Anyone starting Chemo in August 07?
Comments
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Welcome Home, Nash. We missed you alot. We ran amok.
Tami! I'm so glad you checked in - I think about you frequently. Sorry, but I can't help you with the whole nipple thing. Mine are mine (such as they are...the affected one goes white, then green if i hold that arm up in the air too long. SOMEthing's cutting off circulation. I tried to get my dh to watch it when I first discovered it, but he wasn't interested in my little floor show.) I'm sure you'll get good responses on the "After Surgery" threads.
DeAnn, allow me to suggest the desert for your vacation anytime from November through about May. If you plan it around the first Sunday in March, you can join me on the Hike for Hope (funding cancer research at City of Hope). The flowers are in bloom, and in the spring (Feb, March, April) the Indian Canyons have water. Not much happening in the way of Kayaking, but loads of hiking and swimming (pools). There is a brand new hotel (Homewood Suites) in walking distance from my house. (Google Homewood Suites, La Quinta) and check it out. I'll even have you over for lunch and/or dinner once or twice!
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Thanks, Kaye! I might just take you up on it next winter! You never know! I do like the desert, and I really haven't spent much time in that part of California. I was there once a few years back at a timeshare in Indio. I recall taking some tram up to a mountain area somewhere. It was really pretty. I have family in Laguna Niguel so that is where I usually am the several times I've visited your fair state.
And if any of you all just happen to be in Minnesota in July, you should definitely plan to come to my house on July 19th. We are having a great big party to celebrate the fact that this summer we will actually get to HAVE a summer as opposed to the lost summer of last year.
DeAnn
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LOL, DeAnn, we're planning a summer party also, to thank my DH's boss and coworkers for being so accomodating during my treatment. Everyone is welcome!
I think we should all throw bashes, then drive around the country in a caravan together and attend each one. We could call it the "Breast Cancer Tour de Fete".
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Boy, We sure DID lose a summer, didn't we. It wasn't a large problem for me because it's always a little "Hell-like" here that time of the year, but i looked around in October and was actually confused that I'd missed the whole thing - sitting on the couch, drooling, talking and laughing with you guys. (Best summer I've ever had... Thanks Ladies!) There is a feeling of euphoria we desert rats get when it starts cooling off after we've gone through the stress of the whole summer. It hits around late September, first two weeks of October, and you start feeling hopeful again. (Maybe the stress of our summer is like being snowed-in up to your door jambs for three months straight in Snow-Land? Anyway, I saw the euphoria in my husband, and it caught me off guard, and i was literally confused. Very strange.
Now LAGUNA NIGUEL, well. THAT'S a different story. (Nash could probably tell you this, but I WILL.) Laguna Niguel is perfect YEAR ROUND. (Except when it burns to the ocean, but what are a few ashes among friends?)
I say we caravan to Laguna Niguel and crash DeAnn's relatives house with our Tour de Feet. (wait. Fete. I know what that means.)
fete also fête play_w("F0049500") (f
t, f
t)
n.1. A festival or feast.2.a. An elaborate, often outdoor entertainment.b. An elaborate party.tr.v. fet·ed also fêt·ed, fet·ing also fêt·ing, fetes also fêtes1. To celebrate or honor with a festival, a feast, or an elaborate entertainment.2. To pay honor to.
[French fête, from Old French feste; see feastOOOOHHHH.
Tour of EATING.
Sure. I can do that.
Anywhere.
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PS
i am NOT having a party of any kind, for any BODY.
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Hey Girls,
I am sooooo mad today and can't think of anyone except you all to bring it to! I have lost ALL of my eyelashes A..G..A..I..N!!!!!!!!!
I went to my rad. onc. today for my 3 week check up after rads and this is what he said: Q: 'when was your last chemo? A: November 3rd. Q: 'when did your eyelashes come back? A: about 2 months after the last chemo tx. Statement: 'well, your eyelashes shouldn't have come back that quickly, you know the last to leave, the last to return. But no, the rads didn't have anything to do with it. And no, I never heard of anyone losing them twice.....giggle giggle giggle.
Boy, I'm so glad I gave him his chuckle of the day!!!!!
Anyway, have any of you ever heard of this? Did your eyelashes take a lot longer than a 8-10 weeks to come back? I know how vain this sounds but I'm one of those women who literally looks like a negative without eyelashes. Thanks ladies for any and all insight. Oh, he also said well just go and talk to your other oncologists about it. Thanks a heap, doc!!!
Hope everyone is well and has a wonderful weekend.
June
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Well Ladies,
I guess I could have saved you all some aggravation of my venting in the previous post if I had done some homework....:)
I researched the eyelash thing on this site and there was a huge amount of information. Too bad my rad onc didn't have a clue!
What I learned is that this is all too common after chemo txs. Your eyelashes and eyebrows can sort of re-cycle (have them/ don't have them) for 1-3 years depending upon the individual. We normally lose lashes and brows on almost a daily basis. However, after chemo until your body sort of re-synchs its self they will all fall out at about the same time. Supposedly this gradually stops and you return to your pre-chemo state. Thank Heavens! Whoa, I'm sure this is more than any of us ever wanted to know regarding hair growth on our faces!!!!! LOL
June
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Hi
I think the email probs must be going around. I havent emailed cause my teen busted the screen on my laptop. Its taken me this long to get anouther and get it running.
Glad all is well
Im feeling much much better!
The tarceva im on has given me a gazzion zits!
Gotta go
sorry so short
HUGS
Kim
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Hi all... it has been quiet here on the board, I see.
Kimmie, I hope all is going according to plan. Sending lots of thoughts and hugs your way.
Hair huh? yep. Mine also look as if I cut it short - a dramatic gesture, as one would have it - but it sure ain't short. It is wavy, as it has always been, dark as it has always been. I guess I am the exception to the rule!! last week I went to a trade conference - and lo and behold, I went commando... lots of ppl stopped me to say "wow you changed look, that is so cool"... little they knew! I just trimmed the fuzziness over the ears, so it looks neater.
June, I've heard of others loosing lashes all over again... so far mine are holding on for dear life (maybe glued by the tons of mascara I am applying, now that I can again), but lets see what will come.
Nash - being home must be a relief. I'd throw a party too, but you guys will have to show up in Europe - or does the caravan fly??? maybe we need to borrow the Magic School Bus.
Can't wait for summer, so maybe then the cycle of life will close and I will go back to "normal". or not?
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OHHHHH and I just got some news!!!
I called the Plastic Surgeon for my recon, and there is a reply from the insurance: they'll take on the whole thing, including the other side's mastectomy plus full recon!!! and I got a new appointment with the doc on Wednesday, I might be able to get all done before summer !!!!!!
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Yay, Lilith! That's great news on the boob front! And I think an Eurpoean stop on the Tour de Fete is an excellent idea.
Kim--I'm glad to hear you're tolerating the new meds well.
June, you know what they say, hair today, gone tomorrow. Sorry, the tamoxifen makes me punchy. Seriously, though, what a pain to have new hairs fall out. Glad to hear it's a cyclical thing.
Hope everyone had a good weekend. Hugs to all.
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I went topless to day for the first time at work and was soooo self conscious the whole day! It did feel good not to have to worry about the hat though. Everyone said that they thought it looked really good, but seriously, what else could they say to my face????? Make sure the caravan stops in Indiana! I'll have 2 couches and 2 extra beds made up and ready for the party. We live back a long lane surrounded by corn fields. Lots of fir trees and peace and quiet. We can stir up the neighborhood though! Just let us know when you're coming!
Debbi
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ok, I'm serious now. We really need to hammer out this Magic Bus Tour de Fete thing.
Where does everyone live? We have 2 Southern Californians, New York/ New Jersey, Virginia,North Carolina, Minnesota, Europe..oh for pete's sake. Does NO ONE live in Hawaii?????
I'm all for getting together somewhere - here? You guys up for a plane trip? That way dh would get to meet you, too. I'd like it to be when DeAnn is done (November-ish, right?) And Kimmie too if that's possible. Maybe we could plan it for when Lilith will be in Northern California - because as we all know, one plane fare to the USA is cheaper than 15 plane fares to EUROPE.
Let's think about this.
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Kaye, I think that would be awesome! Probably California is a good place since two of you are there, and if Lilith is going to be there at some point... I'm game! Say, maybe we could meet in wine country! Granted, I get tipsy from one glass of wine, so I wouldn't be much good to any of you as a driver or anything, but I'd probably be amusing entertainment anyway!
Actually, Nash, I know you live in the San Diego area, so if you are anywhere close to Escondido, and if you like beer, you could meet my dh! He is doing a beer tasting at Stone World Bistro on Tuesday evening. (He's a beer importer) I told him that you lived around there and he said "Tell her to come on over if she wants, and I'll get her in as my guest" (you can bring a guest too he said). If you have any interest in Belgian beer I can PM you the nitty gritty details.
Good night all!
DeAnn
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OK! seen the surgeon again... she says we can do probably a single operation, with a small size silicon implant. She showed me the implants she would use.... I'd get about a B size (bliss... no more large sizes), and as both sides would be done at the same time with same method, it should end up a good PAIR. and.... I can choose if I want to do it on the 19th of may, or rather on the 2nd of june. By July, I'll be able to wear a BIKINI!!! i can't wait.
DeAnn - Belgian beer is delicious. Alas I am too far... I'll see how goes this summer and would love to make plans!
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I live really close to that brewery, DeAnn! How funny! It's such a small world. Sure---PM me the details, and I'll see if I can get a sitter that night.
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Hi!!!
Lilith - YEA-YEA-YEA You cant see me but Im doing the happy dance (really, boy now I know how out of shape I am.)
Its ALWAYS nice to hear good things are happening to good people. Im so glad you will get to be back to some kind of norm by summer! All your body parts back, WOW. It makes me happy to know your happy.
Kato - Girl your the only one who can get a laugh out of me, I look forwards to it. Hawaii what a gas!!!!
- Dont wait on me to make plans. Kimmie wont be done for some time Im afraid. Besides Virginia is a bit of a hike from California. But a great mixed drink could turn me around , HAHA
June I feel your pain gal. I have NO HAIR AT ALL. None-Zip-Nothing No hair on my entire body. I wish I had eyelashes and eyebrows most. I dont think its vain at all. You just wish to look like most. Nothing wrong with that.
By the way Ive been working real hard on my faith, for those who are interested. Ive found a church I enjoy going to and they seem glad to have me. I didnt have much God in my upbringing and Im a total green horn. But Im beginning to feel more at peace , and thats a definite good thing.
Enough seriousness, does anyone else have the nerve problem in there toes and finger tips(forgot the name of it, neropathy? ) Id like to have a pedicure but am hesitant. Any suggestions?
Nash - hope life is starting to find a new norm for you. Are you OK?
Talk again soon.
Hugs
Kim
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Lilith--I'm so glad that things are moving along so well w/the PS. Exciting!
Kim--that's very cool that you found a church that you like. I'm happy for you.
RE: neuropathy--my mom had it from the chemo, and I have it for some random reason (neurologist ran all sorts of tests that came back negative). I don't think neuropathy affects a pedicure, but low white counts do. You need to be very careful of infection, and if you do go for a pedi, definately bring your own tools. I'd probably hold off on doing it just to be extra safe, though.
Given that you can't hop on the party caravan, we should all give some serious thought to going to Virginia. There is a large group of bc.org members who are planning a march on Washington DC for next June, and maybe we could all meet up there, then caravan to Virginia. Just a thought to toss around.
And thanks for asking about me, Kim. I'm adjusting to things, but have to admit I really have been quite traumatized by the past year and everything my mom went through, coupled with my own crap. I can accept that it was time for her to die, and that she was suffering too much to continue on, and I believe in an afterlife, so that part's OK, but man, sometimes I just sit down and bawl. I know it's all normal, but I'm generally very reserved and not very emotional, so it catches me off guard.
Kaye--there will be another San Diego lunch in a couple of weeks--the date hasn't been nailed down yet. I'm not sure if I'll be going or not b/c April is crazy busy for us, but I will let you know if I will be going. It would be great to see you again. They're meeting in Del Mar this time.
Hope everyone is doing well this week. Hugs all around.
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Lilith, that's terrific news! Bikinis by July sounds awesome! I'm hoping I'll have my recon completed by then too. I'm awaiting insurance approvals as well to have the revision done on my flexi-boob.
Kimmie, glad you found a church you like. A community of supportive people is always good. I'm sorry all the hair is gone again. Your post reminded me how lucky I am to have hair once more, even if it is gray! I promise I won't ever complain about my gray hair again. OK, I admit that maybe I can't keep that promise, but I'll do my darndest!
Nash, I PM'd you on the beer-tasting details, or what details I had, anyway. My heart really goes out to you as you cope with losing your mom I'm not surprised that all the emotions sometimes catch you off guard. You've been through so much more than I have, yet I even find myself washing dishes and suddenly feeling like crying. And I'm usually known as Miss Optimism. I've been attributing it to the Tamoxifen, but I know that part of it is just needing to release and admit that a whole lotta crap has gone down this past year. And you've had a bigger blow than most. Treat yourself gently and take your time getting back up off the ground.
Wishing you all a beautiful evening.
DeAnn
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Hi Girls,
Just checking in and saying hi to all. I miss everyone. I've had some type of flu with fever and cold and it just knocked me off my feet. Also, hubby started a new job and we were straightening out my insurance. I'm going in on April 24th for my latissimus dorsi flap (doesn't that sound stupid!!!). Anyway, I'm running around to doctors( what else is new?). I have to donate my own blood-just in case- on Monday and so on. I've been off tamoxifen since April 4th to prepare for surgery and I have to say, I haven't had that many hot flashes
. I'm still crazy, but I think I'm a little nervous. And, oh yes, I lost 5 lbs. Just like that. I swear it's from stopping the tamoxifen!!!! Because Lord knows I haven't stopped eating. God forbid I should lose my appetite. LOL. Starve a cold, feed a fever, whatever!!! I eat through it all.
Kimmie, hang in there. I'm sorry you have no hair. That sucks. All that you are going through is just a horrible. I pray for you all the time. You are amazing and always manage to sound upbeat. I'm glad that you found a church and that you feel peaceful. That is so important.
Nash, you will feel like this for a long time. There will be a whole in your heart forever. I promise it won't hurt as bad in the far away future but it will always be there. Just remember, Mom is with you all the time.
On a lighter note, Lilith...good luck with your reconstruction and bikini bearing body!!!
You go girl.
Kaye, DeAnn, Debbi, June and whoever else...oh Harley too
... Just tell me where we are going, California, Virginia, Europe, wherever...and I'll be there.
Sorry this is so long, but I drank a big cup of coffee after dinner.
Have a great day.
Love and hugs, Jackie
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Hi Everyone!
Just got the mail and got good news from my insurance company. They approved the revision of my implant surgery! Yay! I'm still a mite nervous about how my radiated skin will handle putting it in front of the chest muscle as opposed to behind, but hopefully being a little bitty A cup will make it more do-able.
DeAnn
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Congratulations DeAnn....I'm so happy for you and wish you lots of luck!!!!
Hugs, Jackie
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Hi Ladies,
Sheesh, I have a lot to catch up on - where have i BEEN! (oh yeah. I heard the "B" word, and i've been running around looking for a cliff to jump off of.
B starts off many nasty words. Like "Bikini". (sigh) Well, I guess it starts off "balanced boobs", too. And that's good. And BELGIUM BEER. Hmmmn. ok. now I'm just jealous. I want to drink Belgium Beer with Balanced Boobs in a Bikini...(right after major liposuction.)
Kimmie - I'm glad you're going to a church and I want to hear all about it! I've pm'd you my email address if you want it. Bummer (another B word, and SO apropos) about the neuropathy - are you able to do anything that helps?
Jackie - so sorry about the flu! It's been going around out here, too. I'm glad you're feeling Better. I've found the 5 pounds you lost. I'm wearing them - I hope you don't mind. They fit me perfectly. You can have them back anytime.
DeAnn - hooRAY on the approval from the Insurance company! That is exciting! (Tell me again how it ended up beHIND your chest muscle instead of in front? Was that a plan or a mistake?)
Nash - I'll check the SD thread. I don't think I can make it down for a while though...I'd love to see you - I'll have to see.
hugs to all!
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Jackie,
Sorry you had the flu!!! I'm glad that you are feeling better now... take care, ok?
Yes, please tell me where we are moving, so I can make all the arrangements!
I haven't been around much lately... I was having tests, and since March 15th was my ONE year bc anniversary!!! I saw my surgeon on April 4th, and he insisted that I get a colonoscopy!
The prep sucked, but the test went well... I had NO polyps YEA!!! Since we have had bc, we are at increased risk for colon cancer, so everyone, go and get a colonoscopy. It isn't really all that bad. I am the biggest chicken, and if I can do it, so can you!!
The next celebration will be Monday, April 21st... My Birthday!! YIPPEE!!
Hope everyone is doing well, with their txs and whatever is going on. I haven't read thru the thread, so I'll catch up later...
Have a great weekend, ya'll!!
Harley
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Hey, Harley! Hard to believe it was your one year cancerversary in March. Times flies, and we really were only having fun while on this board. Glad the rotor rootering went well.
Hope you feel better soon, Jackie!
Yay, DeAnn--more good news on the boob front! Just a note--my surgeon puts the implants behind the muscle, too. Don't know why some do it one way and some another.
Kaye--it turns out I'm not going to make the SD lunch this month. We're going to Disneyland and CA Adventure that weekend for my DH's b-day (which is actually today). But I'll see about May, and we'll have to coordinate a month that's good for you to come down, too.
Have a good day, everyone!
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And Happy Birthday in ten days, Harley!
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Thanks, Nash! Hope you are doing great! You're right...the time just seems to fly by, now that my active tx is over...
This week has gone by so fast, with the tests and I'm going for an MRI of my breasts on Monday... my surgeon says that he can't be sure that he took out ALL my breast tissue when he did the bi-lateral mast., so I should still go for mammo... but, hey I am NOT taking the chance that I'll spring a leak in these babies! After what I went through to get them... NO WAY!
Yes it IS hard to believe that it's been a year since my bc dx!! I am only just now starting to settle into my 'new NORMAL'. Well, after all these damn tests!!
Kaye, Jackie, Nash, Kim, DeAnn, Lilith, and all the rest, Hope everyone is doing well, and wish everyone a VERY HAPPY WEEKEND!
Hugs,
Harley
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Harley, One year! Wow! Time has really flown by, hasn't it? I'm screaming up on one year in June. Weird to think that last year at this time, I just thought this painful lump in my breast was just a fibrous mass. I saw both my onc and rads doc today and it seems so strange to see them now when I'm feeling good. I kind of have to ask myself - why the heck am I here again? I'm still doing Herceptin so I'm still in treatment, but I don't really have bad reactions to the Herceptin except for a little muscle pain a couple days afterwards. So, it doesn't feel much like treatment, and since I've gotten to know all the people at the cancer center so well, its kind of like getting to hang out with friends for awhile. Kind of.
On the boob behind the chest thing. Apparently it is the most common way to do it because if you've had a mastectomy, you don't have any fatty tissue anymore to help cover the implant. Behind the muscle means less chance of capsular contraction, less rippling, and fewer complications, especially if you have undergone radiation. That's why it is the standard. However, my PS said that many women who tend to be really athletic don't do as well with it because they find that strong chest muscles squeeze the implant uncomfortably. This is my situation, but since I am very small on top I can maybe get away with having the implant in front so long as my radiated tissue does not reject it. On the super plus side, if it all works, it will mean that my breast will have a more natural drop to it and will look a lot more like the other one. I don't think I would want to get that boob squashed either, Harley.
Sorry to hear you were sick, Jackie, but I hope you're feeling good again and ready for the flapjack surgery or whatever it is called. I'm not even going to try to spell latissimus dorsi, - oh wait, I just did spell it. I think I'm still a little loopy from my pre-meds for my Herceptin infusions. Ativan, ativan, ativan. Crazy stuff.
Hi also to Angie, June, Kimmie, Tami, Nash, Kaye, Debbie, Lillith, and anybody else that Benadryl brain here has forgotten. Happy Friday to everyone!
DeAnn
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Flapjack Surgery!!
Lol, lol - tmdhnBoulol!
translation: "tell my dh and BOTH of us laugh out loud".
Nash, Have fun at Disneyplace, and California Adventure (We haven't hit that one yet...my kids are too old...) and BELGIUM BEER TASTING on tuesday. (was that LAST tuesday?) I'm jealous - and I'd crash that party too, if I wasn't so lazy.
I'm not sure what anniversary to celebrate...February, the one year of my diagnosis? (ick.) The surgeries? (shudder) Ok, I think that August will be special to me forever because that's when I met you girls and we started treatment together. And as freaked out as we were, we stumbled through it together, freaked together,laughed together and cried together. It's nothing I would have ever CHOSEN, but I'm SO grateful for you all - that it's made it worth it....So i think THATS the month I'll Celebrate.
Happy Birthday Harley! (in advance, because as surely as I'm sitting here, I'll forget.)
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DeAnn,
Yes, I am amazed now, looking back on the past year, it seems that the year just FLEW by! But, while I was going through dx and deciding on which tx to get, it seemed to just crawl by. Since the path report after my bi-lateral mast showed N.E.D., I have been cancer-free for ONE YEAR since March 15th, also.Yes, they put my implant under my chest muscle. Sometimes, when I flex my chest muscle, it kind of twitches... looks kind of weird!
I hope you don't have any problems with your reconstruction. It was fairly simple for me, because my ps didn't have to use expanders, since I was so small. He just stuffed 'em under my chest muscles, and filled 'em up! I am pleasantly surprised at how nice they look! But, I am STILL not finished with the recon, because I still need the nipples done. I am having that done on May 22nd.
I am sure all will go well with your reconstruction...
Hugs,
Harley
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