Jan 2008--Ain't it Great?

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  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    I'm back, was the dh checking to see how things we're going after practically hanging up on him earlier!

    Kimberly, hoping that you ordered Wendi's book.  I so think of you as I'm reading as she often quotes "WhoooHoooo", just like someone else I know!!!

    Hey I can see it now, 21 women all sporting a FUBC T-shirt on Ophra's stage.  A sight like no other! 

    Hope your N-Nasty doesn't totally wipe you out this go around.  But if your laying low, we'll know why, take it easy there gal, time to kick back for a few days!

    Therese, I say bring on a new wish, like many more years of healthy living, oh and lets add, winning the lotto as well if we're wishing!   So as I read, your done with txt as well.   Sounds like the excitement of finishing will need to come in a few more days when the fog has lifted.  Are you slated for any other txt, rads?  Hope you can just kiss this whole bc thing in the *ss and call it good!!

    Kris, time to just veg, sneak a peak when your up to it, sorry to hear that your having a tough go with this last txt.   Remember we're here to vent to if needed ... take care.

    PALady, what a interesting read you had.  If that doesn't make you a believer, I don't know what would.  Pretty eeerie, I don't know if I would have the nerve to do that or not.

    In regards to your mamo, I'm totally with you on getting a sonogram (which I assume is different than a u/s?), and a MRI.  I'm not personally having alot of faith in the mamo since I went from January to Oct and grew a 4cm tumor that wasn't visible in Jan mamo.  I have a Grade 1 tumor, so its not necessarily a aggressive grower.  I have really enjoyed (probably not the best choice of words), hearing the stories we all have to tell.  Hoping that some of you may have been interested in knowing a little more about each of us as well.

    Dana, you warrior you, keep up the great spirit and it will take you far.  I think you have gotten enough polite lectures on knowing when to slow down.

    Back to my infusion day, asked the nurse today "you do alot of txt, do you have any other ladies doing CMF"?  She said oh yes, I had to question her as well as to why she thinks I would not be on a AC type regimen.  Again I keep thinking to myself, no pain - no gain!  I guess I should start calling my pooper "my pain".  Anyway she states that what I'm doing has a good track record, yada, yada, I get ready to leave, have to use the tilly, as I come out the nurse whispers in my ear, I have a lady who would like to meet you, she is also there getting CMF.  She is getting her cytoxan via a drip whereas I take mine in pill form for 14 days.  She said the pills made her extremely nauseous and wanted to quit completely and the drip seems be better.  She is scheduled to be finished in June, as I will too.  Anyway, I now have one more phone number and a person who I kinda felt could use a pick me up.  Noticed she was there by herself.  I jotted down the bc.org website for her, told her how much real support you can get.  Hope she will check it out.

    The big bro is stopping by with a belated b-day gift, he usually brings some of his award winning home brew, I'll have to keep that one put away for a little while longer.

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  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    I'm back, was the dh checking to see how things we're going after practically hanging up on him earlier!

    Kimberly, hoping that you ordered Wendi's book.  I so think of you as I'm reading as she often quotes "WhoooHoooo", just like someone else I know!!!

    Hey I can see it now, 21 women all sporting a FUBC T-shirt on Ophra's stage.  A sight like no other! 

    Hope your N-Nasty doesn't totally wipe you out this go around.  But if your laying low, we'll know why, take it easy there gal, time to kick back for a few days!

    Therese, I say bring on a new wish, like many more years of healthy living, oh and lets add, winning the lotto as well if we're wishing!   So as I read, your done with txt as well.   Sounds like the excitement of finishing will need to come in a few more days when the fog has lifted.  Are you slated for any other txt, rads?  Hope you can just kiss this whole bc thing in the *ss and call it good!!

    Kris, time to just veg, sneak a peak when your up to it, sorry to hear that your having a tough go with this last txt.   Remember we're here to vent to if needed ... take care.

    PALady, what a interesting read you had.  If that doesn't make you a believer, I don't know what would.  Pretty eeerie, I don't know if I would have the nerve to do that or not.

    In regards to your mamo, I'm totally with you on getting a sonogram (which I assume is different than a u/s?), and a MRI.  I'm not personally having alot of faith in the mamo since I went from January to Oct and grew a 4cm tumor that wasn't visible in Jan mamo.  I have a Grade 1 tumor, so its not necessarily a aggressive grower.  I have really enjoyed (probably not the best choice of words), hearing the stories we all have to tell.  Hoping that some of you may have been interested in knowing a little more about each of us as well.

    Dana, you warrior you, keep up the great spirit and it will take you far.  I think you have gotten enough polite lectures on knowing when to slow down.

    Back to my infusion day, asked the nurse today "you do alot of txt, do you have any other ladies doing CMF"?  She said oh yes, I had to question her as well as to why she thinks I would not be on a AC type regimen.  Again I keep thinking to myself, no pain - no gain!  I guess I should start calling my pooper "my pain".  Anyway she states that what I'm doing has a good track record, yada, yada, I get ready to leave, have to use the tilly, as I come out the nurse whispers in my ear, I have a lady who would like to meet you, she is also there getting CMF.  She is getting her cytoxan via a drip whereas I take mine in pill form for 14 days.  She said the pills made her extremely nauseous and wanted to quit completely and the drip seems be better.  She is scheduled to be finished in June, as I will too.  Anyway, I now have one more phone number and a person who I kinda felt could use a pick me up.  Noticed she was there by herself.  I jotted down the bc.org website for her, told her how much real support you can get.  Hope she will check it out.

    The big bro is stopping by with a belated b-day gift, he usually brings some of his award winning home brew, I'll have to keep that one put away for a little while longer.

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  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    I'm back, was the dh checking to see how things we're going after practically hanging up on him earlier!

    Kimberly, hoping that you ordered Wendi's book.  I so think of you as I'm reading as she often quotes "WhoooHoooo", just like someone else I know!!!

    Hey I can see it now, 21 women all sporting a FUBC T-shirt on Ophra's stage.  A sight like no other! 

    Hope your N-Nasty doesn't totally wipe you out this go around.  But if your laying low, we'll know why, take it easy there gal, time to kick back for a few days!

    Therese, I say bring on a new wish, like many more years of healthy living, oh and lets add, winning the lotto as well if we're wishing!   So as I read, your done with txt as well.   Sounds like the excitement of finishing will need to come in a few more days when the fog has lifted.  Are you slated for any other txt, rads?  Hope you can just kiss this whole bc thing in the *ss and call it good!!

    Kris, time to just veg, sneak a peak when your up to it, sorry to hear that your having a tough go with this last txt.   Remember we're here to vent to if needed ... take care.

    PALady, what a interesting read you had.  If that doesn't make you a believer, I don't know what would.  Pretty eeerie, I don't know if I would have the nerve to do that or not.

    In regards to your mamo, I'm totally with you on getting a sonogram (which I assume is different than a u/s?), and a MRI.  I'm not personally having alot of faith in the mamo since I went from January to Oct and grew a 4cm tumor that wasn't visible in Jan mamo.  I have a Grade 1 tumor, so its not necessarily a aggressive grower.  I have really enjoyed (probably not the best choice of words), hearing the stories we all have to tell.  Hoping that some of you may have been interested in knowing a little more about each of us as well.

    Dana, you warrior you, keep up the great spirit and it will take you far.  I think you have gotten enough polite lectures on knowing when to slow down.

    Back to my infusion day, asked the nurse today "you do alot of txt, do you have any other ladies doing CMF"?  She said oh yes, I had to question her as well as to why she thinks I would not be on a AC type regimen.  Again I keep thinking to myself, no pain - no gain!  I guess I should start calling my pooper "my pain".  Anyway she states that what I'm doing has a good track record, yada, yada, I get ready to leave, have to use the tilly, as I come out the nurse whispers in my ear, I have a lady who would like to meet you, she is also there getting CMF.  She is getting her cytoxan via a drip whereas I take mine in pill form for 14 days.  She said the pills made her extremely nauseous and wanted to quit completely and the drip seems be better.  She is scheduled to be finished in June, as I will too.  Anyway, I now have one more phone number and a person who I kinda felt could use a pick me up.  Noticed she was there by herself.  I jotted down the bc.org website for her, told her how much real support you can get.  Hope she will check it out.

    The big bro is stopping by with a belated b-day gift, he usually brings some of his award winning home brew, I'll have to keep that one put away for a little while longer.

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  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    I'm back, was the dh checking to see how things we're going after practically hanging up on him earlier!

    Kimberly, hoping that you ordered Wendi's book.  I so think of you as I'm reading as she often quotes "WhoooHoooo", just like someone else I know!!!

    Hey I can see it now, 21 women all sporting a FUBC T-shirt on Ophra's stage.  A sight like no other! 

    My onc was not in today, I had a very important question to ask him, "how long does the Methotraxate" stay in my body after the infusion?  I thought I'd throw it out to the nurse who said it should be pretty much gone within 48 hours.  My reasoning is that vacation is on the 22nd, would really like to indulge atleast a couple of times with a little fine wine at dinner.  Its that drug that is the hard one on the liver, and says no alcohol.  The nurse gave me the answer I wanted, I'll make a following up to the onc in a couple of days.  Come to think of it I havn't flown since I was 21 without ordering a bloody mary on the plane ... ummmm I can taste it now!!! 

    Hope your N-Nasty doesn't totally wipe you out this go around.  But if your laying low, we'll know why, take it easy there gal, time to kick back for a few days!

    Therese, I say bring on a new wish, like many more years of healthy living, oh and lets add, winning the lotto as well if we're wishing!   So as I read, your done with txt as well.   Sounds like the excitement of finishing will need to come in a few more days when the fog has lifted.  Are you slated for any other txt, rads?  Hope you can just kiss this whole bc thing in the *ss and call it good!!

    Kris, time to just veg, sneak a peak when your up to it, sorry to hear that your having a tough go with this last txt.   Remember we're here to vent to if needed ... take care.

    PALady, what a interesting read you had.  If that doesn't make you a believer, I don't know what would.  Pretty eeerie, I don't know if I would have the nerve to do that or not.

    In regards to your mamo, I'm totally with you on getting a sonogram (which I assume is different than a u/s?), and a MRI.  I'm not personally having alot of faith in the mamo since I went from January to Oct and grew a 4cm tumor that wasn't visible in Jan mamo.  I have a Grade 1 tumor, so its not necessarily a aggressive grower.  I have really enjoyed (probably not the best choice of words), hearing the stories we all have to tell.  Hoping that some of you may have been interested in knowing a little more about each of us as well.

    Dana, you warrior you, keep up the great spirit and it will take you far.  I think you have gotten enough polite lectures on knowing when to slow down.

    Back to my infusion day, asked the nurse today "you do alot of txt, do you have any other ladies doing CMF"?  She said oh yes, I had to question her as well as to why she thinks I would not be on a AC type regimen.  Again I keep thinking to myself, no pain - no gain!  I guess I should start calling my pooper "my pain".  Anyway she states that what I'm doing has a good track record, yada, yada, I get ready to leave, have to use the tilly, as I come out the nurse whispers in my ear, I have a lady who would like to meet you, she is also there getting CMF.  She is getting her cytoxan via a drip whereas I take mine in pill form for 14 days.  She said the pills made her extremely nauseous and wanted to quit completely and the drip seems be better.  She is scheduled to be finished in June, as I will too.  Anyway, I now have one more phone number and a person who I kinda felt could use a pick me up.  Noticed she was there by herself.  I jotted down the bc.org website for her, told her how much real support you can get.  Hope she will check it out.

    The big bro is stopping by with a belated b-day gift, he usually brings some of his award winning home brew, I'll have to keep that one put away for a little while longer.

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  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    D1 - Forgive me its called Tangerine Sugar Scrub and I recommend it to all Ladies - it hydrates your skin so good and smells wonderful, you can get it at Trader Joes.  Just becareful it can make your shower slippery, but we Chemo Ladies need to hydrate our skin.  Please keep your body and face well hydrated because I have seen two patients have some very dry cracked and bleeding skin from not moisturing their skin. 

    Nursing Diagnose - Skin Integrity - Did you like that Kathy - He ha. I am learning!!!!!!

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  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    Wow, either my puter is slow or I'm the site is slow, hit send a few too many times, sorry!!!

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  • RN2teach
    RN2teach Member Posts: 312
    edited March 2008

    Good evening all,

    Had a good day at work--hard to believe I was sick as a dog just yesterday. Here's a pic of me w/ ds at the conference this past weekend...

     

    I posted this and then looked at the image... as you can see, I can totally relate to the pale, washed out thing... ah well, I didn't look that good to begin with... shouldn't expect much after chemo! LOL

    My ds def. needs a haircut but refuses to cut it much because the girls like it longer--can't understand why their opinion matters more than mine Tongue out

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  • Jenn51
    Jenn51 Member Posts: 94
    edited March 2008

    Dear, Dear D1, I want you to read what you wrote to me & than apply it to your thoughts about the rad dr. He's probably just a bit scatter-brained from wearing that lead vest all the time. I plan on forgetting about the weird thing on the MUGA. My ds, dd-i-l, & dgs will be here tomorrow night & will stay thru Sun. They live in Milwaukee & I haven't seen them since Christmas. They will cheer me up like nothing in the world. I'm sure when they are gone I will collapse but it will be worth it.

    And just when do we get to see a pix of you? Almost everyone else has come thru. You are our leader, we need to see you!

    KathyL, All of my blood tests have been great. He's going to have to look somewhere else to find the cause. Go buy yourself some new makeup. Try a different eye shadow. Try liner if you don't already use it. My bf told me to spend the time I gained by not having hair with a little extra effort on the makeup. I have to admit it makes me feel better.

    SisKimberly, I think you Oprah idea is great. We could all wear our t-shirts. We would be great advocates for this web site too. If we all emailed her we might catch the attention of one of her producers.

    Carol. I can totally appreciate your dilemma whether to take or not to take the Miralax. The 1st time I think I took too much & went from dammed up to open the flood gates in about 30 minutes. So the 2nd time I didn't take as much & paid for it. This time has been pretty even & I think part of the credit goes to lots of salads with olive oil. After the 1st couple of days I felt I didn't need the mir.

    About the dogs, I couldn't live without one. And yes 2 is as easy of 1 & so much company for each other. I'll work on getting a pix up here. I have always gone with my babies when it was their time. I wanted the last thing they know to be my touch. Have you read the rainbow's bridge poem? I'm sure you have. I've worked one up with a rainbow background & can put any pets pix, name & dates on it. It prints up to 8 x10. If anyone out there wants one PM me & I give you my email. I can email the print back to you & you can save it on CD & take it anywhere to print. For those not really computer savy I'll print it & snail mail it to you. I have a really good photo printer.

    Paula, Your ds is such a cutie even with the long hair. I gave up with my boys & said as long as it was clean & tidy I didn't care. We have gone thru the mullets, shaved heads, braids, you name it and now that they are men, they are all sensible. Are you sure you aren't jealous that he has more than you. Tee hee! I think you look great!

    dh has called dinner.  I better go.  Love & Hugs to you all.

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  • sheshe48
    sheshe48 Member Posts: 338
    edited March 2008

    Hi Jewels,

    Sorry I drifted sooo long in the fog. I hope everyone is well and if anyone is having treatment this week. Good Luck and hope it goes well.  I had a hard time with the taxotere. It gave me bad stomach pains and gas, and bone pain and I had trouble swallowing. I went to the ER on Monday night and they said nothing was wrong with me and I was fine. The cancer center told me to go to the ER. I told the cancer center today, I'm not going to the hosp. Because they say to go. Is this a normal reaction to taxotere?  I have read some of you say you had gas and pain. It will take me a couple of days to get caught up on the board. I went to new cancer center today for a rads oncologist consultation appt. and to get blood work done and have my picc line flushed. The cancer center said my rads appt was 10:30 A.M. and then 1 P.M. for my blood work. I get there at 10:15 A.M. and rads doc appt was for 1:30 P.M. So I had to reshedule and just get my blood work done and picc line cared for. I'm not having a very good cancer experience. I'm too tired to fine another cancer center, I only have one more chemo appt. left. This is the second mistake this cancer center has made. I'm going to call and confirm every appt. These nurses are wishy washy and do not know how to make appts. I still like the cancer center, most of the nurses are so much nicer and caring. But I'm watching them, I would hate to make a complaint about them. I'm just going to get through this the best I can. And pray cancer never comes back.

    R2 teach  Nice pix of you and ds. You look very beautiful.

    Hang in there gems we will all get thru this somehow, Sheshe

    Oh I forgot to mention, in 2005 my aunt died of breast cancer and her husband had a heart attack, he ended up with a bad heart. He got a call yesterday that they had a new heart for him. He underwent heart transplant surgery last night. As far as I know he is doing well. I just wanted to share some good news.

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  • camazur
    camazur Member Posts: 70
    edited March 2008

    Hi to all, Jewels.

    My story is pretty pathetic.

    There was no family history of breast cancer. I found my lump after sleeping on a hard mattress and scheduled a mammogram right away. That's when I found out it had been 4 years since my last one. I knew I had missed a couple, but was filled with dread to hear I had been so lax. To get the prescription for the mammogram I needed a clinical exam and they felt it too. I don't know how I could have missed it at 12 o'clock. Except that I didn't do self-exams.

    Before I left the mammography place I was told it was malignant, it was so obvious. I had a biopsy and was referred to a surgeon. I had a lumpectomy on my 54th birthday, Dec. 11.

    I feel really stupid to have taken such a huge risk with my health and even more so to have gotten caught.

    I try not to beat myself up too much as its in the past and I can only go forward and now must be that much more vigilant. But if ever there was a lesson for others, its me. I am shocked to hear from some of my friends that they don't get mammograms regularly, and I beg them not to do what I did.



    I got my copy of "Hanging Out with Lab Coats." I got it on Amazon and its signed by her. Its so sad to know she's gone as I read it.



    I'm doing OK, facing my 4th TAC next week. I really can't complain. Except that as I cocoon in at home, I tend to snack all day and I've gained 10 lbs. I'd lost about 10 lbs. with all the stress leading up to my surgery, so its not that bad. Yet.



    Luck to all facing the bar this week, and mild se's for everyone.



    Maz

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  • tinalee123
    tinalee123 Member Posts: 112
    edited March 2008

    Good afternoon Jewels,

    Shout outs to Judy, Joan, Wendy and Carol – hoping your tx today is uneventful and the se’s teeny tiny.  FUBC!!

    Kris, Dana and Kimberly – thoughts are with you as you settle into your post tx days, take care and rest when you can.

    Paula – I’m sorry you’re still battling with illness on top of tx.  It just ain’t fair!  Hugs to you.  What a fabulous pic of you and ds.  He’s a great looking guy, I see some of you in his face. 

    Kris – YAY!! You’re heading in the right direction, girl!

    Jenn – I’ll be interested to hear what you have to say about pt…I’m staying tuned!

    D1 and KathyL – I totally identified your musings about looking in the mirror…I’m with you two…I don’t recognize this woman…even with all my makeup on, I’m still looking blankly – who are you?  I still have eyebrow and eyelashes, although they’re thinning, too…I freak out about them going away completely because I’m afraid I’ll loose what little definition I have in those areas…stupid, I know.  I laugh because I think the only day I look half-way normal is the day following tx, when I have my Olympic-hope-ruining “steroid blush” going on.  LOL

    Dana – Thanks for the advice about the body scrub from Trader Joe’s. We FINALLY got a Trader Joe’s last year…haven’t ventured in there yet.  Have heard about two buck chuck and all the other goodies from my angel neighbor.  Gotta get over there for sure now!  Congrats on the great grades – you have A LOT on your plate, be proud!  Also – I know it seems old fashioned, but, “Tucks” for the bottom helped me a great deal.  The relief is fairly temporary, but, I use them after every bm, following tp.  They do feel great, while it lasts.

    Kimberly – It would be a gas for the Jewels to all meet and be on the Oprah show – I would so go for that! 

    Wendy – YAY!!  What fabulous news!  I’ll report on my taxol experiences as I go, I’ll be one ahead of you, I think (#2 Thursday the 20th).

    Carol – Lucky you – home brew!  I have ventured, oh so carefully, back into alcohol consumption.  I have one or two, and only on the week in between tx’s.  Onco said not to drink it when on meds following tx, so that leaves me with about a 7 or 8 day window.  Another thing killing me is no sushi!  Dang that’s a tough one.  And to top it off, my onco is married to a Japanese cardio doc, she and her dh eat sushi frequently and travel to Japan, too.  She said when chemo is over, she and her dh will take us out for sushi celebration.  I am way looking forward to that.

    Sheshe – Have missed you, totally understand the absence.  Glad to hear about your aunt’s husband – good news is always welcome here!  Take care.

    Hugs to all!

    Tina 

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  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    SheShe, you have to keep on the Nurses because some, well most are there for the money and not for u.  It really sad to say that but being in the field I see it all the time and it really disappoints me.  You have to fight for yourself and dont let anyone tell you any different.

    I too have trouble swallowing especially like cold and diet soda, it feels like your throat is swollen but it will subside in days and get better.  I am sorry for all that you are enduring but realize this, I have chemo EVERY WEEK for Liver Mets and if I can do it, then you can do it.  Just tell yourself you can do it and DO IT!  I would recommend walking for the bone pain when it lessens because it really helps your joints! I walk at least 4 to 5 days a week at least 2 miles then I use my Body by Jake Leg exercise those days as well for about 20 to 30 minutes and I do situps (150).  The others day I do feel bone pain,  warmth and itching skin, burning ass, difficult swallowing, fatigue that is out of this world but I make the most of it and learn to relax. Its hard for me to relax because I feel really lazy just laying in bed so I do somethings during the day and rest some more.  I do realize that when i am in my fatigue mood I get very grumpy because I am not feeling good and irritable about being so damn lazy, but I get up the next good day and make up for those bad days.  

    Try to come more often here so we can lift you up because we are capable of doing it.  I love you, and we love you and Most of all GOD loves you.

    RN and the other Jewels, whether you are tan, white, black, pale, bald or etc you are beautiful and dont let this nasty dis-ease every make you feel different.  You are so beautiful inside and out and CANT NO ONE EVER TELL YOU DIFFERENT.  God is allowing all this to happen to us to give us strength, love and compassion, so you embrace it and you look into that mirror and you tell yourself today, tomorrow and forever you are so damn pretty.  Ok!  

    I want all you Ladies to never doubt it!!!!!!!!!!!

    Oh yea, I forgot to mention My Mom 59 yrs died in 2001 from Bladder Cancer, but actually the kidneys failed because of her diabetes.  Brother died in 1996 from Lung Cancer and Mets to spine, Liver, back and etc at the age of 29 within 3 months of diagnose.  Dad at 85yrs old has stomach cancer and not doing any treatments or surgery; diagnose 2 years ago but living life good, Half brother 61yrs old has prostate Cancer and again not doing any treatment or surgery. 

    I have a funny story - My Dad keeps asking me why is he still living ok and God hasnt take him yet and I said that is because God doesnt want you.  We laughed so hard.  My Dad was very physical abusive when we were young, and I have forgiven him now but I know he still as alot to learn before God brings that grumpy old man to his paradise.  I also believe Karma comes around and because my DD didnt know how to appreciate my Mother, now he is reaping what he sows.  There isnt a day he doesnt cry missing her and regretting all that he did.  Oh let me tell you my Mom was a very passive, gently soul and she would never talk back to my Dad because he would beat her or me, but she got his butt at the end; she wrote a deep long letter to him and told him off.  She hid the letter in a book I guess she knew he would find and low and behold he did and that letters haunts him to this very day.  Strange, how she knew she wasnt coming home ever again, she knew her demise.  The Dr stated she can go on to pass and she said NO Thanks! I am so happy that she has peace now - and I told her I would not re-live her life and that is why I cant wait to graduate and leave this A**hole ex boyfriend of mine!  I am going to shine and make my Mommy proud and God too!

    Just had to share a story with you.  

    God bless,
    Dana

      

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  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    Tina - thanks for the Tucks remedy, I am going to rush and get me some today cause it can be very painful.  I am walking like I just got off a horse!  he ha

    Have a great weekend.

    Dana 

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  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    Read below!!!!!!!!!

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  • KathyL
    KathyL Member Posts: 534
    edited March 2008

    Wow!  We've been chatty today.  I missed so much.  I'm watching American Idol (loved Carly and David Cook last night), so this will be real short... I'll post again tomorrow some time.  But...  Let's do Oprah!!!  There's got to be a way to grab her attention.  Ideas??

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  • KathyL
    KathyL Member Posts: 534
    edited March 2008

    Wow!  We've been chatty today.  I missed so much.  I'm watching American Idol (loved Carly and David Cook last night), so this will be real short... I'll post again tomorrow some time.  But...  Let's do Oprah!!!  There's got to be a way to grab her attention.  Ideas??

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  • SISKimberly
    SISKimberly Member Posts: 762
    edited March 2008
    Afternoon Jewels,
    Well got may errands run, and I’m ready for the inevitable rolling in of the fog to begin tomorrow.

    PaLady- I’m glad you’re out of the fog in time to enjoy a trip to Las Vegas with the dh.

    I’ve seen several mediums in my life- Sylvia Brown twice- and have always come away feeling like they really were on to things they couldn’t know and often directed me in health issues if they saw problems.

    Enjoy your trip.  See on the board Sunday.

    Wendy- WhooHoo on the end of AC!!!!  Man, it seems a lot of us were diagnosed in October. Glad your doctor had access to the digital mammogram. I’ve had those for about 3 years now since I had implants prior to bc and a family history.

    Carol- Glad your infusion went well and that you had visitors while there. Lunch sounded delicious, but didn’t set well later on though, eh?  Bummer.  I’m sorry that you’re having a hard time with the balancing act…with the chemo causing the big D and the oral causing constipation.

    What a great weiner dog story!!!   Thanks for sharing it. Your mother got great joy from being near those pups, and your old Abercrombie got joy from being near her, too.

    What with the three deleted comments in a row…get a bout of hiccups or was it a potty run? HaHaHa

    Good news on the M drug only being in your system for 48 hours. With 9 days before the trip, and with the amount of water you drink and the peeing you do at night, you should be good to go for that Bloody Mary and a little fine wine at dinner.

    I ordered the book this morning. Can’t wait to get it. I like her already. Anyway who can celebrate with a bit ole WhooHoo has got to be a fun gal.

    How great you were able to help a fellow patient out today. I heard CMF is one of the older regimes.

    D1- I agree about finding our new definition of beauty. It’s amazing how something like this experience really gets your priorities in check. I don’t see myself in the same way at all, but I’m very content with who I am at this moment pale, puffy, and glowing at the moment.

    May I say I am so relieved that you’re not the domestic goddess I was picturing.  You did however inspire me to go out to TJ Maxx and get some new pre-made curtains for my office.  I also got a coverlet for the bed and took off the comforter. I’m so hot at night, and the dh has been complaining of being hot,too. I think my nuclear melt downs are invading his side of the bed, poor baby.

    I’m all ready for my digestive distress. I started the meds on Monday in preparation and take them in the am and pm. The rock in the gut is always there, just not as pronounced when I take my drugs.

    Dana- I thought I gave this hint to you last time…totally get the ass burning thing. Prep H gel, Prep H suppository for the inside burn, and warm soaks in the tub really help.

    Sleep issues…are you doing Decadron? If so, ask for a sleep aid if over the counter stuff isn’t working. You need sleep especially if you’re going to work and school after chemo day.  I’m still so impressed you’re getting B’s with no sleep. Congrats!!!!

    And BRAVO on taking the lemons you were given in life and making lemonade girlfriend!!!!


    Paula- What a handsome boy…long hair and all!!!!  And you look great with your hat, and your Avitar pic is beautiful, what do you mean you weren’t much to look at even before chemo? 

    Jenn- Your visit with the clan from Milwaukee sounds great!! Enjoy.

    And D1 has posted quite a few pics.  I know you’ve been down for the count and may have missed them, but scroll back and you’ll see one with her and her flowers on her birthday in February.

    SheShe- Welcome back from the fog. Yeah, Taxotere is hard on the guts.  I prepare the day before and keep taking the preventatives for about 6 days or so.  Miralax in the am.
    Gas X and Pepcid AC am and pm. It seems to help as does small meals. I’ve had apple sauce, two eggs, and grapes so far today.

    I’m sorry about your aunt’s passing, but so glad your uncle got his heart transplant.  Isn’t it amazing to think of having someone else’s heart beating inside of you. What a gift.

    Your Cancer Center appts sure sound screwy.  My gals write everything down on a card for me as they plug the appts in to the computer.

    Maz- You’ve got the right take on not beating yourself up. Be a spokesperson for all you meet.  And you’re going to beat this like the rest of us are, so we’ll all be banging the check your boobies once a month drum. 

    I was shocked that some of the younger teachers at school didn’t even know how to do a self exam. I referred them all to their doctors and said this is nothing to mess around with as young women can get bc, too. It’s actually a growing demographic.

    Tinalee- I love Sushi. I didn’t know I couldn’t have it. I had it on a good week last month. I didn’t have any ill effects.

    Man, I’m glad I checked back in this afternoon, now early evening, as it’s taken awhile to read and respond to all the posts. Had I waited until tomorrow…foggy headed as I’m sure I’ll be, I’d never had made it through.

    Sleep tight my dear Jewelfriends,
    SIS Kimberly

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  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    Evening gals, boy thought I'd sneak another peak this evening,

    Maz, I wouldn't call your diagnosis pathetic.  You might have been a little lax on your mamos, but when you did feel something, you went right in to have it examined, you should actually pat yourself on your back that you did not ignore something strange.  Thats what counts now and from now on.  I bet we'll all be a lot more deligent about our BSE.  I hate to say it but I'm laying in bed watching tv, feeling my good side which I would have never done in the past quite often.

    I am reading Wend's book as well, I thought maybe it might be too hard to read knowing that she has now passed, but I actually started it Sun and will probably finish it tonight.  I'm trying to see all the positives I can from it and have actually planned to document some of my thoughts, a good read for all.

    Tina, hate to tell ya, but atleast here in Wash the two buck chuck is now a three buck chuck!!!  Okay, Kimberly, no comments on the cheap wine thing again ... it will definitely not be my wine of choice.  I told the dh tonight that I think I'll become a "wine snob", if I'm only going to indulge a little bit, its gonna be some fine wines that I would not have paid the mula for in the past!!!

    We went to a Japanese rest last week, I stayed away from the uncooked items as well, sushi will have to wait, we have a great local supermarket that is owned by a Japanese family, they make fresh sushi daily, its great!!!  Looks like you'll be eating some in the near future!!!  Oh, and the 3 buck isn't bad!!!

    Paula, thanks for sharing the pic, I'm sorry to say your incorrect, but I think you look great.  Was this after your emotional tribute?  How old is your son?  He's a tall wipper-snapper, or  are your vertically challenged, which is not what I'm thinking.  I have been lucky (atleast in my mom mind), my son has always liked having his hair short.  I swear he was the only one on the soccer field a couple of years ago that had ears!!!

    Hope your cold gets another kick in the butt with your meds.  You can't get a break.  

    Sheshe, its always so nice to read some positive news that somebody in our Jewel group has with family or friends.  Best of luck to your uncle.

    I think I would stay on top of my appts from this point forward.  If it reduces your stress level to make a confirmation call its probably worth it.  Sorry to hear of your inconvenience today, I know I wouldn't be a happy camper.

    Looks like another night of Cream of Wheat, my x-mil brought us over homemade calzones (she is just too much, and today is the b-day of my x-fil who just passed away two weeks after my diagnosis in Oct).  She is being taken out to dinner with her kids.  Told the dh that he and the fil will have to enjoy the calzones tonight, my tummy has the rumbles!!!  We invite Kent's dad to dinner quite regularly, his wife died last year and he is such a kind/caring man.  Such a pleasure to have at our home.  I definitely know where my dh got his compassion.   Remind me in 21 days not to have a philly cheese steak sandwich right after my infusion, not a smart move on my part!!!

    Night all, oops forgot shout outs for tomorrow, will send this and check Kathy update post.

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  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    LJ and Sunshine, looks like the bar stools are m/t, but still warm, hope that you both have a smooth txt day tomorrow.

    Kimberly, all I have to say is that at my next infusion, I'm heading back to the barn and having lunch in my own home!!!  Surprised

    Hoping that my Lorazepam does the trick to knock me out tonight, and that tomorrow is a new day.  Hope you don't hit too heavy of a fog bank!!!  If your MIA, we'll know why ...

    Carol

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  • Determined1
    Determined1 Member Posts: 806
    edited March 2008

    SIS Kimberly--sweet wishes to you as you pass into the fog.  We'll miss you, for sure, but we know you'll be lurking.  You had me LOL when you asked Carol about the 3 deleted messages!  May your se's be mild this time.  Oh, tried a zin tonight (usually I'm a whitey) and it was really good!  Guess the 'buds come around for the bigger wines first.  (Makes sense, if you think about it, but, hey, I have chemo brain, so I don't have to make sense.)

    When we're ready for Oprah, we need to coordinate ourselves to start a letter writing campaign.  I'm not big into Oprah (mostly cause I don't watch tv during the day), but I like how she inspires folks, so I'm all over the bc awareness message we have to send.  You can count on me for whatever (I like to write--good use of my time).

    Paula--your ds is right--girls like the longer hair.  I don't, but I'm too old to count in his eyes.  But as a mom of two teen girls, yep, the long hair.  Besides, he's a pretty handsome dude.  Don't sweat the hair.  You look awesome, btw.  I always thought you resembled a woman in a commercial for zantac (or some drug, sorry can't remember, but every time I see it I think of you).

    LWDana--Oh yeah, I've seen the tangerine scrub.  Good stuff, huh?  Maybe I'll have to give up the grapefruit to give it a try.  Isn't the tangerine a sugar scrub?  (The grapefruit is salt.)  And yes, it does make the shower slippery.

    Oh Carol, have a bm and think of me!  (You can decide if that means bloody mary or bowel movement.)  Okay, we're a totally sick group of women!!!  :)  (Or maybe I'm just the sick one...)  Get that damn pooper under control, girl!

    Don't spill the beans on Idol, KathyL.  I've got it tivo'd.  (Can't stand to watch reality tv with commercials.)  I'll watch the singing and then the elimination back-to-back.  All I know is, little David Arch-angel forgot his words.  Too young for the Beatles songbook, I guess.  Should've been my kid.  My girls went to sleep every night to Beatles music.  Either I sang it, or we played a tape.  (I don't sing much--well--but I like the Beatles, and Fleetwood Mac and Pink Floyd and the Eagles, hmmm, I could go on...)

    Okay, so my dh has been really, really busy with work for a few weeks now.  Really stressed.  Not getting home till 10pm.  Sick with whatever.  For the first night, he's home by 8:30 to eat with us.  Well, eat with me and college girl (dd had bball practice and I fed her earlier--see my post).  He walks in and pulls stuff out of his pockets and see a receipt and asks himself aloud, hmm, what's this for?  Then remembers he has a gift for me.  He toddles off and returns with a box.  Tells me he's proud of me for getting through chemo without too much complaining (good thing he doesn't read my posts here!).  I open the box to find a pair of teardrop lemon topaz earrings!!!  Must've set him back.  They're absolutely beautiful!  Even with my crusty red ear, I'm cleaning them up and wearing them tomorrow (and the next day and the next day...).  Not sure what got in to him, but I'm so touched.  (And thank God for the chemo weepies as I was able to produce genuine tears for him, which made him very happy.  Why do guys like girls who cry???)  Anyway, I'll wear them when we get together so you can admire.

    And here's my family photo from November 2006 (reference my previous shout out to KathyL).  It's college girl, me, dh and dd.

    Take care of yourself, Sheshe.  You're amazing in my book.

    I hear you, Jenn.  Thanks.

    Oh, man, after all that nice stuff I wrote about the dh and the earrings, he just came in to say goodnight to me and I blew him off when I was concentrating on the picture.  Now he's all upset.  Gotta go make him feel appreciated.  (When do I get to teach him the le massage???  You know, my new foreplay plan.  Honestly.)

    D1

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  • Determined1
    Determined1 Member Posts: 806
    edited March 2008

    Hey LJ, Sunshine!  Good luck tomorrow with your chemotinis!  Don't get hangovers!!

    D1

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  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    D1 -you made me laugh so hard about your dh and thank God he cant read what you and so many of us write about.  He ha!  That is so sweet he thought of you, I am trying to get my ex to buy me a gameboy for chemo days and that is like asking for water out of a turnip -so you are so blessed.  he ha - Oh yea dont quote me on the Scrub because I dont remember salt or sugar scrub but the scent is tangerine - I am just too lazy to get my butt up to see what the name is exactly but I know you will see it there.  Your family is adorable! A man like to see us cry because then we are weak and vulnerable to them, Women have a tendency to Warriors and Jewels all the time and Men like to see us cry!  Its just makes THEM MELT IN OUR HANDS AND NOT IN OUR MOUTH...  he ha he ha - that was bad!

    Kim, forgive me I do remember NOW that you did tell me a remedy -I am getting so forgetful please forgive me Mother Hen!  he ha.  I love you! 

    See what happens Ladies when I stay home - I check in to often!  I am going to clean the house and then take some benadryl and try to leave you Ladies alone - he ha! Lets see if that works.

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  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    Kim, sorry I just read all your post to me - thanks Sweetie for the thoughtful words.  I have truly found that lemons make lemonade thru God and you Ladies, and that is no lie!  You all made me closer to God, and buy positive books and to love myself first so I couldnt have done this with out all you Beautiful Women!

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  • RN2teach
    RN2teach Member Posts: 312
    edited March 2008

    LJ and Sunshine- you're up to the bar tomorrow. Be thinking of you!

    Sheshe- hope your uncle came thru his transplant surgery well. Sorry your new center isn't efficient. Hang in there--you'll be finished w/ this soon, right?

    Jenn- hmmm, you might have something there... maybe I AM a little jealous of all of ds' hair LOL (he has hair just like mine in its natural state...b4 the gray appeared and I started highlighting). I have noticed that I'm annoyed by Pantene commercials, too.

    Maz- good to hear from you. I agree w/ you about sharing our stories. I've already had several friends who have told me that they are doing BSE and having their mammos done. It is easy to take our health for granted until something happens to us, isn't it?!

    Dana- you're sounding might perky for a gal on chemo! Congrats on the B.

    Tina and Kathy- We def. could advocate for BC awareness and this website on Oprah. good thinking

    Carol- ds is 6'1 when he stands up straight. I'm 5'5. Have you guys ever read the comic "Zits"? It reminds me of ds so I get a real kick out of it.

    D1- you have a beautiful family, thanks for sharing. Hope you were able to make your dh feel "appreciated." Wink 

    My Nyquil (yes, I'm back on that nasty stuff) is kicking in. I'll catch you gals tomorrow.

    Paula

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  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    D1, okay you got me hook, line and sinker on the bm comment.  I need to get off of sharing that lil problem with you all.  I hate to say it but maybe a fog induced coma and no butt problems would be a good thing.  My luck I'd have both!!!   I don't think I'll be refering to a bloody mary as a bm for some time to come!!!

    Wow, looks like a good night for a little le massage foreplay, that was too cool of the dh.  Boy its been a teary week for a few of us.  And the pic is awesome (what a great looking family), I feel like I have known your family for such a long time, as you chat about the kids, it doesn't seem like just a couple of months of on-line chat has happened.  I have to admit that I know whats going on with so many of the family members of our tight knit group than I do with my best friends kids.  Guess I better spend some time off the puter and on the phone.  My new addiction I guess, could be worse!!!

    Paula, havn't seen the comic "Zits", is it in the east coast papers?  I'll google it.  And wow, your son is a tall one, and may I also say very handsome.  Wonder if he'll continue to sprout up, is your dh tall as well?

    Okay, need to hit the big bed,

    Wow, I think my steriods have been kicking in here tonight, feeling kinda hyper and still havn't signed off,  Paula, checked out Zits, you can get the comic daily on-line.  Looks like one to check out with a 15 yr old in the house!!!  I'm sure there will be some to print out for the ds to view!!!

    Carol

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  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    Ok Ladies I havent complained about my DEx.  Well lately I am getting so upset with him.  He doesnt work because he is loaded with money and he does his carpenter work when he feels like doing it.  So each and everyday he lays around in the house, not cooking, cleaning or do anything.  I go to school 4 days a week and chemo one day, cook, clean, walk the dogs, clean the pond, do the laundry, dishes and etc.  So the other day I got home and he just left me a mess in the kitchen so I called him said I am sick of this.  I do all that I can fighting Cancer and going to school and you cant even clean up after yourself.  If he does he will only do his dishes and leave my two there in the sink.  I told him ever since I started school and got cancer you have treated me like poop and I dont deserve this.  You never inspire me, tell me anything nice, let alone a hello when you get home and he said well I figure since you are only buying healthy food you are doing you so I am going to do me.  I went off and said I have done you for 10 years and now i have Cancer and I am doing me - God forgive me I didnt buy your whole milk (to which I never drank for the last 10 yrs), and you are mad at me for loving me.  I said to him you are so damn insecure with you that you try to destroy me and you will not do it any longer - I told him you are the cause of this Cancer because you didnt want kids with me, and you have belittled me for 10 years and that just killed my immune syster and it has always been about you - WELL HELLO ITS DANA TIME.  So going forward you buy your dog food, you do your laundry, you clean your dishes, you cook for yourself, you feed your kids when they come during the weekend.  I am free of you and Cancer.

    I dont know what I ever seen in him!  I am glad I dont see it anymore, and I will be out of this door sooner then I know it!  If murdering was legal Ladies, I would of have dumped his body somewhere on the road - he ha!  

    Okay I am going to go now and Clean my Room and my bathroom and he is going to regret all that he has done and said to me - Karma!  He will get all that he deserves and I dont have to wish it on him - God doesnt like ugly and he will not go unpunished!

    Dana 

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  • KathyL
    KathyL Member Posts: 534
    edited March 2008

    Good morning Jewels!  Yesty was uneventful.  dd did great at the dentist. dh didn't get home until almost 10 again.  Did some more clothes shopping for the kids.  Today I see my therapist-love her!-will probably talk her ear off for the hour about my returning to work stress.  Poor woman, she must get so sick of me.  Then going to a lunch date with dh since we haven't seen much of each other this week.  Then off to the ps to see when I can get my nipple done after chemo's finished.  Maybe I'll have both high beams by the summer!  I look like a "puh-diddle"  right now.

    Two things I've gotta say in general...  I really like reading everyone's dx stories.  Not b/c of the dx, but b/c we are all so diverse, and it puts some more history to each of our tales so far.  And two, it's really nice to see that some of you are reading Wendi's book (Carol, Kimberly, Maz).  I hope each of you gets something out of it; she was amazing!

    Dana:  You are an angel.  Your words are inspirational.  Thanks for the tips and the boost in ego.  Fake tan has always ended up making me look orange, but maybe I'll try a new one.  And I love Oil of Olay's Total Effects moisturizer-now I'm gonna look for those eye sponges!

    Tucks do work well for butts.  I also use witch hazel pads left over from my deliveries which work awesome, too (they could be the same thing for all I know, never looked at the ingredients to compare).  I use them for a few days after each chemo if I get sore.  I also use a squirt bottle with warm water to clean off if I get really bad (instead of wiping), then dry lightly with TP.  Anusol was given to me in the hospital, too.  It has a numbing medicine in it and that felt great!  Doesn't last real long, but you can use it several times a day.

    Hee hee-good nursing dx!  Hey, do they still make students write care plans?  I hated those in school.  Never used them in real life either.

    Egads!  You DID go off on Dex, but I think he deserves it...

    Kimberly:  Hope the fog doesn't stay long (I'd wish it away, but we all know it's coming regardless). 

    Wing:  Congrats on finishing AC!  I think you have to celebrate each little step forward.  It's what makes it more bearable and keeps us sane.  It sounds from other posts like T is better.  Here's hoping it is for you, too.

    Carol:  Your story cracked me up-mainly b/c I completely relate.  I agree-- at least you weren't at Jiffy lube this time!  And you are the total local support person in your area, huh?  I think it's great how you reach out to others.  You are such a good person!

    D1:  Hope I wasn't too harsh.  I meant it jokingly, of course.  No gold star for him since he didn't call back... good thing he's cute, he can still redeem himself!  Hope he calls today.

    Loved your latest post.  Had me LOL.  And your family is just beautiful, as are you.  What an awesome, awesome picture!  Just stunning.

    Paula:  What a great pic!  You and ds look awesome.  Yes, you do-you are a pretty woman!  I like your hat, too.

    Speaking of Zits (love the carton BTW)-what's up with head acne!  So not liking that!!!

    Jenn51:  Hey, I have all that makeup from the LGFB class.  Maybe I SHOULD take some extra time to play with it and see what I can do.

    Sheshe:  Oh girl, it never ends for you.  I hope you start to feel better. Yes, the gas has gotten to some of us (and it is TOXIC on the way out!).  I think Kim has used Gas-X with some relief.  Hope your uncle does well post-transplant.  Prayers for him...

    Maz:  Don't be so hard on yourself.  What matters is that it was caught and you can still do something about it.  Everything happens for a reason...it just may take you some time to figure it all out.

    Wow!  It took me forever to get through all the posts and type this up!  I have to go or I'll be late.  About Oprah--- I think she'd love this group and would be a great advocate for BC.  Her website has an area to write our story to submit as a show idea.  2000 characters or less.  Anyone up for the challenge with me?  PM me your ideas!!!  Let do this!  Catch y'all later Jewels. 

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  • vettegal
    vettegal Member Posts: 287
    edited March 2008

    Hello JewelsCool

    Feel like i am back from the dead..LOL Auntie flo came in with a vengence..(bitch) Feeling ok. Some diarrhea..not as bad as the first time.Embarassed

    D1-dh loved the family photo (so did I) he said you looked fabulous and what a beautiful family!

    rn2teach-great photo handsome some and love your hat!!!!

    Got some interesting news..you all know about my mom...NOW here is the interesting news. My 55 year old sister was suppoed to go for mammagram back in oct. since i go dx in oct she waited..well she went monday and they found tumor and she is havinf biopsy tomorrow. My mother doesn't know..but this will put her over the edge..she will have a heart attack!! They already mention bc to her cause of me and mom. Only 3 women in this family and 2 have it..her odds are not good. I will keep you all posted on the results. It has been a sad week for me after she told me.Frown

    she has been the most supportive one in the family for me....

    well going to go jump in shower.taste buds are bad right now..drinking ice-tea...hugs to all!   xxoo

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  • chj127
    chj127 Member Posts: 382
    edited March 2008

    Hi all,

    I'm 8 days past tx #3 and feeling pretty good!  Two weeks ahead of me before I get more chemo, the sun is shining, I don't have much to complain about.  It's a good day!!

    D1 - what an awesome picture!!  Paula, I love your pic also - I think you look great! Gee, it's a good looking bunch of women I hang out with here.  Laughing

    Dana - I am sorry you have to get so much grief with all you have going on, but I loved your "WELL HELLO ITS DANA TIME".  Sometimes you just have to stand up for YOU.  You are brave, and I admire that.

    Vettegal, I am so sorry to hear about your sister, but maybe, just maybe, hers will turn up benign.  My prayers are with you both. 

    Have a great day, everyone!

    CHJ 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Heading out to Taxol/Herceptin TX #4 in a few minutes. Saw the Onco. this morning, and he thinks everything's going pretty well ... heart sounds good, lungs sound clear, so the water retention is likely a mild allergic thing with the Taxol; I'm still anemic though the hematocrit was up a little this week, he says let's just keep an eye on it as long as you're not having bad symptoms. I don't have to see him again for 4 weeks, which I take as evidence that I'm doing well (not that he doesn't enjoy my visits Laughing ).

    Tina, that stomach thing you experienced was weird. I haven't had anything like that, but on the day of Tx, I usually have one or two moments of a strange pain/discomfort in my gut. It's enough for me to think, Hmmm, do I I need to take something for this ... but before I can answer my own question, it's gone. Maybe you're just a little bit more sensitive to Taxol. We all have varying degrees of SEs from the very same drugs. Even though I'm having no gastro symptoms with Tax/Herc., I try to take it easy on the stomach (bland foods) on Tx day, and not eat anything challenging to digest (no red meat), nothing spicy, and I try to eat just a little light on Tx day too. I think so far this strategy is doing well. Hope it was just a one-time glitch for you.

    Take care girls, thanks for the well wishes on the Tx today. 

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