ok... I'm ready for some input

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lemonpie
lemonpie Member Posts: 183
edited June 2014 in Second or Third Breast Cancer
ok... I'm ready for some input
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  • lemonpie
    lemonpie Member Posts: 183
    edited April 2008

    History.... diagnosed with stage 3c March 2007... large tumor,  triple neg.8.5cm, and lymph, skin, & vascular involvement. 6 rounds of TAC, had a complete clinical response to treatment at the time of surgery (modified rt breast masect.), 6 weeks of radiation.   First 3month check up ..... cancer found in a lymph node but NOT in the breast.... I'm a patient with MDAnderson and while I do think they are a great at what they do... I'm just not feeling so great about things at this point.  Has anyone had any experience like this before or is my luck just that bad????? 

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  • bermudagem
    bermudagem Member Posts: 337
    edited April 2008

    I am so sorry that you are going through this. I just wanted to come and give you a BIG HUG. We are here for you. I have not gone through that. But I am sure someone will come that has been through this. I wish you all the luck in the world.

    Shelly

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  • veggievet
    veggievet Member Posts: 72
    edited April 2008

    Hi MMC,

    I'm so sorry about your recurrence.  I had a lymph node recurrence but my circumstances were different.  I was wondering if you had BRCA testing.  I have seen others who were BRCA1 and had similar situations to yours.  There is emerging evidence that BRCA1 cancers may respond better to platinum chemotherapy than taxols.  Not many oncologists treat BRCA cancers differently but there is evidence that there may be good reason for them to do so.  I know of two women who had your situation (both BRCA 1 positive) and they are doing great!

    Feel free to e-mail me at: sueanddan@att.net  if you'd like to chat or be connected to them.

    Hugs and love,

    Sue

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  • VBG
    VBG Member Posts: 227
    edited April 2008

    Hi MMC,

    Sometimes it is just "bad luck" when dealing with BC.  I too was treated with all the normal standards of care yet still had a recurrence 18 mos later. 

    I did my reading and research, got good and angry, and started talking to more Docs.  Even at the best centers some Docs are better than others!

    It may give you piece of mind to talk with some other Docs, get second or third opinions just to be sure it is only "bad luck" and not something that was missed.

    I know how hard it is to face another battle just when we were starting to believe the worst was behind you. 

    Stay strong and keep fighting! 

    Valerie

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  • lemonpie
    lemonpie Member Posts: 183
    edited April 2008

    SHELLY, THANKS SO MUCH FOR YOUR BIG HUG...IT DOES BRING ME MUCH COMFORT KNOWING THAT OTHERS CARE.

    SUE, I HAVE NOT HAD BRACA TESTING AND TRUTHFULLY I DONT REALLY UNDERSTAND WHAT IT IS AND WHAT INFO IS GAINED FROM IT BUT WOULD APPRECIATE ANY INFO.  I WOULD LOVE TO BE CONNECTED WITH YOUR TWO FRIENDS AND WILL PM YOU FOR MORE INFO. 

    VALERIE.... I'M HEADING TO MDA TODAY AND WILL BE THERE THIS WHOLE WEEK, HOPEFULLY I WILL GET A BETTER UNDERSTANDING OF MY SITUATION AND IF I DONT FEEL COMPLETLEY SATISFIED I AM GOING TO ASK FOR ANOTHER OPINION. 

    THANKS TO ALL FOR THINKING OF ME AND PLEASE KNOW THAT I WILL KEEP YOU EACH IN MY THOUGHTS AND PRAYERS. 

    MARY (LEMONPIE)

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  • formygirls
    formygirls Member Posts: 916
    edited April 2008

    Mary,

    Good luck this week at MD and I hope you get resolution of what the primary tumor is. Are you are having the MRI guided biopsy this week? Praying for B9 reults again. I know your previous biopsies on these lumps were b9. I also had BCRA testing done and luckily they were negative. I did them because I have two girls and I wanted to make a decision about a bilat. Even though it turned out negative, I am still going for a bilat. Let us know how things go.

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