Washington Ladies/Men???

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  • PSK07
    PSK07 Member Posts: 781
    edited March 2008

    I posted in the recurrence discussion.

    Seattle Cancer Care Alliance being the gold standard, with Swedish following. My mom and I were both treated at NW hospital which was terrific (and her onc is fab), but I'd definitely go with SCCA or Swedish if I were coming in from out of town with a need such as hers. Virginia Mason is also good and some relatives from out of state have come specifically to VM, but that's all i know there.

    BC sucks.

  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    Alaskan Deb, for one stop shopping in the cancer dept, I would suggest a meeting with the docs at the Seattle Cancer Care Alliance (SCCA).  My initial visit was with a oncology surgeon, a oncologists and a radiologist.  This is a one day appt and you see them all.  They all come briefly into your room, introduce themselves, did a quick exam, go over your history and then you take a lunch break, and they take your case to the "Tumor Board" of docs.  In the afternoon each doc comes back to your room and goes over your case (with a tape recorder going) which is great since there is so much information.  The whole appt last upwards of 5 hours.  I had chose to have the surgeon whom I met at that appt do my mast and node dissection.  I had a followup appt with the onc, but decided that I would do my chemo txt at a office closer to my home.  Both oncs agreed to my txt plan so it was just a matter of convenience.  I would recommend SCCA if your able to go there.  Remember that second opionions are a good thing, I have not had one doc bat an eye when I said I would be going for a 2nd!

    Hope this helps a little, Carol

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Thank you ladies for helping Deb out.....

    I have family over there that recommend VM too, but the cancer center here is wonderful and I felt comfortable using the doctors here...

    Jule

  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    Kalen, just checking to see if you might be "lurking" on the post ... hoping that your se's are staying at bay!  I believe you had your "Nasty" shot yesterday, hope that all is well, Carol

  • Vz_mom
    Vz_mom Member Posts: 63
    edited March 2008

    hi everyone, not feeling so good, but just "morning sickness" type of nausea, almost exactly like what I had while pregnant.  all things considered, I'll take it.  and no se's (yet) from the Neulasta!!  WOO HOO!!!  blood tomorrow; hope it goes well.  so far I've managed to avoid getting whatever is knocking back my dh and dd.  still not working as much as I'd like, what with all the d**n appts & driving, but it could be worse.

    how's everyone else?  let us know how you're doing, Washington.  sleep well.

    Kalen

  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    Kalen, hoping that your se's are down to a minimum, I'll give you a call over the weekend to check and see how your doing.

    Off to work,,, Carol

  • gwenb
    gwenb Member Posts: 9
    edited March 2008

    Hi everyone, Things have been hectic this past week. I had a Pet Scan last Wed. 27th. Turns out I have mets in liver, on spine in 3 places, and a small, 4mm spot on my lung. Doctor was pretty blind-sided as were we, since my bc dx was grade 11, and no nymph node involvement. I have a live biopsy today., and start Chemo. the 12th.(my wedding anniversary)  I'm just trusting and believing God, day by day. Gotta run to a meeting. Hugs and prayers to all. Gwen

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Gwen

    Im sorry you received such rotten news.....Im sure you were blind sided!!!!!

    Please remember we are here to help if you need...

    Hugs

    Jule

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited March 2008

    SmileHi  I am in Auburn Washington, I love your support. I am a stage 3 bc fighter! Had 4 Surgeries and high chemo, Am on Arimidex.I love to work on Lymphland.com Because I have full body  lymphedema and love helping others. I just found out I have 7 small tumors in my thyriod and says from cat scan does'nt look like, But that what they told me about my BC. But I love life, Innocent Thanks for having this group! Luv Debbie

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Debbie

    Welcome to our little corner of the bc world here....Sorry you had to join us, but hopefully we can all help each other in some way...

    Hope all is well and that they are telling the truth when they say the tumors arent!!!! Keep us posted...

    Hugs

    Jule

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited March 2008

    I thank you for the warm welcome! I just got off line with Lymphland @Yahoo.com people. I help the new ones and love to help people. Today I have been tired. And I found out the Arimidex is not helping my swelling. (all new to me) But each days a gift and I am very lucky to meet a nice on-line group. Who have been there! Take care, Luv Debbie

  • joesamyboy
    joesamyboy Member Posts: 2
    edited March 2008
  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited March 2008

    Wow!  I can't believe I haven't stumbled upon this thread before now.  My name is Karen and I live in Graham, Washington.  Graham is near Puyallup, which is near Tacoma.  It's sort of out in the boonies, so I wouldn't be surprised if some of you haven't heard of it.  I was diagnosed in August, had a lumpectomy and SNB on Sept. 6, finished chemo on Jan. 30, and start rads this coming Monday.  I'm 44 years old and have two kids--a 14 year old daughter and a 5 year old son.  I've been getting my treatments at the Good Samaritan Cancer Center in Puyallup. 

    Have you ladies heard that our state has more cases of bc than any other state?  I wonder why that is?  Too much clean air??  Strange.

    Take care and enjoy the rest of your weekend.  I was out in the yard weeding my flower bed today.  I'm sooooo looking forward to spring and summer.  It's been a long, rotten winter!!!

    Hugs,

    Karen

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Welcome Joesamyboy and Karen...

    Joes-How are you? Would like to tell us a little about yourself? Most the ladies here are on the west side of the state, but Im on the southeastern side...where are you located?

    Karen-I have read your post on the "please help" thread and always have enjoyed them...Im sorry it has taken so long for us to meet...I know where you are located as Ive been there many times...both my parents were born and raised in Port Orchard so have family there..We moved to this side of the state when I was a small child.....I didnt know that about our state, what a thing to be known for huh :(....

    Hope everyone is doing well and enjoying their weekend.

    Hugs

    Jule

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited March 2008

    Hi Jule.  It was nice to see you on Sue's thread today.  We're a fun group.  Lots of joking, but we also support one another when times are tough.  I feel blessed to have found them.  Please post there often!  I'm hoping to get to know you better.

    Hugs,

    Karen

  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    Washington ladies, hadn't popped in here for some time. 

    Karen, I have seen your posts on numerous other sites, will be interested to see how the rads go.  I'll be in for it come June when my regimen of CMF is through.  Noticed that you post on the SNB Recovery post with D1. I'll have to put that post on my favs.  I spend most of my time with the Jan 08 group.  Its quite the chatty post, find its hard to have time to check out much else!

    Looking foward to your future posts.

    Carol

  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    Oh, to whomever posted about Harmony Hill, a retreat on the Hood Canal, I'm planning on attending a one day retreat on April 2nd.  Thanks to whoever it was that brought it up on the post.

    They offer one day or 3 day retreats and its free to cancer patients.  It is definitely worth looking at, atleast on-line ... harmonyhill.org is the website.

    Carol

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Hi Carol...

    I know a couple of ladies that have attended one of the retreats and they say they are wonderful....Cy and I had talked about going together as I think she has previously attended one and found it very helpful....we didnt get to go but Im still thinking I might go to one at some point...not sure if Im still eligible to go since Im so far out of treatment...

    Hope all is well with everyone

    Jule

  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    Jule, kinda late to reply, but I'm sure that its never too late to attend a one day or one of the three day retreats at Harmony Hill. 

    I'd be happy to fill you in after I attend next week.

    Kalen, if you happen to be lurking, hope that your doing as well as possible. 

    I'll be calling to check with you when I return from AZ next week, would like to get together for a yak session when your feeling up to it.

    Carol

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    That would be great Carol.....I would love to hear about your retreat...

    I havent seen any post from kalen either and am wondering how she is doing....

    Hugs

    Jule

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited March 2008

    Dear Friends, I hope you had a very nice Easter, I was in my home watching Easter shows. My hard time of the year,I found my mom passed away in March and same day the next year was told I had BC. Today I was fighting for coverage on my tests. Its like a war to help! I have been getting threw pretty good, Alittle tired but l love each day. Nicer if I didn't hurt! To everyone one on-line, Your are special. I better go and help on-line with lymphedema, I am one of the managers there. Angel hugs, Debbie

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Debbie,

    Im sorry March is your "BMD" (bad ass month)....why does it seem each of us have a particular month or time of year that everything in life seems to hit us?? Mine is late Ocotober, early Nov.....

    Easter was nice although alot of work...I had my entire family, mom, brothers & families for easter dinner...about 25 when you could the kids....

    Please come back and visit here often.....especially is your feeling down...

    Hugs

    Jule

  • gwenb
    gwenb Member Posts: 9
    edited March 2008

    Hello all! It saddens me to see newcomers to this site.  Hard way to meet friends.  I've had my first chemo and while there were some  unleasant SE's it is do-able.  Because my white and red counts were so low, they're going to reduce mine by 20% next time. I doing every three weeks.  I finally got to go back to work yesterday. I work at a middle school. I really feed of the energy of the kids. Plus, life feels more normal. The students and staff have been wonderful. The staff donated enough shared leave that I would'nt have to work the rest of the year! I am so blessed.  That also means I won't have to pay extra for my med. insurance. Hope all of you had a wonderful Easter. I know I did. Hugs to you all.

  • TannB
    TannB Member Posts: 9
    edited March 2008

    Hi there,

    I thought I'd jump in here even though I live in Idaho because WA is just over the Snake river (5 minutes from my house).

    TannB

  • TannB
    TannB Member Posts: 9
    edited March 2008

    I was Dx 1/04/08, Lumpectomy and sentinal node mapping on 1/22/08 - Stage I IDC and Intermediate DCIS, 0/4 nodes, ER and PR + Her2 negative. L side BC. Also found "suspicious" areas in R breast.

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited March 2008

    Hi everyone.  I haven't had much time to check in with you all lately.  I've had a really busy month since starting rads, and like you Carol, I spend most of my computer time on another thread with a VERY chatty bunch of ladies (we're fun though, aren't we Jule?). 

    I'll be finishing up week three of rads tomorrow.  The time really is flying by.  The only really negative se of rads for me, is the fatigue.  I'm sooooooooo tired all the time!  Chemo made me feel crappy, but because of the steroids, I never really felt tired. 

    Are you guys all having crazy weather too?  It's been snowing, on and off, here since last night.  What's up with this cold weather anyway??  I'm ready for some nice weather.  It's spring, for goodness sakes!  Grrrrrr!!!!

    Take care everyone!

    Karen

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited March 2008

    Dear Karen, Hi am the Auburn lady and I love to know you are making it! Tough times never last, But tough people do! Its snowed alittle and sunny little, But I see each day as a gift.  I am looking forward to talking to you, Please take care. I am sending you a angel hug , Luv, Debbie

  • golfer779
    golfer779 Member Posts: 1,378
    edited April 2008

    Just popping in from Poulsbo, been on vacation last week, then back to the "chemotini lounge" yesterday.  Hard to go from paradise to the reality of what the next few months has to offer.  I keep telling myself, one step at a time!!!

    I'm off to HarmonyHill on the beautiful Hood Canal today.  Todays one day retreat is for all types of cancer patients.  Should be quite interesting to here some stories, an all organic lunch is also provided.  I'll come back to report how it all goes later, maybe a pic or two as well.

    For those who may want to check their website, go to harmonyhill.org  its free to cancer patients and their caregivers. 

    Kalen, hoping that you hanging in there gal, I'll give a call in the next day or two.

    A pleasant day to all,

    Carol

  • golfer779
    golfer779 Member Posts: 1,378
    edited April 2008

    Karen (portiasproudmom), I wasn't familar with you face, so snuck a peak at your other posts, I got a kick out of your dog Tinker, we have two black and tans, age 8 and 5.  Tinker's got a little grey going on, don't they look so cute in the clothes?  Our can't wait to get off anything we ever put on them.  I'll have to try to post one of ours as well ... thanks for sharing,

    oh, I also will be following along your rad journey, I'll be at the "Tanning Booth" myself after my chemo is done in June.  Any pointers are appreciated.

    Pic is of Reggie (8 yr) he wasn't too thrilled to get a tubber, but he had been out for a walk and the ol' belly was filthy!!!

    Carol

  • golfer779
    golfer779 Member Posts: 1,378
    edited April 2008

    To my fellow Washingtonian's,

    Just wanted to synopsize my day at the free retreat I went to on the beautiful Hood Canal yesterday.

    Had a great day at Harmony Hill, walked in a little nervous, and was greeted by a very nice facilitator.  The setting was in a "Yurt", never even heard of a Yurt before today.  It was very cozy, with chairs all in a circle.  Blankets were placed on each chair, many took there shoes off to get comfy.  There we're 8 of us undergoing txts at this time and three spouses in attendance.  A very personable sized group.  I was the only one with bc, four women had non-hodgkins lymphoma, and I thought bc was the popular cancer.  Unfortunately two of the attendees we're dealing with stage 4 cancers.  It was pretty hard to hear their stories and then share my own, quite a few tears we're shed by all in the first hour.

    Things lightened up with some breathing exercises, and then some basic yoga stretches.  All new to me, never knew I was supposed to be doing deep breathing through my nose and not my mouth.  I did have to ask how the heck you can do that when your nose is stuffed up like mine is half the time.

    Lunch was interesting but good, very organic and free of just about everything that is supposed to be "bad" for you.  It was served in the main building dining room.  The grounds are quite large, with accomodations for there 3 day retreats as well, there was a nurses retreat taking place on the grounds for these 3 days.  Thats probably why we were in the "Yurt". There is a scheduled 3 day retreat for bc patients, but unfortunately they scheduled it the same weekend as the Komen 3 Day, which I plan on being a cheerleader at this year.

    Had time to just visit with one another for about an hour after lunch, I spoke in length to a gal with lymphoma, who was also diagnosed with thyroid cancer within the last 6 months.  She had a great fighting spirit but was just tired of not feeling "normal".  I had very little to complain about after hearing her story.

    We returned to the Yurt, and learned about some self facial massage, and then listened to a tape on Relaxation and Wellness, by Belleruth Naparstek.  We we're each asked to get as comfortable as possible, many took blankets and pillows to the floor, I noticed the sun coming through the window and decided to pull my chair into the warmth.  About 10 min into the tape my head was bobbing, and I literally missed the last half of the tape.  I'd say it put me into relaxation mode with no problem.

    I thoroughly enjoyed my day, it was definitely not something that I would have ever thought I'd be a part of, but then again I still have a hard time believing that this isn't all a dream.

    Some of you may want to check out their website harmonyhill.org the retreats are free to cancer patients and their caregivers and I could recommend it to anyone.

    Kalen, are you doing okay?   I've lost tract of your txt days, thats what a getaway will do to ya!  I'll give a call in the next couple days, you've been in my thoughts!

    Carol

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