possible mets to pelvic area or uterus?

Well, it's true that ILC can spread to the ovaries, uterus and abdominal area. In your case, I think it's encouraging that what shows on the CT favors fibroids. Have you had heavy periods? Pain?

ILC is really hard to image, including when it's showing up as mets. It tends to present as a thickening, as opposed to a discrete mass. 

Please keep us posted on what the gyn says, and I'd be interested in what s/he suggests to do going forward. Without a biopsy, I don't think anyone can tell what's going on for sure.

Hello

I was diagnosed with ILC in 1999. I have recently been diagnosd with secondaries in the ovaries and omentum. I have been told that ILC is more prone to go to the abdominal area...is there anyone out there who have same mets or similar.

Love megatha

Megatha,

I am so sorry to hear ....it is my worst fear.

I'm also curious how you were re-diagnosed?  Did you have symptoms or on casual follow-up?  What are you doing for treatment?

I hope and pray that every month that goes by, each and every one of us finds newer, better and easier treatments should the beast rear its ugly head again.

Hello Lenarepp and wallycat

My original tumor was 11cm.

My new diagnosis was picked up after my tumor markers were elevated, they sent me for a CT scan and thats when they saw the new tumors. At first they believed them to be new primaries,but after draining the ascites from my pelvic cavity all they found were Breast cancer cells.I am having chemo at the moment(Taxotere) and have had 5 so far with the last one next week.I think they are giving me Arimidex after the chemo has finished.

Take care  Megatha x

Hello Gitane

Thanks for enquiring how I'm doing...I had a scan a few weeks ago which has shown that the Taxotere has stopped the tumors progression , but hadn't shrunk them at all.My Onc is pleased that it has stopped the progression so I think I should be too....Just hope that it continues..I will have another CT scan after the last Taxotere just to check the progress and then they are talking of Arimidex.

Hope you are doing well,and sending positive thoughts your way too.

Love Megatha x

Hello Gangl

Just wanted to let you know I will be thinking of you tomorrow and hope you get good news . Have popped you into my prayer box until its over.

Take Care

Megatha xx

Glad that you learned it is fibroids, and wishing you good news with your other tests too. I know endometrial bx is not fun, but you cracked me up with your comment. I had all that done when I was in my early fifties too, and I had the bleeding and fibroid dx. Now I'm almost 63, and fibroids did shrink. Hoping the same for you.

Happy Anniversary!

Hi gandl,

We have a lot in common.  I'm 54, with ILC stage 1, but no node involvement. I had a bilateral 3 years ago, and then a complete hysterectomy 7 months later.  My onc strongly recommended that because with BC there is an increased risk of ovarian and endometrial cancer, plus he wanted me into menopause to get rid of the estrogen, and to get me on Arimidex.  My mom has ovarian c, so that further increases my chances.

It seems like you would benefit from a hysterectomy.  With the fibroids causing you pain, it would be a relief!  It's a drag to have another surgery, but compared to my bilateral, it was easy!  And not having to worry about ovarian c also is a bonus.

Megatha, I hope the Arimidex works well for you.  I've been on it for 2 years, and haven't had many symptoms.  Hugs to you!

sally 

Hello Sue

And thanks for replying. I am pleased you are doing so well. I have asked about removal of my ovaries, but the onc has said no. I am to start on Arimidex in a couple of weeks so hopefully that will give me a similar result as Femera has done for you. The hardest part I find is not knowing anyone else with similar mets.

Love Megatha

Hi, Megatha.  I'm new to this forum, but I caught your post on mets to your omentum.  I've got them, too.  I didn't even know I had an "omentum" until I developed fluid build-up.  I'm still not even sure what my omentum is other than my oncy said it's an abdominal fat apron and no one really knows the purpose of it except God.  Well, if that's the case, let's just get rid of it!!  Apparently, though, that's not an option .  (Wouldn't it be great if liposuction were added to our bc toolbox?)  Anyway, I've got mets to lungs, bones, and omentum.  I've been receiving various tx for the past 4 years and am currently on Tamoxifen for round two (last time was from 1997-2001).  All appears to be stable for the time being.  Let me know if you have any other questions, but so far you're the only other person I've heard of that has omentum involvement.

Thank you for the welcome, nash.  I was originally diagnosed in 1996; 7cm lobular; er+/pr+; low s phase; HER2-.  (They do so many different tests nowadays that I'm somewhat unfamiliar with the jargon in some of these posts I've been reading.)  Anyway, I had 6 rounds of CAF; 36 rads; 5 years of tamox; an oopherectomy; and a partridge in a pear tree; and was NED until June of 2004.  The cancer returned first in my hip; then lung and omentum involvement.  I was on Femara and then Aromosin until the lung involvement at which point I went through 10 months of taxol, xeloda, and zometa.  When we determined through tumor markers that the cancer was not "behaving", I switched to doxil for six months.  In December 2007 my tumor markers finally dropped into the normal range and we began Tamoxifen with the intent to use it for maintenance once I actually quit doxil.  My oncy wanted to hit the cancer with one more round of doxil in January just to be sure, but when January rolled around my tumor markers had climbed back to 76 (aaargh!) and we suspected that doxil wasn't doing the trick we thought it was.  So, we planned to start gemzar and avastin, however I had a month-long trip already planned for February.  I told them I'd start chemo upon my return but in the meantime I'd stay on the tamox.  In March my tumor markers had again dropped somewhat while I was only on the tamox so we took a "wait & see" approach.  In April the tumor markers haven't changed and a PET scan showed stability, so I'm still opting to wait and see what happens here.  I am reluctant to hop back into chemo until I know there is active progression of the disease.  Sorry for the long story, but it's been a long trail. 

Hi, Nash,

Nix the AI's.  I've already failed Femara and Aromasin.  Actually, I guess I wouldn't consider them as "failed" since I got two years on them before the lung mets reared their ugly head.  I'm just praying the Tamoxifen does the trick.  I can take these hot flashes for the next five years!!