How my Onc & Breast Cancer Just Saved My Life
Comments
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My good friend and I decided to be colonoscopy buddies when we turned 50. We made our appointments with the same dr about two weeks apart and the plan was to be each others' driver. My appt. came, I prepped (decidedly the least favorite part), the procedure was done, things were fine, and my friend took me home.
Two weeks later, my friend started her prep (same tx) and nothing happened...nothing. The dr doubled the tx...still nothing. She has always had a problem in that area, so she may have raised her tolerance for laxitives. They finally had to take her in and, for lack of better terminology, "induce" her, LOL. They did remove some small polyps, so she is on their "watch" list.
As soon as I get through my bc treatment, I will schedule another colonoscopy. They really are not the worst test I've had, and what a relief that some cancers can be caught so early!
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"re: the Dave Barry article link..."
I forgot to read that. Now I have to go back and read it. I was too interested in the posts.
Patrice, when my husband drink that gallon of whatever, it worked quickly and was over before he went for the test. However, my husband works very well in that category. Doesn't take much for him to "go."
Shirley
PS still haven't heard from my dd. I sent them a short email about a week ago! I don't know whether to be angry or worried.
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Shirley:
Boy, do i KNOW that worry...especially when they were in Africa. The internet was not always available to them and we'd have to wait...don't get too worried yet...I know that's hard to do. Once you hear from her, you can get angry. Let me know once you do...I'll be thinking about them.
Did I tell you mine was on the verge of getting deported from China last week? They were finally successful in getting their work visas, so now they can stay and continue teaching through the summer. They may get jobs in Beijing teaching English to the Olympic workers in July or August. Right now they are teaching in Shanghai. (I bet I did tell you that...i hate this chemobrain.)
re your husband: like you, i sometimes have trouble in *that* area...so I was relieved that the stuf worked for me. It did feel good to be empty and start fresh. LOL.
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Nancy: If that's you in your av, you don't look like you've even reached 50 yet. I love the idea of a colonoscopy buddy! Glad yours turned out okay.
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marin u make me laugh
about your comment on the drugs
i knew you and i had a special bond !!!
i know everyone puts of colonoscopy not only us bc gals
its really not bad at all and its nice to know you are all clear
please dont hesitate to go for the test
xoxox
jd
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Patrice, I did know that your son was teaching English in Shanghai, but didn't know he almost got deported. Man, they don't waste time deporting people there. LOL
I just looked and my last email from dd was Feb. 11. That does not make me happy. Here's what she said: Hi guys! Just wanted to let you know that we are in Rwanda now, getting ready to cross into Tanzania this morning. We tracked mountain gorillas on the 3rd and it was an incredible experience! Can't wait for you to see the photos.
Now I wished I hadn't looked.
I save her emails.
Shirley
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"re: the Dave Barry article link..."
That was funny! Had a great ending...telling us to get our colonoscopies.
I can relate to his getting so nervous EVEN calling for an appointment to the doctor! That would be me...white coat syndrome. But I'm getting better after bc because I had sooo many appointments.
Shirley
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The Dave Barry article was hysterical and so true!
Just back from my colonoscopy ... results are perfect -- no polyps (thank you, high fiber diet!). I get to go back in five years.
I have to say that the prep was not pleasant. I took the Osmoprep pills, and felt nauseous the whole time. Then again, I was nauseous the whole time during chemo even with the anti-nausea meds!
Still, getting the good results made it all worth while!!
Hugs,
Hillary
Edited to add that they were great about not using my *bad* side. The admitting nurse immediately put on a bright orange band on my left wrist. Even before I had to say something, the anesthesia staff noticed it and started to use my right arm! -
Shirley: What's the longest your daughter has gone without contacting you? When you next hear from her, is it possible for you to ask her to let you know how long she expects it will be in between communications so you don't have to lose sleep? We set that up with my son..especially while he was in Africa because it was difficult finding internet cafes sometimes...so he'd try to give estimates.
Hillary: That is smart that they marked your arm! I woke up with a blood pressure cuff on my "bad' arm...even though it was written on my pillow and in the chart. I told the doctor about it and they are going to start marking arms. So glad you got the all clear.
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Still enjoying this great thread. Patrice- what is the "new cancer fighting diet" you mention.
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Did my colonoscopy 2 years ago. Got to use the small bottles of phosphosoda. Doc said to just drink the bottle real fast, and then drink liquids after that. Worked like a charm. Plugged my nose and chugged. Nasty, but it was quick. Did the same thing the next morning. No polyps so am clear for another 8 years. Colon cancer doesn't run in the family, thank goodness for one good thing!
Dh went this year for his, finally. 2 polyps, b9. Has to go back in 5 years. But, he had to get some gallon jug from the pharmacy by prescription. Evidently, according to the doc, they are not using the small bottles anymore. People were having some kind of seizures as a result of the concentration of salt in the small bottle. My guess would be that those people weren't drinking enough liquid to neutralize the high salt content in their systems.
I opted for the colonscopy rather than sigmoid, because I would be out. With sigmoid, they don't give any anesthesia. No way I'm going for that. I got the lovely pics also.
Will look for your QVC jewelry art, gsg!! LOL
And, anyone who wants to mark their arm to avoid bp, needle sticks, IV can get a hot pink Lymphedema Alert bracelet for free from:
www.lymphedema.com Pensinsula Medical, Inc. Reid Sleeve 1-800-29-EDEMA
Our Sutter Surgery and Matternity Center has ordered a bunch for patients. Next time I go in for an injection in my neck, they should be there. They liked mine so much, they called. The supervisor was delighted because they are free.
I also wear an ID bracelet from American Medical ID. I have a mesh one for the pool, a stainless steel for every day, and a 14 kt gold for dressier occasions. I never go without a bracelet, and I always carry a list of all the medications I am taking. You never know if you will have a medical emergency, and if you are unconscious, this may save you from getting lymphedema and gives medical personnel the information they need to treat you without interaction from drugs.
Thanks for the thread. Hope others come and get the info too. It really isn't all that bad.
We went out to breakfast right after also. But my french toast stayed down--unlike Shirley's pancakes! -
Patrice: I am sooooo glad you listened to your doc and had the colonscopy done--not only because you got checked out and they found that polyp, but because you now have urged me to get off first base and go get mine done! I have been putting this off and putting this off because of BC, but it sounds like all of us need to get ourselves in and get this done!
I also agree with Bugs--keeping your sense of humor firmly intact is another great result of the procedure!
Come on, Bugs, we'll get this done together! What do you say to next month?
Take care, all!
Cat
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Allyson: Sorry...I spoke to soon. It turns out it is supplements, and I don't think I'm going to do them...at least not right now. I have, however, started consuming 2 TBS a day of freshly ground flaxseed. The studies are pretty convincing, and I got the go ahead from my onc yesterday. I wanted to check since I'm ER/PR+ and on Arimidex. He said no problem.
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Wow- I am really surprised about the flaxseeds- seems like a lot of people have gotten the opposite message from their oncs. I know the data out there is a bit confusing- to me it is anyhow. I don't blame you for not doing the supplements- whatever they are- I stick with just the D3 and calcium.
Bygrace- I'm with you on choosing the procedure where you're out (hmmm I used to be afraid of anesthesia, now like being unconscious now and then, especially if something weird/unpleasant is going on). The prep sounds bad though- I am one to gag easily from these kinds of things- barely tolerated the "catdri" or whatever it was I had to drink for my staging CT scan last year-ugh!
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I've been eating flaxseed for breakfast since last May. It really helps move things through, which had become a persistent issue for me ever since I finished radiation/started tamoxifen. It's not the most appetizing thing to eat in the world, but it only takes 3 or 4 days away from it for me to notice that I need my flaxseed.
For this reason alone, I stick with it, and I am very happy to know that there are so many other benefits from flaxseed.... good source of lignans, omega 3, keeps cholesterol in check. Of course, it also has phytoestrogens, which is what makes it controversial for er/pr+ ladies like me, but I'm going with the theory that the plant esters are weaker than our own bodies' estrogen, so if they connect with the receptors, the plant esters are too weak to feed a tumor. It's all a crapshoot anyway on who's right. Right?
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Patrice, I cannot remember what the longest period of time that I did not hear from my dd. But, I will do what you suggested. I do know they have a hard finding an internet cafe.
Grace, I was not knocked out when I had my colonoscopy. Not that they didn't try. I watched it all...I was like a KATY COURIC (sp)!
The doc told my dh that he could have given me more, but that I was doing fine. Well, yeah, but the cramping was so fine.
I was given plenty of pre-meds before my mast. I was knocked out for that thank goodness!
Shirley
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Just got back from my colonoscopy - results "normal!" I was really dreading the results because my grandma had colon cancer, and I know the odds are higher for those of us with BC. But, all clear for 5 years. What a relief!
I did the pills for prep, too. Took 4 every fifteen minutes for an hour starting at 4pm. Then at 8pm, took 4 every fifteen minutes until 8:45. They definitely worked!
My only suggestion for next time is that I would start earlier- around 2pm for the first round. I was up later than I wanted to be. I think I last hit the bathroom at 10:30, but because I didn't know if I'd have to get up again, my sleep wasn't really very restful.
The center was great about not using my right arm for the bp or iv, too. Very considerate about that and any allergic reactions to things like latex. No nausea from my demeral, and a fairly quick procedure- in at 7:15, out at 9:00.
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Congrats on getting the all clear, Sandilee!
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Is it just me, or has anyone else felt a huge burst of energy the days following their colonoscopy?
I don't know it it's a coincidence or what, but I feel about 10 years younger!
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hmmmm. looking at my messy home office, bedroom and dining room table, I'd have to say "no," that hasn't been my experience.
But I'm glad it worked for you. If that were my experience, I'd schedule one every 6 months until my thighs, stomach and rear-end reached my 20s. LOL.
it's a great enticement for getting one, sandilee. Enjoy the feeling!
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Had my colonoscopy last summer, with clean results. They were great and very understanding about not using my lymphedema arm, even marking it with tape. However, I had another surgical proccedure a few months later and told everyone in sight not to use my LE arm and kept my Medic-Alert bracelet on. Everyone was cooperative until just before I went under, the anesthesiologist who had said he wouldn't use that arm, told me to slip my arm out of the gown for the BP cuff. I refused, and am glad that I was still conscious enough to do so. From now on I will write on my arm with permanent marker that I have LE and the arm is not to be used. I also sent the anesthesiologist info about lymphedema. One word of advice on the prep (OK two words) BABY WIPES!
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Okay, it's time. I thought I'd reawaken this wonderful thread Patrice started last spring, because my first colonoscopy is scheduled for next Thursday (Nov. 20). I've been googling "colonoscopy x procedure", and watching videos on youtube, but it turns out that the information already in this thread is better than anything else I've found.
First, I'll confess that I'm worried. Kind of strange, huh? I've had a breast biopsy; a mastectomy/SNB; 4 rounds of Taxotere & Cytoxan; a mild/transient bout of lymphedema; and now, I'm 4-1/2 months into 5 years of Arimidex with all that brings. And, I'm worried about a colonoscopy?
I'm concerned that the medical history taken at the GI doc's office was superficial. My PCP referred me to a GI doc who does these all the time; but the nurse at that office (where I picked up the prep kit) hardly asked me anything. She did ask, "Do you have kidney failure, liver failure, or heart failure?". I said "no", but I told her I was worried about kidney problems. She said, "Oh, the doctor is only interested in whether you've had kidney failure." I said no, I hadn't. Then, she said, "You're not on any blood pressure drugs or cholesterol drugs, are you?" Um, well, "Yes--I'm on a blood pressure drug and a cholesterol drug." She didn't even ask which ones. That was it.
The prep she gave me consisted of two 45-ml bottles of Fleet Phospho Soda, to be taken about 10 hours apart (approx. 5 p.m. and 3 a.m.) on the night before my 8:30 a.m. "procedure". I've read the medical reports about hyperphosphatemia and kidney damage from that prep, but I wasn't offered any alternatives; so I guess the only thing to do is make sure I drink plenty of clear liquids. Like during chemo: Drink! Drink! Drink!
I'm a bit worried about the procedure itself. I've had previous abdominal surgery that may have altered some of the landmarks, including the normal bends in the colon. So, what if the GI doc can't flex his tube around the corner? I'm worried about how much that will hurt.
Since I've had 3 nodes removed on my left side and have already had mild LE in that hand and arm, I don't want any i.v.'s or BP cuffs on that side. It's gratifying to hear that some docs, at least, will respect that restriction.
I am worried about the results, of course. My mom has had "growths" removed from her colon, but they've all been benign. I have no idea what they were. I'm 56 and I've been putting this off--I hope not for too long.
Finally, I'm worried about the, um ... the logistics. This might be TMI for some readers, but, how long does it take for the phospho soda to start working, and how long does it work? If I take the first dose at 5 p.m., is there any hope of sleep that night? How late can I take the 2nd dose (3 a.m.? 4 a.m.? Later?) and have the effects subside in time for me to get to the clinic for my 8:30 appt? If I'm "gassy" after the procedure, do I need to wear some, uh, protection, for the trip home?
I know a lot of you have had colonoscopies before. Besides what's already been posted here, is there anything else you could suggest, that would be helpful to us newbies?
otter
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Hi, Otter
I had my first colonoscopy at the end of August. The prep kit was the same as yours - man that stuff was nasty nasty nasty. Use very cold water. Drink it down as fast as you can (plug your nose). Drink a lot. I had one dose at 6pm, the next at 7am, procedure at noon. TMI as this is - the uh results weren't as bad as I'd expected. Don't know if it was me or the prep. Everything came out, but it wasn't like I had to sit on the toilet all evening; it took about an hour for things to get moving. I was able to sleep at night w/o any issues.
Get as much of the gas out while you're at the clinic as you can. There wasn't any leakage. It took a couple of days for the digestive system to get back on track.
They were careful with the IV and checking to see if there were any restrictions on which arm.
I figure the docs have seen literally everything. I was worried I'd get my period and the nurse was all - oh, it's ok, we see it all, blah blah blah. A good GI doc should be able to get the tube through the colon w/o any problems.
My mom has had a few polyps removed and MIL just had three feet of her colon removed. The prep and the thinking about what they could find were the worst parts. The procedure itself was a non-issue & a nice nap. At 47 I was three years early, but BC was considered a reason to have one & insurance approved it w/no discussion.
Good luck. Hope it goes well.
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Hey, Otter. I just had my follow-up colonoscopy on Oct. 27th. I sure understand your fears, but doubt that you will feel any pain with the procedure. First of all, they usually put you out for it. With my first one last March, I did wake up during it and could tell what was happening. They knocked me back out, but for the brief time I was awake, even though I could tell what was happening, it was not painful. Worst side effect after the procedure was gas because they do fill you full of it to expand things.
Just a suggestion. Since I woke up from my first one with a blood pressure cuff on the "untouchable" side, even though it was marked on my pillow and in my chart not to use my left arm, this time I asked the nurse to mark my arm. She put a long strip of medical tape on my arm and wrote on it, "DO NOT USE."
You have a different prep than I did, so I'll have to defer to PSK on that. Good luck to you and let us know how things went.
Patrice
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otter,
Good Luck with your colonoscopy, on Nov. 20th! I'll be thinking of you, and sending you lots of positive thoughts and hugs!!
I didn't have the Fleet Phosphosoda, but my dh did. He was ok to sleep at night, but he took it in TWO doses, and didn't have any ... er... effects til about 3 hours later, and he was saying "Hey this stuff isn't working.... oh..." But, he drank some coffee I think or else a little water in the morning, and IMMEDIATELY, it came out the other end. Sorry if TMI! Just wanted to warn you.
Oh, and the test itself was fine, I was put out for it, and when I woke up in the procedure room there was a nurse there. She remembered me from my bilateral mast., and she said, "oh I remember you... you were SO scared...."
Wishing you LOTS O LUCK!
Harley -
Otter, I'm so glad you resurrected this thread. I also didn't know about increased risk of colon cancer because of the BC. My dad died of colon cancer at age 41 (I'm 56) and I had my first colonscopy when I was 52. Found 3 polyps - all B9 and was told to come back in 5 yrs. I recently asked my onc about whether I should have another sooner because of the BC and she was like "nah, you can wait for the 5 yrs". Now I don't know what to think. I read this whole thread...how hilarious. Loved the Dave Barry. Good luck Otter!
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Just thought I'd drop in on this thread...I'm going for my third pooper snooper in Jan, The first one did find polyps, but it also hurt. They knocked me out after I yelped. So, the second one I had a pediatric scope and total sedation. Never felt a thing! I guess if you want it, they'll do it.
I must say, it's the only time in my life that someone was glad to hear me f*rt!!
Susan.
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OH, guys... guess what? Tomorrow, I have to take two friends, Liz and her boyfriend, Bob, to the hospital for THEIR colonoscopies! They have NEVER EVER had a colonoscopy. Why would a dr. set up BOTH tests for the SAME day?? How stupid! Now NO ONE can drive, and that is why I was elected to drive them. I'm not thrilled about it, but maybe I will make them buy me lunch from Burger King!!
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Aw, Harley, how cute: colonoscopy twins! You're right--it was a dumb idea for them to be scheduled on the same day, but maybe that was the way they wanted to do it? You know, "If you'll do it, I'll do it" etc.
Don't make them buy you lunch until afterward, okay?
Oh. There is this news: I wrote to Fleet and asked them why my doctor is still using two 45-ml bottles of Phospho Soda, when the new Fleet "EZ-Prep" kit includes one 45-ml bottle and a second 30-ml bottle. Doesn't my doctor know that the second dose of Phospho Soda should be as small as possible? Fleet seems to know that.
A Fleet representative wrote me back on the same day, saying they were sorry, but doctors could do pretty much whatever they wanted to do, regardless of the research studies. He said the main risk to the kidneys comes when people don't drink enough fluids and get dehydrated. So, he said, be sure to drink lots of water and other fluids before and during the prep. (He even gave me suggested volumes.) I thought that was very considerate of Fleet to respond specifically to my email, giving me advice and reassurance.
otter
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Otter,
I wouldn't be so cruel as to have them buy me food BEFORE they are able to eat lunch with me.
My dh watched FOOD NETWORK while I was waiting for them to come get me and take me to the procedure room. That was so cruel!!
I am SO glad I didn't have to drink that Fleet Phospho soda... YICK!
Harley
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