If you have just been diagnosed....

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  • texas94
    texas94 Member Posts: 204
    edited March 2008

    Hi Linda- I was diagnosed with ILC 10/07 and just finished with my reconstruction.  I know you are so scared right now, and I'm so sorry you've joined the "club."  It's not one anyone really wants to be a part of.  I opted for a complete bilateral mastectomy and was thankfully a candidate for skin-sparing, which of course means they leave all the skin but the nipples.  I am thrilled with my reconstruction and so glad I went ahead with removing both.  I do have a family history of IDC, but I was the first with ILC, which is a bit weird genetically.  Everyone must make their own decision, but my doctors thought the bilateral was best, and not only did I not want to worry about dealing with BC again, but I thought I'd also have a more symmetrical reconstruction.  I am only 36 and want to take full advantage of that!  ILC is more likely to come back in the other breast, so doctors more often will recommend a bilateral mastectomy than with IDC.  There are so many factors... I can only tell you I'm very happy with my outcome, my reconstruction shape is SO pretty, and I'm thrilled not to have to worry too much about recurrence.  My dr did the Oncotype DX test, and I lucked out with no chemo.  I started Tamoxifen 3 wks ago and have had no side effects so far (but we'll see :).  I am also taking Wellbutrin, which is supposed to help the side effects of Tamox, but it's also controversial from what I can gather.  All I know is my dr is one of the drs that was involved in developing the Oncotype DX test and is tops in her field and she says I am just fine taking the Wellbutrin too, so I'm going to go with what she says :).  I hope this info helps you.  I promise you this- the WORST part of everything is the time between diagnosis and the beginning of treatment.  There is nothing worse than being so scared, searching for answers, enduring tests and visiting lots of doctors so you can make the most informed decisions.  I wish you the best~

    EHK

  • RRG
    RRG Member Posts: 3
    edited March 2008

    I am also 56 yrs young and recently diagnosed with breast cancer.  I have been considered healthy all my life and have never been hospitalized.  So as you may well imagine, being diagnosed with any kind of cancer was a real shock.  My surgery is scheduled for 4/1 and I am sure I will be fine until 3/31.  I chose a lumpectomy over a mastectomy to preserve as much of the breast as possible.  We'll see.  I won't know the outcome of the spread of cancer until after the surgery.  I am dumbfounded at the quantity of women with breast cancer!  Everywhere I turn there are women who relate their stories of breast cancer.  Woo hoo!  I am now a statistic (a little sarcasm there). 

  • bcs75
    bcs75 Member Posts: 281
    edited March 2008
    I was diagnosed 3 weeks ago, had a lumpectomy and pathology said stage2 with 4 lymph nodes involved. Reading some of the entries makes me feel less alone. Will find out next week what my course of treatment will be. Trying to stay positive.
  • bcs75
    bcs75 Member Posts: 281
    edited March 2008
    rrg, you sound so upbeat, I wish i could say that I was that way when I was given the diagnosis. I am sure with the great medicine out there today, great doctors, love of family and friends and our faith we will get through this.
  • Steph_Rose
    Steph_Rose Member Posts: 37
    edited March 2008

    hi ladies! just checking in and saying hi to the last few women who have unfortunately "joined the club"

    tomato- i believ you said you are having sugery on the 25th...you'll be in my thoughts and prayers...you can do this!

    Linda- I know it is scary...I am terrified most of the time too.  hang in there

    rcmecom- it is a lot to digest...but knowledge is power!  under symptoms and diagnosis there should be an "understanding your

    path report" link.  or call your dr and ask them to explain!

    RRG & bcs75- welcome to the "club"Undecided  I just recently gained membership myself

    I will try to keep up with this thread.  We are strong!  We can get through this....sending prayers and positive thoughts

  • bcs75
    bcs75 Member Posts: 281
    edited March 2008
    getting my drain tube out today,,, Looking forward to feeling alot better!!
  • kiya123
    kiya123 Member Posts: 24
    edited March 2008

    I have been diagnosed with IDC, well deferntiated, Focal Intraductal Carinoma Intermediate grade.

    All other reports to follow yet.

    I read through the forum and I think I will be Ok. With all the available treatments I am hoping that I will survive.

    Given that I have other questions. One of them is - normally how much time it takes to get back to normal life? But how long will I be out of work? will I be able to go back and work?

  • texas94
    texas94 Member Posts: 204
    edited March 2008

    Kiya,

    I'm so sorry you're starting this journey. Once you get your "plan of action" set up, you'll feel better.



    For me, I had a bilat mastect with sentinel node biopsy where they removed 3 lymph nodes on the cancer side. Within a couple of weeks I could resume pretty normal activity, but being obviously careful and mindful of lifting, pushing, etc. It was not as bad as I expected.



    With my exchange surgery (from expandera to implants), I am 1 1/2 weeks out and almost back

    to normal- mine was a breeze compared to the mastect. I had a little bellybutton hernia fixed at the same time, which hurt worse!



    I hope these answers help you,

    EHK

  • MLo
    MLo Member Posts: 7
    edited March 2008

    Hello



    I was diagnosed with BC 1.2 cm two lumps one on top of the .8 cm stage IIIa Feb. 28



    T1cp N2a Mx - Does anyone know what this means?



    I had a lumpectomy on 3/7, pathology came back with margin positive so they are recommending more surgery; no history in the family and I am 40 w/ one child (13n boy)

    6 nodes removed

    Estro +



    Thanks

    Scared and confused

    MLo

  • Beesie
    Beesie Member Posts: 12,240
    edited March 2008

    MLo,

    I'm so sorry that you've joined us, but glad that you've found us. 

    Breast cancer is staged according to the size of the tumor, the node status, and whether or not there is metastisis.   So in your case, your Stage IIIA status is based on:

    • T1c - you have a tumor that is larger than 1cm but smaller than 2cm; I'm not sure what the "p" is but it may mean that this sizing represents your "primary" (or larger) tumor
    • N2a - you have lymph node invasion, with several nodes matted together  
    • Mx - you have not yet been fully tested for metastisis so they don't have a rating yet.  Hopefully this will be M0 when your tests are complete.

    As you find out more about your diagnosis and the planned treatment, please check out the other forums on surgery, radiation, chemo, etc..  You'll find lots of great information and advice, and lots of support.

  • otter
    otter Member Posts: 6,099
    edited March 2008

    MLo,

    T1cp N2a Mx


    I wonder if the lower-case "p" is supposed to be right before the "N".  That would be

    T1c:  as Beesie said

    pN2a:  this means the nodal staging was based on pathological (p) as opposed to clinical (c) evidence; the rest as Beesie said

    Mx:  as Beesie said 

    otter 

  • Jojo34
    Jojo34 Member Posts: 5
    edited March 2008

    Hi first time I have submitted, found this site tonight. My mother was diagnosed with bc 3 years ago then 1 1/2 years later her sister both under 50, I am 34 and found a lump three weeks ago, had results within two days - cancer, I had a wedding planned 1 1/2 weeks after diagnosis in another country. We decided that it would hurt more emotionally if we cancelled the wedding so have married and have appt with surgeon tomorow. Am not sure what kind of bc so hopefully lots of answers tomorrow. Feeling a little emotional tonight, so just writing it down to help myself.

    Thanks

  • Christy530
    Christy530 Member Posts: 11
    edited March 2008

    Hi there. I found my lump 3 weeks ago and it's been a snowball ride and a roller coaster emotional ride ever since. The lump appeared out of nowhere (it wasn't there Saturday and was there Sunday) Saw the GYN on Tuesday had the mammo and ultrasound on Friday. Saw the breast surgeon the next Wednesday, she said she was afraid it was cancer. Did the biopsy. Got those results last Monday. It is cancer

    Saw her with my husband on TUesday...it's 3-3.5 cm invasive...don't know any more than that. Discussed the options and am having the mastectomy with reconstruction right away..See the plastic surgeon tomorrow, PET scan on Thursday and pre-op the following Tuesday. Will schedule the surgery after I see the plastic surgeon tomorrow.



    I feel like my head is spinning. I hold it together at work and around my two little boys and then once they go to bed, I lose my mind a little. I'm not really sure what feelings I am having as I think they are all running together, I know for sure I'm scared..beyond that I'm not sure. I think I'm looking right now for support from others in this "club". Thanks so much..

    Christy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Hi Christy

    Im sorry you've had to join this club, but glad you found us....

    This is a wonderful place for just the support you are asking for.....

    This is really a rough ride on this journey and the first few weeks are exactly as you said "heading spinning"..

    Just know that we are here....we will do whatever you might need to help you get through this...come here to ask questions, rant, rave......

    Im hoping that you are reading some of the other threads.....there is on that is for the New diagnosed that I think you will get better response if you post in but post wherever you want and we will find you.....

    Hugs

    Jule

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited March 2008

    JoJo and Christy, I am sorry that you had to join the club nobody wants to join. You will find a wealth of first hand information on all the threads on this site. If you don't find the answers to your questions just start a new conversation in the area where you think your question could be best answered, there will be somebody along to help and comfort you. If you can get copies of all your pathology reports and keep them in a folder to refer to for specifics about your cancers. Good luck on this new journey of BC.

    Sheila

  • debphoto
    debphoto Member Posts: 4
    edited March 2008

    I am 46 years old and I just got the biopsy report today and I have invasive ductal carcinoma grade 2 in my left breast. I have a strong history of breast cancer in my family-my mom and grandma had it. My younger sister is petrified enough that she bought cancer insurance. I have decided after all these years I have worried over numerous breast lumps and cists, that I am having a double masectomy this Weds. The doctor noticed some enlargement of my lymph nodes and isn't sure yet how involved they are. I have consistantly had mammos every year and they said this one really snuck up on me. I felt a little lump and in the past month it had grown to 3cms. I am so tired of worrying from mammogram to mammogram, year to year. If I have to live like this I just want my breasts gone. My surgeon agrees in my case, it might be for the best. My husband is totally supportive of my decision and I really don't care about having breasts, I just want to be here to see my children graduate high school, go to college and get married. And God willing, I'd like to hold my grandchildren someday!

    Deb

  • otter
    otter Member Posts: 6,099
    edited March 2008

    JoJo, Christy, and Deb--

    I hate to say "welcome", but we're glad you found this place.  Many of us are here at various times of the day (and night), and whenever you need answers or support, or just somebody to listen, we'll be ready to help.

    This particular thread/conversation is really long, so you might want to start your own conversation that includes a question of interest to you.  That way, we can find your question more easily.

    Hugs,

    otter 

  • hopeful51
    hopeful51 Member Posts: 5
    edited March 2008

    I was diagnosed about a 6 weeks with breast cancer, had the operation lymph nodes were clear margins were clear. Seen onocologist last week told me because of the size which was 3cm. he recommended chemo, radiation and hormonal therapy. I had a very hard time deciding to have the chemo as it  would better my chances of reacurrance by l in 16 in ten years to 1 in 12. I went today and after my blood work results and my bone scan results had come back and are clear he has changed his opinion on my treatment he's saying if I go with the chemo my changes are 1 in 12 without are 1 in 10. I really don't know what to do he feels the homonial therapy will work and is not recommending chemo now, it is my choice. What do I do please I need some advice.

  • hopeful51
    hopeful51 Member Posts: 5
    edited March 2008

    What would you do in my case I am terrified to have chemo, hair loss, being sick and possibly getting a infection the odds are in my favor and I get everything I get sick alot, its my choice if I take it or not. The odds good with just hormonal treatment. I have to have answers by Monday of this week please , I need some advice.

  • PSK07
    PSK07 Member Posts: 781
    edited March 2008

    Hi Hopeful. So sorry you had to join us this way.  I didn't have chemo, so I'm no help at all. My mom had chemo 17 years ago, but the decision track is so much different these days. 

    So many women have travelled the road you're on and have had to make the same tough decisions.

    I see you posted on the chemo thread, so hopefully someone will be along to answer your questions. 

    Take care and ask, ask away we're all here to help.

    (((hugs)))

    pam

  • MLo
    MLo Member Posts: 7
    edited April 2008

    Hi, All

    Thanks for your answers; Last week I received my PT scan results and the result of which was M0. 

    Just wanted to share. 

  • SandraLee
    SandraLee Member Posts: 1
    edited April 2008

    Hello everyone,

    I am so glad I found this site.  Diagnosed March 3rd, went through a barage of tests, waiting for one more to determine if it's spread to my pelvic.  Told it's a stage 3 invasive.  I need to really research the chemo choices since the drs. want to put the port in this week  and start the chemo . With the bc being in my right breast, I believe the regime with the new drug (sorry, don't remember the name) that has less risk of heart problems is my best bet. I will need to go through surgery, radiation and then hormone blockers, or at least that's the plan now.  I have no history of this hideous disease on either side of my family, have been very healthy all my life, am 53 with no children and have a long time loving partner, and am sitting here wondering why so many women are going through this.  I've gone past the fear, denial, anger, and am waiting for the part where I can accept it. Being an extremely private person, the really hard part is reaching out for help. The worst part is not telling my family since they live far away and my mother is in very bad health. I couldn't risk causing her stress and if I told my siblings, as close as our family is, they would not be able to keep this news away from her.  So, I guess I am asking to lean on you, my unseen, unknown friends who are going through this, too. Thank you for listening.

  • Bonyou
    Bonyou Member Posts: 1
    edited April 2008

    My Doctor called today to tell me that the biopsy done yesterday shows Stage 1 cancer.........I am in shock! Will have an appointment with another Doctor to get their imput as to treatment. I am almost 67 and have been healthy all my life. Will try to read everything I can to help plan my own treatment.

  • meadows4
    meadows4 Member Posts: 170
    edited April 2008

    Same thing happened to me at age 63.  You could have knocked me over with a feather at the news.

    Get a copy of your biopsy report.  You will learn a lot from it and if you have questions re it, you will get answers here. It would be wise if you got it before you see the surgeon so you will know what he is talking about and what to ask him.

    Good luck to you and keep in touch!

  • ashtonasoc1
    ashtonasoc1 Member Posts: 10
    edited April 2008

    I have been sitting back for the last 2 days just reading everyones comments and trying to learn as much as I can about what I am in for. I am 53 years old and just had a lumectomy last week. Just spoke with my surgeon by phone and was told that 1 out of 7 lymph nodes came back positive. I spent most of the day crying and am now ready to move on and get better. I have so many questions and it seems that I have found a great place to talk with others. I don't feel so alone today after spending many hours in this forum. Just wanted to introduce myself because I think I will have lots of questions.

    Debbie 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    Debbie......nice to meet you. Come on in and meet the troopers here, lots of old lots of new. This is the place to learn all you can and ask all you want. I have spent countless hours here too and it's been a wonderful place to connect. I am sure you will find the same. So, we will all walk the walk with you. There is always someone around. This is truley a godsend place. Hugs to you

  • msthanglila
    msthanglila Member Posts: 22
    edited April 2008

    I was diagnosed in January 2008 and I have triple negative bc. At first I was diagnosed with ER-/PR-, Her2+ but after the FISH study it showed I was at the intermediate part of the Her2. I had surgery in January to remove a 3.5 cm lump and two lymph nodes that were enlarged and what was the initial cause for me to seek medical help.  They were painful and I thought I just had an infection.  NO, it turns out I had a cancerous lump and cancer had spread into the nodes causing them to enlarge.  My doctor only screened 3 nodes when he did my surgery. The proposed treatment is 4 AC/4 T.  Midway between the AC and T is my mastectomy and possible rads further down the road.  I have already had 2 rounds of AC and I feel pain in my left breast a lot and it seems like more lymph nodes in the left axilla have enlarged. I had CT scans done before my first chemo and it showed that the cancer spread into nodes in the left part of my chest up into my neck.

    My mom died in 1974 of breast cancer at the age of 33. She had both breast removed by the time the cancer took her.  I am 44 and plan to have both breast removed because I do not want to go through this AGAIN. 

    Hair is gone and I hear that the Taxanes make the fingernails fall off.  Some of my nails are turning dark.  Is this a sign of them dying or something? Did anyone who had Taxotere experience their nails falling off?

  • ashtonasoc1
    ashtonasoc1 Member Posts: 10
    edited April 2008

    Thanks Crazydaisy for your comments and support. You haven't heard the last of me yet. I'll be back after I have my follow up on Tuesday with my surgeon. I have some questions for her but would appreciate any suggestions as to the kinds of questions I should ask. Thanks so much. I don't even know what stage I am but assume that I must be a stage 2 because I have a positive lymph node involved.

    Debbie 

  • Galaxy
    Galaxy Member Posts: 10
    edited April 2008

    im terriffied too. and angry.

  • sims2addict
    sims2addict Member Posts: 24
    edited April 2008

    Hello ladies, I have just been diagnosed with breast cancer. I'm only 33, but I discovered a large mass in my left breast and went to have it checked out.  They tested the skin on the breast also, cause it looked infected, luckily the tests for the skin returned negative.  I have not seen the report yet, but the doctor said I had spindle breast cancer, he said it was rare and it was an aggressive cancer.  I'm trying to get more information to understand the type of cancer and the treatments.  My doctor said it was treatable only by surgery, and that it wouldn't respond to chemo. I'm going to get a second opinion, but I'm not sure what questions I need to be asking. Any help is appreciated.

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