Jan 2008--Ain't it Great?
Comments
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deb102307 - glad to read about your tx#2 with taxotere. i'm having my second tomorrow. wasn't as easy as i thought it would be. had 3 weeks in between instead of 2 this time and thought i'd have a nice feel-good period but it hasn't happened. been fighting a cold w/ fever this week and hoping it's done so i don't have to delay tx.
judy - i'm so sorry about your latest news but glad have a different drug to fight with. and thanks for the encouragement to stick with this chemo crap. i just told my onc yesterday that i want to be done, though not seriously going to quit. he didn't recommend it. you are so right. i pray that your new tx does the job and you get some relief from your cough.
sis kimberly - damn that infection. as if this all isn't hard enough. hang in there. i know your tremendous spirit will see you through. get well.
jenn51 - i hope the family can come to an agreement on how to handle things with your fil. i'm sorry for what your family's having to go through.
vettegal - your sister is so lucky to have you to turn to now. we all know how hard it is waiting for answers. i'm sorry she has gotten more bad news but yet good that they're being thorough and finding all they need to. that probably isn't of much comfort to her at this time though.
i've been trying to stay current on the posts. this all isn't getting any easier. my dd turned sweet 16 yesterday and being 3 wks out from treatment, i thought i'd feel good. i felt awful and felt more awful for feeling awful on her birthday. my youngest's is coming up soon...i need to feel good... one good thing - while i was sick with a fever, i had fewer hot flashes! but i must be getting better cause they're back.
i did have a strange se on taxotere that i haven't read about...i wear a sterling silver ring that is a band of my daughters names. well one day last week it tarnished, out of the blue. i hadn't done anything different to cause it to change. first thing i think is chemo. then a couple days later it was silver again. i guess with the burning and peeling of my hands it's not surprising but i feel like i'm more toxic than ever. i wonder what's in my sweat from all of those hot flashes?!!!???
to everyone who is done with chemo, i am sooooooooo happy for you!! for those who still are trudging through....i'm still trudgin' with you and hoping for minimal, make that NO se's for us all.
take care jewels!
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Sista2
Your hands peeled too? Was it your palms or the back of your hands? Mine was the fingertips and back of hands. Is getting ready for the second peel. My onc said he usually sees the palms but not the back of the hands. I think it is because my hands got so hot. I used those soft ice packs and that seemed to bring relief too. I am unable to wear rings so can't help you out on the tarnish dilemna. My fingers swell then go down so I just quit wearing them. How is your fatigue level? I was wiped on day 4 and slept most of the day but I may have overdone it some on the weekend. I'll be thinking of you tomorrow. Hope it goes well.
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Good evening, Gems! I think I finally have the stinkin migraine under control. It got bad again today, but now seems to be gone - let's hope for good!
Paula - congrats to the ds!! Sounds like he had a great game! Also sounds like you and the dd got some special time together - I remember those drives with my mom. I agree with Carol - don't push the counseling unless they approach you about it. Kids are so resilient and I'm sure they have good friends they're talking to.
Carol - I hope you got some extra sleep this morning! I did another shot of Imitrex around 6:00 and was able to finally get several hours.
Deb - Sorry you're having such a hard time. The end is near.....keep looking for that light at the end of your tunnel!
Kris - WOOOOHOOOOO for your last AC!!!!!! Double WOOOOHOOOO to no rads!!! That's good news for you!
Vettegal - I'm so sorry your sister got more scary news. I'm sure that's hard to have her call you so upset. I completely understand why she's upset. Take it from someone who chose to do a bilateral mastectomy instead of a lumpectomy, it is not the end of the world. The most important thing is that they get the cancer - whatever way will get it the best - and then she can focus on healing. My sister is the one that did a prophylactic bilateral mastectomy two years ago because of our mother's history with breast cancer and she has never regretted that decision. When we talk about it, our philosophy is "they're just boobs" and you can always build new ones. It's important that they get the cancer out and she can do her treatments, then reconstruct if necessary. Just my two cents - I'll be thinking of her as she faces all the decisions ahead.
Sista - sorry you haven't been feeling well. I'm sure it was tough to be sick on your dd's birthday - you can always do a late celebration when you're feeling better! Hope your se's get better. Strange about the ring - that's a new one! I've had to take most of mine off as they had gotten too tight on my fingers.
My ds came home from TKD all excited last night. His Master asked him to take part in a special exhibition at a big local martial arts fight this Friday night. He only asked about 5 kids out of the 40+ in the class, so he is really excited about it! We were pretty proud of him.
Well, Jewels - I need to head into town and pick up ds soon. Hope everyone has a good evening!
LJ, Jenn, and Maz - go get ‘em tomorrow, girls!!! Hope you all have uneventful tx's and minimal se's!!
Special {{{{HUGS}}}}} to all our "blue" Jewels who have been MIA for a while. Thinking of you all!!
Julie
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Good afternoon, Jewels.
LJ13--Glad to hear you're meeting w/a rad onc before choosing your next step. I met with a rad onc w/i the first week of my dx to ask questions, but hadn't found these boards, yet, so really didn't know what to ask. (And those docs--none of them--volunteer much!) If there's anything I can help with on the rads front, let me know. I'm happy to share what limited experience I have.
Vettegal--Doggone, that thang's a beaut, girl!!! But what are you guys doing in front of a Mickey D? I thought you were all about promoting the KFC mashers!! Cipro's strong stuff, take care of yourself.
Oh no, more bad news for Vettesis. I know you can help to guide her to learn more about her situation/choices. Knowledge will help. Please continue to encourage her to come here. We remember how scary the time is when you're first dx'd. I'll send her my best coping thoughts.
Joan--Glad you're feeling better. I slather on a cream babydoc gave me called Alra. It has aloe vera, vitamin e, collagen and other good things in it. Makes my boobala super soft. Pink was gone by this morning, but after zapping today, its baaaack. I burn really easily (blisters on my shoulders from the sun when I was young was normal for me), so I'm not surprised. But thanks for the reminder to peek at the rads threads--I haven't been there for at least a week.
Julie--Hope you had sweet dreams last night. And what's with the migraines? Haven't you had enough already??!
KathyL--OMG, what a bitch! I hate that kind of person as a health care provider. You need to take her down!
Deb--Your taxotere se's sound painfully familiar. I'm so sorry you're having so many. Hope you're getting some sleep--seems no one else around here is... The sleep will help you tolerate your se's till they pass (they WILL pass, eventually).
Congrats, Kris!!!! Keep those se's down this last time.
Sista2--Sorry you're fighting a fever, but you made me smile when you mentioned that at least you didn't notice your hot flashes. Way to find the silver lining! Good luck tomorrow.
SIS Kimberly--Get well soon! We're all pulling for ya!! (Thanks, Carol, for the updates, I was getting worried.)
Good luck tomorrow to Jenn, Maz and Sista at the lounge. May your cocktails go down smoothly and bring on only the teeniest of hangovers!
D1
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Thanks Carol, it worked. I printed your pm & will keep it with everything else I'm having to print these days.
Here is Peyton, 3 yrs.
And here's my other boys, Jake's the black one, he's 6. Shaun is the golden one, he's 3 1/2, but we've only had him since last July. Adopted him from a cocker rescue.
Now I'll go read & write.
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Now go figure. Before I hit submit these pictures were the same size. What happened?????
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deb102307 - the soft area under my thumbs but on my palms (got that?) turned red like they were burned and then peeled. my fingertips are peeling and some in between fingers. nothing on the backside though. my fingernails were so sore for a while too (texting hurt so bad!) but better now. body aches worse than any i've ever felt hit days 3-4 (Easter)-in bed all weekend, got better after that. i don't think the fatigue has left at all, especially with getting sick. i've pretty much been a whiny mess since my last tx. i keep getting sore throats too, what's up with that? let me know what other nasties hit you with #2, i'm following right behind ya. only 2 more, keep saying it!!!! (after tomorrow for me anyway) oh yeah, my eyes are a seeping mess and my taste left too. ugh.
Jenn51 - how adorable!!!!!!!!!!!!!!!
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Hello Jewels,
Sorry about the pix of Peyton. I had both pix really small until I hit submit.
We had another nice day today but it's back in the pits tomorrow. Rain, getting colder & maybe snow on Sun.
Fil is home. Mass on his kidney is benign - hooray - and it's not causing the loss of kidney function. They think the liver is doing that. There isn't much they can do for him. Send him home, keep him comfortable & hope the meds extend his quality of life past the average. Meeting is still on for all of the kids Sat. I will get dh there somehow.
KathyL, Aren't the short txs nice. I'm down to ½ hour for the Herceptin. There still is the fluid & Benedryl but if things to smoothly I'm out in an hour at most. I'm sorry you had an unsatisfactory visit with the np. I've got 1 more tx left after #5 tomorrow, not counting the Herceptin for the rest of the year. I'm sure I'm going to feel at loose ends. And I don't know if I'll ever have a comfortable feeling that it's not coming back. Don't worry about b!tch!ng. Isn't that what we are here for?
Carol, Thanks for the update on Kimberly. She certainly is usually a very bright ray of sunshine with her posts. If you talk to her again, give her my love & tell her I'm praying for her.
Julie, Not another migraine! FUMH I can sympathize. I was afraid my would come more often once I went off the HRT. So far so good, but I sure wouldn't want to deal with that as well as the se. Hang in there.
I didn't do anything different last night but I got a better night's sleep. Woke up with horrible pain in my ribcage. It was Darvocet time it was so bad. The more I thought about it I realized it feels like Pleurisy. I've had it once years ago so I know the feeling. Glad I see the onc tomorrow. At least with the pills I can take a deep breath. Now I'm wondering if that fluid has been building up & that's what showed up on the MUGA. I get those results tomorrow too.
Way to go to ds on the TKD honor. I hope you will feel like going (I know you'll go, I hope you feel like enjoying it.)
Paula, What a nice way to spend some time with your dd. I'm sure you both felt better after a good talk.
Thanks to all of you night owls. You reminded me that I hadn't taken my evening Decadron. I came home from work & had a small carton of yogurt to I would have something on my tummy and then forgot to take the pills. FUCB!!!!
Deb, I'm in for my 5th Taxotere tomorrow. The fatigue is something like I have never experienced b4. There is really nothing to do but give into it. I tried to push on thru the 3rd one & I think it lasted longer because I did. So I stopped trying to be a hero & gave in. I hate to tell you, but you may as well be prepared, for me they got worse with each tx. I'm not sure I'm over #4 & here it is #5. But #6 is last & with the grace of God I will start feeling like a real human by late May.
Kris, Congrats on completing one leg of your journey. My bff had a mastec. with ln involvement & she didn't have rads. She 16-yrs out & no recurrence. All we can do is trust our docs.
Vettegal, I'm so sorry about vettesis's news. I am so glad that she is reaching out to you. Is there anyway you could go to one of her dr. appts. with her. I know having my survivor bff with us was a big help. She asked questions we didn't think of. And if she thought I didn't understand something she would ask for a simpler explanation. You are both in my prayers.
I can imagine your Vettetherapy. All convertibles are good for hair blowing, but a Vette....that's A1.
Well, it's about time for Survivor & CSI the original. So I'll post this & be on my way. Max, I know you are joining me tomorrow & I think someone else is but, my chemobrain won't let me remember. Cheers to all of us & may the se be minis.
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Hello Gems,
All I have left in the tank tonight is a quick shout out to our jewels off to the bar tomorrow ...
Jennifer, LJ and Maz, may all of your txts be "uneventful", and se's left at the bar. You all will have to fight for the tab!!!
wvgirl, if your sneaking a peak, let us know that your okay ... okay?
Take care all my fellow jewel friends, I'll probably be lurking for a bit tonight, my goofy sleep last night has finally caught up with me once I plopped in my favortite spot (yep the recliner!). Still need to motivate to cook a little something, dh will be home shortly, so to all a good night.
Carol
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Jennifer, oops, I did want to say that your dgs is as cute as your dogs, and thats pretty cute!!! Gotta love them all!!!
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Hi Jewels! Reading while watching/listening to the AI Gives Back show. I'll do my shout outs tomorrow, but had at least say hi. Carol-- thanks for posting about Kimberly. Kimberly, if you're reading, I'm thinking of you and sending healing vibes your way. Stay positive.
'Night Jewels!
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Julie & Carol, yeah I'm a night owl alright or rather my son is. He is autistic and his sleep has never been normal, so I sleep when he does. Its to dangerous to leave him up alone, even though he is 23 years old.
Anyway, I hope that everyone else is sound asleep and dreaming nonchemo dreams, tomorrow should be a beautiful day here in Ohio.
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Thanks for the good thoughts ladies. Heading out to Tax/Herc. Tx#8 momentarily.
Carol, the appointment with the Rad Onc is in early May. I'll be sure to update the group on his sage advice. The scheduling admin set it up for 2 hours ... she said "he likes to take his time with patients ... he'll take his time with the patient before you ... and he'll take his time with you ..." My kind of doctor ... I always run long in appointments because I have so many questions.
Please send all our love to Kimberly, and tell her the collective group energy is coming her way. She needs to tap into that group energy and soak up the healing power.
Where's Dana? Didn't she have a PET scan recently?
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SIS Kimberly: Thinking of you and hoping the antibiotics are working their magic to get rid of that infection. Wish I lived on your coast so I could visit.
What's up with you night owls... Carol Diana, and Julie?? Hope you all get some sleep soon.
Deb102307: Sorry to hear taxotere is kicking your butt, too. I really dislike that drug immensely! No puking next time, lady... take your Zofran and increase the poopy medicine of choice.
Kris60: Congrats on your last AC. I hope th etaxol goes well for you. Are you doing it weekly like many others here?
Vettegal: Sorry to hear about vettesis. It is so hard in the beginning getting all the news (usually not good news either). Being young, I have dense breasts also(or HAD one I should say)-did they do an ultrasound and/or digital mammo? I hear the digital mammo especially is helpful for dense tissue. You could also ask about her getting an MRI-I had this done also b/c of my age and the dense tissue.
Sista: I'd not heard about the ring/skin change before... very interesting. Hope you're feeling better.
Julie: Thank God for Imitrex. Glad it got your migraine under control.
Jenn51: Great pics! Thanks for sharing. Get that chest pain checked out and report back. I'll be thinking/worrying about you!
LJ13: I'm one of those patients, too... I always have my list of questions regardless of the type of visit. Hope today went well for you.
It's a beautiful day in DE finally-60s and sunny. I was out earlier enjoying the nice weather, and doing some fundraising for my Relay team. Getting psyched about it. Have to go pick up the kids soon, so I'll check in later if I can.
Dumb question... what kind of info did everyone put on the cards for SIS Kimberly for our secret pals? I have to get them done and mailed to her.
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Afternoon, Jewels!
It's absolutely gorgeous here in the Nation's Capital today. My guess is 75 degrees and not a cloud in the clear, blue sky. (Why am I indoors typing this???)
Rad update. My "field" stayed pink last night till bedtime, but was normal color this morning--just in time to be zapped again. Now I'm pink... Not really hurty, but it's that feeling you have when you're still laying in the sun, but you know you're getting a burn and should go in. I will say that this morning, when the skin was normal, that "I'm getting burned" feeling went away. But I'm 9 down, 21 to go!
Hey Jenn. Thanks for sharing the pics. All your boys are so darling! It would be hard not to smile when they're around. I was so glad to hear that the fil's report is b9. I hope the family meeting on Sat. goes okay.
Oh, and I agree with your advice to give in to the Taxotere fatigue. I, too, tried to fight it at first, but found it easier to bear when I just let it happen. That drug is totally f*cked up, if you want my opinion...
I have a dumber question than KathyL's dumb question...What's everyone talking about--cards? Is this part of the secret pal thing that I somehow missed?
Hey gang, can we get some sleep around here????!
D1
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OK,
I finally finished reading all 76 pages of this post....whew. Took me through 3 cycles of AC but am wondering what to expect from Taxol...dose dense. Sorry I have tried to figure it out, but it seems that most of the Taxol comments have been from those on herceptin as well. I will be getting Taxol every other week for 8 weeks (4 cycles) and am wondering if the se's will be the same as those on a lower dose for longer. Is someone on this cycle that has posted? I'd go looking, but my eyes are burning.
Thursday is my last AC and I have been posting on the March 2008 thread with Wildrose. Kalen has been a font of information thanks to this thread and so I have made it a mission to read every page.
WoW now I know why you BC ladies are a special group.
Now I've ended my lurk so a giant FUBC from
DC
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Hi Ladies!
Jenn-your pictures are great. All of the boys(dogs included) They look comfy on that chair!!!
D1-that photo was from last year at a car cruise we checked out! I looked at my hair and cried. I really miss it!
Thanks to everyone on vettesis. she is having a hard time. Really hard.
I told her we have all been there and she needs to come to this webisite.
Does any have as much fatigue as I do? My goodness, I get so tired I mean EXHAUSTED I try to pace myself at work. it never works, i go crazy all day and by the afternoon i could sleep behind my desk. I hate to turn into one of teh old people that go to bed at 7pm. but, I will. My body needs rest.
Good luck to those hitting the BAR tomorrow! it is happy hour 2 for 1 drinks at th chemo bar!
I am pooped out, hitting the bed early again. i am such a old geezer!
GO PENQUINS!!! we are hockey fans here!
hugs to all....xxoo
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Hi Everyone,
Sorry I have been MIA, I just a needed a break or something. My last treatment made me really ill and I'm just trying to get my strengh back from it. I don't like my chemo oncologist anymore, but I will have to tolerate him, I don't want to change cancer centers again. And I'm done with chemo, I won't see him again for 2 months when I start my Taxmoxaphen. I hope everyone is well, I do want to catch up. I think I'm back for good now. Yesterday I went for my rads simulation, that was a experience. Since my brest are kinda large they had to make a bra thing with this plastic that molds around your breast, they put wire in it. They put 4 tattoo dots on me, when the needle went into my sides it really pitched and hurt. They did my CT scan, and took a bunch of pictures of my brest in that bra thing. I guess to help them remember the postion I was lying in. I don't know. I did like the rads nurses and the rad oncologist, he was very nice. I'm all set to start 4-28. Has anyone else started rads yet?
Kathy I start my radiation treatments April 28th I have to go for 6 1/2 weeks, 5 days a week. I do hate that it is 5 days a week.
Jenn51 I really loved the pix Peyton and the dogs, really cute family.
Sis Kimberly and Vettegal I hope you get well soon.
All the Jewels going to treatment this week, good luck and kick cancers butt.
Therse I will be thinking about you during your Koman walk. Thanks for walking. We love you.
Take care, SheShe
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Good evening, Jewels! Glad some of you had good weather today -- it stormed here ALL day and is continuing tonight! They're calling for strong winds and hail! It's supposed to continue like this through the weekend -- yucky!
I went to school today and had a nice day. I was really tired -- since I haven't slept much for about 5 days -- but it was great to see all my friends and students. I'm pretty tired tonight -- sure hope I can sleep!
Kathy - I haven't done my cards yet - partly b/c I'm unsure what to put! I had planned on working on them 2morrow -- any ideas???
D1 - yes, Kimberly posted something several days back about the cards. I'll see if I can find it and will PM it to you.
Vettegal - hope you start feeling better soon. I feel the fatigue, like you, but just can't sleep!! So sorry your sister is having such a hard time - encourage her to come to this site. I did the weekend I was diagnosed and it helped me so much.
SheShe - hope you're feeling better soon! Take care of yourself and get your rest.
SIS Kimberly -- thinking of you and praying you're on your way to beating that infection. Hang in there, sweetie!
Dana -- doing okay??
All of our missing Jewels -- thinking of you!!
I'm upset about AI tonight!!!!! I won't ruin it for those of you who haven't seen it yet, but I was not happy about the elimination -- I definitely thought there were others that should have gone first!! Made me sad!
Hope everyone has a good night! {{{{{{HUGS}}}}}} to all!
Julie
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OH -- forgot my shout-out to Dana and Paula for tomorrow -- go get 'em girls -- kick some bc bootie!!!! FUBC!!!
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Evening Gems,
Boy these weeks sure do fly by when your having fun ... well lets hope somebody is having some fun.
Paula, your light is getting brighter, only one more txt after this one, gotta like that. Kick some bc butt tomorrow, looks like your sharing the tab with Dana (who seems to be MIA), hoping that all is well with ya.
Julie, just told the dh that AI is on tonight and that you didn't like the results...he is into AI more than I, I probably don't pay close enough attention as I'm usually "putering".
I have this hunch you may sleep like a baby tonight, sounds as if you had a busy but great day at school.
Kudos to the ds, I'd be pretty jazzed up as well to be invited to attend the TKD exhibition.
SheShe, happy to see you back on the post. The nice thing is that you can always pop in when the mood strikes, this post keeps on going like a well oiled machine, when some are down, others are on a high.
Glad to hear that you like you rad doc, sounds like you'll be seeing a bit more of him than your onc here in the near future. I don't know your whole circumstance with your existing onc, but I think I would be searching for another to assist your future needs, I'm under the impression that our onc's will more or less be basically our primary doc for some time to come. I hope something will work out so that your comfortable with your doc.
Vettegal, I say poop out when the need is there, we hear over and over again, listen to our bodies, if yours feels the need for rest, I wouldn't hesitate, and not feel like an ol' geezer. You must remember that you are not only dealing with your own stress, but that of your sis as well. It may be draining you more than you think. Sure hope that Vettesis can find some additional support as we all have. Its truly invaluable!
DCMom, holy smokes, hope you don't need to see a chiropractor after sitting and reading all of this gabby group's postings. I'm sure that somebody on your regimen will chime in with some info. Glad that Kalen got you to check this group out, it can put almost any cancer by the numbers book to shame. Good note on the FUBC by the way!!!
Kathy, I did send off my cards/envelopes to SIS Kimberly, I pretty much just noted that I like all food/bev, my obvious interest of golf, and a couple of other items. I think she just wanted to be able to give the pal you get an idea of what you might enjoy, and not something that you dislike, (such as if your allergic to seafood, a package of smoke salmon might not be so great).
Speaking of SIS Kimberly, through the grapevine (from D1), she is slowly feeling better and it sounds as if the infection is responding to the I/V antiobiotic. I'll let D1 comment, as I have not personally spoken to Kimberly since Tuesday. We're here thinking of ya gal, and certainly miss your inspirational words!
D1, what can I say, think I said it!!! I made it back to my shop with about 15 minutes to spare ... wish all my afternoons at work went by so fast. Enjoyed the chat more than words could say!
LJ, great to hear that your rad doc is "your kind of doc", that is so important throughout this whole adventure. I should have an arsenol of questions for my rad doc when the time comes.
Diana, gal you definately have a full plate, trying to take care of yourself as well as caring for your ds. Another true SHERO! Hope you get some good nights rest soon. I'm not planning on being up to post at 3:00am too many more times!!!
Speaking of early get ups, just found out tonight that we have to be at the skate rink at 5:00am for warmups tomorrow morning. Thats a 3:15am wakeup call, as the rink is over an hour away. My ds first race will be taking place at about 6:20am. Staying in a hotel just a few blocks from the rink, will be taking a catnap tomorrow afternoon I'm sure. Checked out the hotel to see if it had wi-fi, BINGO, should be able to check in with my Jewel family of friends throughout the weekend.
To the tubber and bed, hope that my Lorazepam knocks me out til atleast 3:00 ... take care all,
Carol
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Hi Jewels…been so busy with work the last few days, that the last thing I want to do is open up my Mac, so sorry for the long post. You gems are never going to believe this…I feel like a broken record or scratched cd in these modern times – we’re heading into another winter storm!! I think dh and I jinxed it by hauling down the motorcycles. Nuts!! The weather guessers are saying 10 inches by Saturday morning. It’s crazy.
Kimberly – Honey, so sorry to hear about this setback. I hope you’re not in a lot of pain. I’ve been thinking of you ever since Carol informed us…sending healing thoughts and wishes your way!
Patty – Love the picture of you and dh with the vette! What a great ride! I’m sorry to hear about the news vettesis got. Thinking of her and hoping that she will get answers and can begin to formulate a plan. At our house, we’re Wild hockey fans!!! Go for the Cup!
Kris – YAY for being done with AC. Good riddance, eh?
Deb – Sorry to hear about how uncomfortable you’ve been. Remember, it’s all about support – not keeping up. Hoping you’ll be feeling better soon.
Carol – It was so good of you to inform us of Kimberly’s situation. Thank you, too, for mentioning my support of my friend. As it happened, she and I talked again on Tuesday. She seems to be in a better place, mentally, than earlier. I’m going to keep checking up on her, though. Or, do you think that’s intrusive?
Julie – Dang! What are we gonna do with those nasty migraines of yours? I hope they pass quickly…weather does do that to me. But, you’ve had more than your fair share, sis.
Jenn, LJ and Maz, Wendy – Was thinking of you all yesterday and today as you bellied up to the bar. Hope things were uneventful.
Jenn – What great pictures! That little guy is a doll!
DCMom – Welcome. I, too, am on Taxol (no herceptin), dd every two weeks for four cycles. I finished #3 last Thursday, last one a week from today. YAY! Honestly, I have to admit, it’s not as bad as I thought it might be. Way easier than AC. Biggest issues have been the neuropathy in the fingers. Lots of pins and needles. Onc pulled back the dosage last week to help with that. Luckily it hasn’t spread to the toes, as I’ve been told it could. The bone pain is another issue. Again, onc came to the rescue with a regiment of motrin and Tylenol. It ain’t perfect, but, is tolerable when I stay regular with those. The pain is fairly intense day 3 and 4. I also get a neulasta shot on Friday – doubling up on bone pain issues. I have had no issues with swelling. But, the old taste buds are history! Almost worse than with the AC. On day 1 thru 4 I do use my ativan at night to sleep. Zofran day 2 and 3. No issues with nausea at all. Hope this information is helpful and that you’ll have very few se’s. The other difference with taxol, is the length of the tx. It’s twice as long as AC, and can cause allergic reactions. You’ll be given some sort of antihistamine before tx, and watched closely by nurses. On that note, I also take Claritin or Zyrtec every day to help with se’s.
Sheshe – Glad to see you back again. We missed you!
Paula and Dana – Best wishes to you for tomorrow!! FUBC!!
Good night all…sending (((hugs))).
Tina
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Hey Js,
It has been a busy couple of days. Had an "away" ballgame last night (our team lost
) and got in late. The state board of ed. visited our school this morning along with WV's governor, so it was an interesting day. Took off right after work for onco appt., which went well. Bloodwork was great so Taxol #3 is a go for tomorrow. Met ds at S&K to help him order his tux for prom and went to Quaker Steak & Lube for dinner after... Realized on the way home that I hadn't put out my substitute materials (had them ready, just not out where the sub could find them), so stopped in at work to take care of that on the way home. Ended up tidying my room, updating my grades online, and printing off missing work lists for the kids. Got home about 11pm. Had to take my decadron at midnight and chased it w/ benadryl. Hope I can get to sleep at some point, but still too wired to consider it.
DCMom- I am on DD Taxol every other week. My biggest complaint: bone and muscle pain, pretty intense beginning 36 hours after chemo and lasting 3 days or so. I do chemo on Fridays, have my worst days Sunday-Monday, and the pain level drops steadily after that until I am pain-free by Friday. I have had to take a narcotic to sleep on the worst nights and sometimes during the daytime--but it works and allows me to go on with my life, so no worries. (I agree w/ Tinalee that this is much more tolerable than AC!)
Jenn- beautiful gs and the dogs are precious.
Deb1023- glad the second round went okay. I appreciate hearing about your se's, so whine when you need to
. I had the peeling thing on my fingertips also.
Kris- congrats on being finished w/ AC! That IS something to celebrate!
Vettegal- thinking of you and Denise.
Sista- good to see your post. I'm sorry you weren't feeling your best for dd's Bday.
Julie- hearty congrats to ds for being selected for the TKD exhibition!
Jenn, Maz and LJ- hope today went well in the lounge for you gals.
D1- monitor that pink tata carefully and keep lathering the creams to it.
KathyL- haven't done my cards yet either... will get that done this weekend.
Tinalee- I hear some of that winter weather is headed our way. UGH!
Dana- it's just us two at the bar tomorrow--bottom's up!
Carol- YEAH, baby! I'm seeing the light. In just 2 short weeks my chemo journey will come to an end.
SIS Kimberly- thinking of you--we miss you!
WVGirl- where ARE you???? Hope you're okay.
I'll check in w/ you gals tomorrow.
Paula
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D1: I think someone answered about the cards. I still haven't figured out what exactly to put on them, but Carol gave me some direction at least.
Hope the tata's color continues to fade each day. Nobody wants a charred boob.
DCMom: Kudos to you for actually reading our marathon of posts. And welcome! I can't answer your question-I got taxotere which is a little different than taxol, but someone here will chime in if you wait long enough.
Sheshe: Sorry to hear you were sick and also that your onc is not up to par for you. I agree with Carol that you'll still have to see your regular onc for the next 5 years, so you may want to find another at some point. At least you like your rads onc who you'll be seeing next. I hope it goes well, and I have your start date written down.
Julie: I think your wet weather is headed our way for the weekend. I'm going to try and savor today as it may be the last sun we see for a while. At least I got 2 nice days.
So upset about AI also! ________ should not have been next to go. Definitely about 3 others at least that I would've rather gone before that person.
Tina: Can't believe you're going to get snowed again. That's just wrong! And I think you should keep checking in on your friend here and there, or send a card or note occasionally instead just to say "thinking of you". I have friends that do that and it's just nice to know they are thinking of me.
Well I gotta get a move on here. Lots of errands to run. Thinking of Paula and Dana today. Hoping to hear from Dana, too, even if you just check in briefly to say hi. Thinking of others that we haven't heard from recently: SIS KIMberly (I know you're recuperating. Miss your posts and hope you get well soon), WVGirl, CarolC, and Cathy-CA (you're probably off somewhere amazing!). Have a good day girls!
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did you guys read the article about fasting and chemo. testing in mice has shown two days of fasting before tx somehow gets the body to protect the goods cells while still killing the cancer cells. my mil told me about this ("it's a little late for you...." and my bald self....) and i saw the article on this board. will be interesting to see how it works in humans.
http://community.breastcancer.org/topic/69/conversation/703433
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Hi Jewels.
I mentioned my breast pain to my onc yesterday at my infusion visit. Doc said its probably nerve regeneration. That sounds familiar. He said to mention it to the surgeon at my next follow up if it still hurts.
Yesterday went fine at the bar--they always drip my Taxotere slowly at first and I've never had a bad reaction. I did notice that my eyes were all puffy afterwards at home. I drove myself, too, without a problem. Still got my steroid buzz. I'm all flushed from the neck up.
Got to see my therapist this morning. Always helps. He makes me tea, and lets me go over sometimes if he has an opening after me. Plus it doesn't hurt that he's young and cute in my book. He was my son's therapist which didn't work out, but when I needed someone he was there for me. And very accessible; I email him whenever and have his cell #. I have been leaning heavily on him between my cancer and my friend Val's. She had to go back to the hospital last weekend because he liver was making her toxic to the point she was incoherent and lost coordination. She's better now and coming back home, but she had to miss this week's chemo. Hope she's on track for next week. She's had 2 doses so far and don't know if its working yet. If it works and shrinks the tumor they might try to take out her gall bladder and part of her liver. But since it has spread to her lymph nodes and lungs, it will only buy her some time.
Best wishes to all,
Maz -
Hi Jewels,
Kind of lurking here. Tx #5 went good yesty but the fatigue is starting to set in.
I'm still not sure what caused the pleurisy type pain. It was better by the time I saw the onc (of course) but he still wanted to take a CT w/dye of my lungs. Said since I also had shortness of breath it might be a pulminary embolism. Ordered it stat, sent me flying to the hosp. right after tx but then said all was OK. I'm a little puzzled what is causing it but I guess if he isn't worried I won't be either.
I may have confused some of us if I said I read that Herceptin caused the water retention. Onc told me yesty that it was the Taxotere. Only have 1 more of those so maybe I can wear my rings again by June.
I'm glad I'm not the only one who hasn't sent her cards. I too have been a bit confused. And are we to send cards or just envelopes? And what good are the envelopes if we want to send some goodies or a card that won't fit? FUCB
I'm not sure what I did to make that big & gray but I can't seem to make it right. The fog must be rolling in. Sorry I can't get to shout outs but I've hit my limit. Recliner is calling. I'll come back when I can. Love to all.
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Good Morning Everyone,
I’m writing this to my friends, family, Buljan Family, my Seymour Circle neighbors, the January Jewels, and My Angel Watchers as I don’t have the energy to compose a separate message for each group if that’s all right.
May I just say Cancer Sucks!!!!! Thank you, I feel better, now.
This last round knocked me out. I have no poetic way to describe this round as it was more than a thick fog. You know those movies or police/crime episodes that show some poor victim having been given some kind of drug that just keeps them unable to function now matter how much they want to just get the heck out of where they are? That’s sort of what this last round was like. I was doing the normal fog routine until Sunday evening, when the infection from you- know-where crawled out from underneath the bed, or maybe it was from the closet, like the Boogie Man of my childhood imagination. I don’t know what he did exactly, but the results weren’t pretty. Anyway, by Monday I had oral antibiotics, and an appointment to see my plastic surgeon Tuesday morning. One look at me (Jonathan stated, “Mom, you look like s#*t.” To which I replied, “That’s good it means how I feel inside is congruent with how I look outside.) and then at the infection-ravaged right ‘mound’(as you recall, I don’t call them breasts), my plastic surgeon was ordering up IV antibiotics, which I started that day.
I go into the infusion center at Sutter Roseville everyday including weekends until next Thursday.
Today is the first day since chemo that I’ve had any energy to even type or look at my computer. I’ve pretty much slept much of the time. Food was not on my radar. Homemade fruit smoothies-just water, frozen berries, and sorbet) was my main stay along with chicken broth and toast.
I’m still not up to snuff, but everyday is a little better. I think I’ve finally beat the fever down, so I thought I’d take advantage of this moment of clarity, as I sleep at the drop of a hat these days and am exhausted at the simplest things.
Carol and fellow Jewels, thank you so much for the beautiful flowers. The poor delivery gal had to ring the door bell twice before I could get to the door. I was moving pretty slow. The effort was worth it as the little birdhouse basket the spring flowers came in just made me smile. Thank you for that. Also, thank you Carol for posting for me so that our Jewels knew I was alive, just unable to post.
D1- Thank you for calling and checking in on me. I had to nap after our conversation. Who knew talking could be so exhausting after all the sleep I’d been getting.
Jewels, I haven't even had the energy to lurk, so I promise I’ll get caught up on reading what I’ve missed, and I know you’ll understand my not doing my normal shout outs after being MIA for almost a week. I’ve been thinking of you all and will be back to my normal peppy self by next week I’m sure. I’ve gotten two Secret Pal envelopes with the four self addressed stamped envelopes and the four index cards with your name, address, birthday, favorites, and dislikes inside. I am still committed to starting this in May, so get those to me ASAP. My address is 1318 Seymour Circle Lincoln, Ca 95648.
Cynthia, thank you so much for bringing me the beautiful daffodils. They smell so good and just make me think of sunshine and running through meadows as a kid. Please let you classes know how much I appreciated their warm wishes.
Will I see you on Saturday?
Buljan Staff- Thank you all so much for the messages on the cards Cynthia brought for all to sign. It means so much to me to know how much I’m loved, missed, and supported.
Claire- The roses you sent with Cynthia are just gorgeous. They are a wonderful pop of color in contrast to the light and airy spring colors of the other gifts of flowers. Thank you so much. Red is a power color, and I can use all the power I can get right now.
Signe and Stephanie B- Thank you so much for working to help me out yesterday with a ride to get my antibiotic infusion. Julie Bruce came to my rescue. Signe, can’t wait to taste your magic chicken soup.
Julie and Rosie- Thank you my friends for being there to take me get my antibiotic infusion when Greg couldn’t get home to do it.
Karen- Thank you for letting me cry on your shoulder and for knowing the right things to say. I also appreciate you letting staff know how I was knowing I was unable to do so.
I look forward to seeing you on Sunday for my infusion. Have fun with the grandkids tomorrow.
To my son, Jon, thank you for coming over and helping me out earlier this week. You have grown into such a wonderful man. You’ve got a lot of your Papa’s gifts for being compassionate, and of course it didn’t hurt being raised by so many mom’s, eh?
Greg, I can’t even put into words how much I love you. I do know the sacrifices you make for me daily. The loss of sleep, the willingness to stop at the store for whatever I may need or think I want, and then to be OK if that craving didn’t end up tasting right. I appreciate the time you spend traveling back and forth to get me to my appointments and understand how hard that makes doing your job sometimes. I so appreciate that you’re up late and then up early to get work done because of the time you so lovingly give to me.
As always, Dad, Diane, Terrie and Kathleen, thank you for checking in on me and for loving me so much.
Angel Watchers- I’m so sorry I couldn’t let you know sooner what was going on. I know you must have been worried. I will try to catch up on posts when I can. How are you Puppy? Even in my fog, I’ve been thinking of you. Norm, how is the house hunting going? Did that first property work out for you as a rental? Faith- Have the babies arrived?
OK, I’m exhausted after having to focus on this amount of writing. If I have forgotten someone, please know it was not intentional.
I love you all. Thank you, thank you, thank you for your love and support. Truly, it is that love that gives Super Girl her power…apparently the Boogie-man has something like Kryptonite that blocks your positive energy, so we’ll have to come up with a plan to keep him away after my last infusion. Let me say that again….MY LAST INFUSION!!!! It’s almost over.
Love, Kimberly
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Tinalee- Thank you so much for your information. I have been really worried about the neuropathy and my next four cycles. Hoping for no adverse reactions. Sending out a big prayer for all of you Jewels and will probably do the occasional lurk to check up on all of you as you return to normal and start posting nothing but boring day to day activities (that will forever be nothing but wonderful).
Guns Ablazin'
DC
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Home from the chemo club. No problem w/ Taxol #3. Only ONE MORE TO GO!!!!!!!!!!!!!
I forgot to mention that I talked w/ my onco about my follow-ups after chemo and rads are finished. He was
much too nonchalant about the whole thing for my taste. I don't want to be paranoid about a recurrence and
live in fear/dread of it returning, but I DO want to be proactive w/ screenings, etc. So, I'll be preparing my
case for aggressive F/U screens and presenting them to him next visit. He may be a bit laid back, but he
was very receptive to my requests for dh's follow-ups and I expect to get my way this time as well. He
supported me on my desire to start my rads 2 weeks after I finish chemo (typical time interval
between chemo and rads is 4 weeks and rad onco was reluctant to start me so soon).
Sista- I read that article. It was interesting, wasn't it? Comes a bit late for me--esp w/ the steroids.
Things don't taste quite right, but I still seem to be eating a lot. I can't believe I actually weighed
a lb. less yesterday than the last dr. visit. Must be b/c I'm walking more now that the weather is nice.
Maz- thanks for the update on Val. Hoping she recovers enough to get her chemo back on track.
Jenn- rest well and feel better soon.
SISKimberly- thinking of you and looking forward to your eloquent posts. Get well soon!!!
ds had a game this evening but strong thunderstorms have just started here and they've
already nixed the game. So, I'm already lounging in my pjs at 5pm... pitiful, I know, but
there you have it!
Happy weekend to all. Our weather here isn't going to be so nice--rain, temps dropping, and
possible snow by Sunday night!
Paula
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