continued Tissue expander pain!!

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  • kes
    kes Member Posts: 559
    edited March 2008

    Hi Ladies,

    I am reading the Mentor book about silicone implants. At first I thought saline,then I changed my mind to silicone and now I am thinking about saline again only because of the MRI. I would be terrified to go into an MRI because I am claustrophic. Just the thought of it can make me nervous. Next week is the implant talk appointment with the PS. I don't know how she will be able to maintain a B cup on me after all the expansion stories that I have read here.Seems like a lot of the implants are smaller than predicted after surgery. I guess that everyone's chest size and bone structure is different. Maybe I should aim for a small C and hopefully will come out a B. Just don't think that I can take any more fills. I am ALWAYS TIGHT in the chest, these things are not comfortable in any way and I can always feel them, except when I am sleeping or if I can sit in a certain position and round my shoulders in. They are so HARD!!!! And so NUMB!!!! Just having a BAD day I guess. It is mind boggling when I think about everything.I will just have to trust the PS that I will be a B when done.Only expanded to 335cc and this is about a D on me.These things just give me the creeps, it is going to be a LONG 2 months.Thankx for letting me vent.

    Take Care,

    KerryFrown

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  • jade56068
    jade56068 Member Posts: 584
    edited March 2008

    Kerry-

    I dont know if you read the post on the last page (26).  One does not "need" MRI's unless one feels like something went wrong....blunt trama ect.  Mentors have been on the market for a long time and they are fine:<}.  You have to chose what feels right for you.  Ask your ps if there have been any issues with the mentors.  I did, and in the 15yrs she has been in practice she cant think of one. 

    I hope I eased your mind.....

    j

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  • rubytuesday
    rubytuesday Member Posts: 2,248
    edited March 2008

    Kerry, First off, I am insanely claustrophobic.....can't get under my waterbed frame (has drawers and storage up the middle) to get the things I have pushed under there.....my son's baby clothes will have to be disposed of by whoever inherits the house...LOL.  I had to have a breast MRI before my mast and you go in feet first.  Your head is right at the end and you can see the room, etc.  It really was OK.  Next, Jade is right, you don't need to have an MRI unless you have a serious blow to your chest or you or your PS feel that something is wrong.  I've posted this a few times now.  This is from the consent form that I signed for Inamed cohesive gel implants:

    " To monitor your breast implants for silent rupture, an MRI is recommended three (3) years following surgery and then every two (2) years after that". 

    NOTE the word 'recommended' NOT required.  I hope that eases your mind.  Best wishes! 

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  • kes
    kes Member Posts: 559
    edited March 2008

    Hi Ladies,

    Thankx a lot. Just one more thing to think about on this journey,I am in overload. I am not going to let a little old MRI machine keep me from having the best set of boobs that I can get.

    Take Care,

    KerryYell

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  • AnneW
    AnneW Member Posts: 4,050
    edited March 2008

    My ps won't do the every three year MRI for my silicones. He says that he'd wait till an exam showed the need. You could MRI one day, rupture the next, and not be due another MRI for a few years. Makes sense.

    The three year MRI was a reccomendation by the manufacturer as a CYA thing, I think. The implants are not expected to rupture in that time frame, not at all.

    I figure I'll try to be vigilant for any changes in my breast and tissue, and get MRIs only if indicated.

    Anne

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  • jade56068
    jade56068 Member Posts: 584
    edited March 2008

    Hi all-

    Kerry-

    I too keep going on this journey, with my eyes wide open.  I cant wait to have my exchange surg, and start really living again.  I cant wait to work out, ware all the clothes I did before bc.  We will soon be there:<}!!!!!!  It FEELS GREAT!!!!

    RubyT-  How long did it take your implants to settle?  were they moveable right away?  I WANT MY CLEAVAGE BACK!!!!  I cant wait to ware a bra again (never thought I would say that}  I have to ware sports bras b/c my boobs are to far apart and I dont like the way it looks in a bra...my ps said this is ALL fixable.  and looking on the pic forum, wow I finally believe it is:<}.

    have a GREAT day ladies,

    j

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  • Jani
    Jani Member Posts: 80
    edited March 2008

    Hi Ruby:

    There are open MRIs where you don't have to go into the 'tube'. If you are claustrophobie ask your doc to order the open unit.

    Jani 

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  • kimbly
    kimbly Member Posts: 398
    edited March 2008

    I am

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  • kimbly
    kimbly Member Posts: 398
    edited March 2008

    I am having

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  • kimbly
    kimbly Member Posts: 398
    edited March 2008

    I am having a

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  • kimbly
    kimbly Member Posts: 398
    edited March 2008

    I am having a mastectomy

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  • kimbly
    kimbly Member Posts: 398
    edited March 2008

    I am having a mastectomy with

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  • kimbly
    kimbly Member Posts: 398
    edited March 2008

    I am having a left

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  • kimbly
    kimbly Member Posts: 398
    edited March 2008

    I am having a left 

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  • kimbly
    kimbly Member Posts: 398
    edited March 2008

    I am having a left  breast mastectomy with reconstruction sometime in late April or May.  I have decided to go with the expander and implant and am terribly worried about the pain.  I however just read that those who have been through both chemo and the mast and recon would do this over and over rather than chemo again.  This makes me feel tons better.  I have two more chemo treatments and although they have not been as bad as i thought I just cannot wait to have them over and move on.  I am so tired of chemo side effects and that ick feeling the week afterwards sucks big time. 

    I now feel better that I can tolerate the next step!  

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  • Hanna60978
    Hanna60978 Member Posts: 815
    edited March 2008

    Hi again!  I want to thank you all.  Kerri, thank you for your words of support, you have come on at least twice to encourage me and I wanted to tell you thank you!  I appreciate you.  Sharon, my fellow horse loving friend....thank you for your professional landscaping advice - I did go to the HD and I looked only! Promise!  Wasn't a whole lot around anyway, mostly pansies and azalea bushes.  What I have my heart set on is making a small secret garden with trees and bushes all surrounding an inside area where I can go to read, think, not think, or talk on the phone!  I want flowers like impatiens everywhere and that moist, earthy smell. Impatiens are my favorite outside flower and they need just the right amount of sun and shade and so do I!  Maybe, that's me...an impatien!  Is that correct for impatiens in the singular form?  Hmm.  Anyway, I also want some ornamental grasses and ferns.  I have some small animal statuary figures that survived the move without breaking and I put them around too.  Plus, my little gnome guy!  My Romeo Gnomeo.  I really packed him up good in 3 layers of bubble wrap so he wouldn't break! Jani, thank you for all your incredible researching for us here. You provide such a comfort here because you research things so well and have such a good perspective afterward.  You are so non-judgemental and peaceful.  I imagine you as a Peace Corps person for some reason.  Oh well, I'm not gonna get psychic on you all today!  Or psycho! Tongue out  Anyway, I am grateful to you for your calm reassurance.  Times can get sort of jumpy through this waiting period and doubts can rise, but I feel no doubts.  I believe I will be so happy with whatever I get just to be finished up.  I am going to pick up a gardening magazine just because you and Sharon got me wanting one now!  Oh, and I also want a small water thing with some small fish in my secret garden.  Margaret, our group therapist and control boob!  OMG what a title - Margaret - Control Boob.  Paging Margaret, Control Boob STAT to Continued tissue expander pain....! Teri ~ our resident Sweetheart!,Jean our legal mind whose next up for her switcheroo...(Jean,let all be well for you!), and Jade, thank you too, especially because I just love your name honey! And thank you to everyone who has contributed here~ 

    ~ hanna

    ps - something weird is going on here. I came back to add something and when I entered it deleted sentences and added these <address>things.  Oh well, technology.  

       

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  • kes
    kes Member Posts: 559
    edited March 2008

    Hi Ladies,

    Thankx to all for your kind words. The city that I live near has 3 hospitals and only 2 MRI machines,both are closed end. My Mom went in one and had to have ativan to go in head first.Guess that I am more like her than I thought ( and here I thought I was more like my Dad )

    Hanna, Your garden sounds beautiful, like a very peaceful meditation secret place. A place to unwind with a good glass of wine.

    Jade, I know what you mean, as I can hardly wait to have some boobs again and not feel like I am wearing a bra of armour.Always tight and does get tighter when I stretch it out.Just the way I am. PS told me that the pain should stop in 48 hours after a fill. I am going to talk to her about making an info sheet for ladies going through this as it was not as easy as I thought it would be, and certainly not as easy as she explained it to me. If it was as easy as she explained it to me it would have been a piece of cake. Plus I was filled too fast, too soon after the mastectomy.

    Welcome Kimbly,

    Don't let my story scare you.Start with a small fill to see how you tolerate it. Everyone is an  individual and some people go through the expansion process with no problems and others do not.

      Don't be afraid to ask for drugs.And go slow and steady. I don't know how some women can take 75cc at a fill. I was in pain with 50cc fills.Good thing that I did not want to be a D cup.I did not have chemo or rads so I don't have anything to compare it too. Also everyone experiences pain differently.

    Take Care Ladies,

    KerrySmile

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Kerry

    I hate being put into those machines. I cannot have MRIs any longer do to pacemaker, but I still have the CT, PET and Bone scans. One of the tecks asked if I wanted a towel over my face....sounds strange but it did help considerably. (And some music...try to imagine you are at a concert...front row seats.

    If I had know 9 months ago what I knwo now...I woudl have requested the immediate reconstruction. I saw a video of it. They removed everything and put the implants into the "shell" of the breast...no stretching, and they can leave the nipples, if they are not effected.  

    My exchange is set for tomorrow...or is it? Yesterday was the day form Hell. I kept getting messages, on, off, on, off, all day. I have been on antibiotics for an UTI. First it was the hospital, then the Ps, then my GP said my urine still showed an infection so she was calling it off, then the PS said...no its on...then it was changed from the day-surgery to the main OR at Cedar's Sinai, because of my heart.  Then late last night someone called an inferred it was canceled...this morning I had a fight with my PS's nurse...as she cliamed no one had called. (They left a message on my phone!). She said it is now a go again, but she needs me to have an EKG... I had one a few days ago! Then she said she needs a chest xray to see if I have a broken PM wire...my PM Dr said, if one is broken it will not show up in a chest xray only by the machine that checks me out every 3 months. THEN this idiot says, I will have to have another urine test and if I don't pass it...the surgery will be canceled. What an idiot. If I have been on antidiotics for a month and still have an UTI yesterday, how can it be cured tomorrow.  It's funny, sad, that they were able to remove both of my breast, relocate my PM and put in the expanders in an 8-hour surgery when I had a UTI....and the path reports showed "No sign of BC". but they are unable to remove these darn things which have made my BP spike so badly I may have a stroke. (and all this last miniute stuff isn't helping)'

    Sorry for the complaints...I am just really mad today. 

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  • rubytuesday
    rubytuesday Member Posts: 2,248
    edited March 2008

    Anne, My PS and I agree 100% with your PS.  You are so right that the consent form is just a CYA operation!!  It also no doubt speeded up the approval process with our LOVELY FDA..!!!!

    Jade, My implants were noticeably softer right away.....hard to keep my hands off of them...LOL!!  It probably took 4-6 months for them to full drop but they did change a little more... got slightly bigger around 8 months.  They are so amazingly real feeling.  They even jiggle  (the first time I felt that going over a bump in the car, I was ECSTATIC!!!!) and move when you turn over in bed.  At the same time, they are perky and firmer than my originals....kind of like when you were 16!!!! 

    Jani, We do have an open MRI in a neighboring town but I really was OK going in feet first and having my head at the end.  NOW IF I would have had to go in head first, I would have FREAKED!!!!  LOL  I was a little stunned that the large hospital that I went to for my surgery (and they wanted me to have the MRI there) didn't have an open MRI. 

    Kimbly, I breezed thru expansion.  Just go slow with the fills and let your PS know when you feel it. I usually had 60cc every two weeks.  Slow and steady wins the race!!!  My PS also said that filling too fast or too much at a time causes the expander to move to places you don't want it....like to your armpit or up toward your shoulder.  It does that because your muscle doesn't have time to stretch and it takes the path of least resistance.  

    Best wishes to all of you!!! 

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  • Hanna60978
    Hanna60978 Member Posts: 815
    edited March 2008

    kimbly,

    Welcome to the thread!  So you are thinking of reconstruction with expander and implant?  That is what we're doing here.  I have been in the expansion phase for quite some time and have had essentially no real pain.  I have had the feeling of muscles stretching, but my PS prescribed a muscle relaxer to take every 6 hours starting with the fills of saline.  The saline fills themselves did not hurt me.  For me, the skin is mostly numb where the saline goes in.  I know everyone has a different experience, but I have to say I've been doing fine with it - and  I am anxious to have my surgery to exchange the expander for the implant!  Reading all the experiences the women have here is very valuable. 

    Everyone is different but in my experience, the use of Alloderm to help extend the pectoral muscle was vital for several reasons.  One, adding alloderm essentially extends the pec muscle so you start off right away with your muscle needing less stretching.  I do feel some muscular stretching after a fill, but I take them in lower doses which allows the muscle to stretch more comfortably.  I have found the fills to be completely doable. Second, alloderm added to the breast skin enables the breast skin to grow into the tissue matrix that is alloderm.  Thus, the skin has more substance to hold the implant.  If possible, have a talk with a plastic surgeon who uses alloderm in their practice. 

    I haven't had my exchange yet but it gets closer everyday and I'm starting to get excited.  I've been blessed with the posts of women here who just had it done, and I will do the same when it's my turn.  You are just starting and I wanted you to know this has been a comfortable process to do - with some stretching that can be managed with muscle relaxants and if necessary, a little pain medication such as Ibuprofen for some or more for others.  My PS says a lot of it has to do with how the expander is placed - whether completely under the pectoral or pectoral and serratus muscles or under the pec musle with an alloderm extension to the lower breast pole.  Having a comfortable relationship with your plastic surgeon is a big part since you'll be seeing them often!  This part of your journey will definitely give you something to look forward to.

    Take care and come back to post...we will be looking forward to hearing from you!  Hanna

      

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  • kes
    kes Member Posts: 559
    edited March 2008

    Hi Ladies,

    Jean- Sounds like a nightmare today.Hang in there, with any luck you will have your surgery tomorrow  and all of this stuff will be done.Let us know if you have the surgery or not. My PS said that you have to use the tissue expander and it has to be under the pec major muscle but over the pec minor muscle because only the skin of the breast cannot hold an implant in. There is no other option here as far as implants go in the cold north, as I hear another snow storm outside my house. Why did my ancestors settle here when they got off the boat, why not Florida or California? As my Father always used to say.

    Think that I will ask for a small C if she can do it, which she said that she could. But then I have also heard that they drop and fluff out a few months after surgery and I don't want to be too big,as it will not look right on my body frame.So I am between a full B and a small C. Hard decision to figure out. I told the PS" well what if I wake up and they are too small or what if I wake up and they are too big, then what do I do?" She also said that she has an adjustable implant and that it has a port on it that comes out at your side and you can adjust the implant with saline as needed, and after you are the desired size then the PS removes the port. Will have to ask about this at next appt.It is a permanent implant that is put in at the exchange surgery.

    Take Care Ladies and Good Luck Jean.

    KerryKiss

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  • Teribear
    Teribear Member Posts: 60
    edited March 2008

    I keep hearing that a couple months after getting the silicone implants, they fluff and fill out and get a little larger? Can someone explain this to me?

    I am liking my implants more every day.  I have more feeling in them. I thought I would be permanently numb and oogie feeling on the left side for ever but feeling is now coming back and right now has this deep annoying itchy burning feeling on both sides.  But I am more comfortable every day!  I am in the same boat as RubyT and can't keep my hands off them! They are so soft and full.  LOL I can't wait for my victoria's secret shopping spree.  Mine aren't really very moveable yet....and haven't felt a jiggle that Ruby was talking about...but they are much closer together and when I wear a tank with a shelf bra, the cleavage is nice!  giggle giggle!!!  Hang in there everyone....the pay off is worth it.

    Kerry I am with you and wishing my ancestors had settled somewhere other than OHIO. We got a major ice storm last night and spring seems like a distant hope anymore.  I don't experience that cold feeling that some of you are speaking of.  At least not yet anyway.  My implants seem warm but I also avoid going outside as much as possible. I am a wimp when it comes to the cold weather.

    Kimbly, welcome to the board! Glad you are feeling better after chemo. I was lucky and did not have to have it...and my heart goes out to those of you who went through expansion along with chemo.  You are the brave, strong ones!  The ladies here are so much support I don't know what I would have done without them.

    I have to get back to work!  teri

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  • jdg1
    jdg1 Member Posts: 608
    edited March 2008

    Sharon and Teri,

    Have you tried the Bali Bras Concealers?  That is what I found and they actually work for me.  I to am not the same size as I was before BC but what I have figured out is it is caused by the projection of the breast now were the nipples used to be.  I like the Concealers, if you get a chance to go shopping try them on.  Hopefully they will fit right.

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  • Teribear
    Teribear Member Posts: 60
    edited March 2008

    Thanks for the tip JDG (sorry, not sure of your name??)  , but what is the Bali Bra concealer?  Will try anything that works!  I agree, about missing the projection of the nipple area.  I am thinking a demi bra will work better than a regular bra. 

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  • rubytuesday
    rubytuesday Member Posts: 2,248
    edited March 2008

    Teri, The 'fluffing' happens when your muscle relaxes more...that's how they get a little bigger.  You sound like your thrilled with the 'new girls'!!!  Glad to hear it.  Best wishes!

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  • kes
    kes Member Posts: 559
    edited March 2008

    Hi Ladies,

    Teri,

     It is hard to explain about the implants drooping and fluffing out, but I did see pictures of this on a web site and I can't even remember where. There was a pic of the new implants put in after exchange surgery and then a follow up pic some months after exchange surgery (maybe 6-8 months after) and they looked different, like they had filled out and fallen a bit, hard to describe.It was noticable in the photos. Just one more thing to think about. Glad to here that you are pleased with your results. It is such a gamble and not an exact science about the cup size. My PS told me not to think about cup size and cc's and that 80% of women were wearing the wrong size of bra. I told her that I was not one of those women and that I had been measured twice to find my right bra size.Now she is talking to me in cup sizes and cc's because that is how I see the different sizes. Hope that helps.

    Take Care,

    KerrySurprised

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  • suemed8749
    suemed8749 Member Posts: 1,151
    edited March 2008

    Hi to all of you -

    I've been following this thread since I found out I was having a mastectomy after lumpectomy and re-excision. Some of the pain isues have really made me think, but it's so nice to have your honest input into this form of reconstruction. I met with the plastic surgeon today, and I plan to call tomorrow and schedule a unilateral mastectomy with immediate reconstruction (expander/implant). I felt that I was able to ask him the right questions today thanks to all of you - thanks! I'm sure I'll be posting here a lot now with questions, gripes, and hopefully reassurance for others making a difficult decision.

    Thanks,

    Sue

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  • kes
    kes Member Posts: 559
    edited March 2008

    Hi Ladies,

    Welcome Sue,  Don't be frightened by my story, I was filled too soon, and too fast and I am a big suck when it comes to pain.When I think about it I am glad that  is  how it happened for me,I had 3 terrible weeks for sure and then relief after my PS took 25cc out of each side.Now I take ibuprofen during the day and at night and robaxin during the day, and flexeril 10mg at bedtime and 5mg in the am and late afternoon. The main feeling that I have now is tightness in my chest.I told my PS this, that I felt tight and she said that was because it was tight in there. She offered to take more off but I declined because I wanted to see if physio could help me or not, and it did help, she manually stretched my pec muscles out and my PS said that was OK.Some people get  relief with baths or showers,massaging the area around the tissue expander (my PS said that was OK) warm packs to the area and light stretching.

    Different things work for different people. See how you react to the first fill.

    Hope that helps,

    Kerry

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  • Sharon67
    Sharon67 Member Posts: 154
    edited March 2008

    Greeting from Michigan,

    Well ladies I made it thru day 2 of "back to work" and boy or boy am I beat!!!! For as much as I missed my class and school, over the last 5 months from being at home, I have realized now, how much work 7 kids can be! I get home and can't wait to find the couch and pain killers!!!! Today was a little better than yesterday, but I think that's because we still have an extra sub in the classroom. I can't help but feel sorry for her, because she is so nice, and loves the kids, but now that I'm back, her last day is Tomorrow. I also felt some resentment from one of the other aids in our classroom, but gently but firmly explained that it is still my job, and I'm sorry I had to leave for 5 months to have breast cancer. I think after I put it that way, she realized that she was treating me unfairly. Adjusting, don't you hate that word! We are always having to adjust for others as well as ourselves. Now we even have to adjust our bra's because they don't fit right either!!!!

    Oh well, enough bitching......Hanna, how the heck are ya??? I hope you are holding your own and don't forget..no planting yet!!!!! Hey, by the way, did you get the horse????? And changing back to the original subject, your garden idea sounds great, don't forget to add Hosta's into your design, as well as Bleeding Hearts with your ferns, the ferns will hold up your hearts. If you need any help, your wish is my command, just ask.

    Terri, I'm glad your starting to like your boobs, mine or pretty much still the same. My dh tries to tell me he loves them, but lets face it, how can you really be attracted to breasts without nipples? They kind of look like two pieces of flesh with lines across the fronts. Look out Playboy here I come.

    Sue....sorry you had to join the expando club, but of all the sites, you will not find a better bunch of ladies, although we do have a very strange sence of humor!!!! But thats okay, you have to learn to laugh when you really want to cry. None of us asked to be a member of the club, we didn't do anything wrong, we were just the lucky chosen ones. We all have our own stories to share, but we are all honest in our advice. My best advice to you is: everyone is always trying to give you their two cents, it's your option to give back change!!!!!! That goes for anyone of us on these sites as well as all the people that will tell you their cancer stories and how they knew someone that did this or that. Be prepaired, I know I wasn't, but I am a very fast learner.

    To all of my other cyberboob friends, I hope all is well with you all. I have one more hockey weekend to go. And oh, by the way, I finally figured out how to keep my chest from freezing.......The Red Fox Fur that I picked up and charged to my dh account. dh just looked at me and laughed when I got out of the car because the horses looked at me and snorted!!!! Thank goodness we don't have any pita groups around, but I tell ya, I should have bought this coat at the beginning of hockey season, and I wouldn't have frozen my boobs off!! You just have to love the end of the season sales!!!!

    Love you all

    Sharon

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  • denise1956
    denise1956 Member Posts: 59
    edited March 2008

    Hey my dear friends,

    Its been way too long for me finally it took an hour to catch up.. Again welcome to all the newbies I too am sorry that you have to be here , but its great and welcome to

    the family. 

    Hanna

    From one DD to another . I don't miss them one bit . Matter of fact before I was diagnosed with breast cancer I was going to speak to the PS about a reduction. I am  5'1 and very petite with these enormous elongated eggplants Haha for boobs. Then shortly before that I was told at a routine mamo that I had calcification's Yada Yada Yada. All I know is that my mother keeps telling me be careful what you wish for.Now here I am very happy with my what I think are 34C's thats, what the bra cups say. They look much smaller to me. Its all good, so nice that when I do take my bra off at night , nothing is hanging on my belly...I now look in proportion to my body.

    Teri

     I too went to Victoria's Secret i remember reading someones comment on the i-pex bra . No luck for me there. I just don't know I am having a really hard time finding  bras to fit  flush on my rib cage and gap on the arms . I am still bigger on the left side than the right. It has been 7 weeks now since the expansion.Well the swelling is most definitely gone , so I don't know what will be in store for me at my visit with the PS on March 24. I know there will have to be some tweaking done and lipo.   Will let your all know. My saline implants are getting nice and soft and jiggly. My are always warm feeling .

    Sheila finally some one else with saline I was starting to feel very left out. My only complaint now is that at night , they start to get a little uncomfortable when I toss and turn . Its almost like internal bruising. Very tender feeling. I do however feel like there is something foreign inside of me . Maybe I just  haven't gotten used to the implants yet.

    Jani

    Now that I have read your post maybe thats what it is the numbness it is very weird. I have to be very careful at work I have bumped into to things so often and its like KLUMP!! What the ****!!! By the way great article I will show it to my PS.

    Ok girls now its my turn. I too have premonitions. I had one right before 911. Thank G-D i told my husband prior to it happening because I don't think anyone would have believed me. Very spooky. I have very vivid dreams.

    Teri   Being bold and persistence is great but it never works for me because I become almost like paranoid and think that I have every other disease out there.

    Sue

    I was very fortunate I was able to take off 5 months and be on disability. This really helped me heal. I was in alot of pain during the expansion and needed to be on muscle relaxers a great deal of time. Dont be ashamed to take the time off if you can. Everyone deals with the expansion there own way, find one that works well for you. Just take it slow don't rush things. Okay, I  know that you are all about to kill me for boring you all , I will promise to keep up so it wont be so lengthy the next time.

    Love you all!!!

    Denise

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