recovering from bilateral mastectomy

gandl,

I saw your post so I thought I'd respond.  I am in a different situation, since I had IDC (not ILC), I had only a left-side mastectomy, and I didn't have recon.  Is that TOO different?

Anyway, my mast/SNB was Feb. 5 (just about 4 wks ago).  I had one drain at my mast site and another in my armpit at the SNB site.  The mast drain was pulled after 7 days and the armpit drain after 10 days, when they were producing less than 30 ml 2 days in a row.  Even after they were pulled, I continued to produce fluid, which accumulated in a couple of places and had to be aspirated by my surgeon.

Did you talk to your surgeon about the seromas?  If they're very small, he/she might want to leave them alone to resorb by themselves.  My surgeon thought mine would go away on its own, but she decided to drain it so it would quit hurting.  Infection is a possibility once a needle is stuck in there, but if the surgeon does a surgical scrub at the site, the risk is small.

As for the muscle spasms and pins-and-needles "shocks", I know exactly what you mean.  The muscle(s) over my chest would get very tight, often just after I had done some stretching exercises.  It even hurts when I shiver, because my chest muscles tense up under the skin.  I'll bet yours hurt even worse because they're stretched over your expanders.  Do they give you any muscle relaxants when you have implants/expanders?  Seems like that would be a good idea.

My skin over my chest, mast site, and armpit is completely numb, but the muscle underneath it is not.  The muscle can "feel" almost any pressure at all--even just the pressure from clothing or buttons, and it hurts!

The good news is that this eventually goes away.  It just takes awhile.  Mine gets better every day, as long as I keep doing my exercises and stay active.

I wish you the best, and I hope you recover quickly.  I'm sorry you are so uncomfortable.  It will get better, though!  Someone will write soon who has more relevant experience.

otter 

Gandl, my ps suggested using a vibrator at the old drain sites while watching a sitcom...the motion he said would assist in relieving the scar tissue that will form (or has) at the site. It worked wonders for me! I did have to use lortab 750mg every 4 hours during my expansion process but once the implants were placed the pain was IMMEDIATELY resolved! I did use one of those seat massagers with the heat, too, during the expander period...it helped so much! I understand the ps likes us to be very careful with actual massages so they aren't too deep into the tissues so ask yours if they have a preference or guidelines...the seat massager and my recliner were my best friends! Good luck, honey!

gandl,

Sorry, I just saw your question.  I've been doing the "Reach to Recovery" exercises I was given by one of my surgeon's nurses.  You can find them, and others line them, on-line.  Here are some websites with examples:

http://www.cancersupportivecare.com/breastexercise.html

http://www.breastcancercare.org.uk/content.php?page_id=665

  (click on the link at the bottom of the page to get the pdf version) 

I am very fearful that I did not start exercising early or actively enough.  Now I'm 5 weeks post-surgery, and my shoulder and armpit are very tight.  It has become difficult to stretch my arm fully without extreme tightness at my incision and armpit, and some mild pain.

I just read on a Johns Hopkins medical blog that if you don't start stretching early enough or achieve full range-of-motion within a week or so after surgery, you can get "frozen shoulder" and/or cording, which requires intensive physical therapy.  Well, I have cording under my arm!  My surgeon told me not to do exercises until my drains were out, and the nurse said it would take 2 to 3 months to regain full range-of-motion.

Obviously somebody was reading a different instruction manual.  I sure hope your recovery is going better than mine.

otter