Now I'm really pissed

Finished RAD's on Monday. Woke up Thursday and couldn't smell or taste. Breast cancer ........... The gift that keeps on taking whether you survive or not. Can't wait for all the losses waiting for me from AI's.

Some sites say it's permanent. Some sites say it usually returns in a few weeks. Some say several years. Zinc is reccomended. Would they all please have a symposium and come to some sort of consensus!

Question:

Who else has experienced this side effect from having the supraclavicle area radiated and did your sense of taste and smell come back or remain permanently lost?

Been there did that. Felt it would be easier to get feedback from those who are months or years beyond RAD's. Makes sense to me any way.

Thanks.

Not worried about Alzheimers. But I am pretty sure I have Sometimers. Sometimes I remember and sometimes I don't.

Thanks! I put in a call today to my RAD onc's office. Nurse said she'd speak with the onc there today (not my guy) and call me back. Never did.

I've spoken with this guy on more than one occassion. He is so entrenched in "Research" and "Studies", he actually copied an article for me out of some journal to dispute the claim that "chemo brain" is real. Then he couldn't remember where he left it. LOL! Well, I've put the "it's all in your female head" mysoginistic stuff to bed years ago. So I just smile and humor him and thank God he's not my Rad onc!

I had a brain MRI, with contrast taken shortly after chemo per my insistance with breast surgeon. Thickening of white matter, showed the chemo passed the blood brain barrier and she and my female primary care physician (internist) verified the 'episodes' I was having were TIA's from chemo. Brain infarctions in my head just like the ones I had in my heart from chemo. I have a red blotchy stain on the back of my neck at the base of my head that appeared after my first AC infusion. It's still there.

Ya know ........................ it really is in my head! I have apicture of it.

Thanks for your help.