Nice things people have said...

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  • kimmie0371
    kimmie0371 Member Posts: 20
    edited March 2008

    AnneMomof4-I am newly married and have been married to love of my life for only a month and 5 days-we have been apart for 15 years and he has always been the love of my life even though we went our separate ways and got married to other people and had other children besides our first who is now 18 years old and my husband is the love of my life and the greatest man you will ever meet-he knows that chemois hard and makes me sick almost all of the time but he tells he to hang in there and that marrying me was the best thing that he has ever accomplished in his life and if there is no faith left in me right now then he has faith for the both of us-between the 2 of us of we ahve 6 beautiful children one of his is adopted and I love them all and the changes are outragous and things will not be the same but husbands can be the best medicine that a doctor can prescribe for any woman with bc and that man is the strongest person that i know and i  know that all of us here on the site will talk and share are true stories one day and look back and ask ourselves did we really say or do that-be strong and have faith  my friend because faith will carry us all through the hard times-i dont have alot of room to talk because I feel like GOD is punishing me again for something because this is my second battle with bc and I have a bad feeling that i am going to loose this one-but I have a great support group and you guys here on this site-just dont loose lite of what is important in life and that is life itself. kimmie0371

  • kimmie0371
    kimmie0371 Member Posts: 20
    edited March 2008

    CAACLARK-they are right you know short hair, long hair or no hair we are always still going to be beautiful no matter how we look on the outside it is a little hard to get used to that is why i wear ball caps and bandanas (pink of course) but we are all beautiful in our own way and when your children can tell you that and that they love you anyway that gives you all the reason in the world to fight back and win this battle against this disease that seems to take so much of our time away from our children, family and friends, I lthink you are a beautiful person no matter whether you have hair or not kimmie0371

  • kimmie0371
    kimmie0371 Member Posts: 20
    edited March 2008

    Shrink-I thnk he gets big kuddos for that one-you have a special one there kimmie0371

  • Pam123
    Pam123 Member Posts: 22
    edited March 2008

    I have a couple of stories to share....I am a letter carrier.   I was diagnosed in July of 2006.   Like all of you I am sure, my head was filled with all of the crazy questions of " How am I going to get through this?  Can I even do this? What if I loose my hair?   Am I going to be able to keep my job?" etc.   I think that it was the day before I was to start chemo.   My job basically was the fill in, for other carriers.   I remember coming into work and finding out that I was going to be on a route that was part walking.   It was so hot even in the morning that I thought there was no way that I would make it through the day without getting some water and gatorade.   So when I stopped to put gas in vehicle, I ran in the Circle K.   Apparently everyone had the same idea.   The line was clear to the back of the store.   At first I thought that I didn't have the time to wait, but then again I was really going to need the liquids.   So I got in line.    As I waited, the questions began again in my mind.   I just kept hoping the line would move quickly.   Then the lady who was in front of me, turned around and began talking to me.   She had tried unsuccessfully to engage the person in front of her in coversation, so I became her next target.    She began telling me all about what was going on in her life.   How she was moving, moving into a smaller place.  How she was able to get her cats adopted by one person.   I was amazed at how much information she was giving out in the middle of this Circle K.   I didn't say much, just smiled and knodded.   And she just kept going on and on.   It was finally her turn up at the counter and I wished her luck thinking that was the end of the conversation.   She greeted the clerk then turned around and said to me, without knowing at all what I was facing," I guess what I have been trying to say is.... Sometimes you can do things that you think you can't do."   I can not tell you how many times I referred to the Circle K lady's wisdom to get me through this whole ordeal.   And even now, telling the story again, somehow gives me hope to keep on, keepin' on

  • Pam123
    Pam123 Member Posts: 22
    edited March 2008

    Okay, so I am going to tell one more story.   Like I said in my earlier posting, I am a letter carrier.   I tolerated my first round of chemo really well.   That night I took the nausea medication so that I would not wake up sick.   However, I wanted to know just how sick the chemo was going to make me, so I didn't take any of it the following day.   Surprisingly, I hardly felt any difference.   So I basically ran with scissors.   My best friend and I had gotten tickets to see a concert long before my diagnosis, so we went that concert that night. ( So much for avoiding crowds, not too mention that my friend was sick with a bad cold.)   I managed to show up to work on Monday fine.   I was doing so well that I even thought I might get away without loosing my hair.   Well, then the third week after the chemo hit.   I had long hair and began to notice I was leaving my fair share of forensic evidence all over town.   On my way to work, I would run my fingers through my hair to try and get all the fly away strands out, only to get out of my car to see the back of the seat completely covered in my hair.   I tried to get the courage to shave my head, but instead cut my hair shoulder length.   But my hair was just looking worse and worse everyday.   So I did it.   I spent about four hour shaving my head.   I cried at first, but by the fourth hour I was trying to be so exact that it distracted me from the tears.   I wore a hat to work which was something that I never did.   I thought that most people knew what was coming, but I was wrong.   People would come over and make a comment about the hat thinking that they were being cute and so it began more of the reality of what was happening.   That was a really hard day.  But nothing could have prepared me for what happened that afternoon.   As we all returned from the street, co-worker after co-worker showed up with shaved heads.   So many of the wonderful people that I work with had taken their lunch hours, to get their heads shaved.    It was unbelievable!   They even came out for our regional Postal News letter to write a story of what wonderful people I work with.   They even took pictures which I like to refer to as the "Where's Waldo" photos.   I couldn't get over that so many would choose to support me in that way.   It definitely made it alot easier to show up to work bald.

  • otter
    otter Member Posts: 6,099
    edited March 2008

    Pam123,

    That is such a cute story about your co-workers shaving their heads during their lunch hour.  And, you're a very good writer.  "Leaving forensic evidence all over town..."  LOL!

    I think this "nice things" thread needed to be resurrected, so I'm glad you've posted.  The thread was started quite awhile ago, and it went dormant.  Lots of people have a hard time knowing what to say or do when a friend or loved one gets cancer.  Even I realize now, in retrospect, that I didn't do too well when the dx came for people I knew.  (Funny how a change in perspective can be such a learning experience!)

    Anyway, I can't post any "nice things people have said" because there hasn't been anything all that extraordinary in my case.  The nicest things that have been said have come from people right here on the BCO boards.

    OTOH, nobody has said anything awful, either (which is a different thread).  Mostly I've learned that the near-reclusive life I led when I was employed (pre-retirement) has come back to haunt me.  Fortunately, my dh and I are as close as ever.

    otter 

  • artsee
    artsee Member Posts: 1,576
    edited March 2008

    Well, I happened upon this thread by accident and did not know it exhisted. I just returned from Easter shopping at the Department store that I work in.This was also my first outing after a week with the new WIG on."

    So this comes in perfect time. As I was wheeling the cart around with my purchases, so many people stopped and said,"Did you get your hair cut again? It's ablsolutely darling." or "that's it I'm getting mine cut just like that". When I told them it's a wig, no one could believe it. All I heard was "Ya right!" So needless to say, as I was trying to duck out of everyones way, it made my day. I felt so good coming back home.

    Just thought I'd share this. I won't be able to face the world El Naturel.

    Artsee

  • mommaZ
    mommaZ Member Posts: 3
    edited March 2008

    I am new here too.

    I am having difficulty understanding the difference between LCIS and DCIS.

    I was diagnosed in Nov'08 after having a lumpectomy to remove a papilloma.  It was removed but the margins showed LCIS.  I had a lumpectomy done 3weeks later to make sure all the LCIS was removed and the margins were clear.  I also had an MRI to make sure there were no other spots in either breasts.

    The results came back that all the cancer tissue was gone "clear margins" and that because it was all out that there was no further treatment needed.

    I have not been referred to an oncologist etc. and am feeling like I need to do something pro-active as I am now at higher risk of developing BC again.

    Again, the question everyone asks.  Do I have BC? Am I cured of BC?

    Any advice, as I have booked an appt to see the surgeon as I feel like I have to ask more questions.

    Thanks,

    mommaZ

  • iodine
    iodine Member Posts: 4,289
    edited March 2008

    Hi, I can sure understand your confusion.  The in situ part of each of the diagnoses is the important part: the cancer has not invaded - it is held in one place.

    I would be concerned, too, about no further treatment.  This is one of those times when a second opinion is the best thing we can do for ourselves.  It will either reinforce your present recommendations or offer a different perspective to consider.

    Of course, you will continue to be carefully monitored to determine any further presentations of bc.

    Others with more LCIS experience will come by, but I recommend you scroll down to the LCIS board and talk with the ladies there, they can help a LOT>

    PS: glad you found us and hope we can help thru the bc maze.

  • carol4u
    carol4u Member Posts: 1
    edited March 2008

    March 26, 2008

    I was diagonosed with breast cancer February 23, 2008.  I have had

    a massectomy and am awaiting for my appointment with the oncologist to be told of my treatments.  It is hard for me to talk about breast cancer to anyone so this is the reason I came on this site to try and get something positive.  Ive been told that tamoxifan

    may be one of my treatments but I have read some negative facts..

    may cause uterine cancer.. If anyone else has been on tamoxifan

    I would appreciate their input

    I hate Cancer...it sucks bigtime!

  • Blinx
    Blinx Member Posts: 280
    edited March 2008

    Carol -- welcome to the board -- I'm glad you found us! There are many here who have shared in your experience.



    If you scroll down, you'll find lots of discussions on tamoxifen under the "Homonal Therapy: Before, During, and After" thread.

  • Beachbum
    Beachbum Member Posts: 2
    edited April 2008

    Hi everybody new to the site but not new to breast cancer. Had a double mast.with reconstruction at the same time. I had lead poisoning from my job that led to my bc. Had a leak in my right fake boob 2 years after my surgery. I'm 3 year out as of feb. 23rd. The things I hate the most are the people that I thought were my friends, they just don't come around anymore. Whats with these people we are not contagious. I didn't take the chemo or radiation the doctors suggested I opt. for the natural way.  I had just ben through i.v.'s for 2 years trying to get the lead out of my system I didn't want to at bad chemicals back in.  So far so good.  The only bad part is I take about 42 pills a day, most are supplements. I don't know about you guys but sometimes I feel so all alone in this.  I'm glad I found this site I hope it will help.  My family does not let me vent the way I need to.  Thanks

  • Beachbum
    Beachbum Member Posts: 2
    edited April 2008

    Hi Carol. I'm new to the site also. I have been on tamoxifen since my surgery Feb 23, 2005. I have been doing o.k. so far. It's the only thing I did that the oncoloigist suggested. I'm taking a lot of supplements my family doctor suggested so far so good.  You'll be O.k.

  • vanessa65222
    vanessa65222 Member Posts: 1
    edited April 2008

    Hi everyone, I wanted to ask for some advice and not really sure how to go about finding it. Im 20 yrs, and I do have lumps in my breast, breast cancer does run highly in my family. I have gone to my family docter before moving 2 yrs ago, and she kept telling me not to worry that its only a cysts. My question is what doctor should i go to, to find out for sure if I should be worried. The lumps in my breast have not gone away and somtimes cause discomfert.

  • Dansmom
    Dansmom Member Posts: 82
    edited April 2008

    Vanessa, you need to have the lumps checked out for your own peace of mind if nothing else.  is there a Planned Parenthood where you live?  I think if you call or go there they can refer you to somebody who can help you out. Nobody should tell a woman not to worry about lumps in her breast.  In my opinion.

  • bobbif2008
    bobbif2008 Member Posts: 3
    edited April 2008

    Hi,

    I've been away for awhile.  I had a question (very weird)  I noticed a discharge from my nipple from bc 6 years ago.  It looks like a piece of sand.  I had this once before and was told it was fat from the surgery.  Could this be?  No other signs of the bc are back.  Has anyone had this happen before?

  • bobbif2008
    bobbif2008 Member Posts: 3
    edited April 2008

    Hi,

    I've been away for awhile.  I had a question (very weird)  I noticed a discharge from my nipple from bc 6 years ago.  It looks like a piece of sand.  I had this once before and was told it was fat from the surgery.  Could this be?  No other signs of the bc are back.  Has anyone had this happen before?

  • bobbif2008
    bobbif2008 Member Posts: 3
    edited April 2008

    This has always been a great site.  It really has changed alot.  Looks Great!

  • johann
    johann Member Posts: 11
    edited April 2008

    Venessa,

    Please get the lumps checked out.  I too was told for 3 years that I had a cyst.  It turned out to be cancer.  Call your gyne for a checkup and he should take it from there.  Demand a biopsy be done!

    Good luck.

  • ANA50
    ANA50 Member Posts: 1
    edited April 2008

    your friend is totally right.  there's life for us all the time because there's one who died on a cross to give us 2 definite things:salvation and health. the bible clearly says that.  I know there are moments when we are ready to fall but we have to remember this if we're christians. i know he doesn't send sicknesses but he permits them in our lives because through them He changes many things, starting by ourselves and the way we see and live our own lives.

    So, after this precious gift, Let's enjoy life!!! let's see the love there is and not the negative things, and let's start giving it to others since you have to give first if you want to receive!

    God bless you all!

  • frogger
    frogger Member Posts: 52
    edited April 2008

    hi i am new to this site and have just been diagnosed on 3/17/08 with lt breast cancer stage 2, triple neg. i have been asking myself how do i deal with this and help my 12 yr old daughter and 2 yr old son. i have had surgery on 4/1 but now am getting ready fo chemo. not dealing well with all that is happening. any words of wisdom

  • snowyday
    snowyday Member Posts: 1,478
    edited April 2008

    Hi Frogger:  One thing I will recommend is line up your good friends and accept any help they offer, I was bad at this and it cost me.  Also once you know exactly what chemo your getting get on to the triple negative and chemotherepy threads they are chock full of information.  I'm sorry your going through this its a hard thing especially with children.  Drink lots of water and take vit d3 and calcium it will really help with the taxols. But take any help from people you trust, also if you need rides to your treatment contact your local Cancer Society and get on their lists for rides. 

    Big hugs, Pearl

  • frogger
    frogger Member Posts: 52
    edited April 2008

    Hi Pearl,

    thanks for the words of wisdome. it's hard to ask for help i am 40 and have always been a do it your swlf so it gets done person. i will start on a/c x4 then t x 4 on 4/17/08 to be followed with radiation. thanks for the advise with vit and calcium

  • snowyday
    snowyday Member Posts: 1,478
    edited April 2008

    Hi Frogger:  I started on FEC then Docetaxol after then radiation and of course, in Canada they do surgury first.  What I didn't realize was that alot of other women had surgury afterwards.  That made sense to me as some were able to shrink their tumours and get cleaner margins weird how they do things different in Canada, and you'd think after all the treatments in the US we wouldn't be so far behind but we are up here.  Oh well.  Now I'm playing the waiting game with scans etc to see how badly it's travelled in my abdomin area hate waiting. Just want to know so I can attack it.

  • beastybabe
    beastybabe Member Posts: 196
    edited April 2008

    Im sorry that you are having such a low day...but as you said we are women and we are strong....we can do anything that we put our minds to....so never give up.

    I don't know if this would help but when you feel down or feel like you've come across some stupid adults....watch some funniest home videos...they always make me laugh and take my mind off the cancer

  • snowyday
    snowyday Member Posts: 1,478
    edited April 2008

    beastybabe, I love to animal planet and the animals funniest videos always cheers me up.  And I find I totally don't think about cancer when I watch animal planet. When I was house mother at a womens' shelter most days there was so much drama and sadness there I found that was all I watched didn't even watch CSI and other favorites.  Always to animal planet when stressed. 

    Yes we are strong and we can't give up but cancer still sucks. Hate it.

  • FaithP91
    FaithP91 Member Posts: 3
    edited April 2008

    My oldest is 15 and she has had the hardest time with my breast cancer. I just had a bi-lateral mast (it will be 3 weeks on Friday) The plans where to start a very aggresive chemo in a couple of weeks. But due to some tissue healing problems (probley due to my Lupus) so I'm not sure of the date now. I still have two of my drains in and all my stitches, expect for the ones they took out when they removed my other two drains. (2 drains to go) I will just be happy to get them out, and more happy to get my first shower. I hope the draining slows down and I can get them out by Friday. Otherwise it looks like next week before they will take them out. Still praying that I don't have to have another surg. before chemo, because of the one area not healing well. So we wait. I will keep you in prayers and I hope all goes well for you. I believe with all my heart that this Will make me stronger person and will allow me to touch more lives in a positive way. Keep in mind that there is lots of free counsling if your kids need it. My daughter did talk to someone and it really helped her.

  • frogger
    frogger Member Posts: 52
    edited April 2008

    faithp91,

    i here you about your 15 y/o, i have a 12 y/o daughter who is not dealing well and school is not helping. thay seems to have the oh well so your mom is sick. i found a book called when mama wore hats that seemed to help her understand. sometimes i think if she could talk with other kids about what she is going through it would help her feel free to talk. it's great you found some counsling that hepled. my daughter would not talk about it. lots of luck to you .i will keep you and your daughter in my prayers

  • snowyday
    snowyday Member Posts: 1,478
    edited April 2008

    Hi faithp91 and carlisle:  Just a quick note to wish you and your family the best, I will say a prayer for you and your children so hard for any of us to deal with this nasty disease.  Big hugs, Pearl

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