Triple negative beyond 2 years- What was your treatment?

Thanks to all for the wonderfully upbeat, encouraging stories. I'm sure I'm not alone in having feelings of dread and even defeat when statistics are taken into account. My oncologist told me that I am not a statistic I'm a person, yet I know that statistics are based on persons just like me.

Apparently a triple negative diagnosis, even involving a large mass, can have a favorable outcome. I don't expect to live forever; I just want to live long enough to enjoy my professional accomplishments and see my grandkids grow from babies to children.

Thanks again to all.

Annie

Yeah cmb35... good for you!   You must feel wonderful to pass this important milestone.  Here's to many many more!

((Sadie))  I'm mostly good.  Thanks for asking.  I'm on a self-improvement program ... trying to ditch my negative attitude .

Seriously, my health feels good... seems good.  I guess I'll find out in a few months...  I'm preparing for the Komen 3Day and optimistic that I'll be in great shape to walk 60 miles! 

Hope you're doing well Sadie.. I love reading your warm and encouraging posts.

t

JAX, why not have more chemo?  I am finishing up 4 dose dense AC and now 4 Taxol....will do double mastectomy early June but if it shows cancer left....I'm on to a new and different chemo...one of the platinum drugs (carboplatin or cisplatin)

What is that chemo you used....I don't know what those initials stand for?

I rather pay it up front and do LOTS of chemo and hope to not end up with met cancer in bones, lungs, brain etc.

I'm doing a double mastectomy because leaving ANY risk of antoher breast cancer is so unacceptable to me....I guess there's still some risk but certainly much less without boobies.  Plus...my inplants will be prettier than the originals (I always try to see the bright side LOL)

Meg 

Please ladies, demand a CT at least but I think a PET/CT is better....we triple negatives need to be extra watchful for cancer outside the breast.  We have to make them scan us so if it ever hits us, we catch it early.

hi ladies,

just found this thread and have just started tx. i am scheduled for my 2 a/c this wk. being triple neg has been alittle scary since i had 3 + nodes and was my cancer was very aggressive. i want to be around to raise my childern and youall have given me the courage and faith to see this to the end. god bless all of you

thanks for the welcome these threads have provide so much info and given me such hope

I've returned to read about all the triple negs.

I did AC and 12 Taxol.

I'm 2 years and 8 months (on Monday) since diagnosis. I'm almost to the magical 3 year mark where I will secretly declare myself cured though I know there is no such thing as that. Just wanna say it anyway.

I did not have the BRACA brand triple neg but am looking for answers about that. Although I know that if you have the gene your risk zooms up for getting a new primary, I'm unclear as to the stats for recurrence and and mets. If anyone has any infor on that, I'd be interested.

I wish all of you on your journeys...whether it be counting the years we are NED or in treatments... to be well and happy.

Hi all,

Can anyone explain what the differences are between BRCA triple negative breast cancers, and triple negatives that are not BRCA related? Is there a difference?

Thanks!

Annie

Hi all,

I was diagnosed in december 2005 ( age 41 ) after feeling a lump in my left axilla, mammograph showed no sign of cancer, echo did, I enlisted for a trial since I had a big tumor  > 5 cm ( grade III at the left,  ) there was the lump in my axilla,  and the biopts from my breast showed triple negative. Lungs,  bones and liver were clean. Before chemo I had MRI to check both breasts to determine how big tumor was.  Then by computer randomized to start with 3 x CD ( Capecetabine and Doxetaxel ( Taxotere )  ), new MRI to check on results ( did tumor react by reducing in size ? ), yes tumor did react but the lump didn't. So 3 x AC was the next step. Another MRI to see results. After mastectomy on May 16th 2006 pathologist only found 4mm of living cancer. Doctors very optimistic, I was skeptical . 25 RADs followed  for 5 areas. No pretty sight and very painful after 4 weeks. Now every november a mammograph, and every 6 months a small visual and touch check-up at the hospital. No checks on blood, tumor markers, lungs or whatever. Apart from having lymphedema and suffering from erysipelas 4 x in the past 10 months I am doing fine. 2.5 years after diagnosis and 2 years after surgery. Just bumped into this US website and wanted to share my story. I am getting interested in checking this site out.

Hi everyone, I have just past 2 years since dx - yayy

triple neg, 6 x fec and bilat.

After numerous CT's to keep an eye on a lung nodule and liver "thing" finally after two years "not cancer related" as there has been

no change.  Will continue to have yearly pet scans.

xxx