Well, this is just a hell of a way to live

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Jorf
Jorf Member Posts: 498
edited June 2014 in Life After Breast Cancer
Well, this is just a hell of a way to live

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  • Jorf
    Jorf Member Posts: 498
    edited April 2008

    OK, I count my blessings. I know that I am extremely fortunate for everything I have but I just need to vent after a really difficult week.

    As I said on a previous thread, I had back pain for months and finally went to my PCP and my breast surgeon who talked to the onc who said, "Bone scan". So, last Tuesday I have my bone scan. Finally on Friday I connect with the onc to say, "Your back looks fine. I know it's nothing but there's something in your right femur." Fabulous. Had to get an x-ray.

    Like a complete idiot I went onto the hospital computer to see my results and it wasn't exactly like she said it was and the picture was just too scary with this big white hole in my right femur.

    So, Saturday I go to the hospital and all weekend have myself ill, dead and buried. I called the onc office at 8:30 this morning and, whew, at 9:07 there was a message from the nurse that the x-ray was fine. I called back to see if there's anything else we have to do now so that I can stop worrying (I've been having pain in that hip too but I know it's soft tissue - of course, until this weekend when I was convinced it was not). She said no but she'd check with the doc later.

    I may have said this already - it's pretty strange when the best case scenario is that you go back into the world and wait until the next thing that you would normally ignore becomes a crisis.

    There are times that I just hate this f-ing disease.

    Oh, the nicest thing just happened. One of the nurses from the hospital where my onc is working today (and where I had my chemo) just called to tell me the same thing.

    OK, on to carrying on.

    Thanks for listening,

    Jorf

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2008

    So, what whas the big white spot all about then???

  • Isabella4
    Isabella4 Member Posts: 2,166
    edited April 2008

    I had chest xray about 18 months ago, (longstanding cough) When I went to see my GP to see what was the matter she said to me 'were you wearing a brooch?' Apparently there was a white oval shape on the xray....I mean...how the hell do you stick a brooch in your chest when you're going for a chest xray?? I have asked my onc twice, and my bc nurse once, what it could be, and am still waiting for them 'to get back to me'

    I was found to have 'a conglomeration' in the base of my lung, took antibiotics for 3 weeks, and went back for a second xray to see if it had cleared.

    The radiographer came up to me at this second visit, and asked me if I knew I had an oval shape on my lung.

    Ah, I thought, I might get an answer here.....no such luck, 'the person who interprets the xray wasn't available' and the radiographer, who had just taken my pics 'wasn't allowed to discuss findings with patients'

    I just get so sick of them all sometimes, no-one seems to see how we worry, and imagine alsorts going on.....it is, as you say, a hell of a way to live.

    Good Luck with your findings.

    Isabella.

  • LizM
    LizM Member Posts: 963
    edited April 2008

    Jorf, I am so happy that everything turned out OK.  I hate the way we have to watch for symptoms and then report them and then wait for test results and while we are waiting we have ourselves dead and buried.  We have all gone through this and we all know we will go through it again.  It is a hell of a way to live for sure.  

  • Texgirl
    Texgirl Member Posts: 211
    edited April 2008

    I think it can be even worse when you had boringly excellent health & you went about your daily life "before " with not a care in the world...boy, what a rude awakening. This worry/questioning over simple aches and pains could make you a hypochondriac for sure ! Forget that I worked all day in the garden all bent over...this new back ache is mets for sure ! Sheesh..it could make you crazy !

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