bone scan anyone?

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Jorf
Jorf Member Posts: 498
edited June 2014 in Life After Breast Cancer
bone scan anyone?

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  • Jorf
    Jorf Member Posts: 498
    edited March 2008

    OK, so it's 2 years now. I'm having some pretty amazing flash-backs every so often that I haven't had before. Was at work the other day and someone mentioned a 250 cc IV bag and I pictured it in my mind and suddenly I was back at the chemo room. Damn. Just little electric shocks.



    It's been a weird time altogether as I have sort of just celebrated "the end of it all" - cancer treatment and some major family issues that came out of it - and now am having a lot of emotion and fear that "it could all come back again at the drop of an eyelash".



    So, in the midst of it all I've had back pain for a couple of months. I'm sure that it's from carrying a heavy bag around Brazil for month - on my left shoulder (surgical side) of course. The right side of my back is painin' me. The biggest problem is that the part that doesn't come and go is tenderness centrally right over one vertebra. A couple of weeks ago I finally got up the nerve to call my primarcy care provider about it. She wanted to do all sorts of things - blood work, MRI. I had a regularly scheduled appointmenet with the breast surgeon the next day. She talked to the onc that afternoon and, of course, now I'm scheduled for a bone scan.



    I figure it's like every other test. Lots of things can show up on it that isn't what you're hopin' and prayin' isn't there and how much ordeal will that bring up - how many more tests, how many more sleepless nights? I'm 99.9999999% sure that this isn't cancer but.... And then there's all the other looking that might come from it all.



    Curious about other's experiences with "false positive" type lighting up on bone scan.



    Of course there's the whole compartmentalizing of "what if it is"? I think I'll just let that stay behind it's flapping screen door.



    Thanks for any thoughts/experiences.



    Jorf

  • Sierra
    Sierra Member Posts: 1,638
    edited March 2008



    Hi Jorf:



    I have not had that experience

    but I sure did want to wish you

    all the very best

    re the bone scan..



    think I only ever had one bone scan



    Im off and on forum



    You take care now..



    Hugs,



    :)

    Sierra

  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited March 2008

    I have had 2 bone scans.  I had 1 false postive. good luck!

  • 2up
    2up Member Posts: 1,358
    edited October 2008

    bone scan "queen" over here!

    i have reached the point where i no longer say aword about ANY aches or pains to my onc because the first place i'm sent is nuc/med for a bone scan.

    ........... unfortunately all of my positives were not false .......... but i'm thriving just the same!

    try not to stress ........... i wish you the best! 

  • Jorf
    Jorf Member Posts: 498
    edited April 2008

    The scan was today so we'll see sometime if my onc ever gets back to me....

    I was thinking while lying there: Everything becomes a crisis, every little ache and pain or twinge or tweak. It's absolutely a crazy way to live.

    The worst part of it was the television they had blaring in my ear the whole time - the weather 5 times in 1/2 hour???, One Life to Live???? Sheesh. Can no one just bear a little silence and less stimulation? 

    Jorf 

  • cmb35
    cmb35 Member Posts: 1,106
    edited April 2008

    Jorf,

    Hope you get the all clear. And yes, I'm not really sure why they think TV is going to distract us from the fact that we're lying in a giant machine to determine if our cancer has spread to our bones. I always ask them to turn the TV off if I can, but I do like when they have music.

  • Bugs
    Bugs Member Posts: 1,719
    edited April 2008

    Jorf,

    Sending hugs and prayers your way, chemo sister!  I've had one bone scan, was all ok.   Hope they get back to you with great results soon.

    Take care,

    Bugs

  • maryannecb
    maryannecb Member Posts: 1,453
    edited April 2008

    good luck Jorf

  • candie1971
    candie1971 Member Posts: 4,820
    edited April 2008

    Good luck jorf....my prayers are with you

  • Maire67
    Maire67 Member Posts: 768
    edited July 2010
  • Maire67
    Maire67 Member Posts: 768
    edited April 2008

    Jorf,   I had a similar Flash a few weeks ago while waiting to have my mammo.   I wasn't even anxious at the time...just annoyed that I was sitting in the hall with my one breast  in a icky blue johnny coat.    All of sudden I was back in the room where I had my sentinal node biopsy wire inserted.   Really weird...I started having heart palps...like a real anxiety attack I guess.      I ended up filling up with tears in the hall...unable to control it.

    I had a bone scan a year ago and I was lucky it was okay...hope all is well.

  • Jorf
    Jorf Member Posts: 498
    edited April 2008

    You guys are great. Maybe I'll hear tomorrow.... I'll call in the morning.

  • maryannecb
    maryannecb Member Posts: 1,453
    edited April 2008

    Any news Jorf? Thinking of you...

  • Jorf
    Jorf Member Posts: 498
    edited April 2008

    I FINALLY got to talk to my onc this morning. I was a wreck driving in to work and every time the phone rang I lost a few more heartbeats at the end of my life.

    Her word was that my back (which was the reason for doing this) is fine but that they saw some increased uptake in the right hip. She seems quite certain that "it's nothing" but I guess I won't believe it until after the x-ray tomorrow. Problem is, I've been having a lot of right hip pain that I know (for sure) is soft tissue - bursitis/tendonitis - but now my brain is all over the "hm, I wonder if that's what's causing this because I don't remember doing anything that would cause it and it's been going on for so long on and off" and on and on and on again.

    It's so hard! It sucks that the best case scenario is going back out again and trying not to worry until the next thing that would have been a nothing pre-cancer and is now a big crisis. UGH! Sometimes I really really hate this.

    Thanks for the rant - didn't quite realize it was coming. Looking forward to the big New England get-together tomorrow.

    I'll let you know about the x-ray.

    Jorf

  • maryannecb
    maryannecb Member Posts: 1,453
    edited April 2008

    Yeah, bursitis that sounds great!

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