Where are the tri-negs!

mmc - sorry about your news. Can one person have such terrible luck? You bet - every one of us here.



wvgirl - no need to be nervous. Whenever you do public speaking there'll always be at least one person nodding their head when you say something. You focus on her, and any others if there is more than one. Ignore the people who look like they are falling asleep - there's some in every crowd. It's not you. It's them - they are rude. You'llbe fine as long as you don't just read some prepared text. Now that is boring.

Good evening lady bug cyndi, sorry you had to join us here but you'll find lots of support, love and a wealth of information on the site. My dx is very similar to yours and now am doing 4 dd ac and then 4 dd taxol and then 16 rads. Triple negs don't respond to hormone tx so it is chemo and rads. Chemo is very effective with triple negs.

take care

Hi everybody,

Another triple neg here. I had a double mast, 4 rounds of AC and 3 rounds of Taxotere. Was to have my 4th round on 3/4/08 but due to severe edema in my upper torso and arms, breathlessness, sever fatigue, and muscle weakness, my onc feels it may be my heart. She says Taxotere does not cause these symptoms but from what I hear, I believe it is the Taxotere. I go for a MUGA on 3/10/08 and then see her on 3/11/08 to see if she will give me my final round. I am not a chemo junkie, but being TN I want all I can get since it is all I have.

I have to stay off some of the websites because I get so scared about the prognosis of TN BC survivors. I am afraid after the chemo that I will feel like I am freefalling. Just waiting for that other shoe to drop. I know that will pass, but right now it seems like I am fighting and then we just stop????

Anyway, I have got to get over some of these side effects. I cannot walk through a dept. store, go up a flight of stairs without being extremely winded. I am 49 and was very active before my dx. I have gained 18 lbs (mostly fluid) and am pretty much housebound. But today, I was in very high spirits. I just can't stay down for long. Spring is coming her in Tenn and I am ready to get out in my garden but wonder how much I can really do this year.

Anyway, wanted to introduce myself and see how everyone else copes with  those "weepy" days.

Debbie 

Hi, I am also triple neg. Found my lump August 15, lumpectomy Oct 19. Am almost done my chemo 4 X dd A/C then 4 X dd Taxol. I have one more Taxol left then onto radiation. Am being tested for BRCA 1 as two Uncles and two Cousins (that we know of) have it. Will have the results in about 5 weeks. And here continues my journey.

Love and hugs to all

Suz

Hi TN sisters,

Feeling much better this weekend. Round 4 of AC brought a lot of nausea (thankfully, controlled by drugs). I have a cold again, though... I have had upper respiratory stuff for 6 weeks now--some I think d/t the cytoxan (constant watery eyes and runny nose, REAL attractive).

MMC- the waiting for the tests is going to be the hardest part, I think. I'll be praying for good news...

WVgirl- speakers with a personal message are the best kind. And boy, do you have a journey to share with them! You'll be great. Don't forget that I'll be happy to come and lend you my moral support!

ladybugcyndi- How far are you with your treatment plan? I see you were dx on 1/31--not long ago.

Debbie- glad you're feeling better this evening. I hope your MUGA is good and you can finish your chemo. Just one more round... that's great!

I begin 4 rounds of Taxol on Friday. Hope you all have a good day tomorrow.

Paula

ladybug: good luck to your son. Given our location, we see more than our share of young men and women going into horrible situations. Please let him know he is supported 100%.



susan

Personally, I don't believe anyone knows anything.  Did anyone else read about all the residule medical watse water which is rarely tested or even discussed among the EPA of the AP?  Discusting information...Insight, not always happy, and knowledge, well what the heck can we do about toxic medicines which will combine with other toxic medicines and disgusting glue in our Drinking Water, crap that will always be there  because it never breaks down, it never resolves, disolves or leaves the water sytems, most of which have never been tested for pharmaceutical poisons and residule leftovers which you are feeding to you children in microwaved plastic bottles every day!  And we wonder, why do we have cancers; how many years has the corpprate chemical establishment been dumping this disgusting combinations of drugs, and who knows what into our water. New York, Cleveland, Houston, Los Angeles, Boston, and think of all the little towns in between; not to mention all the other toxic medical waste flowing from our toilets into the children's milk containers and apples.... you think we are safe?  Please read about water contamination, medical toxic waste and the lacking care or regard for human life.

Indi

Good morning TNs,

Have a respiratory bug and didn't sleep much last night. Had to go in to onco for blood work yesterday as fever hit 101 and major chills. My WBC were low, but not too low for my chemo on Friday (round 1 of Taxol). Had a chest xray and NP swab (now THAT was fun...NOT!)and started on an anti-infective drug. Feel pretty good this morning, all things considered...

pta- 33 is too young to have to face BC. I am 46 and my mother has expressed to me how difficult it is for her to see me going thru this. I haven't felt up to making the local BC support group meetings yet, but I plan to bring her with me when I get there. (((HUGS)))

Indi- you are right--our world is full of toxins. I live in country near a small town. In our little hollow ("holler" for us WV folks) there are so many with cancer... My dh was dx w/ brain cancer in 2006 (so far NED since tx) and now me w/ BC...

Debbie- congrats on finishing Taxotere!!! Is that your last chemo? I'm with you on pushing for testing after we're finished w/ tx.

You tickled me w/ your comments about the steroid "high" Guess I'm going to be there soon!

To all of my TN sisters: hang in there and take care of yourselves.

Paula

Hi there,

I have been away for about a week. Been real tired. It's all I can do to make it through the work day. Thank God I have a desk job.

Deb You are so right about survival. God gives you 1 day at a time. You have to make the best out of each and everyday of your life. Cherish each day as a blessing..Don't thing of the negative often.

Paula I have went to 2 support group meetings. I really enjoyed them. You meet a lot of wonderful people. I finally got in touch with my Clinical Trial Nurse today. She gave me the # to call about the Conference I will pm you as soon as I know more.

Indi-you are right about toxins. In the past 3 years there has been 4 people dx with cancer within a 2 mile raids of my former home. Two with BC 1 with lymph node and 1 with tumor on kidney. This is not to mention the other 12 to 15 that passed away with cancer.

At the support group meeting I told someone I will be starting on A/C the 23rd she referred to it as the Red Devil-Oh gee I got 4 of them to go. :-(

Hey there, Annie, and welcome! I've seen your pretty pic on other threads (your little girl is a cutie!). Thanks for the link to the abstract. There were several interesting articles referenced as well.

Dancer- hang in there. My onco and I discussed doing all 3 together, but we ended up choosing AC x 4, then Taxol x 4. I have completed my AC and tolerated them pretty well, I think. Missed work 1/2 day on Friday for treatment and 1/2 day on Monday cause I was feeling a little slow yet. I start my Taxol tomorrow. So far, so good.

Paula

hi everyone...feeling like it's a good sign for me that i am not posting every five minutes on here like i used to do during the worst of things...i do read everything though at least a few times a week. i even had a moment last week when i forgto that i had had breast cancer!  a group at work was sitting around talking about health things and i said - thank goodness i've always been healthy..they all looked at me like i had three heads!  i remembered quickly and said, "oh yeah -except for that pesky breast cancer!"

Annie

Yes sounds like the same trial.

I was randonized into the Standard Group which means I will be treated as any regular bc patient.

I managed pretty well on the taxotere

Few se's (thank god)

I have had several crying spells. The DH says is pouting ! But alot of it has nothing at all to do with the chemo.

Thanks for the link and the informaton

FlaLady- you are in my prayers. Hope things move quickly and you get that tumor gamma knifed outta there! ((HUGS))

Holly- Good for you! You're living your life. I know we have to be alert and monitor ourselves carefully (dang tri-neg), but I think we all want to get to a place where BC isn't the biggest thing in our lives... glad you're there!

Debbie- I was given 20% chance... was not happy since most of the BC survivors I know are given around 5% chance of recurrence. I was like a kid who got the "bad" toy for Christmas--I wanna 5% chance... I don't want 20%. LOL

Finally I put it into perspective a little-- 1 in 5... every woman has a 1 in 8 chance of developing BC... as we age that chance increases to 1 in 6. So my 1 in 5 isn't SO much greater than the average.

Anyway that's my story and I'm sticking to it!

I'm sidelined a bit today-- not sure how much is from my first dose of Taxol and how much is left over from the virus I have had. I'm sore from head to toe.

Have a good Sunday, everyone!

Paula

HI, Last Thursday was the first time the drs. used the words "triple negative". I did not even look it up until Saturday.  I am now freaking out.  Since being diagnosed I have corresponded with so many people who had surgery, and treatment and go on to live the rest of their lives, that I just assumed that is what would happen to me.

I did have a bi-lateral mastectomy on Wed., March 5.  There were two tumors, 1.4 cem and 1.8 cem., but 10 out of 21 nodes were affected.  I am completely befuddled by reading how large other people's tumors were, but no node involvement.  I have not met with an oncologist yet.  I am calling this morning to make an appointment.  The surgeon has indicated I will need chemo and radiation.

My mammogram in December showed calcifications, I did have a mammogram in June and exam by dr. and nothing was noticed.

I was borderline hysterical until I started reading stories here of survivors of this type.  I had such a great attitude and outlook until I read abut the low survival rate.

Does anyone know if being in shape helps with survival?  About 3 years ago a lost 40 lbs and am within normal weight range and have been working out regularly for about a year.  I will probably start working out again next week.  I am 42 years old.

I guess I am just looking for some hope

Thanks.  Lisa