Jan 2008--Ain't it Great?

golfer779 · March 2008

Howdy Jewels,

We arrived safely last night at 11:00pm, I must have not been thinking too clearly when I told the dh that a later flight out on Sun. would be good, 5:00am came way to early this morning.

I worked until 1:00pm, had freight to deliver to a building, drove right passed the bldg, (knowing exactly where it was), turned around and couldn't believe it, I drove by it again. Decided after I finally hit my destination to call it quits for the day, my mind was a millions miles away.

Had myself a complete meltdown on the plane last night, had my Ipod on, a nice Joshua Kadison song came on and for some "unknown" reason my tears ducts decided flow like Niagra Falls. I had enjoyed myself so much for 8 short days, and the reality of going home to 3 more months of chemo and rads after that finally had really hit home. My poor dh, trying to console me without being to obvious that I was having a emotional moment. Other than that, first class was a treat, only have had that opportunity a couple of times to fly first class.

Wore my compression sleeve that does just that "compresses". I noticed that my fingers were kinda puffy on our return flight, couldn't wait to get that thing off, (D1, I couldn't imagine your contraption you have to wear) and today all looks normal.

I printed out our last page of posts, turns out its 27 pps. long. I don't have the energy in me to pull a Kimberly tonight and shout out to all, but please know that I have read every word posted and my heart and soul are with you all, and I do appreciate the encouragement for the lounge visit tomorrow!

Anyone else interested in participating in the "secret pal gig", I have noted each of you who have PM'd or showed interest in your post. Looks like Sis Kimberly had a game plan (although my brain is not comprehending it at the moment!!!).

Trying to get the laundry done and the golf/garmet bags emptied and put away, so I'll be back in a few ...

Carol

Sunshine99 · April 2008

Hi everyone:

I've been sort of away for a while. Had a quick business trip with my hubby and then we went to the desert for a week of relaxation with my family. I may live in Southern California, but it was still nice to get someplace really warm!

Yep, my fourth and hopefully last session of chemo will be on Thursday. Can't wait. I have some numbness in my fingers and a couple of my fingernails have what look like little blood blisters on them. I'm using the tea tree oil when I think of it, but I can't stand the smell of it.

Got my first bill for the chemo treatments!!!!! Holy cow! What do people do without insurance? I'm "only" on TC and "only" four sessions. My white cell counts are high, so I don't have to do the neulasta shots, but it still runs $6320 for ONE session. Of course that includes the pre-chemo blood work and the visit with the onc., but yikes!

My share of that is relatively small, but I'm still glad that we set aside the max amount in a medical savings account through my husband's employer.

My scalp is a little more sore these past few days... almost feels raw in a few places. Anyone else experience that? I'm not sure if my hair is growing back yet. My head is just kind of "fuzzy". I never went completely shiney head bald. Will I lose any more hair on tamox?

It's always great to read all the posts and hear how everyone is doing.

Wishing you all SE free (or minimal) days!

Sunshine

Sunshine99 · April 2008

Hey golfer779,

I met someone in the desert this past week. I think she said she was form Poulsbo, WA. My sis is from Seattle, so they had fun talking. She mentioned a really good bakery there? Do you know what she's talking about? My sis didn't, but would like to know about it.

Isn't Poulsbo on its own island in the Sound? It sounds really nice!

Sunshine

golfer779 · April 2008

Jennifer, thanks for the Dancin' reminder tonight, looks like the DVR will be recording the show as these tired bones probably won't make it to 9:30 tonight. Pet update, both dogs are trying to lay with me as well, the sun is shining on the recliner I usually sit in so they think that they need to share the space!

Love the thought of all of us Jewels in one room, my oh my, if the walls could talk, there would be a story to tell!

Would love to see some pics from your Race for the Cure events, hopefully your spring weather will stick around for the event. I can only imagine how emotional any of the walks will be to each of us this year, I like so many of us had also walked in honor of someone else, (my mom) the last 8 years. Being in the survivor shoes will be quite different, and yep the tissue will be a must!!

Kathy, although a day late and a dollar short, just wanted you to know that in my book "SHERO" is an understatement for parenting young ones and trying to cope with your txts as well. Heck, I have a teenager who is pretty self sufficient and I have to admit, at times I'm quite happy that he is going to his dad's house for the night.

Hey, you woudn't have to talk me into a Jewel reunion in AZ!

PALady, "busted a gut", so to speak, on the compression jeans comment.

CathyCA, have fun on your outing to Sac this weekend. I imagine you have a ton of frequent flier miles with all of your travels!!!

D326, looks like you found the fountain of knowledge on the chemo front, good luck with your pending txts.

Julie, your dh sounds like a gem, taking on 3 girls when mom is feeling a bit foggy. Sounds like all went well, its got to be good for our kids to have some fun even when we're not really in the "fun" kinda mood. So kudos to your dh!

Paula, two bananas huh? Another crack up ... I know laughter is such good medicine, thanks for the dose!

Vettegal, yeah on your last txt at the chemotini bar being done! I'm sure that when my last comes it will as well be rather emotional. You sure have a softie in that Vetteguy, I've only seen tears in my dh's eyes when we thought we we're going to have to put down our youngest weiner dog. The outcome ended up much better.

CarolC, had to read bits of your post to the dh and friends while on catoin, in regards to your being fired. I so hope that good comes from this for your own peace of mind. It sounds like you are about due to work in an atmosphere that is not hostile. Lots of luck in your search for work, somebody will be the lucky one to have you.

Sheshe, hoping that your doing better as times go on this week. Sounds like your getting rest, take care.

Therese, your words of encouragement when finishing up our txts will be put in my mental notebook. "Hope I don't forget it" between now and then. I've heard that it takes quite some time to get all the residual se's out of your body when txt has finished.

Maz, time to let your body rest and build up those counts. Hey, once I figure out the "pal" thing I'll make a shout out to all. Kimberly looks like she has an idea that should work.

Wendy, our "project" should get off the ground soon, and I'm getting starved reading about that darn steak and bloomin onion again!!!

D1, okay fearless leader, many of us will be anxiously awaiting your outing to the "boob-tan" booth.

Kimberly, okay, just read your post from today again, my brain is totally not working in regards to the pal idea. Wouldn't the address from where it is being sent from kinda give it away? Your cel-phone will probably be ringing soon ... maybe if I hear it instead of read it I just might get it!

I'll race you to the bar tomorrow, going at 9:30, unfortunately the doc is on "cation", looks like I'll get to chat with the NP. I'll have a good list for the onc when he returns!

Time to think about making dinner, all this talk of steak had me in the freezer looking for red meat!

Carol

golfer779 · April 2008

Sunshine, what a small world we live in. Yep there is an awesome bakery in town, its called Sluy's. I believe their bread is sold in major stores around the country.

The town has a Norweigen theme, when I was a kid we'd buy a "Viking" doughnut from Sluy's it was the size of a smalll tire, atleast when we we're little it seem gi-normous!

Poulsbo actually is not on an island, but when you travel from Seattle, you take a ferry 30 min to Bainbridge Island, then drive about 20 min to Poulsbo. The dh is on that route as I type.

Hey I'm seeing a visit to Poulsbo in your future, maybe when you visit with the sis, a jaunt on over our way would work.

Okay, now I should start dinner,

Carol

texrn · April 2008

Yes, I am interested in joining in the "secret Pal" gig - just let me know whatever it is I need to do.

Welcome home! to all of you who have been away. In the future, a getaway for all of us, when everyone is ready, sounds like a great idea...just let me know when & where!

Good luck to all those stepping up to the bar this week - may your se's be few & far between.

It's funny - I lurk & post on different conversation threads & even on different sites, but I always come back to this thread for some reason - I guess I just feel "at home" here. Even when I have nothing to say or add, I find myself wanting to check on you all at least every couple of days. So on the days I don't take or have the time for shout-outs, please know you all are always in my thoughts & prayers.

Therese

tinalee123 · April 2008

Oh, Jewels! You are never going to believe it…we are in the midst of a heavy-snow warning storm. We are due to receive 8 – 12 inches of the wet, heavy stuff. Started this morning and will continue thru tomorrow morning. Spring??? Whaaa?? Where?? And to think I was contemplating taking the covers off my rose bushes…

CarolC – I have been thinking of you, my Midwestern sis. Then, saw your posting about the ordeal you went through at work. I struggle for the words to describe how shocked and angry I am. What a nightmare. I’m so glad you’re sleeping better – I think you can absolutely attribute your depression to that environment. Thank goodness you’re out of there! Stay strong, they will not get away with that behavior.

Maz – Good to hear you’re resting. Keep it up.

Dana – I love your daily devotionals. Have you ever thought about seminary?

Paula – I’m glad that you’re able to take the narc. I hope that the achy feeling will be short-lived. It was for me. I’ll have taxol #3 on Thursday.

Julie – Keep on nappin’, girl. You need it. Check in when you can.

Kimberly – Your trip sounds great, glad you were able to relax and have a change of scenery.

CathyCA – Yep, as Kimberly said, we were looking for organic sweet potato fries, and happened upon them at Trader Joe’s. Aren’t they fab! Dh and I just finished off the bag of the little buggers tonight. I bet once my taste buds come back, they’ll be even better! I was also interested in your comments about the FMLA. I didn’t realize that it could be used on a part-time basis. Do you know details about that?

Jenn – What is it about cats and computers??? It’s like a magnet…the computer draws the cat to it. I have Penny (the brown cat in my picure a while back), laying on my lap, head on my left forearm, snoring away!

Carol – Glad you’re home. Sorry about the melt down…you’re allowed, friend. Did I see something about a Jewel reunion in AZ?!? Count me in. I was born in AZ, and still have family there – grandmother, aunt, uncle and cousins. Dh and I vacationed there a few years ago with the boys, as they had never met their great-grandmother. My father flew in from SF to join us. It was great. We stayed in Tucson, and also drove up to the Grand Canyon.

Thanks to all who voiced support in playing the ‘chemo card’ with the Visa folks…I just have to dip into my bag of courage, first.

Thanks also to all of your nice comments about my co-worker who just discovered she too, has bc. You’ll be interested to know that I took KathyL’s advice, and wrote her a card this weekend. Then, I logged onto my e-mail account for work this morning, and found a message from her, sent late Sunday night. She was thanking me! After she learned of my dx at the end of Nov., she realized it had been 3 years since she’d had a mammo. She scheduled one shortly after the holidays. After many more tests, mri’s, etc., she learned last month that she has bc and will have surgery in April. She’s been told it appears there’s no lymph node involvement, so may not need rads or chemo, but, will only know for sure after surgery. She told me she’s so thankful to be in the position that she is, and it’s only due to my dx, so she thanked me again. Wow. I never expected such a note, and felt so relieved that she’d found this in time. As you can bet, I told her all about our board, and how grateful I am to have found you all. I forwarded her the web address, and told her to explore.

Thoughts and good wishes heading out to Kimberly and Carol for tomorrow’s tx. Go get ‘em girls!

Good evening to everyone,
Tina

golfer779 · April 2008

Tina, I think with your weather report I'd keep the covers on my roses and over my head.

It's such a Catch 22 how this friggin' disease can bring all of us so close to one another. I guess if you look at the positives instead of the negs, we are lucky to have found each other. Hoping that your co-worker checks out the bc.org site to get all the info and encouragement we've all gotten.

As far as a reunion of sorts for the Jewels, AZ has always been a fav place, but I'm game to travel to the edge of the earth to meet my fellow SIS's.

Time for a "tubber", guess I won't complain about being cold after hearing your story ... stay warm and cozy my friend,

Carol

joteach · April 2008

Good evening Jewels,

I have been lurking again. I'm getting ready for my last treatment on Wednesday. YaHoo!!! I was sorry to hear about the lingering se's some of you are experiencing. So far, I have been lucky. I hope my luck doesn't run out!

CarolC - I was shocked and appalled by your experiences at work. I'm glad you have a lawyer to help you deal with everything. Best of luck to you!

Carol - glad you had a good vacation. I can totally understand about the meltdown. I've certainly had my share.

Kimberly and Carol - FUBC! tomorrow!!!!

D1 - I will be anxious to hear about your rads experiences. Hope they go real smooth. My doc said to think of it like going to have a suntan everyday. My sister (bc survivor - 9years) said more like a sunburn!

Anyway, its getting late now. I enjoyed DWTS tonight. Kristi Y is still my favorite.

Joan

Cathy-CA · April 2008

Tina -- Here's the link to the Department of Labor site explaining FMLA http://www.dol.gov/esa/whd/fmla/ If you read the FAQ, it includes a question about someone wanting to know if they can take leave for physical therapy. The answer is that "FMLA permits you to take leave to receive "continuing treatment by a health care provider," which can include recurring absences for therapy treatments such as those ordered by a doctor for physical therapy after a hospital stay or for treatment of severe arthritis." I have always seen this interpretted as if you need to take two days a week off for 24 weeks, that's still within the 12 week total for the year.

RN2teach · April 2008

Good mornings, Gems.

Wishing our two travelers an easy day in the chemo lounge-- Kimberly and Carol, bottoms up!

Will check back in this evening--headed out to work now. The worst of the Taxol pain seems to be over. Needed another dose of the narc to sleep last night. Slept well and woke up w/o pain--God is good! Smile

Catch you gals this evening!

Paula

KathyL · April 2008

Typical DE "spring" day: today's going to be 70, but rainy and windy. What a waste of a good day!

I woke up today (after a late night of watching DWTS) with puffy eyelids again. What's up with that?-2 weeks after last chemo! And some nice nausea to boot. Breakfast right now is a glass of ginger ale. FUSE! Still hanging on to annoy me! (whine)

SIS Kimberly and Carol-what a pair at the bar today! Good luck girls.

I see now there are a lot of posts to read-that's what I get for being a slug yesterday evening and not checking in. Better refill the ginger ale and get started...

Julie: Well, I guess fatigue is better than puking. I'd much rather just sleep. I hope you come out of the fog easily my friend.

Paula: Pain makes me crabby, too! I hope the Lortabs helped you out and you could sleep. Bone pain/body aches were the worst thing for me overall I think.

Maz: Rest easy fellow Gem. As for those counts in the toilet-what goes down, must eventually come up. Do you get anything to help them out?

CarolC: No lower back pain for me. If it's lasting a while, I'd run it past your onc just to be safe.

Wing: I thought DE was bad-you REALLY don't get spring in Mass. from what dh tells me.

D1: Ahhh, young love! Sounds like dd/college girl may have found a nice guy. Trust me, talking is much better than "hooking up" (oh, I do remember-college wasn't that long ago for me).

Hope rads went well- was this your first actual treatment, or another sim?

Not sure how to keep nails on. I only know about preventing them from coming off and what to do when then come off (geez, could they have taught me the inbetween?). I think once they lift, there's not much you can do except keep them short and clean. I don't think I'd cover them b/c it will lead to a moist environment which could breed fungus and/or bacteria. Sorry, I'm not much help.

Kimberly: Glad the Tahoe respite has you all relaxed for today. Sounds like it was just the ticket to help you push onward to the end.

Jenn51: LOL on the idea of a poop pic! Too funny. Only a mom (or grandmom) could appreciate that one. My daughter has a Kodak kids camera that my dad got her last year for Xmas (it really works and takes pictures). For a while she took pics of anyone in the bathroom (think Candid Camera moments-she'd sneak in on us) -on the toilet, in the shower, whatever. We had to ban the camera from the bathroom all together.

Carol: Welcome back home. I read dh the part of your post about driving and he said something about "OMG, you ladies are crazy". Yes, we are, and with chemo-brain to boot! You had me cracking up. Hope you did better on the golf course than you did behind the wheel. And after such a great get-away... who wouldn't have a meltdown, even in 1^st class? You're entitled.

dh and I are looking into something in AZ for golf (him)/spa (me). Either the Jewels can meet there, or we will just go next year-it looks fabulous and relaxing!

P.S. Every time I read about your dogs-I tell dh I want one!

Sunshine: Nice to hear from you again. Those bills for chemo can induce nausea, huh? I got one recently, too... $12,000, without the MD visit. That chemo better be working! Herceptin in something like $5000 a dose (and I get it about 17 times total). My neulasta I think is almost $4000 a dose. I don't know how I'd do it without insurance.

Tamoxifen doesn't make hair fall out. My cousin's been on it for 4 years now-her hair's all back in.

Therese: I feel the same way about this thread-it's "home".

Tina: That's just wrong to have that much snow for April 1. What a mean April Fool's trick Mother Nature played on MN.

I've gotta try those fries. The closest Trader Joe's is almost an hour away from me. May have to make a road trip...

I'm looking into a trip to AZ for next year-could make it a Jewels reunion spot if enough are interested. I've never been out West and AZ looks gorgeous-plus lots of spas for some pampering. My dh golfs-so he'd be happy there, too. If you know of any good resorts off hand-pass me the names, please.

And lastly-so glad you reached out to you co-worker. Your story of her response brought tears to my eyes. Such a great, warm, fuzzy moment-thanks for sharing it!

Joan: Kristi is my fav on DWTS, too. Tonight I've gotta watch AI! Such a TV junkie I've become...

Whew! I think I'm all caught up. Last thing I'd like to pass on to the Jewels: I'm going to be doing an ACS Relay for Life here in DE in June. Check out my page at http://www.middletownrelay.org/ , my team is "Merrie Moppet Marchers" (Kimberly, hope you don't mind me using the "Sister in Survival" on there-I love it and thought it was fitting). Search under the team name, then pick my name from the members, and it takes you to my page. The captain is one of my kids' preschool teachers (her mom is a survivor; she named the team). Anyone who'd like to donate to me and my team can do so on the webpage. Please don't feel obligated to give, but if you want to I'd appreciate it. You can give in the name of anyone you'd like also. They have these really cool luminarias which will be lit in a ceremony-they are only $10 (and all donations are tax-deductible) and I think you can decorate them. I'll take pictures when I'm there (if any Jewels get luminarias, I'll get a pic of yours specifically if I can find it). We will also be doing a survivor ceremony where all survivors get to release a white dove and then take a lap on the track together. Sounds cool to me.

Have a great day my Sisters!

CarolC · April 2008

Good morning Sisters,

Kimberly & Carol - good luck today with your treatments! May your se's be mild and few.

Just wanted to check in to say hi and let you know I'm thinking of you and so grateful to have your understanding and support. No matter what we share and discuss here - there are always wise opinions and great advice...

Your supportive indignation over my work situation is so appreciated. I just spoke to my lawyer who will be sending over the draft of the letter he's sending to my former employer today for me to ok. He is claiming both disability & age discrimination. He suggested we not ask for anything from them at this point - he doesn't want to show our hand - he's telling them if they'd like they can call him to discuss the situation before we take any action. I told him I'd defer to his opinion. He wants to get any info from them before I meet with the EEOC on April 8th.

CathyCa - I think the FMLA law can only be enforced once someone is there for a year. I had just relocated to Omaha from Pittsburgh last year and had only been employed by this company since last June. One lawyer I spoke with said she wonders if that's why they decided now might be a better time to terminate me rather than after this June so they could avoid being accused of violating FMLA guidelines? Especially since I had already reported the harrassing treatment to HR. I have no idea... my friend told me that their treatment of me reminds her of the movie "Mean Girls"....

I'm now off to my wonderful new therapist, then checking in at the Workforce office since I was able to file for unemployment wages (the company said they wouldn't contest it) and will check in later. Just don't want to get behind on my reading again.

Sending hugs and positive energy to all you jewels.

Ps. kathyL - I couldn't get your link to your page to work..

KathyL · April 2008

Try this time: www.middletownrelay.org

I think had a typo before and even though I changed it, it wouldn't link right.

CarolC: Your lawyer sound really good. Whether you were there a year or not, no one should be treated the way you were. Can't wait to hear what happens next after your ExE (ex-employer) gets the letter from him!

golfer779 · April 2008

Cathy, I think when you hit KathyL's link the word relay is mispelled, I just fixed that in the URL address and it went right to it, their team is the last one, number 49.

Kathy, great site, its too cool how the "C" fundraising sites have these neat webpages, gotta love modern technology!!!

SISKimberly · April 2008

Good Morning Jewels,
Well, last night was a tossing and turning kind of night. I was awake at around 3:30am…damn decadron…but forced myself to stay in bed until 6:30am sleeping fitfully on and off.

So, it’s off to the chemotini lounge with Carol. I’ll buy you a round,Carol, and we can toast being one tini closer to being done with this part of the bc journey.

CathyCA- Well it sounds like your dance card is filled. What concert will you be attending? Have a great time!!!!

Thanks for the well wishes for Carol and I, Julie and Cathy. How you doing Julie?

Jenn- My Peja cat used to do that. Sometimes, I really miss having cats, but most of the time, I feel pretty OK not dealing with litter boxes, cat hair, and finding people to watch them when we go away for extended periods. I just go over to Jon’s and pet his cat if I need a cat fix.

I’m all OK with not getting stuff done I planned to do. I don’t even sweat it anymore. Good for you getting lost in movies and just relaxing. We watched Bruce Almighty the other night. Love that movie. We own 50 First Dates and How to Lose a Guy in 10 Dates. I could watch those over again as well.

I taped Dancing With the Stars. Can’t wait to watch it.

Glad you find the same kind of comfort talking to your Dad that I get talking to my mom.

Carol- I just PM’d you. Sorry to miss you yesty. Carol, I’d be happy to take on the Secret Pal thing if you want. I know that you’ve got a lot more treatment lines up. You can send me everyone’s addresses via word document, and I’ll have everyone send me 4 self addressed stamped envelopes, plus 4 index cards or 4, ¼s of paper with their name, address, likes and dislikes, and birth date on them. I can have the dh randomly draw a card and stick them in one of the envelopes to mail out the first of the secret pal names. The post mark on the envelope will be from Lincoln. You’ll stick all four of the self addressed envelopes and index cards into a larger envelope that is addressed to me. When you get your secret pal names, you address your little things to them when you send it, and you don’t have to put a return address. Obviously, it can’t be totally secret with the post mark being stamped, but it will still be fun. I’ll keep the others so we can change it up in 3 months. Would that help you out and lighten the load?

I am so sorry you had a melt down on the way home. It’s such a rude awakening to have 8 days of normal only to return to the reality of 3 more months of chemo and then rads. ((((HUGS))))

I’ll call you when I get home from the lounge, OK?

Sunshine- HI, we’ve missed you. WhooHoo on the last chemo coming up. You shouldn’t lose your hair using Tamoxifen from all the research I’ve done.

What a small world running into someone in the desert from Pouslbo, WA. Glad you’re doing well and had time to get away!!!

OK, I’ve got to catch up with the rest of you later. Gotta get ready to go have breakfast at my pre chemo restaurant.
I’ll see you later tonight Jewels. I left off at Therese’s post.

Love and Hugs to you all,
Kimberly

Cathy-CA · April 2008

CarolC -- you are correct. To qualify for FMLA you must have worked for the employer the past 12 months, worked at least 1,250 hours during that time, and the employer must have at least 50 employees at that location. I realize not everyone qualifies for FMLA, but if you do, it's a good thing to do even if you have enough sick leave and/or vacation to cover treatment, just so you get the protections. I'm glad you are getting unemployment!

Kimberly -- It's the Sprinsgeen concert. One of my guilty pleasures is going to lots of his shows when he's out on tour. I have a group of friends (or "stalker/nutcases" as my dh calls them) that I go with. Dh is going with me for three of the Southern shows at the end of the month since he's never spent any time in the South. We're turning it into a week-long vacation.

Carol -- I couldn't even begin to guess how many frequent flier miles I have racked up through the years, but probably at least three or four million. I used to travel more than 100K miles a year on business, so earned lots. Dh and I would normally do two trips a year to Europe just on miles and hotel points.

KathyL · April 2008

Carol: Thanks!

SIS Kimberly: I like your idea for the pals. Sounds like fun also to rotate every few months.

golfer779 · April 2008

Good Afternoon,

Home from the chemotini lounge, wbc is in the gutter again (2600), but thankfully, no "nasty" shot recommended. I was hoping that a weeks worth of Vit D (sun) would have had them up a bit more. I thought then I could get a scrip to go back to the sun. My trend has been that my wbc go up this week a bit, seems weird since now I'm back taking my oral meds ... "not an exact science I realize".

I met with Eunice (NP) that I had my initial appt with 3 mo ago. It was great to be able to talk with her again, she's easier for me to communicate with then my onc.

I asked Eunice if she was familiar with Harmony Hill, which is the retreat destination I'm going to tomorrow. She had heard some really good things from others that have attended the 1 day or 3 day seminars.

As I was sitting waiting for my "waitress" to serve my cocktail, Eunice came back over and introduced me to a woman who had been out to the cancer retreat. Pat is also a breast cancer "survivor", she had completed her AC and now is on Taxol, and will be doing rads as well, told her maybe I'd see her at the rad office in the future.

I spoke with Pat for the length of my txt. She shared what a great thing the retreat is and what it had to offer. I'm already looking forward to the lunch (all organic) and I guess the chef is something.

While chatting with Pat, I of course had to bring up bc.org, which she had not visited. I shared pics of many of you, and she really got a kick out of our FUBC shirts. I'm hoping that she will pop in a check out our site, I gave the thread name, and told her there we're others on the same regimen as hers to share stories with. I wish she could have been included from the get-go, as she had a personality that won't quit, still hoping she will jump on-board.

Kimberly, had to share the mohawk pic (which Pat had done also), and of course the supergirl cape pic. She probably thinks we're all nuts by now!!!

Hit Subway on my way home today, decided I'd be best off not stopping for a lunch out or shopping today with my track record (i.e., the Jiffy Lube day!!!). Was supposed to golf this afternoon, first day for the womens league, decided not to risk it today, it would be a long shuffle between holes if the gi tract goes bonkers!!!

Might try to motivate a bit this afternoon, although right now this recliner is feeling mighty fine, be checking in later,

Thanks for the words of encouragement for today, they really work!!!

Carol

Determined1 · April 2008

Hey everyone! Beautiful day here in our Nation's Capital. I think it must be 70 degrees!

Rads are MUCH easier than I expected (so far). I've already had 2 sessions. Looks like my experience will be about one to one and a half hours, depending on whether or not I get to visit with babydoc. (Remember, that includes my travel time--I drive 20-25 mins. each way to go less than 5 miles! Gotta love city living.) Okay, so I arrive in the rads dept and check in. Grab my book. They call my name a few minutes later. I toddle off to the treatment area and either go into a changing booth or wait in a small waiting area for a changing booth to be free. Try to read a couple more paragrahs. Get into changing booth and get nekkie from waist up and put on a hospital gown. Oh, can't wear lotions or deoderant to my sessions, so I pack that in my bag and apply after tanning. Go into rad room (okay, its a little intimidating with all the "danger" signs around and the equipment, but they try to make you comfy). Lie down on table (they put some cushions and sheets on it for me). They line me up using red laser beams that seem to come out of the walls and ceiling all over the place--I'm like a moth drawn to a light and can't stop staring at the one in the ceiling while being zapped. I'll probably suffer cornea damage as a se of rads--first person ever!!! After I'm all lined up, this big x-ray looking thing zeroes in on my body and then a loud mechanical noise starts up for about 20 seconds. Then it stops and the x-ray thing rotates to line up on my pit area (thanks to those positive nodes) and makes noise for another 20 seconds. I feel nothing. The worst part is when I have to put bad arm over my head and rest it in an "arm holder." Because of my cording, bad arm doesn't go that way w/o agony, so I have to have the techs put my arm SLOWLY into the holder. I wince a lot, but I tell them to just go for it because what else can I do? Then I have to have the techs pull my arm down out of the holder. I'm hoping that gets easier over time.

When I finish, I go back to my changing booth, slather on my lotion (they tell me I don't need it till I start burning, but I figure it can't hurt), apply deoderant (they recommend Tom's of Maine--can't use anything with an anti-perspirant), and get dressed. Then I just blow outta there. Easy.

Jenn, the first tat I got (at my sim session) really hurt, but mostly because I'm afraid of needles and I didn't know what to expect. It felt like a bad bee sting, but it didn't last long. The last 2 tats I got yesty didn't bother me as much and they were in a more sensitive area. I got out my Lamaze breathing for the two yesty and was so distracted trying to breathe properly that it helped with the discomfort. Oddly, all of them bled like crazy and I had to wash my torture garment when I got home (good excuse to take the damn thing off). All three are black and about the size of a head of a pin. One will show when I wear plunging necklines, but until I get rid of my torture garment, there will be no plunging necklines, so I guess I"ll be okay. When there's more to report, I'll share.

CathyCA--have a great time in Sacramento. I've been to only one Boss concert, but he gives a GREAT show. Oddly, my little one first learned the Springsteen songbook when she was 11-12 years old when she started playing guitar. I still smile when I hear her play Thunder Road.

Oh Jenn, you had me LOL with the story of the pic of the poopy after party!

Carol--smart move to quit for the day after that chemo brain delivery! What a hoot (I mean a laugh, not a boob). Glad your compression sleeve worked on the flight. I have to get another one made for me as the one I have is about an inch too short and cuts the circulation off at my wrist. I do get tingly fingers from wearing it, so I only wear it 2 hours at a time now. Not sure what I'll do on long flights... Yep, the torture garment is like wearing a giant compression sleeve. I think you understand why I complain about it...

Hey, girlfriend, the meltdown is totally acceptable. Think about what was going on there! Please allow yourself your emotions. You're first class all the way, don't sweat it.

Can I have a secret pal, too? Pretty pretty please???? Sounds like fun--however you decide to work it out.

Oh, and keep those sharts in check this time!!!

Sunshine--glad you got away with your dh. It's good for the soul. You numb and discolored fingers sound really familiar to me. You should know I did the tea tree oil religiously and still ended up with the blood under my nails. I'm not sure there's really anything we can do about some of these se's.

Tinalee-A snowstorm??? You guys need a break up there. Oh, and I'll forward my bag of courage--it never fails me.

Paula--Thank goodness you're getting some sleep and the pain is lessening. Like I often read around here, "better living through chemistry!"

KathyL--Hate to tell you, but I'm almost 5 wks since last chemo and I'm still quite puffy. Eyes only seem to be bad in the morning, but other body parts are puffy 24/7. I think it'll take a while for all of the poison to be out. It's just hard to be patient when you're done w/chemo, isn't it? When you're done, you're DONE. Oh, and thanks for the encouragement not to wrap my nails. It made sense to me not to wrap them, but I thought I'd seek a professional's advice.

You should know I tried your brownie recipe and made lots of friends. We took a bunch up to college girl, thinking she could share them, but she says she's going to pig out on them all by herself. (Maybe share with that new guy???)

Please send some healing thoughts to my brother-in-law (dh's brother). He went to the ER yesty and was dx'd with bacterial spinal meningitis. Luckily, he survived the night, but his med team wants him to live for 24-48 more hours before doing an MRI to see if there's any brain damage. He's 55 years old and maybe eats food that's too rich, but he's a really good egg and I love him dearly. He and his partner just moved from San Diego to Norfolk about 2 months ago, so they're nearby, which is good as my in-laws were able to get to Norfolk early this morning to be with him (the in-laws live near me). I'm waiting for my dh to decide he should drive down there, but he's trying to put on the brave front for now. I just hope my bil pulls through this--I don't think any of us are ready to let him go just yet.

Sorry to be so heavy--it's on my mind.

Good luck tomorrow to Joan (last one!!!!) and Sheebas. Don't get all crazy on us in the lounge!

D1

(You doin' okay, Vettegal???)

golfer779 · April 2008

Sitting here downloading 6 more episodes of Grey's on my Ipod, that should get me caught up with the current season. So since I'm "waiting", yep back to check what's happening.

D1, first off my thoughts are with your family, I don't know if you took 20+ people and put them all together they could possibly have shared all the ups and unfortunately the grand number downers that this group has had to endure. Its bad enough for our lil' setbacks, but to add other family and friends fighting the good fight is starting to really be tough. All of my best to you and your family.

I truly appreciate your great descriptive narrative of your day, you will be the old (okay middle age) pro on the rad front, in fact you'll be completely done when I'm still plugging away with my chemo. Sounds like I'm whining about my 6 mo txts, guess I better start appreciating my thin hairdo, and stop complaining!

Whats up with the no anti-perspirant, had to just check out my Ban (didn't even know about the anti... just thought it was call deo). Guess I'll have a change in the future.

When I ordered my compression sleeve she had a hard time finding one with a tiny wrist that was still long enough as well. I swear that I had a puffy hand from that darn thing, but luckily it went away in 24 hrs. I guess it is doing the job, I feel for you having to wear a "garmet". Lets hope that any le is short lived for you.

Put you on the list for a pal ... I may be pawning this one off on sis Kimberly, looks like there are 13 of us so far. Hmmmm thats an odd number, anyone else interested??? I personally love to get anything in the mail thats not junk/bills.

Back later, need to call my friend who started her 3 day Komen training today. She has 24 months to get in blister free shape.

Carol

golfer779 · April 2008

I've decided its pretty evident when I'm not at work, I spend far too much puter time when I'm home, and I only feel a little guilty!

CathyCa and Therese, would you mind firing me a PM with your home mailing address. I've got you both on the list for wanting to participate in a secret pal gig.

wvgirl, was looking through my addresses and noticed I don't think you've posted in a while, hoping that your doing well, maybe just lurking or maybe I missed a post while away last week. Aaaahhh, just scrolled back, looks like you we're at the bar on Friday. That probably explains an absense ... take care!

SISKimberly · April 2008

I’m back from the lounge and my after lounge activities, and I’m pooped.

Therese- I’m so glad that even though you’re done with your tx that you feel ‘at home’ here and continue to check in with us. Once a Jewel always a Jewel you know!!!!

Tina- OK, 8-12” of snow in April? Is Minnesota always behind or is this a first? I’m so sorry spring is just playing with you in the mid-west and eastern regions. Maybe spring will be really short and summer will just kick in.

I bought my sweet potato fries yesty, and will be eating them tonight since tonight is the last night I’ll be able to really eat before that rock in my gut kicks in tomorrow.
We’re having grass fed beef burgers with our fries. Yummy.

I’m with you, a reunion in AZ sounds like fun!!!! Sedona is supposed to be a very healing place.

I’m so glad that you reached out to your coworker and that reached back to you. Sounds like she had a very good prognosis, and someone she can talk to who knows what she’s going through.

Joan- Hey stranger. So glad to hear from you. You sound great, and WhooHoo on your last chemo this week. I can’t wait to say it’s my last chemo. April 22nd will be that day. I like Kristi Y, too. It’s time a woman won this thing!!!! Isn’t Marli Matlin amazing though. It is so wonderful to watch her knowing she can’t even hear the music.

Paula- So glad to hear you slept well and that the pain has subsided enough to allow you to go to work.

Kathy- I’m doing the Relay for Life walk here on April 19th. My school put together at team. I love your team’s name. I’ll check out your sight when I’m done posting.

CarolC- Your lawyer sounds like a good guy. I’m glad he’s not asking for anything yet, not showing his hand, because I think you’ve got a very good chance of getting a good settlement. My hubby went through Workmans’ Comp. and told me to tell you to remind the lawyer to talk about paying your Cobra for you until the case is settled, not just a few months when you get to settlement talk.

CathyCa- Wow, you certainly must love Bruce…I’ve never been to one of his concerts. We’ll be seeing Micheal Buble there in April and just saw Billy Joel last month.

That’s a lot of frequent flyer miles you’ve wracked up, and how great to pay for vacations with just points!!!! As a teacher, I don’t get to fly much for my job, so I have to pay my way for vacation. I know there are credit cards you can earn miles on, but I just haven’t jumped on that band wagon yet.

Carol- How fun to share our bc.org pics with someone who appreciates our quirkiness, and I can’t wait to hear about your retreat tomorrow. Bummer about missing the first day of the women’s league, but a smart move considering your last few GI distress moments after previous txs.

I forgot to comment on your driving the other day and missing your destination twice. I’ve missed my turn offs as well and just choose to call it ‘taking the scenic route’.

D1- Well the rads experience sounds doable. Sorry the bad arm is still difficult to get overhead. Mine too.

Sorry to hear about your brother in law. I hear spinal meningitis is curable, but if it wasn't treated quickly can cause brain damage. I hope he gets through the next 48 hours and gets his MRI. Your poor dh must just be beside himself with you, your good friend and neighbor, and now his brother. ((((HUGS for you both))))

OK, all caught up for now.

Joan and Sheebas are at the lounge tomorrow. Kick cancer booty and show it who is in charge of the body!

SIS Kimberly

P.S. I am taking over the job of the Secret Pals to give Carol a break, so here are the instructions:

In a larger envelope, place four smaller envelopes that you have stamped and addressed to yourself and your index card with the info requested on them and mail it to me:
Kimberly Montgomery
1318 Seymour Circle
Lincoln, CA 95648

I will mail back to you one of those smaller envelopes every three months with the index card or ¼ sheet of paper inside with the name, address, birthdate, and list of likes and dislikes as we wouldn’t want to send something someone is allergic to for example.

I’m thinking that I’ll send the first one out to start in May. That should give you plenty of time to get your items sent to me this month, so I can have your first secret pal mailed out before my next chemo on April 22nd.

tinalee123 · April 2008

Good evening Jewels,

Just a few quick notes –

D1 – Special thoughts and good wishes are heading to your bil. Hoping he will get through this quickly and without any long-term issues.

Joteach and Sheebas – Thinking of you tomorrow as you head to the bar. Sending wishes for an uneventful tx.

Sleep well everyone,
Tina

golfer779 · April 2008

Joan ... yeah for your last txt tomorrow, lets hope that the se's stay minimal for their last hooray. I'm hoping I can also follow your journey to the "tanning booth".

Sheebas, "knock um dead" tomorrow, looks like you and me are going to be still at this in mid May. I was already getting a little lonely at the bar, as this portion of the journey is wrapping up for so many.

Kimberly, thanks for taking the pals and running with it. I'll get my cards together!

Happy to report no sharts today, (looks like I'll be hitting the Miralax in the morning) instead I've kinda got the heartburn thing going on, hoping my chicken burger settles in!

A good night to all you great ladies,

Carol

Jenn51 · April 2008

Hello Jewels,

Well, I have a big chemo brain oops! This afternoon I let the dogs out & started to make a pitcher of hot tea. I was going to put it together & nuke it after I got back from picking dh up from work. I did the sweetner & tea bags & put the pitcher under the small "treated" water faucet & turned it on. Then I let the dogs in & got ready to leave. You guessed it! When we came home & walked thru the kit. dh let out a few words as he splashed thru the water on the floor. My only saving grace was that this filtration system has a 3-4 gal. tank & the tank went empty. That water had been running almost an hour! 4 beach towels later we had the floor & the counter dry. I think I see the nice young men in their clean white coats comin' to take me away.

After saying I hadn't been able to nap lately, I slept all day today. I took dh to work with every intention of coming back, getting ready & going in. Didn't happen. I sat on the bed for a minute & next thing I knew it was 4 hours later. I got up, ate some lunch & went right back to bed. I must say I feel much better now so I must have needed it.

Carol, I can so sympathize on the emotional moments. I know you didn't want it to happen on the plane but we don't seem to have much control over these things. It may be late but I'm sending you an extra good hug.

I'm sure your babies really missed you. Mine are always all over me when I come back from a few days in Milw.

I will post pictures of the Race. I have good ones from years past. When is your Race? My bff is bringing the t-shirts & numbers over here so I can help get everything ready. I wanted to be more involved this year & she needs the help. It will be the Mon. after a Black Thurs. but if she comes to me I think I can do it. My big thrill last year involved one of our Indpls. Colts. Jeff Saturday, #63, our center, is very involved in Komen Indy. He was a surprise speaker at a luncheon last year. I got a really good picture of him (and he is very easy on the eyes). I printed it at 5x7 & took it to the Race with me. I got the chance to get close to him & he autographed it for me. He now hangs on my Colts wall of my room. And this was the spring after we won the Super Bowl so it's even more special. Wasn't sure what I could do to surpass that this year, but have a feeling the Survivor Parade will do it.

Reunion in AZ! Count me in!

I think you did the smart thing going straight home. I take it you were able to find your house. (Sorry couldn't resist.) Not always easy doing the smart thing but I have to laugh at the vision of you on the golf course & having a different kind of melt down.

D1, Thanks for the very descriptive rad session. I hope mine go as smoothly as yours. Not sure about your relating the tat to a bee sting. I'm allergic to bees, swell all over & have to go for shots if I get stung. Tongue out LOL I do know what you mean though. Did you have needle placement before your surgery? If it's not much worse than that I can handle it OK.

I'm sorry to hear about your bil & will include him in my prayers.

Tina, I have been thinking of you when I heard the weather reports. I can't believe you are being hit again. We are getting LOTS of rain & it's getting down to the 20's tonight. I hope none of it turned to snow. Think Spring!!!

2 of my 3 cats think they are entitled to my body while I try to compute. I don't know about them. Just know I wouldn't want to try to live without them.

Sounds like your co-worker caught her bc early, even though she hadn't had a mammo in a few years. That's one good thing you can chalk up to your bc, made her think & act. Good Going!

Sunshine, I'm with you on the fuzzy head thing. It's not growing, but the fuzz won't fall out. I do have a couple of spots that seem to grow very slowly, maybe the size of a nickel. I shave them so I don't look so weird. I had my sticker shock a few weeks ago. We got hit with 2 deductables, one in Dec. 2007 & 1 in Jan. '08. That hurt but we are still lucky to have the coverage we do.

KathyL, Go ahead & whine. We are all entitled to every so often. Fatigue, body aches & nausea are so much better than puking but they are no picnic either.

I got Joey one of those camera last year. Luckily he didn't think of sneaking into the bathroom. I got my love of photography from my dad & 2 of my boys seem to have picked it up too. It's only natural that we want Joey to follow in his great-granddaddy's footsteps.

SisKimberly, I will get my envelopes in the mail to you by the end of the week. Thanks for taking charge of this.

I took a break to watch the Dancing Results. I was very disappointed. I liked ##### (name omitted for those who taped the show). I'd much rather see Adam or Marissa go home. Right now Jason & Marli are my favs. We tried the new Broiled KFC tonight & it was really good.

I'm going to try to go to bed. I really need to work some tomorrow. Thurs. I will be gone most of the day because I'm getting a chest x-ray & CT-scan after my Herceptin.

Good luck to you all at the bar tomorrow. I'll pray for mini ses for you and blessings for everyone & their loved ones. Sending lots of Hugs & Love.

RN2teach · April 2008

Evening, Js. I'm feeling better every day. We had a beautiful sunny day w/ temps in the 70s-ahhhh! Woke up this morning pain-free and didn't start hurting until lunch time-and even then I just had general aches-not the intense pain of this past weekend. Not enjoying the pain, but at least it can be relieved with meds and I don't have the fatigue and the rot-gut feeling that I had w/ AC. I'm glad to be at a pain level now that is controlled w/ plain old Tylenol.

Good luck to our chemo warriors today: Joan (joteach-LAST ONE!!!), Judy (sheebas), and Wendy (wing). Hope the se's are light and short-lived!

Maz- hope you're feeling better! You, Kimberly, Julie and Peg have three chemos at once.... I'm amazed at how well you are doing/ Hang in there-you're getting closer to the finish line.

Kimberly- I'm glad you had a relaxing weekend away. Hope this weeks chemo se's are light.

I'm not a fan of narcs, either, but they sure are my friends right now! This is the first time I've ever had to take anything stronger than Tylenol/Advil. My surgeon gave me an Rx for Lortab after my lumpectomy and I never filled it. Onco warned me that I might need it b/c I'm getting a pretty good dose of taxol. Glad he was looking out for me!

I had a lumpectomy and that's it for me. I've lived with these gals for 46 years-16 years in their current saggy state. We've come to a peaceful co-existence.

Jenn- I'm having those sharp stabbing pains on my breast, too. Mine just started within the last few days. They start sometimes from deep in the breast and radiate out to the armpit... other times it is just the opposite. I don't have any new swelling, no warm spots or red spots, or any other signs of trouble... wonder what's up with that?

Wow, hate to see your water bill this month! I can sooo imagine myself doing something like that...

Carol- welcome home! I'm looking forward to hearing about your retreat. Hope chemo se's don't get you down too much.

Sunshine- good to hear from you. Glad you were off with your dh having some fun!

I have seen a few of my EOBs for chemo. It wasn't as much of a shock for me after dh's cancer 2 years ago. I think his total bill for chemo was over $30,000. And if that sounds bad, his radiation bill was over $65,000! As you said, thank God for insurance (and special prayers for those who don't have it!).

Therese- I know what you mean about the Jewels... I wonder around and post occasionally elsewhere, but I have to check in with my sisters every day!

Tina- I'm glad my pain was short-lived, too-I can do this! And just 2 more to go for both of us!

Sounds like your friend has a very good prognosis-I'm happy for both of you.

Kathy- thanks for the link to your Relay page. I'm doing the Komen Walk on May 3 and Relay for Life in June. We've been involved w/ Relay for a while (dh's parents both died of cancer in the 90s).

CarolC- I'm so glad you have a good lawyer on your side. My best wishes to you on finding a workplace where you are valued and can be happy!

CathyCA- haven't been to see the Boss since I had kids... Sounds like fun!

D1- thanks for the skinny on rads. Those of us coming up fast behind you appreciate knowing what to expect! I think you're doing the right thing with your skin. My friend, Pam, who did so well (no burns) did the same thing during her rads.

Sending many healing thoughts and prayers for your bil, as well as your whole family.

Paula

golfer779 · April 2008

Morning Jewels,

Took a couple of Lorazepam to sleep last night, but they worked, slept from 11:00 to 6:00 only one potty call. YEAH!!!! That was my best post steriod buzz sleep yet.

Jennifer, okay I think your right up there on the chemo brain list of goofy things we've done. I still believe driving to the school to pick up your dd and forgeting her takes the cake (whomever that was, escapes my memory at the momemt). Thank goodness it was a small tank, and tea hopefully cleans the floor decently. We've had the coffee pot "puke" on the floor a few times, not alot of fun when it runs off the counter down the cupboards, and in them.

Yep the pups we're pretty wired when we got home Sun night. We have a great dogsitter, she stays in our home, usually always leaves us cut flowers, (she works for the floral dept at the local grocery), she brings over her neice to play toys with Schatzie, I guess the neice get so excited if she knows Auntie is going to the wiener dog house.

Too cool about your autograph from ol' #63, a Colts wall huh? Sounds like a true fan. I'm thinking that your survivor parade will just about top any past walks you've participated in. Looking forward to a pic or two. The Race of the Cure walk is in Seattle in June, and the 3 Day Komen (60 miler) is in September. The local Relay for Life is usually scheduled for the middle/late summer as well.

Wathced DWTS last night, I'm kinda liking Sharon (I think thats her name) and Derek, I think I spend most of their dance watching him. Kinda like the blondy!!!

Paula, sounds like your tolerating the "T" so much better than your "AC". The women I met at my local "chemotini bar" yesterday is on your same regimen. I am still hoping that she might pop in to atleast check out what we have going here. She also was having a lot easier time, the AC kick her nausea butt bigtime.

I'm looking forward to the retreat today, a little nervous as I don't really know what to expect. This particular day is for all types of cancer patients, I could only assumed that with the "popularity" of bc I probably won't be alone on that one. I'll see if they will let me take a few pics, the grounds are supposed to be beautiful (might be a bit early in the spring), so we'll see. I think I'll leave my FUBC T at home today, just in case there might be the "old prude" in the group.

CathyCa, hoping that your appt with your new therapist was really helpful. I know that a few years back while going through a divorce (with a strange circumstance) talking it out with a counselor really helped the tough times, as well as when my mom died in 2000. It's amazing to me that some therapists just seem to know how to push the right buttons to make coping with things just a little easier.

Kimberly, hope you got some sleep last night (Valium for you isn't it?), may you fog be very thin and lifting before you know it this go around.

D1, positive thoughts to your family today.

Wendy, are you at the lounge as well today? Looks like you'll have great co with Sheebas and Joan, go get um gals!!!

Driving about an hour to my retreat today, have my directions, hopefully I don't have a repeat performance of my driving by my destination as I did on Mon. The dh wanted to stay home this morning to drive me out there, then come back at 4:00 to pick me up. Typically 24 hours after txt the se's are not as bad as tomorrow will be. I have assured him that I'll be fine, I'll be in the hands of a group of people that deal with sick people so if I have a "moment" I'm sure that they can help with anything! I'll be packing an Imodium just in case!

I'll be checking in tonight ... to all a good day,

Carol

Just downloaded this pic for the Washington thread (another gal had a pic of her "wiener"), thought I'd share a feel good pic, although Reggie wasn't too thrilled to get his belly washed after a walk in the wet!l

CarolC · April 2008

Wendy, Sheebas & Joan - good luck at the chemobar today! Won't be online much today but just wanted to check in to say hi and send good thoughts to all of you.

Still so appreciative of all the good advice and concern you have all been sending re. my employment situation. I'm feeling cauteously optimistic that something good will come of it. But in the interim, I'm busy getting resumes out and job hunting...

Kim - thanks to you and your dh for the cobra advice...I'll mention it to my lawyer when he sends me over the final draft of the letter today. I already sent my own money for April's cobra pmt. but we shall see what happens after they get the letter.

D-1 - prayers being sent for your bil's medical crisis.

Paula, glad to read you're beginning to feel better.

Tina - let's just keep hoping our midwestern weather begins to warm up - they're saying we're headed for a nice weekend.

..to all have a nice day.

Love you ladies!

CarolC

...and that Reggie is a real cutie pie, Carol!

SISKimberly · April 2008

Good Afternoon Jewels,
Well, so far so good. I expect that the fog will begin to roll in tomorrow. The rock in the gut is just starting to form…yippee skippy (not).

I’ve spent the morning outlining my decision to forgo radiation and HT for my oncologist citing all my research.
I’m mailing it to him in advance of my last chemo, so he has plenty of time to read, soak it up, and be prepared to discuss my aftercare plan knowing I’ve made up my mind.

Carol- Yeah for no sharts, but boo on the heartburn. Did you take a Pepcid before eating? That seems to help. The weird thing is as I get further into the days beyond my infusion, even water caused heartburn.

No problem taking over the Secret Pal thing. With your future months of tx coming up, that’s what you need to concentrate on.

Is Lorazapam the same as Valium? That’s what I took to sleep last night. What a help. I had only two potty breaks before getting out of bed at 8:30am. WhooHoo.

Can’t wait to hear about your retreat. Hope you have a great time without losing your way, having a shart event, or feeling too uncomfortable. I don’t know, you seem to have not trouble just sparking up conversation with just about anyone.

I’m with you on being unsure about Wendy being at the bar…not on the list above…but darling, if you are in today, Joan and Sheebas will keep you company.

Great pic of Reggie for your Washington gals with bc thread.

Jenn- That is a chemo brain moment!!!! Wow, thankfully it wasn’t more than the four gallons your tank could hold. And what a clean floor and counter you have now, on the positive side!

Glad you listened to your body and gave into to sleeping. Good for you, and the fact you feel better this morning just goes to show you were correct in just giving into it.

I will look for your items in the mail.

Thanks for not giving the DWTS away. I still have Monday and Tuesday’s DVR’s. My hubby isn’t into it, so I have to watch on my time. I’m hoping to get to it tonight before he gets home.

Paula- I am so glad you’re feeling better today, and that the T is much better on you than the AC. Glad the narc has helped.

Thanks for clarifying that you had a lumpectomy. And good for you and ‘your peaceful coexistence with your breasts current saggy state’!

The sharp pains are most likely surgery related healing. It can take months for damaged nerves and connective tissues to heal. My doc states sharp shooting pains are the nerves making connections or the connective tissues stretching.
Also for me, since my expanders are behind the muscle, I get muscle pain as they stretch.

I’m doing the Komen walk in May and Relay for Life in a few weeks. It feels good to do something that will benefit others. I’ve donated to Relay for Life for years, but haven’t been involved with the Komen walk. I look forward to experiencing that.

CarolC- I’m so glad that you’re feeling good about all that has transpired even though it can be unnerving being in that unknown state…but just remember that all is as it should be right now. I just know that all of this will lead to a much better situation down the line for you.

Well, I’m all caught up for now. I hate that it takes me so long to type these days. I am forever making typos I wouldn’t normally make. It is like my fingers and brain aren’t connected.

I’m off to shower, get my new lasty shot, getting my Vision board materials, and having a meeting with the boss at a local pub (not drinks for me) and a group of the ladies he wants to say thanks to for helping make his job easier this year. I’m not sure how I got on the list again this year since I missed most of the year, but do appreciate him so much for inviting me along.

I’ll try to check in later tonight.

SIS Kimberly

Jan 2008--Ain't it Great?

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