Can we do a Her2 roll call?

hi, this is nancy, it means no evidence of disease!! i too have finished adriamycin and cytoxin and taxol. my hair is statrting to come in and i feel very good,i will continue on herceptin until october of 08.

i am still slightly depressed, hopefully that will improve as spring nears. i am starting to think about reconstruction, i dont wearing the prosthesis but,my clothing options seem a little limited. does anyone know if reconstruction will provide that bit of cleavage for v necks or lower cut blouses? thanks,nancy.

Still NED here too and you can see my details below!

I'm also NED. My PET scan 2 weeks ago was clean as a whistle. Will continue on Herceptin til the end of July



Nancy, I too was depressed after finishing chemo but as the weeks go by and I am finding my energy again and the depression has decreased lot. My mother died when i was in the middle of chemo last summer (from Parkinson's) and I think I waited until chemo was done to allow myself to feel anything. No wonder I was so down. Now when I think of her I smile

I had reconstruction and I love it-size B plus. I got a non-wire bra from Victoria's Secret and now can push up cleavage. Before mastectomies, I just flopped out of those bras when I bent over- not a pretty sight.



Henny

thanks henny, right now i'm alternating between depression and anger but i'll perk up soon.  i'm too dam stubborn to give up for a long long time.  onc said tykerb and xeloda but i'm in process of setting up appts. at a couple of major cancer institutes for evaluation so we'll see.  thank God i get copies of everything, it's making the process a little easier. i'm really glad herceptin is working for you.  hugs, maria

newly dx dec'07. first chemo tx feb 25th a/c and herceptin. 2nd just a/c and for remaining 2 tx/s. wont start herceptin again till taxol.

jen
Dx 12/21/2007, IDC, 4cm, Stage IIb, Grade 3, 2/17 nodes, ER-/PR-, HER2+

Dx'ed November 2007.  Have done 3 AC - one more to go, then will do 4 Taxol, 21 rads and Herceptin.

Lisa  

hi maria,are you from new jersey? i have cousins there i am very close too. hope you are well,please be strong and let me know if there is any thing i can say or do.

henny thanks for your kindness,i have seen a plastic surgeon and have decided to have reconstruction. i will keep you updated,love to all nancy.

Update

DX'ed 3/11/04.  Still NED 4 years later.

Lumpectomy>>>AC 6/04>>>Taxol>>>RADS>>>Herceptin

spanning from 5/4/04 ----->11/05

Janie

Hi girlie-girls,

I am new to all this chat--so who the hang is Ned? (I am assuming that is an acronym for essentially no...further cancer detected right?)  I managed only 3 herceptin treatments (I had them once every 3 weeks), and I was on Tykerb...the latest fandangle drug (but I lasted only 10 weeks on that) both times because of heart issues.

So I am officially cancer drug free now, "ned" I believe, and enjoying the breather. (Anyone in my boat?  Anyone taking/taken tykerb?),

Lovely to be able to come to this site to hear/see your voice, Rina

NED = No evidence of desise ( ok i cant spell)

Okay, I got diagnosed with Stage III Her2 a little over five years ago, and was treated with chemo + herceptin. Now I have had a recurrance to the liver. RATS!!!!!!



Anyway, on Tuesday I start another chemo (6 rounds) that will include herceptin, and I am pretty hopeful about it because I was NED for so long...



Ummm, what else? I don't know - oh, yeah, I had one positive node last time out.

DX 9/2005 stage 1, left mast. 4 AC, 1 yr. Herceptin.

Local recurrence found 1/2007 while on last month of herceptin.

Now stage IIIB 

36 rads in Apr/May

12 weekly TH finished 9/2007.

Scans clear and currently NED! 

Hi,

Just before I turned 53 yrs young, I found a lump in my breast in 2005, had a lumpectomy for a DCIS lump 3.2 cm, margins had a second breast cancer that was less than .5mm, but very aggressive (HER2/NEU+ ER+ PR-). I opted for a modified radical mastectomy-NO lymph node involvement.  My cancer was stage 2.  I did 4 treatments of AC then tamoxafin for three months than a year (Feb 2006-Feb 2007) of Herceptin (a treatment every 3 weeks).  That was followed by arimadex for almost a year.  Jan 2008 the cancer had metastasized, in my 6 bones, 2 lymph nodes, liver, and 1 adrenal gland...Herceptin and Zometa (for bones) started the first of Feb. an oral chemo tried but I had a bad reaction, April PET scan showed cancer in bones gone, liver stopped but new spots in liver, one lymph node stopped other still growing, adrenal gland growing, and new spot second adrenal gland as well as in lung.  I'm now on weekly Herceptin with Taxol once a week for 3 weeks then a week off Taxol.  I've had 7 taxol treatments 2 more to go before next PET scan.  I'm still fighting, I'm not about to give up cause my goal in life is to outlive my husband!  (his parents lived well into their 80's.)

I'm new to posting in the forums.  I just finished my year of Herceptin May 29th.  What is NED?

This is the third time I have posted on this roll call but I am  posting to celebrate another 6 months of NED. Maple- NED is our friend, No Evidence of Disease.

diagnosed 10/2005, IDC, stage IIIA, did AC and T,  one year of Herceptin finished 1/07.  so I am NED, 18 months out from Herceptin, 2.5 years out from diagnosis. 

Donna