I am also now officially "Palliative"

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  • roseg
    roseg Member Posts: 3,133
    edited February 2008

    Hope you are doing well Joanne.

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008



    Continuing to hold you close in my thoughts.



    Tender

  • Kerry1000
    Kerry1000 Member Posts: 103
    edited February 2008

    Joanne, You are incredible.  My thoughts and prayers are with you.

    Kerry 

  • Mena
    Mena Member Posts: 426
    edited February 2008

    You are amazing to share this. It's hard to find anyone who really wants to talk about this side of it all. So brave of you. I pray you are surrounded by angels who keep you pain free and unafraid. God bless. Many warm and gentle hugs, sister...Mena...xo

  • sueps
    sueps Member Posts: 2,266
    edited February 2008

    Joanne.. Sending you many many prayers and love from the UK ...please know that I have been holding you close in my heart every day xxx  You are so very special xxx

  • JoyRebecca
    JoyRebecca Member Posts: 787
    edited February 2008

    Bump

    Joanne,

    I just wanted you to know that I'm thinking of you

    !!

    XX

    Joy

  • Traci-----TripNeg
    Traci-----TripNeg Member Posts: 2,298
    edited February 2008

    Me too Joy....>>>>BUMP<<<<<

    ((((((Joanne)))))))

    We are thinking of you.

    Traci

  • Gitane
    Gitane Member Posts: 1,885
    edited February 2008

    Joanne,



    You are in my thoughts. You have given us all a rare gift, a glimpse of the integrity we all wonder if we have within us. Your spirit is strong and your courage great. I wish I could take your hand and tell you how much it means.

  • maddie103
    maddie103 Member Posts: 24
    edited February 2008

    Joanne,

    Like many of the other posters, I think about you as well and hope hospice is a comfort to you like it sounds (i.e. they promise you no pain and that you will not suffocate).

    Did hospice come to your house for the interview/assessment? My MIL's daughter is handling those arrangements and is making several calls.  Reason I'm asking is it's getting to the point where my MIL doesn't even enjoy going out anymore cause of how she feels. She goes through the motions as far as she'll ask about going out and make plans but she always cancels. Even when we go visit her, our visits are very brief (she'll be looking forward to our visits and then ask us to leave after about 10-15 mins). She also used to love chatting on the telephone but now when we talk to her, it seems like sometimes she can't get off the phone with us fast enough. 

    She has two grown children and 5 grandchildren (3 adult grandchildren from her daughter and 2 young grandchildren - 8 and 2 from her son and I). It's sad watching her slowly slip away and kind of withdraw into her own little cocoon but we all continue to reach out to her and let her know we are there for her. She's been divorced for over 20 years so she has been independent and living on her own for a long time so this is extremely hard for her being dependent on others to help her with things.

    I just wish we could do more for her (even though I know in our heart) we are doing the best we can and will continue to do. I don't think she has changed her mind about the radiation (she is 69 years old and already pretty frail and fatigued), I can't imagine it getting worse with the fatigue but with everything I have heard and read about radiation it's supposed to be like fatigue you never experienced before.

    Joanne, I am so sorry for loading my story off on you because you already have so much on your plate but I find it comforting posting because it is very difficult getting my MIL to open up (even though she is my MIL not my mom, we have a very close relationship) and she doesn't open up with her son or daughter very well either.

    Thanks again for your messages.  I am thinking of you and your family, especially your children. Yes, it will be hard leaving them but you can take comfort in that they have each other and will look out for one another even after you are gone.

    I will pray for you. Take Care

    Maddie

  • badboob67
    badboob67 Member Posts: 2,780
    edited February 2008

    Joanne,

    You are my hero.

    (((HUGS)))
    Diane

  • Mena
    Mena Member Posts: 426
    edited February 2008

    Hi J...haven't stopped thinking about you and praying since I first read your post. Just dropping by to say "peace"...love, Mena...xo

  • Gitane
    Gitane Member Posts: 1,885
    edited March 2008

    Joanne,

    Just wanted to come here and tell you that I think about you often. Love and hugs.

    Gitane

  • LisaSDCA
    LisaSDCA Member Posts: 2,230
    edited March 2008

    Me too, Joanne  Smile

    I think of you often, my amazing and courageous friend.

    Lisa

  • JapanLynn
    JapanLynn Member Posts: 471
    edited March 2008

    Joanne--

    Thinking of you, and praying for you and your family. 

    Love, Lynn

  • honeygirl
    honeygirl Member Posts: 1,718
    edited March 2008

    Joanne , I'm thinking of you daily.xxxx

  • Ter
    Ter Member Posts: 357
    edited March 2008

    sharon,

    this is the place you can talk about it, and I will try with you, as i am in the same place....but this week as if you read my post im going in for surg on my kidney, as there is a huge stone and that may help with some of my pain, and if it is the stone it may help the pain of cancer...but afraid that when my urologist goes in he will find more cancer inside my kidney, not good....and parts of me, dont know what it is, is that i just may not make it thru it...yea that brings tears to my eyes, not just to die, but I know i am giong to miss every one, and with my hubby in hospital and not being able to be with me now for this past week and not knowing when he will be able to be out...I am just scarred, as I dont want to die alone if that be the choice G*d has for me.

    just scarred

    Ter

  • wendyk13
    wendyk13 Member Posts: 1,600
    edited March 2008

    Joanne....just wanted to tell you that I think about you every time I come online here, wondering how you are.....hoping that things are going okay.  Hugs, honey.  I so admire your strength.

  • TripleNeg
    TripleNeg Member Posts: 836
    edited March 2008

    Joanne-

    Wanted you to know that I'm thinking of you and praying daily. God is able, Stephanie

  • Little-G
    Little-G Member Posts: 647
    edited March 2008

    Ter,

    I am so sorry you are going thru this alone right now.  I can't even imagine how you're doing it.  I really don't know what to say, I do want you to know that we are all thinking of you too!!  Is there anyone you can call that can be with you?  Are you able to go visit your husband while he's in the hospital?  I'm thinking its not the grand plan to have you die alone.  And I'm holding onto positive thoughts for you!!!!!

    g

  • cp418
    cp418 Member Posts: 7,079
    edited March 2008

    Joanne - you are in my thoughts and prayers.  Hugs Joann

  • gsg
    gsg Member Posts: 3,386
    edited March 2008
    I can't stop reading Joanne's posts and blog.  I miss her.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Oh, I know.  She was such a sensitive soul.  


    Another angel........God bless her family. 

  • sueps
    sueps Member Posts: 2,266
    edited March 2008

    ... her blog is so beautiful and I hold on to her posts .... Joanne we miss you terribly xxx

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008



    Yes, I just visited her blog again too.



    She is like a magnet who has not loss her pull.



    I hope she knows this, along with the other Angels.



    Her family is so special, very loving.



    Tender

  • Squids
    Squids Member Posts: 7
    edited March 2008

    Hi,

    I'm new here. Joanne and I were friends for about 6 years. We met on another bc site and I saw all y'all mentioned on her blog.

    Jes wanted to say thank you to everyone for all your support of her during her time here with you. She was a wonderful woman and a blessing as a friend. We shared a lot together and I'm going to miss her. I appreciate what all y'all did for her.

    P.S. Elsewhere, I'm known as Hope but I see you have one here already so 'squids' is who I am here. :)

  • gsg
    gsg Member Posts: 3,386
    edited March 2008

    Welcome, Squids.  Joanne was very much loved here and is already deeply missed.  She seems to have left her gentle mark on everyone who knew her.   I hope you continue to post here.  Are you still battling bc?

  • rumoret
    rumoret Member Posts: 685
    edited March 2008

    Dear Joanne,

    I have not been on the boards for a while...last time was a post for my friend who is also dealing with a new diagnosis of brain mets..she is triple negative too. I am praying for my friend as I do for all of us here and those that are unknown. You sound like a wise and precious woman....your family and friends are blessed to know you. We all live our lives now.....one day at a time. I send you many beautiful days with your loved one.

    Love Always,

    Terry Rumore, Sister 

  • gsg
    gsg Member Posts: 3,386
    edited March 2008

    Terry,

    I'm very sad to tell you Joanne passed away this past week.   We are all mourning her loss and those of the other girls whom we've recently lost, Shepgirl, For The Moment and today, Ferne.

  • gracejon
    gracejon Member Posts: 972
    edited March 2008

    Terry joanne's brother has a post in recurrence and met disease.  Joanne has earned her wings also.  sad news

  • Squids
    Squids Member Posts: 7
    edited March 2008

    Hi gsg,

    Thank you for the warm welcome, I appreciate it. I had bilat masts and finished chemo about 8 years ago then stuck around to help the newbies as they made their journey through it. That's how I met Joanne. Guess I knew her for about 7 years, now that I think about it. She was a force, that's for certain, and was a dock in rough water for me after Katrina.

    I'm so very sorry to hear of your recent losses on this board. It's always hard to lose a friend and good girlfriends hit us even harder.Cry

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