate for the summer.  She'd been pursuing this all on her own (except for parental nags to stay on top of it and a reminder to send a "thank you" note after her interview).  Maybe she'll be a productive member of society after all!

    My sisters and I are thinking of treating our mom to a long weekend in Austin, TX.  I lived there for almost 3 years about 30 years ago and would love to go back.

    Carol--PBJ!!!  I think that's really clever, what are you talking about?!  Many of us will be sporting the moniker real soon.  So far the scar on my breast looks good, but the one under my arm is puffing up some.  But that may be a complication of the le...  I'll look forward to the book.

    Hey, I ordered myself a laptop today from Dell.  Too bad I didn't have it when I was in the chemo lounge, but I'm looking forward to getting it.  I got one of the 17" screens, so its not really as portable as the smaller ones, but I won't travel far with it (office to family room, I'd guess), so the extra weight of the bigger machine shouldn't be too burdensome.  I'm excited because Dell was offering laptops with XP on them for a short window (mostly you can only get Vista these days, and I haven't read much positive stuff about Vista unless you're a computer geek--which I'm not).  I'm feeling good about my deal, too, as I've been pricing these babies for several months now.  My only disappointment is that I had to get it in black (I wanted red) to get my deal...  It should be here in about 3 weeks!

    Well, my little one just returned from her guitar lesson.  I'll see what's up with her.

    Later.

    D1

  • joteach
    joteach Member Posts: 116
    edited April 2008

    Good evening Jewels,

    Sorry I haven't posted in awhile. I'm feeling pretty good. Its now 2 weeks past my last chemo. My hair is growing in a little- some white "fuzz" but its still hair!

    I saw my rad onc today and will have my CT simulation and tatoos next Thursday. So it looks like I'll be starting rads the beginning of May.

    D1 - you will have your last zap on my birthday. Gotta celebrate!

    SIS Kimberly - Glad you are doing better. I can't believe you couldn't have your chemo buddies sit with you. I was lucky to have mine at all 4 treatments. It made it so much more bearable. At least at your last one you will have someone with you.

    Paula - Hope you raise all the money!!

    Good night all,

    Joan

  • SISKimberly
    SISKimberly Member Posts: 762
    edited April 2008
    Good afternoon Ladies,
    Wow, posting twice in one day.  I'm back.  Just got home from my infusion. Feeling good today. I didn’t need a nap, but then again, I didn’t do a darn thing either. Heehee

    Julie- WhooHoo on the last chemo!!!!!  I’m right behind you, gal.  Bummer about the rbc count. Bet that explains why you were dragging your butt, eh? Hope the shot kicks in and revs you up, so you’re ready to tackle the last of your chemotini’s.

    How is it that when you tell a kid, don’t you do it, that they just hear the last few word, “do it”?  He must have been just mortified being so sure there was no BB in the chamber.  I was totally with LJ13 on getting that boy into a gun safety class,but then you said he’d already done it and passed. Nope, can’t teach common sense it seems, but you can teach him there are consequences for not thinking things all the way through (like you didn’t give him all the options of what might happen). I’m all over his paying off the repair or the cost of a new TV.

    Hey LJ13, how’s things going with you?

    D1- LOL on the Robin Red Breast comparison. Dang, I chemo brained buying the sunflower. I may have to call the dh to stop and get one.

    Yep, we’ve got the same sibling triangle- twins and an older singleton.

    Congrats on the new Dell. My dh was cursing Vista when he got the media center computer, so I’m guessing even the computer geek-like people are befuddled.  I love those Mac and PC commercials. The one about Vista was hysterical.

    Well, I’ll see you all in the morning.  Good luck to the Jewels at the bar tomorrow.

    SIS Kimberly
    PS: I've received Maz's, Carol's(golfer),CathyCa's, and TinaLee's cards so far.
  • kris60
    kris60 Member Posts: 91
    edited April 2008

     just a fast hi to all, just checking in

    night sweats, hot flashes...holy crap, add me to the sweaty club.  Also the mouth sores the last 2 treatments.  The weather has been half decent here, so I've tried to go out walking after dinner.  I've kinda put some pounds on since Jan, shame on me.  Like hubby said though, get healthy first, then worry about losing the weight.

    I start Taxol the 22nd so please someone tell me its easier than the AC.  Like I'll be able to function the next day?

    tootles

    Kris 

  • texrn
    texrn Member Posts: 99
    edited April 2008

    Good evening everyone,

    Bad news on the hair-front - although the hair on my head is filling in everyday, my eyebrows have all but completely fallen off. All I have left are the few new ones that have started to come in...I sure hope the other new ones aren't too far behind b/c it makes for a very wierd look. It's a good thing I have taken to wearing my glasses most of the time - that way my eyes don't look like they've disappeared into my head.

    I was thinkin'...if everyone's hair comes in curly then next year's reunion will look like a curly-top convention! I personally don't care how my hair comes in, as long as it keeps on coming!

    Kimberly - I mailed off my cards yesterday ( yes, I finally found them right where I had left them??- go figure).

    That is so sweet of your ds's coworker to bring you & your dh a home cooked meal.

    I'm so glad you won't be spending your last chemo tx alone - it'll be nice to have someone there to celebrate w/ you.

    Hey, any words of wisdom for me on raising my sibling triangle? My oldest dd is the singleton & the twins are boy/girl, with a 5year gap in between.

    KathyL - you have been in my thoughts today - hopefully your superiors & coworkers didn't make things any harder for you. Sometimes, even when it feels like the right time to make a change, it still can be a hard thing to do.

    How's the exercise program going? I hear you on the frustration with the pre-set TM settings. I don't even bother - of course right now I can only muster the warm-up level on my home TM - I keep telling myself it's the length of time that counts right now...right?

    I figure when I build up more strength & endurance to go more than say, 1/2 a mile, then I can start getting fancy & add some incline or whatever.

    Julie - WOOHOO! last one tomorrow - hope it's smooth sailing for you!

    Well, my dd just anounced that AI is on...I'd better go see who gets kicked off tonight....

    Talk to you all later,

    Therese 

  • golfer779
    golfer779 Member Posts: 1,378
    edited April 2008

    Hi Ladies,

    Got a great gift from my dh last evening, nope not jewelry or flowers, but a little 5" battery operated fan.  Its a sad day when I get excited over a fan, but its great, has a heavy base and it tilts!!!  I guess the waving of a magazine while watching tv/posting is as annoying to those around me as it is to me!!!

    Just dropped the hormonally challenged ds off at skate practice, boy can he be moody ... kinda glad that dad is picking him up tonight.  So its me and the wieners tonight, the dh is in Portland for work and won't be home until tomorrow.  Watching DWTS from last night, fell asleep again during the show.   I did see who was voted off the dance island on the Yahoo page this morning, hate to say it but she would scare me in a dark alley.  I won't completely let the cat out of the bag in case someone has it recorded as well.

    I've been wanting to start a journal type diary to document this "little adventure" that started in Oct.  Started today at lunch, wow I couldn't believe how much I wrote and I'm still on my first day when I knew nothing more than that my doc was extremely concerned after doing a breast exam.  Its amazing to me how vivid the memory of "that" day are in my head.  Any other day would just be a blurr, in fact I know I couldn't even document my wedding day which was in June half as good as I can "that" day.  I don't even know if I'll share it with anyone, but I would still like to have it, who knows maybe my ds would like to read it once he is an aging adult.

    Julie, OMG couldn't believe your story, yikes!  Had to share that one with my ds, never hurts to learn from others mistakes.  I think D1's story about the garage door hit home a little more with him.  The solo driving thing is just a couple weeks away.

    Too cool to be going for your last txt tomorrow.  Lets hope that you'll knock those se out this go around.  Sounds like you should be going into it strong with the RBC shot to pump you up.

    Kimberly, great to have you back to your ol' self.  I re-read your philosophy of the "known".  Hope you don't mind but I think this one is worthy of printing out. 

    No Cream of Wheat last night, just a vanilla Activa at 8:30.  Hadn't eaten since lunch at 10:30 in the morning so I knew I needed something on my tummy before bed.  I tried one of my Zofran pills when I got home from work with no relief from the pit feeling.  A hot bath and a Lorazepam and it was lights out for me and I felt pretty good today. 

    Thanks for keeping a copy of the post, I had this hunch that you would be on top of it!

    Joan, thanks for letting us know your doing good, wouldn't mine hearing of your rad adventure as well.  I figure I should be armed and dangerous with my list of questions by the time I get to my rads.

    D1 (PBJ), too cool on the laptop.  We replaced a puter in our bedroom and it has Vista, since I pretty much don't know how to do anything other than surf I can't say its too bad.  The dh isn't to wild about it though.  He does alot with pic/videos and I guess it doesnt have a very user friendly program and I know he rather have XP as well. 

    Off to get my fan from the bedroom, maybe its this hot laptop over heating me!!!  I wish!!!

    Too cool on the college girls internship.  Do we have a future politician here?

    Oh and the book is in the mail!

    Need to see who's going to the lounge tomorrow with Julie, will post and check it out ...

  • golfer779
    golfer779 Member Posts: 1,378
    edited April 2008

    Wow, sound like its time to be starting some celebration ...

    Tina and Donna congrats on having your last txt tomorrow.  May it be eventful in a positive way!

    Hey Kimberly, forgot to mention how cool it is about the "meals on wheels" for tomorrow.  It continue to amaze me how this journey we are on can bring so much support from many directions.  So whats the wine of choice with your Lasagna?

    Kris, thanks for popping in, as I sit here after my dinner and read about your walking after your meal, I "almost" got motivated to get my butt out of this chair, but not quite!!!

    Kathy, thinking of you,  I imagine that you have been on an emotional rollercoaster today.  Hoping that you stay strong while dealing with the added stress of the day. 

    Tina, thanks to your dd for the AI reminder, need to hit the recorder so the dh can watch it tomorrow!!!

    A pleasant evening to all,

    Carol

  • JulieK_11_30_07
    JulieK_11_30_07 Member Posts: 260
    edited April 2008

    Good Evening, Gems! It's amazing how much better I started feeling this afternoon!! I even cooked dinner -- seriously can't remember the last time I did that! I also did two loads of laundry - dh is a little behind - I was out of pj's! Picked up the house and cleaned the stove! Kind of bums me out knowing that I'll be heading back into my fog after tomorrow. Frown

    Tina and Donna -- I'll be thinking of you both as I also get my LAST tx tomorrow!! BIG WOOOOOOOHOOOOO!!!!!!

    Well, the ds certainly did a lot of "beating himself up" last night. He was just devastated -- he's very sensitive and always tries to "please." (well, usually!!) Anyway, we had a loooong discussion last night after dh got home from his board meeting and we've all agreed that it's done and over with -- he has certainly learned a tough lesson and will be working from now through the summer to pay off the purchase of a new one. Oh yah! Forgot to mention, we found out today that it would cost $500 MORE than we paid for it to have it fixed AND our homeowner's insurance doesn't cover any of it! Dh was pleased - NOT!!

    Joan -- so glad you're feeling good!! That makes me look forward to a couple weeks from my last tx - gives me hope!

    Kimberly -- it's good to hear you're feeling better! Sounds like you're keeping busy, as usual!

    Therese - My eyebrows look funny too! Actually, my left one is REALLY thinning and is about half there and my right one doesn't seem to be thinning as much. I look bizarre! And I'm one of those HOPING my hair comes back in curly!! Then I won't have to pay for perms anymore!

    Carol - that's sooo sweet of your dh to get you a fan!! Isn't it amazing how the little things can mean so much!? Hope you get some relief from those night sweats!

    D1 - that's awesome about college girl getting an internship!! Good for her!

    Well, all - I'm off for now. I'll be checking back in when I can - I should be good until Saturday. My cousins are taking turns tomorrow and Friday coming and staying with me during the day and taking me to my appts. They both live over an hour away and took off work to do it -- I'm looking forward to spending some girl time with them. We plan to do lunch after my tx and then on Friday after my neulasta shot.

    Hope everyone has a great night!

    Julie

  • KathyL
    KathyL Member Posts: 534
    edited April 2008

    Sheshe:  Hope those headaches resolve.  And I think we all understand if you can't do the secret pals thing.  Maybe you can join in later if your situation changes.

    D1:  Glad to hear the good news about rads and your ‘cation plans. 

    My nails are holding up well so far.  The nailbed discomfort is gone (for good I hope).  I only use the TTO here and there now-trying to use up the bottle since it was so expensive.  I've noticed my nails are pretty hard, but they still break a lot-and down at the bottom usually.  Crap!  I have some faint dark lines horizontally that seem to be growing out.  How are yours doing?

    LOL at your analogy to the robin!!!

    MY dh is a computer man (his job is PC tech support for a huge banking co.).  Thus we can only have Dell in our house-he swears by it.  I have to say I love all of ours and have rarely had a problem.  Their tech support is really good (though you could always just call my dh if you have a problem or question).  P.S.:  He hates Vista, and we don't have it.

    Carol:  I think a second opinion from a female doc would be a good idea.  How nice the ds has found Ms Right Now!  My ds (2 yrs. old) had taken to calling his 3 preschool teachers (who are all young and sweet) his "girls".  It starts so young... J

    Not at all surprised or upset about the DWTS results.  She is scary looking for sure!  Also not surprised with AI results, though I thought she was actually improving in the past weeks.

    SIS Kimberly:  Bravo on your philosophy!  Thank you for sharing such a poignant message.  I agree.

    I sent my card Monday, so you should get them soon.

    I love those Mac commercials, too!

    Julie:  Was going to recommend a gun safety class also, but read on that he's had it.  I think maybe dh should review it again with ds.  Kudos to you for making ds sweat to pay off the damage (absolutely should be done!). I agree with Kimberly-consequences to every action can be taught/learned. Maybe you can also set up some rules and guidelines for gun use-never in house, only when supervised by an adult, etc.  That way he can be monitored more.  I grew up in a family of hunters (my gf, dad, bro).  My dad was a freak about gun safety (and still is).  But it instilled some valuable lessons in us.  Glad your family powwow was a success.

    TexRN:  I've also noticed, a month out from last chemo, that my lashes and brows are on a mass exodus.  I'm afraid to touch my face these days.  It looks awful.  Just in time for my new employee badge!  I'll look stunning...

    The weight:  like everything else with lingering SEs... I want it all resolved now!  I've been pretty good exercising this week, only missed yesty and I was out and about a lot, so I think that may have counted for something.  The scale hasn't budged despite eating great, less calories/more veggies, and sweating.  I know it will take time.  But how is it that men can take a dump and instantly lose weight and women can literally cut off a body part without a change in the scale???  So unfair!

    OK, caught up!

    So yesty did not go as I planned.  Good news:  no blow up.  And I am proud of myself that I feel I really handled the whole thing without getting upset, and everything I wanted to say came out right and sounded professional (you all know how hard that is these days with our brains!).   Not really any bad news either.  But my boss basically did not accept my resignation.  Instead he offered some alternative scheduling options to keep me on board in some capacity (evenings and/or weekends).  I was flattered and stunned (and many other adjectives that my chemo-brain can't get out right now!).  So now I have to decide what to do (again!).  I know-good to have choices.  But my poor little brain can only handle so much.  He has given me as much time as I need to get back to him-no deadline, no pressure.  I know I will still be doing my new job for sure, but now I need to ponder this new possibility of keeping some time with my old office.  Good points:  much less stress in the off-hours, I can still keep up my NP license, I'll get to see my patients that I don't want to leave, and will bring in some more cash that we desperately need these days. Bad:  that witch OM will still be around (though I really won't see her at all in the hours he proposed).  Hmmm....  My boss also had to mention that they envision opening a satellite office in the town I live in sometime in the near future (2-3 years)... oh how I ‘d love to do that!

    Well, as Kimberly reminded me... live in the now.  I'll take this one step at a time and mull it over carefully.  The ball's in my court!

  • KathyL
    KathyL Member Posts: 534
    edited April 2008

    P.S.  Congrats to everyone finishing up chemo today!  I know it was quite a list.  And to all the others getting tx today-- the end is in sight.  It'll be your turn soon to say "I'm done"!

  • SISKimberly
    SISKimberly Member Posts: 762
    edited April 2008

    Morning Jewels,

    Looks like the site is back up and running. My tool bar is back, and I didn't get any weird crypted programming stuff when I logged in and navigated from place to place.

    Man I was wiped out yesty.  I slept really hard, but did manage a good night sweat/freeze my booty off round. If it isn’t one thing , it is another, but so much better than the alternative to not going through all of this.

    Kris- Glad you checked in to let us know how you’re doing. I agree with your dh. Get healthy first, then worry about the weight. Glad you’re able to get out and walk though, that is just good for the spirits even if it isn’t at a cardiovascular workout pace.  We’ll both be in the lounge together on the 22nd.  I have my last chemo that day.  From what I’ve been reading, T is easier than AC, so let’s hope that is the case for you.

    Therese- I hear ya on the loss of eyebrows. My left is more effected than the right at the moment, so I look like my face is crooked or something.  It’s Christmas everyday, isn’t it? Just never know what to expect.

    Ideas on raising your sibling triangle? Five years is a big gap, and I think one that will be beneficial since the older one is at a different stage of development than the twins. A little maturity is a good thing. Of course, there will be the period of time when the older one doesn’t want to be followed around by the twins, but as they get older that will change. I don’t know what the dynamics are with fraternal twins, but my sis and I were (and still are) each other’s best friend, so we were never bored or without a playmate. When the older sib brushed us off, we had back up. In my family, there was less than 2 years difference, so we were all pretty much at the same stage of development over much of our lives.  There’s no trick to raising these fabulous sibs…just allow them to be who they are, give each one on one time, and love them through the rough times as I know you already do.

    Hooray on getting on that TM and for finding your cards and mailing them.

    Carol- OMG, you had me cracking up about loving your new fan and the waving of a magazine being annoying to others around you while watching TV.  What a sweetheart your dh is even if it benefits him and everyone else, too.

    And again, LOL on DWTS reference. Yep, I agree that her mug is not the attractive one it used to be, but I heard that she had complications and a botched procedure (duh, ya think) and is having a more reputable ps fix her up.  Hope that works for her.

    Oh, man I don’t miss the hormonal mood swings of my ds’s youth.  You certainly do have a good deal having another household to send him off to when he’s being a moody monster (and I don’t mean that he’s being awful and mean, just that he’s not his loving normal self.)

    By all means, print out my philosophy. I’m glad it resonated with you.

    I totally know the ‘pit’ feeling and knowing you need to eat even if you’re not hungry. I’ve been doing more baths, too, but not right before bed. I can see how that would be very relaxing especially on top of your Lorazepam. Glad you slept well.

    Not sure I’ll be drinking wine with the lasagne. I tried a little White Bordeaux with the salmon I fixed last night, and it was one of my favorite white wines. It tasted, OK. Don’t think my taste buds are back. Most foods are just OK even though I know they are normally flavorful.

    Julie- Hey, decadron high was kicking in yesty huh? Wow, you got a lot done.  I too cooked for the first time in a while last night. I didn’t do all that other stuff though.
    I haven’t really cleaned my house in two months beyond surface stuff and even that has been sparse. I’m thinking a maid service when I’m done with chemo would be a good gift to myself.  A good one time deep cleaning.

    OMG, we have the same brow thing going on, too. It is weird looking isn’t it?  I had baby fine thin, but a lot of it, hair before.  I’d be OK with some curl, too.

    Sorry the ds is beating himself up, but that shows he’s got a conscience and will definitely learn from this lesson.

    WhooHoo on the last infusion!!!!  I’m right behind ya by only a few days.  May this one be light on the se’s all around. 

    How great that your cousins are each taking turns to be with you today and tomorrow. Enjoy your girl bonding time.

    Kathy- How cute is that? The ds calling his preschool teachers ‘his girls’.  OK, I’ve seen the J at the end of  people’s emails and honestly don’t know what that means in cyberspace. Can you clue me in?

    LOL on your weight loss imagery.  It isn’t fair in the least is it?

    Hmmm, is that a new door opening? Sounds like the plusses outweigh the minuses from this end. You still get to pursue something new if continuing to do this is only part time when you want to be there (and the OM isn’t); it keeps your NP current;it allows you to see your patients, and brings in a little extra moola…sounds like a weiner to me.  Your boss obviously values you very much to be willing to do what it takes to keep you and to give you all the time you need to consider his offer. If he’s grooming you to open this satellite office, how great would that be? Good luck pondering these new options.

    Well, looks like I’m caught up for now. I’ll try to check in after my antibiotic infusion.

    Sending out positive energy to all our Jewels.
    SIS Kimberly

  • deb102307
    deb102307 Member Posts: 248
    edited April 2008

    Just a quick note since I am at work.  Trying to do full days from today until next treatment (Apr 25th).

    Carol - I saw you said something about that "pit" in your stomach.  I had that the whole time with AC until I tried Gas-X and it took it away.  Didn't feel like gas but it still helpes alot.  Also glad you got your journal started.  Mine started turning into some dark thoughts so I set it down for a while but will be back to it.  FYI - if you are still writing in November and want a challenge to keep you motivated, check out nanowrimo.org   It is a 50,000 word challenge in a month. 

    My question is.....has anybody else been freezing even when it is nice outside?  I have used a heating pad to heat the bed before I get in some nights.

    There are so many that seem to be finishing up and I am jealous.  I know it will be soon for me too but I want it to be now.  I want some energy back and to not look so awful.

    Anyway, glad that some issues for people are being resolved and hope that other are feeling better soon.

  • tinalee123
    tinalee123 Member Posts: 112
    edited April 2008
    Hi girls,

    Greetings from cancer center central (wifi rocks)…all the nurses here are excited for me, as I have my last tx.  Even my case np stopped in for a visit and to give me a “certificate of completion”…very sweet.  Everyone here has been so great, onc reminded me I am sushi-eligible in two weeks!  YAY!  I’ll miss them…but, I won’t miss this…thanks to those sending good thoughts to me for today.

    Julie - I was wincing as I read your post about ds shooting the tv.  I just knew that was going to happen...call it Mom-dar, or my own experiences with my two boys...dang if they aren't wired differently than girls!  It does break your heart a little when they are sensitive and feel remorseful.  A learning experience, for sure.  One he’ll probably tell his kids about, no doubt!

    Kimberly - You're starting to sound like your old self, again!  YAY!  Thanks for the congrats on my ds #2.  Yes, he'll graduate with his class in early June.  He will be attending a technical college here in Minneapolis in the fall.  He's interested in the heating/cooling program - a 2 year degree.  He's very mechanically inclined and enjoys working on cars and his stereo, too.  Agreed...each in their own time.

    D1 - Oooo, Austin, TX!  One of dh's favorite places...all that music!  Sounds like a great time.  Did you enjoy living there?

    Julie and Donna – Thinking of you today, hope things go well for you, special blessings for the last one! 

    Kris – Yes, for me, Taxol was much easier than AC.  A few new se’s, including bone pain, body aches and neuropathy in fingers and toes.  I continued taking my AC nausea drugs and added Claritin every day, as well as B6 for the neuropathy.  Motrin and Tylenol are also part of my regimen.  Ah, the sweaty club grows…

    Joan – Great to hear from you.

    Carol – I hope your tummy is back in working order soon!  Cream of Wheat and I are becoming quite an “item”.  This following advice from LJ, on ideas to boost the blood counts – it’s working!  That fan is a great gift!  Just what you needed!

    Paula – Hope you’re feeling okay.  Such cool news on the fund raiser and trip! 

    D1 – I’m impressed with your dd!  That’s very cool.  We need more women in positions of political power. 

    Kathy – What a message your boss is sending you!  You are valued and you are respected.  Truly…I don’t know the whole story…but, you have to believe your boss “gets it”.  Otherwise, why would they go to the trouble of offering alternatives?  This, imo, is sending a very strong message.

    CarolC – My fellow-midwest sis, thinking of you.  Hoping the job search is going well.

    Wishes going out to our fellow gems that haven’t been around much.  Hoping you’re well.  Drop by when you can.

    Got about an hour to go at the bar.  Will check in later.

    Have a good day,
    Tina

  • tinalee123
    tinalee123 Member Posts: 112
    edited April 2008

    Hi again...

    CHJ -- I'm sorry I missed you on the schedule...best wishes go out to you today.  One more to go!!  YAY!!  Smile

    Tina 

  • golfer779
    golfer779 Member Posts: 1,378
    edited April 2008

    Tina, from my work to your chemo lounge "you go gal", you crack me up with your post from the chemotini bar stool, see ya on line tonight...better hit it for 2 more hours YUCK!

    Carol

  • vettegal
    vettegal Member Posts: 287
    edited April 2008

    Hi JewelsSmile

    Sorry haven't posted. Was dh birthday on monday. Been trying to stay with ds (denise) who is still having hard time. Went for biopsy on left breast today and they also did another one on the right (suspicious area) my poor vettesis has a bandage wrapped around both breast. She is beside herself anymore..she has liver MRI tomorrow and hopefully she will be able to get a "plan" next week on what is next. she hates not knowing what is going on!

    Has anyone been out in the sun with the bald head? Worried about getting a lil sunburn on "virgin skin" LOL

    Good luck to all hitting the"bar" tomorrow. I start Rads on the 28th. Got my tattoos on monday (dh birthday) I will  never forget that day!

    I have been spending alot of time with vettesis..sorry I haven't posted. I really need to be with her.

    hugs to all........xxxxxxooooo

    Patty

  • sista2
    sista2 Member Posts: 53
    edited April 2008

    today i had my counts checked and my rbc's were too low.  (no wonder i'm so darn tired).  the nurse checked with my onc and said i was getting the booster shot.  didn't think too much about it until another nurse walked by and said "oh, she shouldn't be getting that" and my nurse assured her that she checked with my doc.  well as i'm getting my shot it all came back to me....i had a rbc booster after my first chemo treatment but then my onc said i wouldn't be getting anymore because information was coming out that it might interfere with the chemo tx.  and i remembered reading some news about that, probably on this site.  i can't find it now.  i left the office with that "oh crap" feeling.  i'm assuming my count was too low for my doctor and worth the risk of the shot, have to believe he knows what he's doing.  

    does anyone know what rbc booster shot news i'm talking about? 

  • sista2
    sista2 Member Posts: 53
    edited April 2008

    vettegal - we must have been posting together.  i feel so bad for vettesis, it's such a trying time having to wait for all of the results.  i remember in deanne favre's book she spoke of how every town should have a center where you could get all of your testing done right then and there.  it's so crazy to have to wait, test, wait, test, all over the course of weeks or months.  you must be such a comfort to her with all of your strength and wisdom.

  • Determined1
    Determined1 Member Posts: 806
    edited April 2008

    Whew!  Seems like there's a lot going on today!  I was personally uneventful today (gym--oh yeah, rads, yogurt for lunch--I hate dieting, le therapy, 15 flaxseed corn chips for snack--I hate dieting, hour-long chat with mom, some work--I hate responsibility, dog walk, reading our thread with a tequila--there goes the d*mn diet!).

    Joan--Good to hear from you.  Hope you continue to feel good and get your energy back.  We'll have a big celebration on May 9, won't we??!

    SIS Kimberly--Thanks for the encouragement on not getting Vista.  I always worry that I'm staying in the dark ages sometimes when I don't upgrade.  Oh, and no thanks for rubbing in the names of our brown nosers who have turned in their cards already!

    Kris--Another flasher?  The world is unsafe with so many HOT women!!!

    Carol--Oops.  Another col (cackle out loud) slipped out when I read about your gift.  And then I read your comment admitting what a sad day it is that you're so excited about its heavy base and tilting capacity that I col some more.  God, we are SO simple!  And another one validating my XP choice--thank you.

    College girl would make a good politician (likeable, chatty, charming), but my little one would be a better president (and no baggage for folks to rummage, yet!).  Maybe they could run together...

    Looking forward to the book.  Just about done with my first post-chemo read--Anne Tyler's "Digging to America."  Well written piece of fiction (but I like Anne Tyler--she wrote "An Accidental Tourist," which was WAY better than the movie).

    Julie--Hooray!!!  You got your feel good day!!!

    KathyL--And even more joining the stick-with-XP chorus.  I shoulda asked sooner, rather than agonizing over this.

    My fingernails are pretty sad.  Seven of them are "white" to at least the middle of the nail.  I'm hoping I don't catch one on something and bend it back, cuz that will be the end of it.  I'm hoping I can keep them short enough that they'll grow out.  I got a pedi yesty and when she removed the dark, winter polish color, you could see that several of my toenails are black.  I chose a spring color this time and even though it doesn't cover all of the black, I'm going with it.  Who's looking at my toes that carefully anyway?

    Oh, and my weight is being very stubborn.  I gained 13 pounds since my dx and have lost 2 in the last 7 weeks!  I'm going to keep plugging away, but we really don't eat that badly--its the alcohol that kills me.  But I can taste it again and I'm not giving it up without a fight!

    For those comparing eyebrows--mine are suddenly falling out like crazy.  Fortunately, I started this journey with really heavy eyebrows, but they're looking sparse to those who know me.  And I've lost a bunch from the inner corners, so that my browline begins about a 1/4 of an inch from its former location.  Of course, college girl has been on me for years to pluck out my unibrow wannabe, so maybe I just look normal now.  Leg hair is growing in dark--head hair is see-thru--go figure.

    Deb--I totally hear you on the impatience thing.  Part of the reason I started the January thread was because even though my 1st tx was December 27, I knew the December crew would finish before me and I could not handle the thought of being the last to finish.  Glad I felt that way because I met all of you.  So its easy for me to say "be patient," but I know I wouldn't have been.  I want you to have energy NOW, too!

    Tinalee--I did like Austin.  But our start there wasn't so good.  My dh (then my boyfriend) and I drove our Plymouth Fury down there from MI (where we'd grown up).  When we first arrived in TX (this was in the mid-late 70's) the locals kept forcing us off the roads in our tank.  We couldn't figure it out.  Then we changed our plates to TX and all of a sudden, the forcing off the road ended.  They just didn't want some Michiganders infiltrating their gig!  Yes, the music was good (I actually developed a taste for country-western, didn't know there was a difference from country till then), but the food was to die for.  In fact, my whole agenda for my little family celebration is based on eating at certain places.  (That'll be good for my diet...)

    Oh, and if my college girl had been unable to get an internship on her own (I'm still amazed at that--its unbelieveably competitive to get those), my dh was going to hit up his old friend, Oberstar (from your neck of the woods) to see if she could intern with the Minnesota delegation (the dh lived in Forest Lake for a while and he and Oberstar have worked on transportation issues for a long time).  But, my kid is amazing all on her own.  I'm so proud.

    Yes, Jewels, Frankenstein left DWTS (I'm sorry, but if you get all that done to your face, you should look like Frankenstein.  Shows you money can't buy everything).  I was glad.  It made me uncomfortable to watch her.  And I agree with KathyL (I think) that the bootee on AI was improving, but let's face it, you knew her days were numbered.  I still don't see the hoopla around little David A.  He's a cutie, but his whispery voice annoys me.  I'm all about David C. and Jason (if only for the eyes and dreds--oh and the guitar).  (Okay, why am I still watching all of this reality tv?  I'm done with chemo.  Am I hooked?  Oh no!!!!  I'm even watching America's Next Top Model.  At least I don't watch Survivor or the Biggest Loser...)

    Guess I'll go see what reality tv I have tivo'd for tonight's enjoyment...

    D1

    Yo, yo!  (Been listening to Randy too much on AI.)  I want to acknowledge Julie, Tinalee and AZDonna, all of whom spent their last hours in the lounge today.  Three cheers!!!!!  Also, a big shout to LJ13, who headed to the bar on this beautiful day in the mid-Atlantic.  Hey there LWDana and WVgirl--you two are up next!  FUBC!

  • Determined1
    Determined1 Member Posts: 806
    edited April 2008

    Vettegal and Sista--You posted while I was composing (that takes me a while...)

    Patty, you stick by Denise for now.  You know we miss you here, but it sounds like she really needs you.  I must get back up to Carlisle soon so I can toot the horn for Vettesis as I cross the PA state line.  Oh, and happy belated to Vetteguy.  You're quite the catch--getting yourself tattooed for his b-day present!!!  (Later you can have the tats connected to spell out his name--I knew you meant to do that in the first place...)

    Sista--sorry, no experience with a rbc booster.  Sometimes you gotta trust.  Hope you're doing better.

    D1

  • camazur
    camazur Member Posts: 70
    edited April 2008

    Oh, Gems. Everybody is chatting so nice. Things are sounding so positive for everyone. Meanwhile my heart is breaking. My friend Val is not able to tolerate the chemo--her blood counts are too low. The cancer is growing very fast, and her partner was advised yesterday to go buy a plot. They're talking hospice care. The end could be near. I worry about her suffering too much.



    I had my hopes, but they've been dashed. This is the hardest thing I've ever had to face so far.



    Cancer really sucks.



    One good thing yesterday, I met with her other best friend while he's up here from Fla. We had a nice visit. The two of them stood up at our wedding. In fact if it wasn't for them, I wouldn't have met my husband.

    They (Val and Harry) moved to San Francisco from NJ. I went out there to visit them on the Grey Rabbit Bus, a hippy bus that drove from NY to SF. My husband was one of the 2 drivers on the bus. He happened to also be driving on my trip home, and that's when we connected. He taught me to drive these big old transit buses circa 1949 with most of the seats torn out and foam mattresses wall to wall in the back. People brought sleeping bags and slept head to feet sardine-style. Took 3 days to go cross-country with about 30 people on the bus, stopping only to eat, etc. This was 1976. We had a lot of fun doing it while it lasted. Knew places to skinny-dip along the way.



    Trying to be brave,

    Maz



    Kimberly--was that sore on your lip like a cold sore? Cause I've got one now that won't quit and keeps cracking. Any suggestions what to put on it? I've been putting Magic Mouthwash on it, but its not really helping.



    And my left eye is twitching like crazy. Not all the time, but enought to be really annoying. I think its stress. This is very stressful. Hoping I don't sound too much like a whiner, but where else can I take this?

    Thanks, All.

  • golfer779
    golfer779 Member Posts: 1,378
    edited April 2008

    Happy Thurs Eve,

    Yeah, made it throught the day with tummy in tact, didn't mention that yesterday was a "shart" (as D1 so eloquently describes) day.

    I'm so hyped to be feeling decent I'm celebrating with "tiny" glass of wine, yep I even measured out 3 oz.  Its been 8 days since I had my infusion of methotraxate which is suppose to be the "avoid alcohol" drug, I got the go ahead while on "cation" to have a little nipper, so I figure I'll take advantage of my little chemo holiday at home as well.

    Got the sheets in the wash ... last night was a doozy.  Couldn't even blame the dh for the excess body heat as he was out of town.  Reggie (wiener #1) took his place, practically layed with his head on Kent's pillow, it actually made me lol at 1:00am as I got up to get a cool wash rag.

    A few quick shout outs, as I probably should motivate at some point to fix dinner ...

    Maz, I wish I had the words to help ease the sadness you are feeling.  I can only hope that Val is being given the meds she may need to keep her from any excess pain and anxiety.   I truly believe that the help of Hospice can be so beneficial for all involved.  You truly will be in my thoughts, try to be strong and also take the care you need for yourself.

    Vettegal, your doing right by being with your sister as much as possible.  It saddens me to think of what so many of us have had to endure throughout the last months.  As with Maz, try to take care of yourself as well, you will need to be as strong as possible for the two of you.  Happy belated to Vetteguy, thank god you have such a supportive dh, you are a lucky woman.

    Sista, wish I could shed some light on the RBC's, my guess is that Kathy or Therese may be able to give some info.  Atleast you know why you havn't had the energy you thought you should have.  Hope that your back on track soon.

    D1, okay, I'll have to admit, I read your post then went to get myself a little nipper of "Twisted Zin".  Hitting the ToKillYa huh?  You go girl, sounds great with a little Yogurt!!!  You'll work it off, your my "non-brown noser" inspiration on the exercise plan!!!

    Tina, like your new pic, was thinking of hunting down a new one as well.  The flowers and my hair being its normal "colored" color for the past 10 years or so in my pic are getting on my nerves.  Darn, I look about 10 years older now with all the gray!!!!  Okay, I knew I shouldn't bitch about my hair again, no sympathy from this group!!!! 

    Kathy, your boss knows he has a super lady and sounds like he does not want to lose you.  Hoping that you can come to some happy middle ground that works for you.  Glad that it didn't become a blowup situation.

    Kimberly, yep I printed out your philosophy, I have tried to tell myself (albeit not with the pzazz of your words), the same idea on a regular basis.  I love your choice of words, that LA teacher bit comes in real handy for us all.  I copied it, printed it in bigger letters and it has been attached to my first page in my little bc binder that rarely leaves my side.  Thanks gal!!!

    Deb, thanks for the GasX idea, I think I'll give it a try, at times I look in the med chest trying to decide what I should take, most times I just take my Lorazepam and lay down, kinda hard to do at work though. 

    My writing could use some help from SIS Kimberly, probably should have paid more attention in English class.  I would be afraid to let too many see how grammatically incorrect I am.  Trust me, it takes me forever to type these posts so they might make sense in somebodies mind other than my own!

    Wvgirl, if you able, let us know your okay, I know you said that your having a tough time, we're here for you gal. 

    As far as my writing goes, I plugged along again today, I'm now on Day two, the mamo, u/s and biopsy.  Amazing how I can almost recall every minute of that day.  Boy the emotions as I write totally came back to life of the days events.  I'm fortunate to have a job (light duty still), that enables me to have quite a few down moments in my truck.  I'm taking advantage of those times with my journal, or as D1 knows yakking on my cel phone!!!  Okay, so your government dollars are not being spent to well on me these days. Trust me I'll make up for my milking the system later!!! 

    Off to put the sheets in the dryer, and start dinner, and my god this Zin taste good.  It will be hard to not have a refill ...

    All my best to WvGirl and Dana tomorrow, kick some cancer booty gals. 

    Carol

  • SISKimberly
    SISKimberly Member Posts: 762
    edited April 2008

    Good afternoon Jewels,
    Again, didn’t do much today, just not lots of energy. I did organize my own writings and stuff regarding my journey so far, and now need to go back and fill in the blanks with my own thoughts about things along the way. Thank you, Carol, for that…your starting your journal gave me the push to finally get that done.  You know how messy our regular desks can get, the desktop and docs folder can be even worse.

    Deb- Glad you’re able to work full time until the next round.  And yes…I’m always cold except when I’m flashing, which isn’t too often as of yet, or having night sweats, which is pretty much nightly. My poor hubby is in shorts and I’ve got the house set at 72 degrees, and I need a light blanket most of the time.

    Hang in there sweetie (hard as I know that is right now when you want it NOW), your last one will be here before you know it, and we’ll be here to celebrate with you!!!!

    Hey Tina- How cool you being able to let us know how you’re doing right from the lounge like a play by play from a sporting event. WhooHoo!!!!! You are done, girlfriend!!!!!!

    Heating and air conditioning is a good field to get into. Your ds#2 can make some really good money once he’s got some experience under his belt.  We so need more young people to get into fields like that and car repair, especially now that there are so many computerized parts. Bravo for him knowing that he’s a hands on guy (oh, that could be taken wrong, couldn't it?  Well, you know what I mean.)  and not wasting time  doing the college thing if that's not what he wants to do.

    Patty- Oh sweetie, you do not need to apologize for your absence. We are so glad that you are able to be with Vettesis in this horrible time of the unknown. It’s hard to believe that just 7 months ago, I was right there where she is…not knowing what the heck was going on or what the plan was.  Let her know that the Jewels are all thinking of her and sending her all of our best wishes. 

    Check in when you can.

    Sista- The shot is probably something like Procrit. Here’s the article I found on it for anyone else who might be interested:
    New Studies on Anemia Drugs' RISKS - FDA

    FDA is reviewing new data from two studies that provide further evidence of the risks of anemia drugs known as erythropoiesis-stimulating agents, or ESAs. These two studies were not among the six described in the revised labeling that was approved by FDA on Nov. 8, 2007, which strengthened warnings about ESAs in cancer patients.

    All eight studies together show more rapid tumor growth or shortened survival for patients with breast, non-small cell lung, head and neck, lymphoid or cervical cancers that received ESAs, compared to those patients who did not receive the treatment.

    "FDA is reviewing these data and may take additional action," says Janet Woodcock, M.D., FDA's Deputy Commissioner for Scientific and Medical Programs, Chief Medical Officer, and Acting Director of the Center for Drug Evaluation and Research.

    "In the meantime," she says, "FDA recommends that health care providers review the risks and benefits of ESAs outlined in the product label and discuss this information with their patients."

    FDA plans to discuss this new data and revisit the risks and benefits of using ESAs in patients with chemotherapy-induced anemia at a public advisory committee meeting in the next few months.

    What Are ESAs?

    ESAs are a bioengineered version of a natural protein made in the kidney that stimulates the bone marrow to produce more red blood cells. FDA has approved the use of ESAs for treating anemia in patients with chronic kidney failure, cancer patients whose anemia is caused by chemotherapy, and those infected with the human immunodeficiency virus (HIV) whose anemia is caused by the HIV drug AZT (zidovudine).

    ESAs are also approved to reduce the number of transfusions during and after major surgery.

    What Has FDA Done?

    FDA approved revised boxed warnings and other safety-related product labeling changes for ESAs in November and March 2007. Safety concerns regarding ESAs also have been discussed during advisory committee meetings in 2004 and 2007, and labeling was revised in 1997, 2004 and 2005 to reflect new safety information.

    For More Information

    FDA Press Release (January 3, 2008) www.fda.gov/bbs/topics/NEWS/2008/NEW01769.html

    FDA Public Health Advisory on ESAs (November 2007) www.fda.gov/cder/drug/advisory/RHE200711.htm

    I’m sure your doctor wouldn’t put you at risk unless your counts were just too low to do otherwise. 

    D1- Again, you’re killing me with your wit. LOL on the accounting of your day with your I hate dieting and responsibility thoughts thrown in…tequila and the Jewels are calorie free you know.

    I watch DWTS and Survivor.  I can’t get into AI anymore, and some of those other shows are just not my cup of tea.

    I’m so tickled that your college girl pulled a fast one and took care of her own internship…they do grow up, don’t they?  Another intelligent woman in politics is always a good thing.

    Maz- I am soooo sorry to hear about Val. I wish there was something I could do to help make this easier for you. Please let us know if we can do anything to support you as you go through this very difficult next phase of Val’s journey.  I’m glad that her partner and your other friend from Florida were there with you when you heard the news.

    Yep, cold sore for you know where that took forever to heal. I put stuff on it for cold sores…medicated stuff the pharmacist recommended, which I can’t recall the name of at this moment.

    Vit. B6 should help the twitching eye, I heard.

    Wvgirl and LWDana, kick cancer booty tomorrow…just don’t let the bouncers throw you out. Be stealth my friends.

    Catch you all tomorrow.  I have an early appt. so it may not be until the afternoon.  Off to turn the oven on so it’s ready to heat the lasagne, which is on the way as I write.  Yummy.

    SIS Kimberly

    Got Kathy and Therese's cards today. Thank you both, and thanks for the card tucked inside Therese. 

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