petition; 2 days in hospital after surgery
I'll never forget the look in my patients eyes when I had to
tell them they had to go home with the drains, new exercises and no breast.
I remember begging the Doctors to keep these women in
The hospital longer, only to hear that they would, but their hands were tied by the insurance companies.
So there I sat with my patients, giving them the instructions they needed to take care of themselves, knowing full well they didn't grasp half of what I was saying, because the glazed, hopeless, frightened look spoke louder than the quiet 'Thank You they muttered.
A mastectomy is when a woman's breast is removed in order to
remove cancerous breast cells/tissue.
If you know anyone who has had a Mastectomy, you may know that there is a lot of discomfort and pain afterwards.
Insurance companies are trying to make mastectomies an
outpatient procedure.
Let's give women the chance to recover properly in the hospital for 2 days after surgery.
It takes 2 seconds to do this and is very important .. Please take
the time and do it really quick!
Please send this to everyone in your address book.
If there was ever a time when our voices and choices should be heard, this is one of those times.
If you're receiving this, it's because I think you will take the 30 seconds to go to vote on this issue and send it on to others.
You know who will do the same.
There's a bill called the Breast Cancer Patient Protection Act which will require Insurance Companies to cover a minimum 48-hour hospital stay for patients undergoing a mastectomy. It's about eliminating the 'drive-through mastectomy' where women are forced to go home just a
few hours after surgery, against the wishes of their doctor, still groggy from anesthesia and sometimes with drainage tubes still attached.
Lifetime Television has put this bill on their Web page with a petition drive to show your support. Last year over half the House signed
on.
PLEASE!! Sign the petition by clicking on the Web site below. You need not give more than your name and zip code number.
http://www.lifetimetv.com/breastcancer/petition/signpetition.php
This takes about 2 seconds. PLEASE PASS THIS ON to your friends and
family, and on behalf of all women, THANKS.
Comments
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The above email, while true, has been circulating for at least five years. The Breast Cancer Protection Act was originally introduced in Congress in 1997. It has been batted around from committee to committe for ten years now. For the complete story see
http://www.snopes.com/politics/medical/mastectomy.asp
Obviously, signing this petition is not effective. If you want to see this bill get passed, contact your congressional representative directly by mail, email, phone or fax.
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This keeps popping up on this site.
Why would anyone want to stay in a hospital? Every hour there increases the risk of infection or a medical error. You will not get rest, comfort, pain relief, or support in the average hospital these days. Go home!
Dr. Susan Love advises women to go home right after mastectemies - for their own comfort and safety. -
I AGREE WITH THAT, I WENT HOME NEXT DAY, BUT WANTED TO LEAVE SAME DAY, DOC WOULDN'T LET ME.
I THINK THE POINT OF THIS PETITION, IS FOR WOMEN WHO REALLY NEED EXTRA TIME IN HOSPITAL, BUT MORE INPORTANTLY, ISSUE SHOULD BE BETWEEN DOC. AND PATIENT, NOT INSURANCE COMPANIES.
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I would like to make a point here. My medical insurance would not cover extended hopital stay. I went in under a 23 hour plan. My surgeon did not officially enter me or request a room until after I was through the surgery and in the recovery area. Therefore, I was able to stay over night, but was out early the next morning(less that 24 hours).
Now I have discovered that the insurance company that has my separate cancer policy(that I purchased 20+ years ago) will not pay any of my hospital bill because I was not confined to the hospital for a complete day. So, here we are. Caught in the middle and left holding the bag. One won't pay for anything more and one won't pay for anything less.
What can I say?
Jan
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Just putting in my opinion that women who have just had surgery for breast removal should be able to stay in the hospital for at least two days to come out of the anesthesia, be pampered a bit and learn wht they need to do for themselves once they get home.
Paula from Tucson
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I am sorry if this sounds terse. The whole idea of that supposed "act" and the tone of some of the supportive comments remind me of an era when women were considered frail and in need of protection.
Everyone may have a different experience and opinion. Here's mine, FWIW:
I had a left-side mastectomy w/ SNB (no reconstruction) 3 wks ago. It was considered "day surgery" but included one night in the hospital. In retrospect, I'd have loved to have gone home the evening of that first day.
I felt fine. I was walking unassisted. My appetite was back. I was not groggy from the anesthetic. I didn't need "pampering", particularly by hospital staff who were dealing with much more serious medical problems than mine. Learning to empty and re-charge my drains and strip the tubes took all of about 5 minutes. There really wasn't much I needed to learn about what I would have to do for myself. (I'll admit that having this discussion board has been a great asset.)
For someone who is having problems adjusting to "breast removal", a longer stay in the hospital--and perhaps some counseling--might be a good idea. Some women might need more help adjusting to the situation than others.
Also, I have no doubt at all that, if I'd developed an unexpected medical complication, my doctor would have kept me in the hospital longer...with the approval and support of my insurance company ("medical necessity" is the key phrase).
If a woman has no help at home--no husband, no friends, no neighbors, no visiting family members who can assist her--then she might need awhile to make the adjustment. I'm not sure that warrants spending an additional day in the hospital with coverage from health insurance, though. Perhaps a home-health nurse or nurse's aide would be one solution.
Just my opinion. YMMV.
otter
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Otter, everyone is different, and for those who need it, insurance companies can't be dictating that this is day surgery. I had total mast, bilateral, with prior radiation to my left breast , and axillary node dissection on left side this time. Lot's of pain. I was on morphene pump for 2 days. No way could I go home the first day. Actually , I was kept 3 days , 2 nights, and I needed it. Besides the pain, was the emotional pain, and I was scared to go home and face the drains alone. Insurance should not tell us we can't go home, but they shouldn't force us out either. I had to go back in for reconstruction, and had lat. flap and expanders, and was in the hospital for 4 nights the second time, and much more pain than the first surgery.
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mittmott,
You are absolutely right. I was in a grouchy mood last night, when I posted that comment. I would be first in line to criticize insurance companies for putting their bottom line ahead of concerns for quality of medical care.
I know about battles with insurance companies over coverage and payments. I've been very fortunate--in each (rare) case where my insurance company has balked, they've finally come through, because my doctor (or I) was able to convince them that the treatment was routine and medically necessary.
There is no way I would advocate that insurance companies should overrule a medical doctor's opinion about what was best for his/her patient. What I was reacting to was the implication that women having mastectomies would need to be kept in the hospital simply because of the potential emotional trauma of their surgery ("breast removal"). Perhaps I read too much into those words. Perhaps they reminded me of the way my mom has been acting about my surgery (pitying me, rather than offering support and encouragement). Maybe I'm wondering why my mastectomy hasn't bothered me more than it has...
Pain is no joke, and a heavy-duty approach to pain relief requires things like morphine or fentanyl pumps. When my nurses thought I was on a morphine pump after my mast/SNB, they said I would need to stay in the hospital for two nights instead of one. I wasn't on a narcotic, though--it was an infusion pump administering bupivacaine to create a paravertebral nerve block over my incision. It was discontinued the morning after surgery so I could go home later that day.
Anyway, I just wanted to apologize if I sounded insensitive to the concern about medically necessary hospitalization. I have a good insurance plan that isn't terribly expensive. Even so, I'd like health care costs to be as low as possible; that will increase the opportunities for more people to be insured.
otter
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Oh Otter, I didn't think you were grumpy, I was just saying I'm sick of these insurance companies telling us what's best for us. I remember reading something a few years ago, about them forcing women out right away,calling them drive thru masts. I thought that was a done deal now, that they couldn't force you out immediately, but I guess I'm wrong.
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Madalyn has a very good point about the germs - at least you know the germs at home (a quote from my PCP). They can never force you to stay if you don't want to, so it is better for the option to be open. I went home within 36 hours of a total abdominal hysterectomy mainly because they couldn't do anything for me that I couldn't do for myself and I didn't want to be exposed to those nasty germs any more than I had to be.
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I still am not comfortable supporting surgery-specific legislation like this. For instance, the woman in the bed next to me in the surgery recovery room was in extreme post-op pain from a thoracotomy and lung lobectomy (for lung cancer). She was on the maximal amount of narcotic pain med they could give her, but it wasn't working. Why isn't anyone advocating on her behalf? I'll bet her insurance company had a "usual and customary" clause about her surgery stay, too.
For those of you who do want to lend your support to the "Breast Cancer Patient Protection Act," it might be comforting to know that the sponsors of the legislation have not given up. As the "Snopes" site says, their efforts continue. Here's a fairly recent announcement:
http://www.house.gov/delauro/press/2008/January/Breast_Cancer_1_23_08.html
There were two identical bills introduced in January 2007 (House & Senate, respectively). I don't think either one made it out of committee. Obviously, web-based petitions sound like a great idea but they don't have much impact. They are also misleading. The one sponsored by LifetimeTV is being touted as having been signed by women who had, or knew someone who had, a "Drive-by Mastectomy." That's not what the petition says.
And, while I would hardly characterize the 34-hour hospital stay after my mastectomy/SNB as "drive-by" surgery, I do agree that treating it as an "outpatient" procedure (against the wishes of the surgeon) is extreme.
otter
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first of all I could NOT find the petition. then I found out that it is not doing what it promisses to do. my conclusion is that it is a trick to make a person to comb through the Lifetime site and see all their commercials.
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ibarot,
As I said in an earlier post, I do not necessarily support this petition; and I do not think it's the best way to get the attention of Congress. I have not signed the petition myself. However, in the spirit of full disclosure, here's the link:
Why do you say it does not do what it promises to do? It's actually fairly easy to find from the main Lifetime website, even without the active link.
Oh, and I mis-spoke. It's not "drive-by" mastectomies that are being criticized; it's "drive-through". I guess "drive-by" would be even faster.
otter
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Everybody is different.
In my case the state I live in has a statue requiring two days.
In my case I was up and ready to go home in about 24 hours, so I did.
The downside is that it increases costs. It's better for a woman to have the surgery covered and get the cancer removed and feel like c$$p at home than to not be able to have the surgery at all. Plus, as many of have, hospitals suck.
I think those who feel strongly about this should work on their state legislatures. Sometimes battles are easier to win there because they don't attract such notice.
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Rose, that's a good suggestion. Grass-roots effort at the state level works much better in some states than others. (It wouldn't work at all in my state. Here, somebody has to sue to get anybody to do anything humane. But, that's what I get for moving here!).
Anyway, you're right--everyone is different. I agree that it's a bad idea for insurance companies to be determining "best practice". But, as you've pointed out, since it's the insurance companies that pay the bills, I guess they should have a voice in the debate. I am really fortunate to have good insurance coverage (knock on wood!), but I worry about others who can't afford good coverage and some who have no insurance at all. As long as medical costs continue to rise, we'll be dealing with these issues forever.
otter
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