Jan 2008--Ain't it Great?
Comments
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Just a quick shout-out to tomorrow's chemo-warriors!!! Go get ‘em LJ, Donna, TinaLee, and CarolC!!
Happy Birthday LWDana!!! Hope you have a fabulous day!
Julie
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((((Dana)))))Happy Birthday! Have a great one!
LJ, Donna & Tina - go get em today ladies.
Hope those se's are mild for all today. I slept well last night and hope mine hold off til at least the weekend.
Happy Spring ....
Carol
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LJ: I, too, am HER2+. I have been reading some very good news on our front. They are discovering more about what happens to trigger HER2+ cancers and also what causes it to metastasize. They have more drugs coming out to help combat the "turning off" of HER2+ proteins, and may decide to add these drugs to early cancers with herceptin or instead of herceptin for stage 4s. Don't ask my poor little chemo-brain to recall the names of the drugs, but I know I've heard of some of them. I feel this is so promising that they are still finding out so much about our type of nasty cancer. There is also a clinical trial starting examining the use of herceptin and tykerb together for early stage HER+ cancers. Results should be out within 2-3 years.
CarolC: I think we all have that fear of recurrence regardless of what stage or type of BC we have. I don't think anyone was offended by your comments (I maybe speak for me-I wasn't). It sucks that medicine unfortunately is a "gray" field, not with black-and-white answers. There is never a 100% guarantee, as someone will always be the exception to the rules. Keep you chin up and try to focus on the positives.
SIS Kimberly: So sorry the fatigue is lasting longer for you-that seems to be the case for a lot of us. One foot in front of the other, and as you say... live in this moment. I have to also say that reading your posts is just so uplifting (no pun intended to us BC girls!). You have such a gift with words. I am honored to know you and benefit from your insight.
Vettegal: Thinking of you and your sister. I hope her biopsy goes smoothly and the wait time for results is not too excruciatingly long for her.
Maz: I am thinking of you as you have this extra stress in your life now to deal with. Remember, you are only handed what God feels you can make it through. We are here for you. You are a strong Jewel. Hang in there.
Jenn51: I, too, am a member of the "sausage club". Hating that SEs as it also adds to the weight gain on top of the overall lack of beauty. My onc this week kinda blew it off as "just an expected SE"; he wasn't my usual. So, even though I'm done with my TC now, I'll be asking my usual onc about how long he thinks it will last when I see him again in 3 weeks. I can barely get my rings off by lunchtime, I think I'm just going to leave them off for now.
I picked up Deanna Favre's book from my cancer center's library. I'll probably start reading it when I'm confined to the couch this weekend. I looks good just from a quick skim of the excerpts.
And while reading about your ds Clay... my heart goes out to him (and you) and his difficulty/sorrow with your BC. But I think the positive thing is that he does call you and verbalizes his feelings-that's huge! I would encourage it, and maybe see if talking to someone like a counselor would also help him through this (can't hurt).
To everyone with thoughts of spring: I went out and bought myself some tulips the others day: orange with red accents. They look pretty and smell wonderful-what a pick-me-up! Can't wait for some more warm weather.
Julie: Glad you had a good day catching up with a former student. You must've had such an impact on her for her to return years later to chat.
Carol: Had a thought for you about planting. I, too, am Type A and hate having someone else do things I love to do. I forget what I had going on last year when it was time to plant, but couldn't do it. So I bought the plants I wanted (one step), and then I literally laid the pods out exactly how and where I wanted them (step two, another day)-dh only had to dig the holes, plant the plant, and water them. I even mixed up the fertilizer the way I like it done. It was a huge relief for me to ahve some control but also be able to rest, and they turned out great.
To those watching shows: I liked DWTS this week. Girl faves: definitely Marisa and Kristi. Watched AI's results last night and was so disappointed. While I don't think Amanda would have made it all the way, I don't think she shoulda been next to go--shoulda been Kristy Lee. And what was up with the Irish chick being bottom 3 (her name escapes me right now-chemobrain)??? She's the best girl overall--somebody got that one wrong!
Dana: Clarify for me which day is your b-day... the 20th or 21st? Have a great day whichever it is!!
Think I'm caught up now. My extra benadryl yesterday gave me a good block of sleep last night. Today I have my usual hot/cold feelings (I think it's the herceptin). I also have flushed cheeks-maybe the extra decadron they gave me yesterday. The pit/rock in my stomach is back--no real appetite today. But really, not too bad overall. I have to go get my last neulasta shot this afternoon. I'm going to try to whip up some ricotta cheese brownies this morning to thank my great chemo nurses for getting me through so far. My wonderful mom is coming down this morning too to stay until Monday. GTG--need some food in the belly and refill on the drink. Hope everyone has a good day, and GL to those getting tx today.
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ITS MY BIRTHDAY - YIPPEE! I Started crying this morning because again I out lived my brother but I picked up my chin and I realized I have much more work to do for the Lord. Thanks for the birthday wishes! Muah xoxo
Off to work and I am going to buy my classmates donuts this morning to show that I am blessed to have another year! God is good.
Oh yea - I think by 2 weeks I will be bald too, my hair came out alot this morning. I am so happy!
Have a blessed, blessed day.
Love you Lil Warrior Dana
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Happy Birthday Dana!!!!
I just wanted to let everyone know the I read Deanna Favre's book,
Don't Bet Agianst Me. I really enjoyed it and recommend it if you can get it. It helped me a lot.
Yesterday, I went to see the my bs. She is happy I am doing so well with healing. Also, my blood counts are still good after my third chemo tx. But, even with that good news I am still feeling depressed. I only have one more chemo, but I still will have to start rads in early May. It just seems so endless and I can't wait for my hair to grow back and feel normal again. Sorry to be such a downer on this first day of spring. Maybe I'll feel better and post a cheerier note later.
Joan
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Happy Birthday Dana! Glad to see that you remain so positive. God is awesome, God is good!
My hands and feet are still giving me fits but I talked to the onc yesterday and she called in a med for nerve pain. Takes a few days to work but at least it should help. Mornings are the worst. Trying to walk is difficult. I usually get up to take pain meds and then go lay back down for a little while to let them kick in. I was really hoping that the se's would be less with the Taxotere but for me it has been not worse but more debilitating. Another week that I am unable to work and not happy about that. Will try again next week. At least I can be happy that my stomach has been better now that the AC is done.
Spring is here so is a new season for the jewels.
(((HUGS))) to all the Jewels. Will try to post more later.
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Thanks for the well wishes ladies.
Bloodwork for Tx#5 is good, so I'm heading out in about an hour. With 4 ACs and 4 T/H behind me, I'm right at the chemo halfway point. 8 more T/H's to go.
Happy Birthday Dana. You will be losing that hair. I'm down to about 1/2 my eyebrows and 1/3 of my lashes are left.
Best to the other girls heading to the lounge today, and quick recovery from the SEs for the others.
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Happy Spring, Jewels! We're still pretty flooded from all the rain, but it's subsiding so that's good!
Carol - I think you might actually be addicted to this site!!! Cracks me up that you had to call Kimberly to make sure the site was on the fritz. So glad your ROM is getting better. Glad your little bump on the head didn't do too much damage!
Tina - sorry to hear your dh is under the weather - hope he's doing better by now. How nice of your co-workers to hold a fundraiser for you. I know what you mean about being hard to accept the help - I had the same issues with my coworkers collecting money for me. I know they all genuinely just want to help in some way - it's very touching.
Dana - our birthday girl - hope you have a wonderful day!!
Maz - I am so sorry you got such difficult news about your friend - on top of everything else you're dealing with. You are both in my prayers - stay strong!
D1 - sounds like you have quite the outing planned with your mom!! Hope you have a great time!
Therese - you are so not alone in the "naked" feeling and the fear of the unknown. I'm already starting to have those thoughts and I have two tx's left. We all just need to stay positive and strong and know that we've done what we need to do to kill the cancer in our bodies so we can get past this and move on.
Kathy - SOOOO glad you had an uneventful day at the chemo lounge!! Hope the se's are minimal for you and your fog lifts so you can enjoy Easter with the kiddies! And I agree about AI - Kristy has been in the bottom three the last three weeks! She needs to go! And I couldn't believe Carly was in the bottom three! I expect her to be in the final three at least! Crazy!! Ricotta cheese brownies???? Those sound delicious!!!!
CarolC - it's so great to see that you're feeling better. I will check out the Triple Neg Foundation info.
Kimberly - so sorry this one's kicking your butt. Hang in there!!
Vettegal - you just gotta love that Vetteguy!! Hang on tight to that one!! Thinking of you and your sister - hope everything goes well with her biopsy tomorrow and you don't have to wait too long for the results. So glad someone took care of Aunt Flo for you!!
CHJ - glad you're feeling better! Enjoy the spring day!!
Jenn - sounds like you have done such a wonderful job raising your sons! I hope mine grows up to be so sensitive and loving. I'm sure that's hard when your son calls upset - my 12-yr old so far seems to be handling things fairly well. He has his moments, but has been very strong and helpful around the house too.
Paula - glad you're feeling better! I'm with you about staying aggressive with monitoring. I'm planning to talk to my onc at my next appt about what we'll be doing to stay on top of things.
Deb - glad your onc called in some medicine for your pain. Hang in there!
Well, girls - I'm off for now! Hope everyone has a wonderful Thursday!
Julie
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Hurray for Spring! This winter was a tough one for all of us. Here's to new beginnings.
My bff Val finally called me yesterday. It was so good to hear her voice after a few weeks of hospitals and being too sick to chat. She officially broke the news to me. They are going to start treatment on Monday, not sure if chemo, but she will be getting treatment, so thats good news. She sounded out of it and couldn't talk long, but I did what I could to lift her spirits.
Thanks to all who responded to my last post. I knew I brought it to the right place and I am so touched.
I am still grieveing for what she has to go through (and myself as well), and maybe I can help her through it, having a head start. And maybe she can teach me how to face the end with courage and dignity.
My chemotini went down easily yesterday. My onc addressed my Taxotere swelling by prescribing Lasix to take down my water weight, which he bames for me gaining 12 lbs. since starting chemo. He also extended my decadron another day before tapering off. Today I get my Neulasta shot. I take Zyrtec for my asthma and allergies everyday anyway and I've had no joint pain so far. I count my blessings, and hope I tolerate rads as well as all this.
Thanks again for all the thoughts and prayers for my friend Val. And for me. I don't know how I could face this alone. You guys give me strength. A shared load is easier to carry.
Thanks for the positive words, Dana, and Happy Birthday, too, LW!
Maz -
Hello Jewels, from the chemotini bar...the wifi here at the clinic is pretty good, so I thought I'd drop you all a quick note and say HAPPY SPRING!
Dana -- Wishing you a wonderful birthday!!
Thanks to all for the good karma and wishes heading my way, as well as to my cohorts, LJ, Donna and CarolC. Also, thank you to those that sent kind wishes toward dh, he has come out on the other side of the flu bug he had. Thank goodness.
Will check in later, I'm feeling a drool-fest (nap) coming on.
Happy daze!
Tina
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Tina, hope your having sweet dreams, will be checking in after work.
Happy 38th Birthday to our Lil Warrior Dana, I know with your positive spirit you'll be having a good one ...
We'll be checking back in after work, take care all,
Carol
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Happy Birthday Dana!!!!!
xxxoooo
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Hello Jewels,
Just came back from the bar, took 6 ½ hrs today. That included a visit with my onc. Gave me pee pills for the swelling & after listening to what the MUGA tech said about the thing that was either missing or extra ordered a chest xray & contract CT fo the chest. I get them in 2 wks. & discuss w/him in 3. Gotta put it out of my mind until then but after today I'll be in such a fog it shouldn't be hard. Going to have to put Easter dinner in the hands of dh, dm & what ever sons show up. Luckily they are all very good in the kitchen. Better make the baskets tonight or later I may not have the energy. And that's something dh couldn't do. He'd just throw the stuff in & we all know it has to be arranged just so.
Carol, Tell your dh I'm in his camp with the mowing. I know it's hard to let go, I've been fighting it since this started. I'm getting better when my dh is in the kitchen & I hear strange noises. If I intrude too often he closes the door, then I do go crazy. But if you remember his eye situation, you can understand why I worry. But we do need to rest & let ourselves heal.
I'd heard earlier that Tylenol can be harmful if overdosed. You know how we all take 3 or 4 aspirin or Advil on occasion. After all prescription strength was for that many. But not Tylenol. Take as directed & you are OK, get in trouble if you pump up the dose. And like you I've been that's the only thing I can take during this year. Doesn't do much good, but better than nothing.
I'm sorry I didn't get the file sent off last night. My post was so long I was too pooped to think when I was done. It's coming this evening I promise.
Dana, I hope you don't take this the wrong way, but do you think this is the place to be telling us our docs don't' know sh*t? We have to trust someone these days. My onc is one of the best in the city & my surgeon just received the Susan B. Komen award. We can hope & pray for better results than have been predicted & praise God when we beat the odds, but as for me my doc's word is the best I can get from a mortal.
NO, this is my 4th out of 6. Sorry if I was confusing. I have chemo fingers these days. Thank goodness for spell checker. I bet I mis-spell something in every other sentence. And I have to go so slow. I used to be a power keyboarder.
To all with guys who can't look at the beautifulness of our baldness..... I was teasing one of the guys at work, big, strapppin' production foreman when my hair was falling out. Even chased him around the shop with a hunk of it. Then I found out his mom died of bc when he was pretty little & he was troubled by the memory of her going bald. I wanted to cry I felt so bad. Big hug & promise in his ear to never do it again & we were OK again. But I find he looks at me better when I have the wig on (Miss Kitty) than if I'm wearing just a scarf or bb cap. Maybe some of these guys can't face us bald because that is physical proof of our battle. Makes it too real to them. You know us gals are much tougher than the guys.
Vettegal, My prayers will be with you & your sister tomorrow.
KathyL, I saw my onc today & he gave me some diuretics (sp???). With taking the 1st one of those + all the fluids in the chemotini I can hardly type a paragraph without taking a potty break. Hopefully by tomorrow I can get my wedding rings on again. I feel naked without them.
Thanks to everyone for your thoughts on ds Clay. I'm not going to push the therapist right now. Our family doc. up there is great & will stay on top of things. And Clay has known him since he was about 4th grade & feels comfortable with him. I tried to encourage the boys to tell me everything when they were growing up. Succeeded with #1 & #3, Nick & Clay. Geno, the middle child is another story. Nick has his wife now so I don't hear as much of his problems but Clay & I are still very close. I hope he finds a way to come down for Easter.
Maz, I am so glad your bff called. I sure you will be good for each other & as I've learned here we all need someone to talk to. I will continue to pray for both of you.
Well, I feel the recliner calling me. And I have a file to send to Carol. I'll check in tomorrow if I can get back here to my room. I don't have a laptop. If I did I would never be off line. Got a new game for the Nintendo DS the boys got me for Christmas. Perfect timing. The stylus isn't too heavy.
Happy Birthday Dana!
I seems we have so many Jewels with secondary problems our prayer circle keeps growing. We will make it & our loved ones will make it. We are Women, Hear Us Roar!
Prayers, love & hugs to all.
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Happy Birthday, Dana. You know we're all rooting for many, many more to come!
Carol -- yes, citrus trees have the most wonderful smelling blossoms. We have orange, lemon and tangerine trees in the backyard and I love how it smells this time of year.
KathyL -- ricotta cheese brownies sound wonderful. I can't even stand to look or smell chocolate right after chemo, but normally it is one of my favorite things. You're right about all the Her2/neu research going on. A year ago I thought breast cancer was just one kind of cancer. I think we've all learned a lot over the past few months about our individual types, plus all the wonderful possibilities the future holds.
Maz -- I'm glad you heard from your friend. There is something so special about those long-time childhood friends. I've been thinking about that as I'm getting ready to meet with some college friends in a few weeks. I think part of it is that these are people we knew when we were still in our formative years when our only real role was being ourselves. We weren't mothers, wives, career women, or any of the other hats that we now wear.
Jenn -- It's been interesting to me that two of the people who have been most concerned about how I'm doing are male friends whose mothers died of cancer. I think this hits men a lot harder than we realize. In the case of one, we've been friends for almost 30 years and I knew his mother. She died in 1984 and I have had to repeatedly tell him that breast cancer treatment is so different than what his mother went through including how improved the outcomes are.
Add me to the list of overly emotional during treatment. I have tears well up at the drop of a hat. The college instructor from whom I've taken a number of cooking classes died two weeks ago. Her funeral was last Saturday and I cried for the entire two hour service. This was a truly remarkable woman. First of all, she was in her 80s and still teaching. She survived the Nazi occupation of her country and moved to this country after WW II and created a wonderful life. Her oldest daughter had bc a few years ago and once she found out I had it, would ask me every week how I was doing and remind me that she was praying for me. She fell and broke her hip about four weeks ago and then when she was recovering so well, she had a blood clot and died. I worry about her husband. They've been together since they were teenagers -- more than 70 years -- and I don't think he knows what to do without her.
To all who had rounds today -- may your SEs be few.
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Jenn, I dont take it the wrong way - I work with Drs and I have seen Drs diagnose people with a short life span and they live many more years. They really dont know when it is the last day until they are extremely terminal. I also know that Drs care more greatly for people that have better insurance then others. I have seen Drs let people die in a room with another patient that they cant get along with or if they just want to die alone but because their insurance doesnt pay for a private room they dont grant that person their wishes, even when we have many vacant rooms. I am not stating that ALL Drs are like that but there is many out there that dont have the right to predict what is in the future for you. I think a Dr should say Pray, be positive and hope for the best - but not tell you, you have so many years left. If I look online with my Cancer I shouldnt beat Cancer the odds are not good but it IS GOD THAT HAS THE LAST DECISION. I think being positive and claiming you are healed has a lot to do with it besides God decisions. So I have the right to my opinion as everyone as does. If you want to be quite frank my Dr thinks I am going to die from my Liver Cancer - get that! I dont claim it, I dont believe it and I know I will beat it. I dont go by stastics, Dr's or Nurses - they are ONLY CERTIFIED BY THE BOARD not by GOD. I know many people that have beat Cancer in the Lungs and they are still going each and every day and the Dr told her she wouldnt see past a year and HELLO she is living on three years later and he is dumbfounded. So no I dont take offense to your opinion but not everyone has a Dr that gives you hope, compassion, and strength!
I am happy you have a wonderful Dr, it makes it all the better! For me, I call on my Lord to save me, and to give the Drs the knowledge then need to heal me. One more thing Sweet Pea, if your Dr gives you hopes, dreams and promises - then he is wonderful because I rather have a Dr on my side then to tell me I only have so many years left - yours sounds like a wonderful one. God blessed you!!!!!
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Oh Vettegal - I am still praying that all comes back negative for your sista. I really pray for the best and let Gods will be done!
CathyCa, sorry to hear about such a great loss with your teacher. She sounds like she was a wonderful lady, and still is in Heaven. God bless her!
Jenn, I sure wish I had a game to keep me busy during Chemo, because I know I drive my Dr and Nurses crazy walking around and cracking jokes. I do keep laughter in there and that is so good for the soul.
I pray you Ladies have little SE today from your Chemo. I am going for my third tomorrow. Yippee. I sure hope I dont lose you ladies after you are done with treatments because I wont know what is next for me until May 22 when I get my PET Scan to see if my Cancer is growing or shrinking. I know its shrinking! It better be, cause I am so tired of going for Chemo once a week - it seems like you never get a break but I am not going to complain because I am so blessed to be healthy and be able to walk and smell the flowers and hear and speak! God is so good to me and you!
Have a blessed night and love you all. Oh yea, I was praying for all of you this morning and I did each and everyone of you by name and I know God was like "Ok Dana, can you just say the Jewels" he ha.. Love ya!!!
Love ya xoxoxoxo
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Hi Jewels, well most of you are snuggly tucked in by this time, we're still watching college hoops, our friends whom we're traveling with this weekend had us fill in our picks on the games, we'll see who guessed the best over the next couple of weeks.
Kathy, hope you got the chance to make those brownies for the staff at your onc center, my mil has brought some of her great cookies to my center, you know they appreciate it.
I also will take your idea towards my spring plantings into "consideration"! Its actually a great idea, I won't let the dh be in charge of the fertilizer though, he prepped a large bed in the front yard a few years back, used way to much fertilizer, literally burn't up my plantings within about a week. That was a hard one to neutralize, and needless to say the last time he helped me with the spring plantings!
Going to read Deanna Favre's book as well this week while on vacation.
I hope that your se's stay at bay as much as possible for you to enjoy your Easter weekend. I remember how much fun we had when my son was a little guy hunting for eggs, I'm sure your kids will be stoked as well for the Easter bunny's arrival!
Joan, hate to say it but there are quite a few of us with alot more txts to do, including rads and hormone therapies. I try to remember that even though this period in time seems to be lasting forever, we will get through the short term "now", and be that much better off in the long run. Hang in there gal, we're in this together.
Deb, lets hope that your scrip for nerve pain does the trick sooner than later. Its so surprising to me that most of the se's have been leaning towards, bone and nerve aches. Prior to this journey beginning if you we're to say chemo the first word that would come into my mind would be "throwing up". Okay, Julie you probably would take the award for that though, sorry!
LJ, here's to hoping that your se's stay at bay over the next few days, and a whooohoooo for being at your half way point. Had to post atleast one "whooooohooooo" since Kimberly is mia today.
Kimberly, hoping that your busy being busy and not down for the count today.
Julie, lets call it a slight addiction ... actually I was getting a little concerned as to what sites the gov considers appropriate or not, last thing I need is to have the "IT Authorities" restricting my access. And yeah, I do like to see whats happening during the day. Kinda keeps me connected in a strange sort of way. I don't spend really any time at work chatting about bc, so I'm not on overload in that dept.
The dh is getting into AI, I end up going to bed most the time, he says that Carly rocks!
Maz, I'm sure glad that you had the chance to talk with your bf today. I'm sure that just hearing your voice lifted Val's spirits more than she may have been able to share with you. Best friends are such a gift.
Jenn, thanks for the file, and I got a chuckle in regards to your dh in the kitchen. I have definitely relinquished the dish duty in the eve. Although it takes my dh forever to clean up the kitchen, I know that when I come back downstairs in the morning he will have it all spruced up from the night before. I've been so lucky, he has pretty much done them since surgery number one in Nov. I'm politely told to get out of "the galley" after dinner. Gotta love um!
My ears perked up the other day, was watching tivo'd Regis and Kelly and they we're talking about a winner of their trivia contest, the gal was from McCordsville. Who'd thunk I would ever have a clue about McCordsville, I guess I still don't have a clue, but I thought about how I'm so much more in tune with whats happening all over our country, ie weather, tragedies etc. Its becoming a small world after all!
Cathy, I'll be smelling the blooms in about 40 hours, not that I'm counting! I couldn't imagine how cool it would be to have them in my backyard. In my next life, I'm going to live where its warm year round!
Vettegal, thinking of your family, all the best for your sister tomorrow.
Dana, good luck with number three tomorrow, you seem to be breezin' right along!
Working a half day tomorrow, then I'll be on "cation", our friends little one used to call vacation "cation" so it kinda stuck.
Night all, Carol
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Happy Good Friday to everyone!!!!
We actually get today and tomorrow off! Yippee
Hope everyone is well. Trying to fight the teary eye thing..hope I am not catching a cold. One of my co-workers was and he kept coming around me and i kept yelling at him to stay away from me..i can't get sick for my final chemo. Just washed my hands alot yesterday
On my mom's cancer.Her tumor in her liver is shrinking, which means she can keep taking oral chemo, she is happy. she doesn't know about my sister yet. only if the biopsy comes back cancer, if its nothing she won't tell her...
I hope everyone a great easter with there families. Enjoy the moments of a family holiday!! Have a peaceful wonderful holiday!!
Hugs to all xxxooo
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Hi Gems,
Happy Spring to everyone. Sorry it's been a few days. I was very depressed yesterday, did manage to do housework and take a walk. Today we are getting 4 to 8 inches of snow. I'm also getting my bone scan results today. I hope everyone is well and I promise this weekend to get caught up and give some shout outs. I hope everyone is ready for the Easter Bunny.
Kimberly and Carol I also like your quotes too. We never know where this journey of life is going to take us.
HAPPY BIRTHDAY DANA!!!!! (((((((((((HUGS)))))))))))))))))
Sheshe
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Jenn, what game did you just get for the DS? I got a cobalt DS a couple of weeks ago, picked up Legend of Zelda, COD4, Metroid Prime Hunters, Brain Age, and Word Jong. I have a bunch of others on my Amazon Wish List.
Feeling fine today, had some stomach pain after dinner last night, but it faded away after a while. Legs/feet still swelling. I have a feeling I'm going to be battling that for the next 2 months. I hope to avoid any more drugs (Lasix), and I don't seem to have any water weight gain to speak of.
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Joteach: We've all seemed to hit a snag/experience some depressing thoughts along this journey. A lot of us had a hard time after the third round, too, for some reason. Hang in there. Remember it's ok and normal, just don't let the feelings drag you down too far or for too long without getting them addressed.
Deb102307: I personally despise the taxotere! I think most of my SEs stem from it. I can't wait for them to start going away for good now that I'm done-but I know it could take a while, unfortunately.
Maz: Happy that you and your bff got to talk finally. And I'll keep in mind about asking for a diuretic of this swelling gets worse for me. I'm up 7 pounds now (yuk!), and I really think most of it is fluid retention. I see Jenn51 has had the same problem and got some help to pee all the fluid off, too.
Cathy-CA: Those brownies I made are to die for if I must say so myself. They smelled great while cooking, but there's no way I could eat them right now-choc. just tastes so bad; it's a shame b/c it's almost my 5th food group usually. The nurses loved them though, so that made me happy that someone was enjoying them! One girl said they were so good, they made her swear! Hahaha! I'd be happy to share the recipe with anyone who wants it.
And your story about your teacher was just so sad. I'm sorry. I think it would've made you cry even without all the BC emotions bopping around in your head. I hope she is at peace now.
Vettegal: Glad your mom got good news on her BC shrinking. I hope it keeps heading in that direction for her.
OK girls, I am caught up. Today's not too bad yet. Just kinda tired. The stomach's not real happy but no debilitating nausea. I've got most of my Easter stuff done, so I really can just sit back and let it all happen around me. Happy Easter to all who celebrate it. I'll be checking in as I can this weekend.
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Hello Jewels,
So far the se's aren't too bad. Just tired & achy. Thought I would check in b4 I take a nap. And there are a couple of things I need to do for dh for work. I'll wish everyone a Happy Easter now since I don't know what the next couple of days will bring. I know they won't be bringing Clay home. It's snowing like crazy in Milwaukee & he is smart not to start out. Dogs & cats are on duty again. Earlier I had 2 of each, but they have split up now & I have a dog at my feet & a cat on my scanner. I would be so lonely without them.
Carol, McCordsville is just east of Indianapolis. Just across the county line. I'm 3 miles from work & the office is in Indy. And Indy is in the dead center of the state.
LJ13, My game is called TouchMaster & it has 23 puzzle games, like Tetris, Bejeweled & some card games. I already had CSI but it requires a lot of concentration which I don't have al lot of these days so I wanted some quick puzzles. I want to get some of the ‘brain power' games too but with chemobrain I probably couldn't pass the 1st level right now.
KathyL, Sounds like we are just about in the same place with our se. I just made some grits & that really tasted good. Small & frequent seems to keep the nausea at bay. I would love your brownie recipe. I'll be off chocolate for a few days but then my taste comes back. Funny how my taste buds switch from sweet to salty as the weeks go by.
Vettegal, I am so happy to hear your mom's good news. I agree about sharing the news on your sister. No one but dh & you guys know about this funny thing that showed up on the MUGA. And it's going to stay that way now that I know how hard Clay is taking this bc. In 3 wks when I get the results he should have been on his meds long enough to help him handle anything if it's not good news. And I rarely ask one son to keep a secret from the other. They do it to me all the time, but I really don't mind. I'm grateful they are close enough to share with each other & trust each other enough.
I'm off to try a little work. Love & hugs to all of you.
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Good Morning Jewels,
Sorry I was MIA yesterday. I just needed a day off the computer doing something not cancer related. I read a book called Best Friends cover to cover. My energy is slowing returning, and other than that, the new development is my bottom lip is swollen with a lovely 'chemo' sore, and I can't open my mouth very wide. A spoonful of oatmeal if too full can be problematic. GEEEZZZZ!!!!! This last tx kicked my butt and good. Today, I finally have the energy to do a few errands ( I have been in this house, although I've been out to the backyard to sit in the fresh air, for 9 days).... and oh... I know.... people will take a double take, ..."Is that who I think it is...is that Angelina Jolie?" HaHaHa The dh calls my bottom lip my Angelina Jolie lip.
Vettegal- LOL on hiring a hit man to take out Aunt Flo. I had visions of the scene with all the munchkins in OZ singing The Wicked Witch Is Dead, but it was all of us singing, “WhooHoo Aunt Flo is gone.” OK, for some,but not others. I have not had a period since February, and I should have started this week, but I’m not holding my breath ‘cause we all know Aunt Flo can be cantankerous. Glad you were able to get some real sleep the other night. Rejuvinating.
I love tulips…and your dh’s senitimentality....(sigh).
CHJ- You’re welcome. I’m glad you’re feeling shinier…and how can one help it with daffodils coming up?
Jenn- Hoping you’re doing well after your tx. Your youngest son, Clay, reminds me of my Jon. He’s always calling to check in on me and to tell me he loves too. He has experienced a lot of death in his life (my mom, his great grandparents, his uncle, his beloved cat, and a good friend of his) so I can’t imagine that the thought of losing me hasn’t crossed his mind. He tells me that he shares my story with his classmates when they are complaining about stuff, and then he tells me how impressed they are with my positive outlook. Telling my story seems to help him cope.Hope those baskets got put together ‘just so’.
Carol- I’ll be thinking of you in sunny Arizona playing golf, laughing with friends, drinking a little something fun, and meeting your CMF gal. Have a great time…you deserve it!!!!!
About the Wendi book. I got it, but I can’t read it right now. I’m really burnt out on bc stuff. As a matter of fact, I had to take all the books off the table that were staring at me waiting for me to read them…pick me pick me…just kidding, they weren’t talking to me, but it just felt overwhelming to have all those books piled there. So now I have a few and it feel better. I read one yesterday about best friends who met in college in the 70’s. It was pretty good.
Glad the ole noggin wasn’t too badly injured. I’m sure the ‘nut’ will be gone before your trip.
I’ve decided that I’ll have my doc do the estrogen level test every three or four months once I’m done with chemo to see if my levels are going down on their own. If they go down to a level docs are happy with, I may not feel the urgency to remove the ovaries. If they don’t, then I’ll do that for sure. I don’t want to do any unneeded surgeries if I don’t have to put myself through it.
LWDana- Wow, when you’re feeling strongly about something, you feel strongly about it…felt like what I imagine those “Hail, Fire, and Brimstone” revivals to be like. I’m glad that your faith gives you comfort and strength, but respectfully disagree with the statement ‘Dr’s don’t know s#&t’. Certainly, they don’t know everything, as that would be impossible, but they do the best they can for their patients…at least most do in my opinion. If you’re not happy with your doctor, you do have the right to change doctors, but it’s not him that you don’t like, it’s that he’s not telling you what you want to hear or believe (in his view, he’s being realistic and trying to give you the reality of the uphill battle you face, which doesn’t mean you’ll not make it to the top, just that it will be hard). I’m not saying you have to blindly follow everything your doctor says, you know me, I’m all about being well informed, but I don’t think a general statement like ‘Doctors don’t know s$&t’ is accurate.Your views expressed to Jenn about doctors and nurses only being certified by the board and not by God were a little surprising considering the fact you want to be a nurse so badly. It sounds like you’re letting go of a lot of anger right now, LWDana, so take a deep breath and be aware.
Whew, one minute really on the rant and the next buying donuts and happy her hair is falling out. Yep, she’s on the emotional roller coaster. Hang on Dana!!!!!
Hope your classmates enjoyed their donuts and hope your birthday was filled joy.Paula- You are one dedicated lady, Paula. I admire that you give your kids so much of your time, and that they appreciate it.
Julie- Love that graphic. How do you find that stuff?
CarolC- Here’s to a light fog on your last tx!!!! You’re done!!!!
WhooHoo!!!!
Kathy- Thanks for your kind words. It gives me pleasure to know that my words can be uplifiting. I will be putting one foot in front of the other today for sure. I’ve got to get a few errands run for the adult kids Easter Egg hunt. Glad you’re not too down yet…good thing you’ve got all those errands done last week for Easter and sounds like the flower bed, too. Glad you’re Mom will be there to help you out this weekend.
You’re done with chemo!!!! WhooHoo!!! And that recipe sounds like it needs to be posted.Speaking of WhooHoo, has anyone noticed that I must have inspired Washington Mutual with my WhooHoo? They did, it is in their newest commercial.
Joan- Hey blue jewel, nothing wrong with being down at the thought of one more chemo and then radiation. It seems like such a long dark tunnel with a pinpoint of light at the end, but if you think about it…three months has already passed since January. Can you believe it? (((HUGS)))
Hey Deb- Sorry to hear that you’re having neuropathy issues with your feet. That is one that I haven’t had the pleasure to meet, and hopefully don’t run into over the course of my last two txs. Glad you’ll have some relief soon with the meds. A new season for the Jewels…nice!
LJ13- Good luck at the lounge today. ½ way there!!!!!
Maz- I’m so glad all went well with your tx and that you had a chance to talk to your bff. Wow, you sound great today, and I love your resolve to help her through treatment since you’re the ‘veteran’ and to learn how to face the end with courage and dignity from her…what a gift for you both!
Tinalee- You cracked me up….I feel a droolfest (nap) coming on.
Hope the tx infusion goes well and that you have an se-light weekend.
CathyCa- Oh, I’m so sorry to hear of the loss of your cooking instructor. What a life she made for herself. What a testament to survival she was!!!!
SheShe- Glad you were able to get outside for a walk…and I know waiting for test results sucks. Try to put it out of your mind and concentrate on the fact that it’s spring!!!! WhooHoo!!! You’ve got a wedding coming up soon.
OK, I’m all caught up. Enjoy your Friday everyone.
Love to all,
SIS Kimberly -
Hi Jewels,
Been MIA for a while. My last AC kicked me down pretty hard, tried to catch up with the post then but couldn't do it. Had my first taxotere yesterday and am surprised at how well i feel. No nausea!!!! And they told me i won't need to take the nausea meds. wow. Anyone on this tell me how long before the pains. burning and water retention start??
Someone was asking about toothpaste and mouthwash and while i use the biotene products, i had a rough time with my gums a week ago. My onco had given me a script for Magic Mouthwash which i filled and it cleared things up rather quickly.
Vettegal - i believe i read your ds gets her biopsy results today. hoping for the best news.
No way i can remember all i wanted to say to everyone while trying to catch up but know that you are all on my mind while not posting.
I like Jason Castro on AI. Something about a guy and an acoustic guitar gets me every time. i have other favs to, David Cook, David A. but the girls aren't really doing it for me this year.
Happy Belated Bday Dana!
Best to all of you!
Sista
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Sista, I'm doing Taxol weekly (similar to Taxotere) and I don't have any pain or burning. Fluid retention, I got, but it's just in my feet, ankles, and a bit in my calves. For me it started right after the second Tx. Doc said that exercise helps, cut down the salt, raise the feet whenever possible, possibly try compression socks. If it was still bad or worse, he'd prescribe Lasix. I'm trying to avoid that, and doing pretty well so far.
Only SE I'm having other than that is some mild constipation right after Tx, and my red blood cell count has gone low. And losing what little body hair AC didn't take out.
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Good Friday evening, jewels. Well tx #2 of taxol went better than expected, yesterday. Mostly due to the fact that I was able to see the np on Wednesday because of the face rash, and got all my pre-tx stuff out of the way. Just got back from the neulasta shot and Friday night fish fry. Feeling pretty good, but, think I'll get a headstart on motrin and the sure-to-come body aches. Here's hoping for few se's.
The chili feed fund raiser that my co-workers held in my honor yesterday, went exceptionally well. It was a pot-luck, with 11 crock pots brought in, and all eaten with an hour and a half! I just work with the best folks!
I was bummed to miss the festivities, as I hadn't seen any of these people since I was diagnosed at the end of November. So, I sent many of the ones I am close to the two pics I shared with you all here and told them the story of this great group of women I met on the internet. I got a few wise cracks from some of my single, male colleagues asking me if I could pass along a few tips...
I will be busy with Easter duties this weekend, but, will be lurking when I can. I hope those who've had tx this week, will have se's mild enough to have a wonderful weekend. And, those who are experiencing a good stretch of days, rock on!
Thinking of you all and sending hugs!
Tina
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Gosh Ladies - when I made that statement Drs dont know sh*t really hit home. I seen my Mom die because the Drs didnt want to make more of a effort - I seen her bed sores so big you can put your fist into the hole, I seen my brother suffer as well. It was just MY experience, MY opinion! Yes, I will be a nurse - a very compassionate, caring nursing that is going to go above and beyond for people because I believe everyone deserves a good chance and a bright out look on life! I would never tell anyone that you have 2 years left, because in 2 years you might be healed, you might die. Its all in Gods hands! I am going to be a Nurse and I am there to help people and try to make them better but its through God all things are possible that is what I was saying. Yes, Dr and Nurses are educated but they dont know when someones calling is especially when they predict years away. I have a new found friend that was diagnosed last year to pass away within 3 months and here she is 1 1/2 years later and for ME my Opinion when they tell you that they give you little hope! That is just my Opinion, I am so sorry if I offended anyone. I am not on a roller coaster - I was very mad at my classmates for not appreciating me or acknowledging my opinion on what food I choose to eat but on my Bday I read my scripture and it stated you are Right but the way you went about is was wrong so I wanted to turn the other cheek. I do have a thin line between love and hate and I am human, I got that from my Mom being so loving and then I got the anger from my dad (when i was abused). I never bring out the anger until someone close to me pushes me that way, and still after that I dont like who I have become! I am growing still - look at how long it took me to mature and get rid of my negative ways, and to get an education.
I didnt grow up like most! I was on the streets at 12 years old do whatever means possible to survive. I grow up with gang members whom I thought cared about me because i was too afraid to go home to my father. I will not go into details all that I seen and been through but I have been through hell and back and now I am in peace and walking with God. I do apologize if I offended anyone regarding my statement. I wish I could take it back, because I didnt want it to come across as if you Doctors dont know anything because they do, it just hurts me to hear Drs that give you little hope that is all I was saying - TO ME GOD IS IN CHARGE OF YOUR LIFE. That is all I was saying and I will make sure I am more careful with what words I use. The funny part the message was for Maz, and she thanked me but others found it strange or offensive. I am not a hurtful person and I sincererly apologize to ANYONE that took it the wrong way.
Have a blessed day, and once again Jenn and Kim and ANYONE else I offended I do apologize.
Dana
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I got my bone scan results back, it is neg for cancer. WhooHoo!!!!!!!.
I promise tomorrow I will send out some shoutouts. Wed is my last chemotini. Yipee!!!!!!!
SheShe
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Its me the again - the hard pill to swallow - he ha
Vettegal, I am so happy to hear your Mothers cancer is shrinking! All glory to God and the Doctors -
I am continuing to pray for you and your family and your sister. I will be in church tomorrow and again I will put you and so many others on my list for prayers. You know the more the prayers the merrier!
God bless and love you ladies! You guys can rename me the hard pill to swallow instead of Lil Warrior even though that name fits me too. he ha..
I had my three chemo - so far so good! I am just so blessed to have little se and I thank him each and every day and I continue to pray for you ladies that are having problems with the se's.
Have a Happy, Happy, Happy Easter!!!!
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You go SheShe - I am so elated for you! That is AWESOME!!!! Its nice to hear some good news!
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