Jan 2008--Ain't it Great?

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  • JulieK_11_30_07
    JulieK_11_30_07 Member Posts: 260
    edited March 2008

    Hi Gems -- just a quick post tonight wishing minimal se's and uneventful tx's to all of our chemo warriors for tomorrow -- it'll be busy at the bar! I'll be waiting in the "mist" for you all. ha ha ha

    I had #5 today - everything went fine. Dh and I spent about 2 hours at Alltel after my tx changing our phone plans, then went to dinner at Cracker Barrel - I was craving their grilled cheese!

    Getting pretty tired -- hopefully I'll be able to check in tomorrow - our Internet has been acting up tonight - I'll go insane without it!! Hope everyone is doing well!

    {{{{HUGS}}}}!!!!

    Julie

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  • Vz_mom
    Vz_mom Member Posts: 63
    edited March 2008

    hi ladies...just wanted to thank you again for the help and advice and example you've set for me, and for several of the March ladies I've sent this way.  The Mar 08 thread is getting to be pretty chatty and helpful too, and I think it's much to do with your example.

    Vettegal, would you share the name (screen or real) of the lady you met and sent to the March thread?  I'd like to make sure she gets welcomed specifically, since it can be intimidating to hop into the middle of something that looks established.

    may your water be sweet, and the fire within remain a metaphor.  sleep well...

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  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    Kalen, just taking a quick look tonight before bed, glad to see your post, hoping that your doing okay, glad to see your support to a fellow March gal as well. 

    I'll be in touch when I return from AZ on Sunday, I'll be at the chemo bar on Tues April 1st, so after I re-group I'll give a call.

    Quickly "pooping" out tonight, been watching college b-ball this evening (Washington State got whooped), we have a early get up to golf at 8:30:00 am tomorrow, I'll be checking back in tomorrow evening.

    As my dh would say to me "you go girl", so to you all, "you go gals".  Seems to help pump me up on a daily basis!!!

    Carol 

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  • vettegal
    vettegal Member Posts: 287
    edited March 2008

    Hi Ladies-been up since 1am. Could be the steroids or the nerves, Darn, probably both!

    The screen anme of the girl iI met is Colleen_2008. She is great and I hope we stay in touch.

    I am going to ask m y dr today about teh bcra test. I have just found out on my dads side sister-bc-spread to brain died..brother cancer-..other bother cancer--brother heart attack.Moms side-sister leukemia-cousin panceratic/liver..mom/sis you all know..I am surrounded...oh my!

    Wish me luck!

    Chat later

    Patty

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  • RN2teach
    RN2teach Member Posts: 312
    edited March 2008

    Good morning,

    Love this steroid buzz-NOT! I've been awake since 4:30am. Just gave up on returning to sleep and decided to get up. I really shouldn't be having coffee-last thing I need right now is a dose of caffeine on top of Decadron. But I'm having it anyway! I haven't had to avoid it with Taxol like I did w/ AC. I drink Gevalia coffee-highly recommend it if you're a java connoisseur.

    PALady- how are the toes doing? Hope they're recovered from Vegas!

    I see you're starting rads next week. I'm having 25 treatments, too. I'll have the whole boob irradiated in all 25 and the last 7-8 I'll also have an extra zap to the tumor bed. Is that your treatment plan?

    Jenn- I am so very sorry to read that your friend isn't doing well. I'll be praying for him and his family and for YOU as well. It can't be easy to see someone losing their battle with cancer while you're in the middle of fighting your own.

    Wow, they actually capped your well? We aren't being forced to change to city water, but I will definitely be signing up. Our water tastes good and passes all the public health tests, but something about the salt filtration is eating up our faucets and I figure if it's doing that to the pipes it can't be good to drink!  Anyway, we have to run our own lines to the meter. When we do that, we'll run lines from the well to the outside taps so we can use it for watering flowers, washing cars, filling up the pool, etc. No use paying the city for that kind of thing.

    Sheebas- hey there, Judy! I have been worried about you, girl. I'm bummed that you're having a hard go of it since your last chemo. I'm one of the ones with the wicked cough for about 6 weeks. There were a couple of weeks there where it was almost constant in the evenings and at night-had to sleep in the recliner and turned to whiskey to get some relief. (It is nasty, but it worked). I'll be adding special prayers for you, my friend. Keep us posted on Monday's appointment when you get the chance.

    Sheshe- whoa! Sure glad you spotted the problem w/ your picc and got it treated. I'm praying that that's the end of that story as far as infection goes!

    Kathy- you're not a bad mommy, just a tired mommy! Ditto what Kimberly said-SHERO!

    Julie- wishing you NO se's from this round-hey' you deserve a break today (hmm, wasn't that a commercial back in the day?). Hope the dang cough lets up, too.

    Hmmm, so I sent the cough west and the mucus east... I went thru so many tissues that I boosted the share price for Kleenex. I SWEAR I washed my hands b4 I touched the keyboard!

    Tina- so, you're getting new boobs for your birthday? There's something to look forward to, eh?

    Kimberly- sounds like your day at school was a real treat. I know you're missing your students, and they are definitely missing you. I can imagine your sunny smile and positive attitude in the classroom-you're the kind of teacher every kid needs!

    You're off to Tahoe today? Have a wonderful trip! Check in if you can-we're loving these virtual vacations!

    Kalen- nice to see you! I'm glad the March08 group is a good support for you all. Thanks for the quote at the end of your post-very nice!

    Carol- watched the hoops last nite as well. My Mountaineers lost, too... Happy golfing today!

    Dana and WVgirl- race you for the best chairs in the chemo suite today!

    Peg and Vettegal- I'll pick up the tab since this is your last round!

    ds has a ballgame this evening (weather permitting). I'll try to check in tonight and let you know how round 2 of Taxol went-I'm on alert for that whole reaction thing many of you experienced w/ this round.

    CU Later, Paula

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  • peg1212
    peg1212 Member Posts: 48
    edited March 2008

    Good Morning Jewels, hope everyone has a great day no matter what they may be doing, good luck to WVgirl,Deb102307,RN2Teach, and Vettegal with treatments today.  I go today as well and this is my forth of six, hope it goes as well as the last three.  I hope tonight I get some sleep because those steriods sure keep me up last night I think I got 3 hrs if i was lucky.  Well off I go, have to take my son to breakfast and then off to school.  Take care

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  • KathyL
    KathyL Member Posts: 534
    edited March 2008

    Good morning Jewels!

    I'm slowly getting better.  Slept pretty well last night and have only had to use 1/3 box of tissues so far this AM-- hahaha!  Today my teeth hurt-- probably from all the sinus pressure.  Don't know how anything could possibly be stuck there after all the runny nose and nose blowing I've been dealing with, but whatever!

    Thanks for all the kind words about not being a bad mom.  dh really doesn't get that part-- I think only other women/moms do, and it's a constant source of guilt for me.

    Hope everyone entering SE-land gets a break and can coast on through.  Just remember... next weekend will be better regardless (that's the only way I could talk myself into it each time).

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  • Jenn51
    Jenn51 Member Posts: 94
    edited March 2008

    Good Morning Jewels,

    Just a quick shout out.  I'm supposed to be working but couldn't resist a quick peek and here I am.  It's still dreary, I'm still down but gotta keep on keppin'on.  After bragging that neuropathy hadn't come to visit me I wake up today with fingers & toes that don't feel right.  Little tingly, little numb.  So, if any of you are not experiencing a se, DO NOT brag about it.Frown 

    1 cat is on the scanner & 1 dog is at my feet.  If I can't see at least 2 of the 5 at any time something's wrong.

    I have my IPod playing Neil Diamond.  He can always make me feel better.  I have been forgetting about using the ipod around the house.  Just took it places.  Crazy since we don't have a real stereo system.  Maybe that's what been missing in my life, music outside of the car.  All I have to do is remember that if I try to sing with it the outside world can only hear me, no music to cover some of my sour notes.Wink

    Judy, I am sooo sorry the ses are hitting bad this time.  I'm on with this cumulative thing.  But the worse they get, the closer we are getting to the end.  That cough would worry me too.  I'm not sure I understand all of your diag. but it sounds like something to stay on top of.  Tell me, is it the problem with the Canadian health system that you are seeing a doc so far away & so far behind on your appts.  I have heard stories, some from Canadians, but you never know if they are exaggerated or not.  I take it for granted that all of my doc & hosp. are within a 10 mile radius and I've never had to wait more than a couple of day for an appt with an established doc.  My prayers are with you.  I know you don't look forward to that long drive.  Heck, I can get to my kids in Milwaukee in 320 miles.  Makes them seem down right close.

    SheShe48, Good catch on your arm.  That could have gone South real quick.  What will they do now, put in another picc, a port or go iv for the duration.  I'm sure this was in your good arm so you don't have the other side as a choice.

    Patty,  Just seeing his name, TS, makes my blood run hot.  He is aging well too.  Gained a little weight, but haven't most of us.  I also like those Jesse Stone TV movies that are on once in a while.  Magnum is out on DVD now.  The kids have gotten me the 1st season but I want them all.  It's bad when the current TV selection is so weak we all run to buy reruns of the good old shows.  When Magnum was on I always had the calendar for the season at my desk at work.  The 2 gals I worked with were also fans, so at the 1st of each month we would have a drum roll to turn the page & see what this month's pix was.  That was a big moment!

    KathyL,  Don't feel the least bit bad about wishing your little ones back to school.  I would wager that all of us moms have done that when there wasn't anything else going on in our lives.  I know I did.  And Easter, just talking to & watching my 3-yr old dgs wore me out & dh & ds were the ones taking care of him.  I can't imagine being "Home Alone!" with them all week.  You moms are real SHEROS in my book.

    Tina,  I guess my eating without tasting hasn't done too much damage.  From the beginning until a week ago I had only gained 6 lbs.  And when onc put me on diuretics I lost the 6 in 1 week.  Fingers still feel a little puffy, but it's only been a week.

    SisKim,  OK, I'm holding you to it.  Spring will arrive in 1 huge, gift-wrapped package & will wash the memories of this gray world from my brain.  I'm so envious of your trip.  1stCarol, now you.  We really don't have anywhere to go & dh can't get off work ‘cause he covering for me & with the new software system someone has to be there to keep an eye on the youngsters.  (Don't get me started on the work ethics of the younger generation.)  And if we did I would have to drive because of his eyes.  I might manage energy to ride somewhere, but not drive.  I'm holding out for a flight to FL for a few days when chemo is done to see my cousin.  It's a silent dream for now but maybe when tx ref comes in I can ask.

    You have to joke about letters about mammos.  So much is done by computer these days it's easy to miss an update.  I would have done the same thing.

    Paula,  I'm glad you have the option to keep your well.  It stands to reason that you would have more minerals in your water than we do.  There is nothing to mine around here except for limestone.

    Well, I better get some work done.  Good luck to all at the bar today.  D1, I'm praying for a small needle.  I've got plenty of numb places on that side, maybe they can stick you in one of those.  I'll check in later.

    Love & Hugs,

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  • chj127
    chj127 Member Posts: 382
    edited March 2008

    Wow, this is a busy group!  It's hard to keep up. 

    This is day 3 for me, following tx#4 - feeling a little shakey and a little achy, but not too bad.  The weekend will be worse, I know, but hopefully it will get quickly better after that.   Paula - I know what you mean about the steroid buzz - I hate not being able to sleep.  It seems that I can GO to sleep, but I can't STAY asleep.  I woke up at 12:30 this a.m., and popped a Tylenol PM, and got back to sleep within an hour and slept all the way to 6:30, so I'm considering that a success.

    OK, am I the only one leaking brain cells?  Twice now I've made the wrong payments on my on-line banking.  One caused a payment to be missed, and this month I overpaid the phone company by $179!!  Jeez.  I never did stuff like that before.

    To all of you getting treatment today, I wish you the best.

    Spring is just around the corner.  We're supposed to have 60 degrees today, though a little rain later.  It feels spring-y outside.  I need that!!

    CHJ 

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  • Wing
    Wing Member Posts: 34
    edited March 2008

    Good morning Jewels,

    I guess I spoke to soon about it being spring in Mass. yesterday the street sweeper came and today there sanding the roads because its snowing, 3 inches so far and its not letting up. Typical New England don't like the weather just wait a minute it will change.

    Kim, Have a great trip it will be so good to get away from it all for a few days.

    Looks like a crowd at the bar today hope all goes well for everyone.  Congrats to Peg and Vettegal on last tx's woohoo!

    Kathy, My heart goes out to you and the other moms with little ones I don't know how you do it, I know I couldn't keep up them.  SHERO"S.

    D1, Hope you get the little needle today and all goes well with the draining.

    Sheshe, How scary, your lucky you caught that infection early before it got out of control hope your feeling better and watching your temp.

    Julie, glad your spending less time kneeling at the porceline throne and able to get out a little bit.

    Have a great day everyone!

    Wendy

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    d326, when I was first diagnosed (dx'd), I did a lot of research on various treatments (tx). Googled all the chemo protocols (TAC, AC + T, dose dense (every 2 weeks) vs every 3 weeks, CMF, etc.). You can find information online to "prove" that each type of tx is superior. Here's the point I reached: I may spend 20, 30, or even 50 hours online doing research. I still don't know jacksh*t compared to my onco., who had 4 years of med school, 4 years specialty school (at least), and at least 10 years of experience treating patients. I got to a point that I ask questions, but I trust his judgment and experience. He's been right so many times over these past months, I have no reason to doubt him.

    So my best advice to you is read all you want online, ask HIM what questions you have, and to me the most important question is: based on my specific cancer type, what is the best tx protocol? At one point my onc. said something about some tx being "easier" in terms of side effects. I told him, "It's not about staying within my comfort zone, it's about killing this cancer."

    So dose dense (ACx4, every 2 weeks) is what I did, and it was because he believed it was the best protocol for my cancer. Particularly compared to every 3 weeks. In my case, being Her2/Neu positive, he selected AC followed by Taxol, which has large studies showing effectiveness when taken with Herceptin, which is what I'm doing now. Initially it was to be Taxolx4, every 2 weeks like the AC, but with the pathology report coming in as Her2/Neu +++, the studies showed better results going with a weekly T + Herc. tx. I'm all for what the studies show.

    One other thing to consider is that doing 3 chemo drugs on the same day can make for a longer infusion. They do one drug at a time, they flush with saline between drugs, and they also infuse premeds like Aloxi, Decadron, etc. Plus you get more side effects (SEs) to deal with on top of it.

    Please feel free to visit the thead and contribute often. All are welcome here.

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  • SISKimberly
    SISKimberly Member Posts: 762
    edited March 2008
    Morning Jewels-
    The sun is shining, there’s a slight breeze and chill in the air, and some dark clouds threatening to rain on my parade, but that’s OK, we need the rain, and it won’t last long.

    Julie- Glad you had the energy to check in and wish our warriors well at the lounge today.  Hope that internet cooperates as I can’t imagine a woman going through chemo se’s and Jewel withdrawals all at the same time.

    Kalen- Hey Kalen…so good to hear from you.  You sound good!!!!  I’m so glad that your March group has been inspired by the Jewels…we do just twinkle and sparkly don’t we?  Hahaha.  Also, glad that you’re wishing Vettegal’s new friend Colleen a special welcome to the boards. Paying it forward-interesting how our Carol was your personal connection and now you’re reaching out to a woman whose name begins with C. There is something very synergistic about that. 

    Carol- Hey, that’s an early golf game…you’re already up and on the course (it’s 9am as I type this). Hope your boob in a box gives your swing an advantage…a little added leverage maybe?

    Vettegal- I am so glad you’re going to ask about the BRCA testing…wow, your family tree sure does have a lot of cancer.

    Up early…a little excited that this is the last one maybe?  Man I would be, too.  Bubble Party for you!!!!! (Robin Robert’s oncology nurses blew bubbles at her when she was done).

    Paula- Another early bird, eh?  I’ve heard of Gevalia coffee…you have to order it online right. You just can’t buy it in the store.  Tell me what makes it so yummy compared to other coffee?

    Again, you crack me up. “Hmmm, so I sent the cough west and the mucus east... I went thru so many tissues that I boosted the share price for Kleenex. I SWEAR I washed my hands b4 I touched the keyboard!”  I think my cough, which is usually in the morning is just post nasal drip.

    What a great idea to use your well water for stuff outside. Not paying the city for water use to fill the pool, wash cars, and water plants is brilliant….and like Jenn pointed out, if anything should ever happen with the city water, you have your well as backup.

    Be careful those nurses don’t scold you, wvgirl, and Dana for running indoors. Hahaha

    Peg- Wishing you an se light infusion today. Aren’t those steroids annoying with the whole not letting you sleep thing?  Nap in your chemo lounge chair and try a Tylenol PM tonight and taking your Decadron pm dose in the late afternoon like 4 or 5pm.  Breakfast out with your son before school…that’s so cool!!!!

    Kathy- Glad the mucus machine has slowed slightly, but teeth hurting?  Isn’t that usually a sign of a sinus infection?  Have you done nasal cavity rinses?  I know, gross, but it works to keep those passages from allowing bacteria build up.  Glad you’re coming out of the fog, and you’re right about the ‘Next weekend will be better’ mantra.  Take care of you!!!

    Jenn- Furry pets and Neil Diamond…who wouldn’t smile and just feel good with those two things goin’ for you?  OK, add Tom Seleck to the list, and we should all just be downright puddles of feel good.  He is yummy isn’t he?

    I couldn’t agree more about the poor selection of quality TV. We rent series from NetFlix. We’re into the Rome series from HBO. So good.

    Bummer about the fingers and toes not feeling right.  OK, I won’t brag on anything I haven’t experienced yet since I still have two more rounds to go, and therefore, still have the opportunity to experience so much more. Yippee (not).

    OK, I’ll make sure to have it wrapped and delivered at the perfect time!

    I’m crossing my fingers that you get that trip to Florida to visit your cousin…you deserve it after all you’ve been through this year.  Man, I hear ya on that whole young people and work ethic issue. My sister is a regional manager for TJMaxx, and she tells me stories that just make my jaw drop.  I see it in the classroom as young as 7th grade with the lack of preparation for class- no supplies, no work completed, and if it is done, it is so sloppy it’s hard to read. A good 1/3 fall into this category. Sad!

    CHJ- Good to hear from you, girl!!!! I know the weekend is going to be no picnic with the fog rolling in and all, but like Kathy said, “Next weekend will be so much better.”

    I haven’t done any major financial screw ups yet (knocking on wood right now). Hopefully, the one you missed it understanding, and just think, the phone bill next month will have a nice big credit!!!

    Wendy- Spring is playing games with you all in the East, eh?  Like I told, Jenn, it is coming, just taking its time in order to make a grand entrance.  You sound good.  Have a great weekend.

    D1- Thinking of you today as you get that cyst drained.

    Wvgirl, Dana, Peg, Paula, Deb, and Vettegal…go kick some cancer booty today.

    I’ll try to check in this afternoon before I leave, but it may not happen.  If not, I’ll catch up on Monday.

    Love you all, gals.  You truly brighten every day for me.Cool

    SIS Kimberly

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  • KathyL
    KathyL Member Posts: 534
    edited March 2008

    Took the kids to the grocery store this morning.  How's that for entertainment??  Actually managed to find everything on the list (a challenge with chemo-brain and 2 kids in tow), and get out of the store in under 2 hours-- and bonus-- I didn't leave the kids there :)

    I've decided to do a study at my cancer center-- sounds interesting, and I want to give back.  They are doing group counseling sessions for early stage BC patients to see how it helps women and their husbands/partners' coping.  We'll actually get paid for talking!  Sounds like a dream to me.  dh is not as enthusiastic, but so far he said he'll go along.

    LJ: beautifully said, girl!

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  • Determined1
    Determined1 Member Posts: 806
    edited March 2008

    Well, well, it was a chatty 2 days.  Shouts first.

    Wendy--Sitting beside a pool with an ice cold frosty?  Ummmm.  Can I come to your house?  (Okay, wait till it stops snowing!)

    Oh Carol, you are SUCH a hottie!  Thanks for the pix.  Please enjoy your cation.  We'll all get our day in the sun (looks like you're getting a weeks' worth--lucky duck), so smile girlfriend.  And please don't expect me to check in at all when I take my turn!  :)

    SIS Kimberly--Hope you learned a lot yesterday, in addition to collecting all those hugs from your students.  AVID sounds like a cool program.  It makes me wonder if we have something like that here...

    You know, all those steroids make us a little swollen, but I've noticed that it doesn't seem to be going down on me this time.  Yes, the elastic marks have been a giveaway for me.  But I'm also noticing that I can't see my ankle bones anymore and it kinda hurts to walk sometimes (I try not to let it stop me, though).  Its funny, my ankles look more swollen than the areas where the le is a problem.

    Have yourself a great time in Tahoe!  And, boy, you had me LOL with your letter about the mammo.  :)

    Paula--Hope you get some sleep tonight after watching the ds pitch his heart out.  And what's with the Mountaineers?  The HAD that game!

    PALady--Yeah, I think the compression jeans are all the rage around these boards!

    Jenn--Sorry to hear that you've been a sapphire lately.  And to add your co-worker's situation doesn't help.  At least you still have your sense of humor.  You had me lol that boasting about not having a se is a sure-fire way to get it!  (How true.)

    Judy--Another sapphire.  That tx#3 has kicked a lot of us in the teeth.  And "the cough" to boot.  I know its a long drive to the onc, but its probably a good thing to check everything out.  Burn a good CD and sing all 500 miles.

    Sheshe--OMG!!!  My fingers are crossed that there's no infection.  Will they put your picc line back in for the remainder of your tx?

    Vettegal--How awful for your chemo suitemate.  Good thing you brought her to the Boards--sounds like she'll need the support.  Oh, and you sure sound like the BRCA test poster girl...

    Dana--I got one of those mammo time letters, too.  Unfortunately, I wasn't feeling as spunky as SIS Kimberly at the time, so I just pitched mine...  Hope you're doing okay today.

    KathyL--I know I could not handle little kids a week after tx4--you are simply amazing!  Or as SIS Kimberly would say (and did as I continued reading the thread) you are truly a SHERO!!  Get rid of that cough!

    Hey Julie, don't get lost in the mist for long...

    Kalen--How good to see you dropping by!!  What a good egg you are to welcome Vettegal's suitemate to your thread.  Hope you're doing well.

    CHJ--Hang in there.  It does sound like you have a case of chemo brain, though.  Maybe the dh should handle the bill paying for a while...

    As always, good job, LJ13!

    So, here's my deal.  I went to see my surgeon's partner today for the cyst draining.  Met a friend for lunch beforehand and had a glass of pinot gris, just to prepare!  Anyway, doc felt the spot and then examined my MRI.  She thinks its probably scar tissue.  Even if it's not scar tissue, she didn't drain it because I have le and inserting a needle in my le zone risks infection and le complications.  Her advice was to go ahead and start rads on Monday.  If the rads cause the area to swell and its apparent that it should be drained, we'll take the risk at that time.  That will mean a break in my rad schedule, but she thinks that's a more prudent way to go for now.  So no needles today (you guys clearly have STRONG thought waves.  You were going for a small needle, but I didn't get one at all!  Thanks, gang!).  This doc did say that if it is scar tissue it should soften with time, suggesting that since I'll be radiating the area it will probably be 2 years (!) before I notice the softening.  That's a long time not to be able to put my arm by my side, but like all my other permanent aches and pains, I guess I'll get used to it.  One thing that made me happy with this is my babydoc called me both yesty and today to update me on what he and my surgeon's partner were thinking about my situation.  Gotta like that.

    So, off to see college girl this weekend.  She got tix for her and dd to see the band, "Brand New," Sat. nite.  Since dh and I aren't comfortable with our relatively new driver making that trip alone, we're going to drive up there and stay in a hotel and take the girls to brunch on Sunday before driving back.  Hope they have movie theaters or something up there...  (If I'm MIA, that's why--I don't have a laptop, so I can't scratch my Jewel itch when I'm away from home.  Waaaaa.)

    You can tell it's Friday--the bar is packed!!!  Sending all the best to WVgirl, Deb, Paula, and Dana.  Special thoughts to Vettegal and Peg, who are getting their last round.  Have them give you a little umbrella for your 'tinis to celebrate!!!  FUBC!!!!!

    Cheers!

    D1

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  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    Kim - I took the picture down because Jesus looks a lot better then me.  If you look at the picture he is coming to your and everyones else house next because he just came to my house and healed me.  Smile! Innocent

    Today was my 4th Chemo - and still little se - thanks to God!  I just pray and cry with happy tears each and everyday.  I shocked my neighbors yesterday cause I was watering the grass with no hat or scarve - some are like yuck and the others pulled over and asked and I was happy to tell them in Dec I had Cancer but now I am NED in March with Chemo.  They smiled and said you are amazing and I said my Jewels always tell me so I am starting to believe that.Laughing

    When I was doing my Martini at the last hour the Dr likes to sit down and shot the chit with me and we were talking for a while - he just laughs and laughs.  I got up and was walking out and in front of everyone I told him "Dr wear those pants again next week for me because your ass looks sexy in them".  Everyone laughed so hard, and one nurse feel to the ground.  I love making people laugh!  he ha.  OH YEA THE GREAT NEWS MY WBC IS BACK UP TP 5800 AND I LOST 3 POUNDS probably because of pilates and no more menstrual cycle but I was so elated,  I started dancing in the chemo room for the chemo pts and brought smiles to their depressing faces.  I dont know about you - but I DONT have time to be sad and depressed about Cancer, i feel so sorry for people that dwell on negative thoughts about it - cause its not a death sentence!  Met a lady with Ovarian Cancer stage 4 - diagnosed 3 years ago and this year it came back to the brain and again she beat it down and even told the Dr she cant continue the chemo because it makes her too sick for work, and she needs to work to keep the insurance.  How sad huh!  Anyways - she told me she was flying last week with a coworker and her coworkers said I am afraid this plane with go down and she said not with me because God hasnt taken me the last two times so you are safe with me- I gave her a high five and i said God is great isnt he and she said he is sure.  I am so happy to met so many wonderful people!!!!! 

    Came home and walked 3 miles today and walked up 150 steps and now going to finish laundry, cook dinner and do pilates.  Dr told me not to do bend pilates until I am NED or massages - which sucks but you have to follow their advice for NOW!! He ha..

    I love you ladies and continue to tell others I was diagnose this day but I am healed this day (the day of first chemo).  CLAIM YOUR HEALING AND NEVER ALLOW NEGATIVE devil THOUGHTS INTO YOU MIND - YOUR MIND CONTROLS YOUR BODY SWEETIE.....

    Muah - xox Hugs and Kisses 

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  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    Ms. Patty  - dont worry about the surroundings of Cancer in your family.  My last name is Campbell but with all the cancer my family passed away from; I thought my last name was suppose to Cancer - he ha.  I am going to beat like no other and YOU WILL TOO.  We are here to stay for a while child so be happy and thank the Lord we caught it early!  God bless you honey and BIGS hugs are sent to you!

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  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    Oh D1 - enjoy your mini drive  and relax - you deserve it! I will keep you in my prayers for a safe drive and go find that movie that you want to see.  Be safe and God bless!  By the way I havent been comfortable with my arm since the removal of 21 lymph nodes - and now I get little bumps their like little pimples and it bothers me so much so I have to put acne cream, then baby powder and then antibotic so it doesnt get infected.  Does anyone else have this problem or am I the chosen one - HE HE...   So dont feel bad I have much problems with my arm too but I keep telling myself once my fat butt loses weight it will help.

    God bless you sweet pea,

    Dana 

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  • Cathy-CA
    Cathy-CA Member Posts: 686
    edited March 2008

    Dana -- I'm glad to hear you are able to exercise so much.  I know that has been a big factor in my lack of SEs and general good attitude.  My onc is always amazed at how much I still exercise, but I believe in it.  I lost 90 pounds before I was dx'd with cancer and I know that the diet and exercise habits I developed to do that are seeing me through now.

    D1 -- Glad you didn't have to meet with the needle today.  It sounds like they are taking a cautious, but prudent approach, but I know that whiplash feeling so well of thinking you're going to go one direction and then making a quick reverse.  Have fun with college girl!

    Kim -- Have a great time in Tahoe. 

    SheShe -- that is so scary about your infection.  I'm glad they caught it and are watching you closely.

    Paula -- Hope you were able to have a great evening at the ballpark.  My sons were never particularly good at baseball, but I sure loved sitting and watching on a nice spring evening.

    Peg and Vettegal -- congratulations on your last round! 

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  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

     Good Evening Jewels,

    Can't even imagine doing shout outs, now I know what some have felt about missing a day or two, three, and being overwhelmed with the post. 

    I hope that each has a little support for others that are following along this week.

    I called home to my son, its snowing in Washington, couldn't believe it, the dh and I are hoping for a win on the lotto, figure I could have my infusion at Jill's center here in the valley!

    Kinda happy to report that I had the case of knarly cramps on Tues, assuming that Aunt Flo was arriving, but no cigar, so far, I'm assuming this is a good thing that the estrogen is shutting down.  The poor dh was feeling so bad that I was bent over in the golf cart complaining of the ol' crampo's.  Finally broke down and took a ibu' supposedly I'm not supposed to take any, but it was that or back to the clubhouse for me!  Figured it had been over a week since I had my "M" portion of CMF and thats the bad guy for the liver for me. 

    Golfed again today, no wonder I'm pettering out so early in the eve.  Our friends I think have been pleasantly surprised that I'm able to keep up each day.  Figuring I can rest when I get home and go to work on Monday!!!  I'll be hitting the "bar" on Tuesday, and then off to a one day retreat on Weds for "cancer" patients on the beautiful hood canal, hoping that I won't be navigating through snow to get there!

    Again, I'm there in spirit gals, but don't feel too comfortable taking the time for the shout outs as I'm sitting here with our most hospitable friends.

    Here's to a good weekend to all,

    Carol

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  • RN2teach
    RN2teach Member Posts: 312
    edited March 2008

    Evening all,

    Taxol # 2 went down w/o a hitch (praise God). Feeling tired but wired--I know that doesn't sound possible, but that's steroids for ya!

    It has been another rainy day here with thunderstorms this afternoon. Needless to say, ds' ballgame was cancelled again. He is to play a double header tomorrow if the weather holds out--rain is forecast again...

    Peg- I see you have 2 more to go after today (same here). Are you having rads after chemo?

    Kathy- sending wishes for a speedy recovery from your URI.

    Jenn- I love my ipod--don't have any Neil, but I have a good mix-- gospel (mostly contemporary Christian), classic rock, punk rock, pop, classical, country, bluegrass, blues, jazz, new age (my yoga music), etc. I bring my ipod to bed just in case dh beats me to sleep--he's a champion snorer! I have the iTunes program on my computer so I can listen to my music while I'm working or visiting w/ the Jewels. Smile

    CHJ- I haven't messed up my online banking yet, but I have driven past my destination numerous times in the last month or so. Usually I catch it right away, but one time I drove several miles b4 I noticed... hate it when my brain leaves and doesn't tell me where it's going!

    Wendy- OOPS! I believe I got my state abbrev. confused and moved you north a few states from Mass. to Maine. DUH! Embarassed

    LJ- another brilliant response (to D326). Glad you're a Jewel!

    Kimberly- I learned to drink coffee when I was a high school exchange student in Finland. Finns pride themselves on their coffee which is rich and strong. When I came home, I found our brands just couldn't compare... when you make them strong, most of them are bitter. Gevalia is Swedish coffee and very similar to the Finnish coffee I learned to love. And, yes, I order it online. They have lots of varieties (I prefer the Traditional and Stockholm roasts) and they also have some excellent teas.

    Wishing you a wonderful weekend in Tahoe!

    Dana- glad your treatment went well today.

    CathyCA- you are another Jewel who inspires me to keep exercising. Thanks for the positive influence, sister!

    Carol- have a wonderful last day of 'cation and a safe trip home.

    Time to take some benadryl and try to get some shut-eye. Gotta go for the neulasta in the morning.

    Nite all,

    Paula

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  • JulieK_11_30_07
    JulieK_11_30_07 Member Posts: 260
    edited March 2008

    Good evening, Jewels!!! You gals have been chatty today! I'll have to catch up later. So far, so good in the se dept for me. Drove in for my nasty lasta today with the dh and we ran several errands. I was pretty worn out when we got home, but I've been working on the computer on some school stuff and still am feeling okay right now.

    The dh decided the ds needed to invite some friends over tomorrow afternoon to play and spend the night!!!! I quickly warned him that I would clearly be in "fog" land by then and he'd be on his OWN with all the kiddos! He seems to think he'll be able to handle everything - sure hope so b/c I'll be no help!

    Hope you ladies all have a nice weekend! I'll be lurking for the next few days and will post when I can. Love to all!!

    Julie

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  • tinalee123
    tinalee123 Member Posts: 112
    edited March 2008
    Carol – I’m amazed that you’re keeping up with all that golfing – good for you!  I bet your friends are so happy to spend time with you and dh like this.  Glad to hear from you while you’re away. 

    Cathy-CA – Your exercise regiment is inspiring…now if I could just get my lazy arse off the couch.  My case nurse at my breast center told me way before surgery that exercise helps many to keep the se’s at bay.  Our weather seems to finally be turning now (oh, wait, it IS spring, right?), so getting out for walks with dh will be easier.  About 7 years ago, I too, lost about 40 pounds through exercise.  Although I’ve always had a pretty smart diet, I felt that the exercise allowed me to eat as I normally do and the pounds really melted away.  I just have to make the effort again.

    Dana – I liked the way you finished one of your previous posts, with a thoughtful prayer.  Did you compose that?

    D1 – Wow!  Talk about the power of suggestive thinking…I hope this is nothing, and that it will diminish all on it’s own.  I laugh every time I see ‘babydoc’, thanks for that.  Have a good weekend with the family.

    Jenn – I’m so sorry to hear about your co-worker.  I know it’s hard on you, as you’re dealing with your own illness.  I hope his suffering is minimal and short.  I heard today that a sales engineer I work with regularly, was dx with bc.  She was one of the first to reach out to me when I was dx.  She kindly informed other folks that she knew I would want to tell, but, was too wrapped around the axel to do it (a big job).  When I heard the news, I just burst out in tears.  Then I got so mad!  She’s ultra-healthy, a marathon runner!  FUBC!!  I have to figure out now, how to reach out to her…and when. 

    KathyL – Glad to hear your’re feeling better.  I’d say you did awesome at the grocery store – under 2 hours??  Wow.  The bonus part cracked me up.  Good for you, for giving back.  Has your dh – or anyone’s read the book, “Breast Cancer Husband,  How to help your wife, yourself during diagnosis, treatment and beyond”?  My case nurse at my breast center (oooh, déjà vu), borrowed it to my dh, he really liked it and thought it to be a quick and valuable read.  He thought so much of it, he returned the copy to the center, and had bought 6 more brand new copies from Amazon, and donated them to the center’s library.  If I do say so myself, he’s a good man.

    Wendy – How are you doing with taxol? 

    CHJ – For the first time ever, I was late with my Visa payment last month.  I am with you – I just chemo-brained-it.  Dang!  I realized I’d missed it by about a week, and went immediately on-line and paid it off.  Sure enough, I got this months’ bill a couple of days ago.  They charged me a $29 late fee!  ARRRGGGHH.  I’ve never paid a late fee on anything, ever!  This is the only credit card I have, so, I use it for lots of things.  I always pay my balance off every month. I think I’ve had this card for at least 15 years. I’m embarrassed to say this, but, I’m thinking of calling them and playing the “chemo card”.   It’s so totally my oversight.  But, isn’t all those years of major purchases and on time payments worth anything???

    Peg – Nice breakfast plans, how old is your son?

    Paula – Yep, birthday boobs.  Woo whoo!  I told the ps not to give me boobs of a 20-year-old.  How dumb…a 45-year-old body with perky boobs.  They would be the only thing not sagging…  Hope taxol treats you kindly.

    Julie – Glad things went well.  Ooooh, a grilled cheese sounds de-lish. 

    Closing for the evening. 

    Tina
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  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    Quick shout out,

    Yakked it up on the phone with Kimberly yesterday, that's what happens when I get a glass of wine in me, needed someone to chat with but was too lazy to type and post!

    Any how .... we talked about seeing if others might be interested in having a "secret pal" of sorts.  I just happen to have the addresses of those who ordered a FUBC T-shirt (way back when), but many others have joined our great group in the past few weeks.  If you might be interested in adding your addresss to participate, or if your not interested in participating, please let me know via PM. 

    So many of us are getting ready to move on to our next adventure and it would be so great to keep the post moving forward and maybe be able to share something with a fellow jewel.

    Kimberly, if you happen to read this post prior to Monday and find I should add something, please feel free. 

    I'l be posting this request again in the next few days, bear with me, hoping this might be kinda fun to do.  I'll take some notes via a PM of those who might want to participate, or just acknowledge the idea in your post.

    Night all,

    Carol

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  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    Today's Scripture

    “When they walk through the Valley of Weeping, it will become a place of refreshing springs. The autumn rains will clothe it with blessings” (Psalm 84:6).

     

    Do you feel like you are walking through a tough place in your life today? When you walk through the “valley of weeping”, God is walking with you. He wants to strengthen and empower you to keep moving forward. He is leading you to a place of blessing and refreshing! Be encouraged today, it’s not over until God says it’s over, and He always causes us to triumph! The Bible says that weeping may endure for the night, but joy comes in the morning! It also says that the path of the righteous is like the light of dawn shining brighter until the full day. No matter how dark your circumstance may seem, you are on a path that is shining brighter and brighter. Know today that there is a place of victory on the other side of your challenge. Keep believing and keep expecting. As you continue to meditate on the goodness of God and declare His favor in your life, you will be strengthened and refreshed in your inner being. You will rise higher and higher, and you will live the life of victory the Lord has in store for you!

    A Prayer for Today

    Father in heaven, thank You for leading me to my place of blessing. I trust that You are faithful and believe that You have a good plan for my life. Help me to always hear Your voice so I can follow You all the days of my life. In Jesus’ Name. Amen
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  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    Tina - yes I compose that - its God that allows me to feel it in my soul! I always see you write others but never me - so I feel special tonight! Smile!  I know there are some Ladies that are not enduring this trial and challenge gracefully so I try to let them know never doubt what the Lord has in store for you. I found God when my Mom passed and see how he works - he took her to save me and I am renewed.  Its nice and I mean really nice to feel healed and to know it.  God is so good!  I feel it in the bottom of my soul that I am healed and I will be healed for many years!  I also have to contribute a lot to Kim for all her positive vibes and words she has sent me as well as Carol.  I was a little lost in the beginning with holding onto so much past pain but I am FREE. 

    All the Ladies allowed me to grow even when I make mistakes because mistake are good they allow you to grow for them as long as you can be forgiven; then all is good.

    Julie - you had me laughing so hard about your hubby and him watching the kids.  Please let us know how that went; i cant wait to hear about this.

    Rn - My sweet pea - yes I too feel high as a kite and then tired at the same time but I refuse to lay down and look at the ceiling because I know I will not be able to go to sleep.  I take this time to really work out and clean the house and run my dogs until they pass out.  I am so happy to hear that you are doing well.

    I hope the others continue to keep going strong and remember THIS TOO WILL PASS.  I seen a cute cartoon today - and it was Charlie brown and  Lucy - i think that is her name - anyways,  of course they are standing on the baseball mound and charlie says to her " I wonder if I should try to play today..  My arm hurts, my stomach hurts and back hurts" and she replies "play anyway" and she walks away and turns around and screams at him "DONT LET YOUR BODY PUSH YOU AROUND"... I laughed so hard and its true = WHEN THE TUFF GETS GOING - YOU GET GOING HARDER!!!! NEVER GIVE UP - MIND OVER MATTER. I know it seems easier said then done since I have little SE but trust me I have bone pain and it gets bad sometimes but I refuse to let Cancer have..........

    Love ya - Gods lil warrior,

    Dana 

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  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    BEING A VICTIM IS A STATE OF BODY; BEING A SURVIVOR IS A STATE OF MIND.

    A VICTIM FEARS HAIR FALLING OUT; A SURVIVOR KNOWS BALD IS BEAUTIFUL - CAUSE WE ALL ARE BEAUTIFUL; GOD DOESNT MAKE UGLY PEOPLE.

    A VICTIM KNOWS ABOUT FEELING DOWN; A SURVIVOR KNOWS FEELING DOWN IS OK.

    A VICTIM DREADS THE SE OF TREATMENTS; A SURVIVOR WONDERS HOW TO CANCEL HER MEMBERSHIP IN THE SE OF THE MONTH CLUB.

    A VICTIM IS AMAZED AT ALL THE TEARS; A SURVIVOR NEVER LEAVES HOME WITHOUT TISSUE.

    A VICTIM GOES TO SEE A DR; A SURVIVOR CONSULTS WITH HER PHYSICIAN. - YOU LADIES SHOULD LIKE THAT ONE....

    A VICTIM GETS CAUGHT IN DESPAIR; A SURVIVOR PRAYS A LOT. AMEN

    A VICTIM FEEL HELPLESS; A SURVIVOR SAYS THANKS A WITH DIGNITY AND GRACE... LIKE I DO EACH AND EVERYDAY I THANK HIM FOR CANCER AS STRANGE AS IT SOUNDS BECAUSE IT ALLOWED ME TO GROW.

    A VICTIM ENJOYS A GOOD LAUGH; A SURVIVOR LOVES ONE - DONT I!

    FROM THE MOMENT WE ARE DIAGNOSED WE ARE VICTIMS BUT WE MUST CHOOSE TO BE SURVIVORS.

    I HOPE THIS HELPED OTHERS - THIS DID NOT COME FROM ME.  IT CAME FROM CHICKEN SOUP FOR THE SURVIVING SOUL. OF COURSE I ADDED THE LITTLE COMMENTS AT THE END

    GOD BLESS,

    DANA 

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  • peg1212
    peg1212 Member Posts: 48
    edited March 2008

    Good morning Jewels,  It's about 3:30am can't sleep, when i got back from my tx yesterday at 1:30 i hit the bed so now im off schedule never felt like i had to lay down before i did get up to make dinner and then back to bed i went.  My blood work showed that im a little anemic so i hope that my shot on Monday takes care of that.

    RNTeach after my last tx which is scheduled in May i have no rads to do i had a total mascetomy with recon which will hopefully be finished at the end of May early June have'nt decided yet.

    tinalee123- I have a 15yr old who I love to take to breafast on my Chemo day since i work Monday thur Friday, and he looks forward to that. I also have a 22yr old son and a 3 yr old grandson which i love dearly so i have alot to look forward too and to be grateful for and I try to keep all that in mind as I go thur this, and it really keeps me focus on getting well and I plan on being here for a long time to come.

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  • vettegal
    vettegal Member Posts: 287
    edited March 2008

    Good morning Jewels,

              Came back from my last treatment at 3:30 and hit the bed. They couldn't grt a good vien for bloodwork so went in the hand. Stillhave brusing from last treatment so the tried a different vein and it "blew" as they said and went by my thumb...OUCH!

              Happy to have it done now, dh and I had our moment of tears when we came home.

        Will be resting today, got the rock in the stomach, decadron at 7:30 and I will take some pepcid..just in case..I did have the taxotere reaction, not quites as bad they did dope me up and had to move me to 3 differernt rooms, we needed me to by oxygen.

    Hope everyone is se free today..hugs to all of you

    xxxxoooo

    Patty

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  • chj127
    chj127 Member Posts: 382
    edited March 2008

    Tinalee - YES - absolutely call Visa and tell them about the late fee.  I made an honest mistake once - mailed the payment without the address showing through, and so it was late.  I called them and they took off the late charge without any question at all.  It was pretty easy.  If you have a long term, good record, I'll bet they will waive it.

    Fitful sleep last night - I'm deep in the fog, so that's all I have for now.  Hope the rest of you have a good weekend.

    CHJ 

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  • PAlady
    PAlady Member Posts: 176
    edited March 2008

    Jenn - Sorry to hear about your friend. That has got to be really hard for you. Lucky you on getting that 6 pounds of water weight off. I have gained between 8 and 12 pounds since I started chemo - (I probably have about 5 pounds of water that fluctuate). Being bald and heavier is not good for the self-esteem!

    Sheebas - Sorry you are not feeling well. You have certainly had a go round with all of this. I hope your cough is either chemo or weather related. Wow, you have to travel far to see your onc. Are there very few of them, or is that a specific one you want to see?

    Sheshe - Scary about your reaction and hospital stay.  Will they just give it to you through an IV now?

    Dana - LOL about the mammo letter! I am so glad you are having few se's with your treatment.

    Kimberly - the "compression jeans" are really tight jeans - they are just my regular old jeans with the extra weight I have added! Laughing Good answer on your mammo letter!

    Julie - hope the worst of you se's stay away like last round. (fingers crossed).

    Paula - My toes are still hanging in there. Maybe I'll get lucky. The left one is still black, but doesn't feel like it is lifting. I am not sure about any boosts on my rads. I asked yesterday and the lady didn't have my plan. I will find out for sure when I go in Monday. Hope you keep your se's in check this weekend.

    Peg - that is a nice ritual you have with your son. Hope you were able to get some sleep.

    Kathy - I have had tooth pressure on and off, too. I can't wait to get to the dentist after all this is over. Trips to the grocery store with little ones are always an adventure! Sounds like you did well, though.

    Chj - I double paid our phone bill, too! Our cell phone provider and landline provider are the same but we get two different bills. I just recently started the online bill pay - so I chalk it up to that! Wink  Hang in there - it will be Monday before you know it!

    D1 - Glad you didn't have to get the needle - but gawd two years is a long time. So are you actually starting on Monday or having your dry run? Have a good weekend with your family.

    Carol - (now I know where you got your screen name!). That is great you have had such a nice week with dh and friends. The secret pal sounds interesting. Are you planning on matching people up, or just send to anyone?

    Tina - that is so nice of your dh to donate the books. Sounds like he is a keeper! I think you should try to get out of the fee, too.

    Vettegal - Yeah on being done!!!!

    I got a call from the cancer center yesterday. They got my rad plan completed so they are moving me up. I will go in Monday for the dry run and start on Tuesday. I had to go in yesterday to get my marks darkened as they were coming off. I was happy to learn that these are the marks to line me up on the table and NOT the radiation area. It is a pretty large area for small chested me and I was a bit discouraged.

    Hugs everyone!

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