FlaLady Update for my Alt Pals

This just gets more interesting...

I waited 4 1/2 hours yesterday to see the head of bc surgery at Moffitt CC near my home.  (top ten center)  He had not read my PET scan and just looked at me and said I remember you for last Sept with PET Probe surgery and you sure look wonderful.  (I thought... thanks but I did not wait for almost five hours for this...) He asked me what was going on. I explained about two nodes last Pet in Dec 07 and this time they are not there, and now I have two new ones. His comments..."He feels that one Pet scan does not mean this is cancer and even if it is... the nodes are so small that we should not go chancing after them yet."

He also said that they (Moffitt) has found that treating localized recurrence with chemo is a waste of time.  What!!!!!  They use to do the old chemo slam with stem cell transplant at Moffitt, and they found that it could kill cancer cells every place in the body but the breast with chemo.  I can tell this guy is very anti-chemo ...working at a major cancer center??? He did say chemo can work with other mets but not chest wall??????  (Ihave been told this at other places)

He said there would be a possiblity of using Gamma or Cyberknife later if this does turn into something but he pretty much told me this would be a waste of time also.  So they are saying I have this little bit of cancer and no way of treating.   Wait until it goes to organ or bone mets and they can only treat those areas but not my chestwall.

He said I was so rare to be triple neg with so many localized recurrences they don't know how to really treat me...

Fine! I was not ready to do any thing with these small area any way.  If they can't get me anymore facts than this, I will continue to treat alternatively and I believe this is where the two missing nodes went last time.

Living in Hope,

Flalady