How my Onc & Breast Cancer Just Saved My Life

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Wow, gsg, your story meant so much more than one of us just taking the plunge and encouraging the rest of us to do likewise! That just gave me chills, thinking about what could have happened if you hadn't followed your doc's suggestion! And since some of the chemo drugs we take for BC are also used for other cancers, thank God for their overall effects on killing malignant cells!

    Last year, when Tammy Faye Baker was dying in full view of the public and then Joel Seigel died from colon CA as well, I finally went for my colonoscopy, even though I dreaded the prep. Well, the prep, in my experience, was NOTHING and the drugs for the procedure were GREAT (same as I had had for my lumpectomy) and I was extremely fortunate in that the test found no abnormal tissue or polyps. I didn't realize how worried I was until I heard that result, though and felt so very relieved.

    I'm SO glad that you had the colonoscopy, gsg! You're extremely important to us here! Many hugs, ((((((my chica))))))

    ~Marin

  • gsg
    gsg Member Posts: 3,386
    edited March 2008

    Thanks so much for the nice words, Julie & Marin. You're both sweethearts.

    Marin, very happy yours came out normal.  I also wasn't completely aware of how cancer occurs and the gastroenterologist did a great job of diagramming it for me.  I think I always thought of cancer cells just occurring...not so sure I realized they start out as healthy cells that very slowly progress through many stages to become cancer.  I guess I could have figured that out if I had thought about the word "pre-cancerous" cells..but I never did.  So now I know.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Patrice, that was hilarious!

    Sheila and Binny, thank you both for your advice.   Binny, I'll definitely check out that web site.  I already have neuropathy in my right arm (from before bc) and I certainly don't need more problems there!  Thank you for your expertise!

    Tender, I'm so glad you're here.  I agree, 3-5 years before the standard age of testing does sound reasonable for us bc gals.  I will look into having it done when I'm 45.  Thank you so much for your wisdom.

  • JoyceJJL
    JoyceJJL Member Posts: 12
    edited March 2008

    Patrice  I am glad to hear they caught your polyp in time.  I just had a lumpectomy on my right breast and am having some problems,  But have been cancer free from my left breast since 1990. :)  It was a routine mammo that they found this one.  Its so nice to hear  that someone has had it found early, as with your polyp in your colon, I truly admire your upbeat attitude and your suggestions of having everyone have theirs checked early on.  Good Luck.  Joyce

  • Harley44
    Harley44 Member Posts: 5,446
    edited March 2008

    Angel,


    I was 43 when dx'd, and my surgeon says I need to get the colonoscopy NOW!  He only waited this long, because I had the surgeries, and got chemo...  so like I told him, "Haven't I been through enough?"

    Yep, we young'uns have to get scoped EARLY!!

    Harley

  • dhettish
    dhettish Member Posts: 501
    edited March 2008

    Hi Patrice,

    Wow, glad you got it in time. Glad you took the advice of your docs. I will be 50 in June and planned on a colonoscopy. How long do you have to wait after chemo before you can have one. I plan on talking to my onc about it when I see her on 4/8/08. That way I can get her to give me a referral. I know I have to wait 4 months before I can have a pap.

    I just plan on getting everything all checked out. Had complete blood work, had the Muga and CXR. Now all I need is a pap and colonoscopy. I also want to get a pelvic u/s since I was told 5 years ago I had small cysts on my ovaries. My bc started in a fibrocyst in my breast so I am not going to take any chances.

    Beside, the deductible will get me so it will be less to pay when I go for my recon. Nice when insurance begins paying 100%.

  • mke
    mke Member Posts: 584
    edited March 2008

    Thanks Patrice, for both the story and for the laughs.

    I had no idea that BC increased the chances of colon cancer.  I've had one but it was a while ago.

  • dlhs
    dlhs Member Posts: 27
    edited March 2008

    Thanks Patrice - great advice for everyone. Had the dreaded colonscopy in February and really not as horrible as everyone told me. Later in February Dave Barry wrote a column about his and it is HYSTERICAL. Check it out at: http://www.miamiherald.com/418/story/427603.html

    ENJOY!!!

    PS. Had to drink that nasty GoLytely stuff - I added a packet of lemonade Crystal Light to each glass of it and that made it a little easier to choke down. The directions said not to add anything but water to the mix but I did and the doc said it was fine.

  • wackyjackie
    wackyjackie Member Posts: 669
    edited March 2008

    Patrice,

    I'm so happy for you that it was all caught.  Thank you so much for sharing your story.  I am scheduling my appointment right now. 

    Hugs, Jackie

  • TerryNY
    TerryNY Member Posts: 603
    edited March 2008

    Patrice, just giggling over your stories!  :-)

  • candie1971
    candie1971 Member Posts: 4,820
    edited March 2008

    Debi...roflmao...what a funny article...thanks for sending it our way..it is so true. I agonized for 5 years before I had it done and then that was it....it was over...I am quite proud of myself for going thru it. One of my co-workers told me how good I would feel when it was over and she was right...in more ways than one.

    Hugs and prayers,

    Candie

  • deborye
    deborye Member Posts: 7,002
    edited March 2008

    I had my colonoscopy 2 years ago, found a small polyp, B9, so I have to go back in 3 yrs. (which makes 5).  Got to drink and gag on that thick sea water and read a magazine on the hopper, good way to loose some weight. Trouble is I have a long and twisty colon, the hose or what ever the heck it is could not reach the cecum, so I was told I had to go back and have a barium enema with air contrast to see what they might have missed.  Got to watch on the monitor that stuff go in and all around my colon, bright white stuff, lite my insides up. P.S.  didn't fine my head! LOL

  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited March 2008

    Wow, a happy ending (literally) for once!

    Janis

  • gsg
    gsg Member Posts: 3,386
    edited March 2008

    LMAO!!!!! Funniest article EVER, Debi!  I went beyond laughter and right into a cackle.   Thanks for the link!

  • althea
    althea Member Posts: 1,595
    edited March 2008

    Great thread patrice.  I can't help but wonder if that thumb in your butt is the reason you've been feeling so out of sorts for the longest time.  Crossing my fingers that you'll be feeling on top of the world soon. 

    <> 

    <>As I was reading through this thread, I was wondering if my oncologist knows about the increased risk of colon cancer due to my bc history.  I seem to have a divining rod that leads me to dipwit doctors....  except that maybe dipwits are as good as it gets where I live.  My father died of stomach cancer at age 40 or so.  Every doctor I see knows this piece of family history.  No one has recommended I get a colonoscopy. 

    <>As far as I know, stomach cancer and colon cancer are not the same thing, but given my experience with local doctors, I have to wonder about my quality of care.  Just two months ago my oncologist seemed so puzzled that my gynecologist ordered bloodwork on my thyroid.  For 2+ years I've complained every single time I see my oncologist about fatigue.  Lo and behold, my TSH is 6.4, indicating hypothyroid status, and my onc asked ME why did my gyn order the test.  I was about ready to knock his block off and scream why didn't YOU order it a long time ago??  I'm clearly out of whack with my thyroid!   Someone should just open up a resource library and have do-it-yourself medicine clinics.  We'd probably all be better off.  <end of rant>  sorry to digress

  • gsg
    gsg Member Posts: 3,386
    edited March 2008

    LOL.  Puts a whole new spin on "thumbs up."

    I agree with you, Althea....as frustrating as it is, often we end up doctoring ourselves.  I'm happy with my onc, though.  He's one who listens and doesn't blow off my thoughts...my only fear with him is I know he wants to retire and I'm not ready for him to.

    I'm glad your thyroid problems are being addressed....now get your rear in gear and make an appt for a colonoscopy.

  • beergirl
    beergirl Member Posts: 334
    edited March 2008

    gsg - head of art dept at my university used to take slides from biology dept, project them on very large canvases and paint them in brilliant colors.  I think he won awards with these.

  • gsg
    gsg Member Posts: 3,386
    edited March 2008

    Interesting....I could see where they would be beautiful.

    p.s.  i love your screen name!   

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    gsg--I have a family history of both bc and colon cancer (my mom has had both), so I had my first colonoscopy at 46, about 7 months after bc diagnosis and lumpectomy. Had a very small polyp removed--benign--and have to go back in 5 years (next year) for the next one.  The test itself was nothing--had conscious sedation and didn't feel or remember a thing--but the prep was unpleasant.  Hoping I can drink the smaller prep this time. Interestingly enough, a genetic counselor told me no genetic link between bc and colon cancer, yet my oncologist says they are called "cancer cousins".  So glad you got it checked out and you are doing well.

    Anne 

  • TerryNY
    TerryNY Member Posts: 603
    edited March 2008

    When I had my genetic testing done and after reviewing my family history, the person commented on my cousin's lymphoma (sp?).  She says the experts won't claim a connection...yet.  But she says due to the numbers involved that she deals with on a daily basis with families showing both BC and lymphoma, she's convinced there's a relation. 

    Makes one wonder what other cancers are 'cousins'.   

  • althea
    althea Member Posts: 1,595
    edited March 2008
    patrice, I only wish my thyroid problem was being addressed!  Long story short, I am getting NO help from any of my medical professionals for my thyroid imbalance.  I have turned to natural healing for my answers.  I'm not real good at following directions to the letter, but even with my halfway following a 'beginner's kit' of products, I am finally feeling better.  ...speaking of which, you dodged my question.  Are you feeling any better?
  • gsg
    gsg Member Posts: 3,386
    edited March 2008

    Hi, Althea.  I'm still having my up and down days, but I have a lot of stress in my life and so it's hard to sort out if it's only the post-treatment blues or maybe if I didn't have all this stress, I'd be fine.   Someday I hope to have the luxury of finding that out.

    Re your thyroid...your levels aren't straightening out now that you're on synthroid? 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Patrice, first of all I want to say that I'm sorry you're still having your "ups and downs."  You still have that wonderful sense of humor.

    I just wanted to say that I too went out to eat at IHOP after the test.  I hate pancakes with strawberries on them and I can't remember what else.  Soooo fattening!  Well, as soon as I got home I lost all the pancakes.  At least I enjoyed eating them before the calories set in!

    Oh, one question for those who took the pills.  I took them also.  However, it took a while for them to work (I have problem in that area).  Therefore, I was up during the night and then had to get up EARLY the next morning to start pills again.  Thought I wasn't going to make it to the doc's office.  So, do you think by drinking one of those "beverages" that it works faster?

    Shirley

  • althea
    althea Member Posts: 1,595
    edited March 2008

    patrice, I know what you mean about stress and all the other variables that could be the culprit behind our malaise.  Long before my bc dx, my marriage was unravelling.  Stress really did a number on my concentration.  I'd forget things I don't normally forget, I'd make stupid mistakes in my checkbook.  One time I was driving along and realized I couldn't remember if the light was green on the intersection I just went through.  I think it must've been, but I wasn't sure. 

    <>Now that I'm a bc survivor, I'm sort of glad to have some frame of reference as to what stress can do to a person.  Its effects can be considerable.  As if you don't already know that!  I find meditation helpful, keeping focus on the present moment.   I've run the gamut in trying things to kick fatigue to the curb.  It makes me concerned that something is lurking within me that shouldn't be there.  Now that I know more about thyroid issues, I really think I've been suffering hypothyroidism since radiation.  To date I am without treatment from my medical professionals.  No synthroid, nothing.  I've been spitting nails over this for months, but I think I'm finally finding relief through alternative methods. 

    <>I'm glad to be more aware of increased risk of colon cancer as a result of bc.  I'll have to investigate if my crappy insurance would pay even one dime for it.  Is it considered a preventative measure, like a pap smear?  I get zero coverage on pap smears.  

  • gsg
    gsg Member Posts: 3,386
    edited March 2008

    Shirley:  Thanks for the kind words.  Humor got me through treatment and humor is what I hang  onto to get me through most days.  But I have to say YOU make me LOL...i LOVE your sense of humor!

    The way the drink I took worked was no solid foods all day...I took a couple pills at noon, then had to wait for something to start to happen, which was about 6 hours.  At that point, i had to drink the liquid salty pukey water....ten 8 oz glasses.  It didn't take long for everything to basically explode.  I was up going through the night as well, but by the time I got to the endocenter I was clean as a whistle.  I'm not sure why my doc prefers his patients to drink the stuff vs. pills...maybe the whistle isn't quite as clean with the pills.

    Althea:  I don't know why I thought you were on the synthroid.  I'm remembering your previous comments incorrectly and so I'm gonna chalk it up to chemobrain and not my stress.  I would think that after age 50, your insurance would cover colonoscopy, but you better check.  I don't understand why they are not giving you synthroid with a TSH score like that.

    I'm sorry you, too, are under a lot of stress.  Mine isn't my marriage...it's other things.   No matter, though...it really is no way to live...especially after dealing with cancer.  My work and this board serve as distractions for me from my nervousness and anxiety.  I used to swim every day and one of the reasons I stopped was because it gave me too much time to think..if that makes any sense.  I need distractions at this point or I'll lose it. 

    I hope you are able to get the help you need for your thyroid and also getting the colonoscopy. 

    take care-

    Patrice 

  • chemo072
    chemo072 Member Posts: 682
    edited March 2008

    re: the Dave Barry article link....roflmao, laughed so hard I was crying and could barely read the article, many thx for posting it!

  • New2This
    New2This Member Posts: 23
    edited March 2008

    Okay, thanks for the thread, butt. . . .

    Just DX last week.  Already sick of being "sick" and really wasn't needing to hear I'm at risk now for more, but glad I did.  Haven't met my onc yet but as soon as I do I'm asking about the colonoscopy.  The good thing about being sick and going through diagnostic stuff is that for as long as it takes them to figure out what you DO have, you learn a lot about what you DON'T have, and as far as I'm concerned the more things on that list the better :)

  • iodine
    iodine Member Posts: 4,289
    edited March 2008

    Yes, you will be a bit gassy and I don't recommend going out anywhere---some of the gassy bits may not be, ah, colorless???

  • JapanLynn
    JapanLynn Member Posts: 471
    edited March 2008

    Great thread, Patrice!  I had my first colonoscopy at 52, right before finishing radiation in Nov.  I drank the nasty liquid stuff...seemed to work REALLY well, without going into details.  I was put to sleep and all was well, until I became conscious briefly to hear the dr. say, "Wow...it's dirty up here."  Ack...went back to sleep from the embarrassment of it all, I guess. :-) 

    When the dr. came in to talk to me, he told me I had a very long and winding bowel (tortuous was the term he used--not to be confused with torturous--yuck, yuck).  The upshot was, I have to go back in three years for my next drain snaking, and because I wasn't cleaned out this time, I'll have to do double the prep.

    I can't wait. :-)

    Lynn 

  • gsg
    gsg Member Posts: 3,386
    edited March 2008

    Whoa....I'm having a hard time wrapping my head around a double prep, Lynn.  Good luck with that.

    Dotti:  LOL.  I can vouch for this.

    New2This:  Good luck to you as you begin this journey.  The more info you can arm yourself with, the better.  We're all here for you to help you along the way. 

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