Washington Ladies/Men???

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2008

    Vz & Carol,

    Im so happy that the two of you were able to really meet....I havent had the opportunity to meet anyone from here yet, but I look forward to the time that I can....

    I to believe it would be wonderful to have someone who knows what this is all about but so far Im a lone girl on this side of the mountains....

    Hope you two keep in touch and your friendship grows beyond your bc commonality.....

    Hugs

    Jule

  • gwenb
    gwenb Member Posts: 9
    edited February 2008

    Hi, I'm was recently dx BC. Had a lumpectomy on 1/29/08. I'm 63 and work at a middle school in western Washington. The school district I work at has had at least 6 cases BC in the past 3 years, 2 in my school this school year. Seems like an epidemic. Before seeing my oncologist I was seriously considering not having radiation out of fear of side effects. Mine was deep in the left breast. They took about 1/4 of my breast. I'm a 44D so had some to spare.  After seeing my onc, I realized I was being foolish and now am at peace with the recommended treatment(4 rounds Chemo every 3 weeks) followed by 6 weeks of radiation. Am not looking forward to treatments, but am taking it a day at a time. I have faith in God and a lot of prayer support. My husband has been through this with his second wife. He's a "rock" but my heart aches for him especially. He's my best friend and we will have been married for 8 years March 12th.  When we met I was caring for my elderly mother and he proposed to us both and helped me care for her for the last 6 years of her life. She adored him and he her. He lost a younger brother to cancer 2 years ago, so has been through the fire. He has truly been a gift from God.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2008

    Welcome Gwenb,

    Im sorry we had to meet via this means.....yes, it sure does seem like an epidemic...but I think once a person is dx'd with something they watch for it closer and so it seems that way....although all types of cancer seem to be on the rise...

    Im happy to hear you have such a supportive husband as his support will be one of the best things about this journey.....

    Please stay in touch as us Washington girls need to stay together!!!!

    Hugs

    Jule

  • Creationhut
    Creationhut Member Posts: 3
    edited February 2008

    Hi-

    I'm a Washington gal too.  I live in Bothell. 

    I was diagnosed mid November, had a double Mastectomy (cancer was in both breasts!) the end of November and just finished 4 treatments of AC.  I am about to begin Taxol and Herceptin (who can tell me about these please???) and radiation soon too. 

    I am 44 and have 3 young children at home.  2 are age 10  and a baby that we adopted.  My husband is my rock in all of this!!  I am so blessed tired all of the time!! 

    Im so glad to have found this board!

    Linda

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2008

    Linda...

    As always Im sorry to have to see a new name and face here.....but glad that we have found each other....

    It sounds like you have a wonderful family, but wow, you have your hands full....twins??? and a little one!!!!!! OH MY!!!! Actually I love kids very much and spend every minute I can with my grandkids...the one advantage of having my own kids younger in life....I am able to still be young enough to enjoy my grandkids....

    I didnt have chemo but can imagine the fatigue as rads did a number on me in that department....most days it was all I could do to hold my head up......I hope things settle down for you soon...I dont know about the taxol and herceptin but Im sure if we post under the correct threads you will find tons of ladies who do know something....

    Have you posted in the chemo threads? If you are triple neg there is also a special board for that too...

    Let me know if there is anything I can do to help you even if it is just to talk...

    Hugs

    Jule

  • Vz_mom
    Vz_mom Member Posts: 63
    edited February 2008

    Hi Gwen and Linda...so sorry to meet this way.  come back often and post, 'k? 

    Gwen, there's a reason it seems like an epidemic, and that's cuz it is.  the Pacific NW is rated as the third highest place for bc in the nation, and some studies even place us first.  hooray for being in the top three, huh? not.

    I was really anxious about the various treatments too (AC x4 every two weeks, Neulasta, then Taxol x4 every two weeks, then Tamoxifen probably; might just have it all yanked).  then I realized that except for the strength of the meds, it's really not that different than penicillin - just more unpleasant.  after all, if I have strep throat I'm going to take the penicillin to cure it, even tho I'll probably get a yeast infection in the process.  all in all, I'd rather be miserable for a few months above ground than comfortable below it.

    WildRose, how are you doing?  haven't seen you for a while; hope you're doing ok.

    Jule, thanks for starting this thread.  I know it sounds silly, but I think it's particularly helpful to talk to people close to you.  it's easier to share ideas and tips and places to go (or not go Smile) when you have common frame of reference.

    type to everyone soon...be well.

    Kalen

  • Creationhut
    Creationhut Member Posts: 3
    edited February 2008

    Thanks so much for the replies!  I never thought of it like a penicillin.  You are so right.  I mostly need to just relax and trust in my doctors! 

    I am so glad to have found this site.  Just knowing others are there seems to make this a lot easier to get through.  It is what it is, but having a friend to walk along side makes it a lot nicer!

    I am looking forward to more chatting.

    Hugs to all, Linda

  • gwenb
    gwenb Member Posts: 9
    edited February 2008

    Thanks to everyone who responded. I'm sure it will be a huge comfort when I start the Chemo. I'm trying to take one day at a time and enjoy feeling good when I do. My job is also a real source of joy for me and I hope to be able to work through Chemo. Hugs to all of you and my prayers are with you.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2008

    It is bright and sunny here today so Im hoping that it is for everyone else too..

    Mom and I are going shopping for the day so have been looking forward to that...Will leave in a short bit, am meeting my oldest brother and his wife in Tri-Cities for breakfast...

    Hope all is well and that you all are finding some peace with things...

    And yes Kalen, it does help tremendously to have someone close (I know there's alot of miles between all of us) to kick ideas and thoughts around with...

    I found that I could talk here about my true feelings as so not to scare the daylights out of my family.....and sometimes its easier to talk to someone that is not quite so close to things.

    Hugs to you all

    Jule

  • DianeB
    DianeB Member Posts: 78
    edited February 2008

    Linda, it is nice to see someone close to me! I live in Woodinville. Where are you getting your treatments? I have been going to Evergreen. I'm doing the CMF regimen once a week. Treatment 6 will be on Thursday. I'm with you on the tired part!

  • MBauer61461
    MBauer61461 Member Posts: 1
    edited February 2008

    hi I'm Marsha... i live in northern Washington... whidbey Island. I was dx'd with breast cancer on January 25th after a biopsy. I am stage 2 and will soon be undergoing my second surgery on February 26th for lymph node dissection. My margins were negative so the breast is fine. I will be starting Chemo therapy in about 2 weeks after my second surgery. The first surgery was lumpectomy with SNB.

    I have been married 25 years and have 2 beaufiful children almost 18 and 22 both of which are very supportive of my current situation.

    I look forward to meeting new friend who are in my same situation.

  • Vz_mom
    Vz_mom Member Posts: 63
    edited February 2008

    Hi Marsha, sorry to have to say welcome, but I'm glad you found us.  whidbey is so far north; where are you having your treatments?  congrats on negative margins!!

    I'm glad your family is supportive; I can't imagine going thru this by myself like some of the ladies I've met.  I am in awe of them.  looking forward to typing with you more.

    Kalen

  • golfer779
    golfer779 Member Posts: 1,378
    edited February 2008

    Hello Fellow Washingtonians, Linda, Gwen and Marsha. 

    Looks like we have some survivors Linda and Diane B who are close in proximity.   Hope that you'll be able to meet each other and share your experiences.  It really helps to yak it up with a fellow survivor!

    Gwen, so happy to hear that you have a good support system with your dh, he sounds like a real trooper.  Wow, thats alot of people diagnosed with the big "C" in your work community.  Hope that you'll have a good emotional support with each other sharing your experience.

    Marsha, I drive truck for the navy (civil service) at Bangor, and I have been up to W.I. many times.  Its beautiful up there!  I too had to have a second surgery.  Had my mast in Nov, had to go back for a full node dissection in Dec as 1 of 2 of the sentinol nodes showed a spot in the final path report.. Ended up having 32 more nodes removed and 1 of those nodes had a spot.  Glad that I had the second surgery for peace of mind and also since there ended up being one more node with a spot.  If you have any questions, give a shout out and maybe I can be of a little help. 

    Yeah for you and the clean margins!!!  You'll be done with surgery and on to your txt before you know it!

    Kalen, hope your enjoying this great day.  Any progress on your home?  I bet you've been shopping for your "supplies"!  You'll be so ready come Thursday!

    Enjoy the rest of the weekend, Carol

  • Vz_mom
    Vz_mom Member Posts: 63
    edited February 2008

    I picked up a couple of things tonight - scrips, BioTeen (sp?), Claritin - but I've got more to go.  my household is loads of fun right now - not.  Vianne has been dealing with some sort of mild virus for several weeks, but all the tests are negative.  she's even had blood drawn for the first time last week in an attempt to figure it out.  handled it way better than I do, lemme tell ya.  her daddy took her to that appointment, and he got the lab techs to give her the full tour - they showed her how the centrifuge worked, what the blood looked before and after, how the tubes were identified and what the various sizes were for, you name it and they showed her.  when it was time for the draw, teddy went first and then she did.  she watched the whole time, and her only comment was "Cool!!".  she likes saying "phlebotomist" now.  so anyway, she'll be fine for a week or so, then high fevers and listless for three days, then it breaks and she's normal.  just what I need next week.  then, to top it off, Martin's come down with some flu or other that's going around, and it's hit him like a ton of bricks.  he spent most of the day in bed, and I just hope to buddha that he's over the worst of it by the middle of next week.  I am so not looking forward to my first round of chemo and having to care for two sick people as well as work immediately after.   plus grandma, who might as well be a second child.   AAUUGGHH!!!!! <runs screaming into the night>

    enough whining.  wasn't today GORGEOUS?!?!  I found a new (old) song that I'm going to adopt as my theme; I was laughing so hard when I heard it that I swear I nearly wet my pants.  keep in mind the various se's for chemo, and the se's for the meds to address the se's for chemo, and see if you don't start laughing too.

    I want a new drug
    One that won't make me sick
    One that won' make me crash my car
    Or make me feel three feet thick

    I want a new drug
    One that won't hurt my head
    One that won't make my mouth too dry
    Or make my eyes too red

    want a new drug
    One that won't spill
    One that don't cost too much
    Or come in a pill

    I want a new drug
    One that won't go away
    One that won't keep me up all night
    One that won't make me sleep all day

    Know what it is?  do you?  do you?  I got the album from my brother.  he passed away due to cystic fibrosis last fall, and at the wake my parents wanted everyone to select from his music collection whatever they enjoy, and I found a greatest hits collection that I took.  didn't listen it till today on the way to work, and was just busting up.  I'm surprised I didn't get pulled over!!

    gotta go see if the crockpot is done yet.  hugs to all, and type to you soon.

    Kalen

  • golfer779
    golfer779 Member Posts: 1,378
    edited February 2008

    Kalen, hey isn't it a Huey Lewis song?   Hope your family gets on the mend ASAP ... !!!  Just checking in really quick, be back tomorrow afternoon, night!

    Carol

  • Vz_mom
    Vz_mom Member Posts: 63
    edited February 2008

    yup, from 1984 called "I Want a New Drug", the year after graduation from high school.  you couldn't PAY me to do that over.

      I swear I'm gonna get a t-shirt with the lyrics to wear to chemo.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2008

    Im happy to see so many of you using this thread.....although it does make me feel a little lonely way over here.....and sad that we have to be here at all.

    Welcome Marsha.....it sounds like you have a loving family and a very supportive one....I too have been to WI, as both my parents were born and raised in Port Orchard so have experience with the Puget Sound areas...beautiful place that you live!!!!!

    Kalen-that song is perfect it!! I think you should get it printed to wear for your treatment days.....

    Hope you all are enjoying this wonderful weather, Im off to spend my Sunday playing in my rose gardes...I cant wait for spring to be here and for them to start blooming!!!!!

    Jule

  • gwenb
    gwenb Member Posts: 9
    edited February 2008

    Good Morning all. I forgot to mention that I live at Sultan. I'm doing my Chemo at Monroe with Dr Congdon and Radiation in Everett. While I'm so grateful to have this place to share feelings, that even the most supportive husband can't really understand, it breaks my heart that there are so many of us. Because of the large number of BC cases in our district, I do have a lot of support from them. We are close and cry and pray for each other.  I'm suffering a lot of rib and abdominal pain so am going to have a Pet Scan soon. Sunday was a particularly bad day. I 've got a call in to my Oncologist this morning. Hugs! Gwen

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2008

    Gwen,

    It does appear that most cases of bc are on that side of the mountains but that could just be because no one from my immediate area have found this web site....I cant be the ONLY one here!!!! that just doesnt make sense in my mind....

    Please let us know how things go with your onco today....

    Hugs

    Jule

  • Vz_mom
    Vz_mom Member Posts: 63
    edited February 2008

    Marsha, just wanted to say good luck and best wishes for your surgery tomorrow.  You'll be in my thoughts.

    when you feel up to it, let us know how it goes.

    Kalen

  • golfer779
    golfer779 Member Posts: 1,378
    edited February 2008

    Marsha, I too would like to send some positive vibes your way this evening.  Hoping that surgery goes flawless, and lets keep our fingers crossed for negative nodes!!!   I'll have you in my thoughts throughout the day tomorrow.

    Kalen, havn't read the Jan 2008 post yet, I noticed you we're the last post, see you on that thread!!!

    Jule, your only a mountain range away, and I do believe you are in wine country aren't you?  Love seeing your post, we're all in this adventure together and will always be Sisters in Survival!

    Carol

  • Hannahbanana
    Hannahbanana Member Posts: 170
    edited February 2008

    Hello,

    I am from Kent and have been dx with pagets and underlining DCIS on February 7th.  I am scheduled March 6th for a mastectomy.  Way too much happening in a two week span.

    I plan to have reconstructive surgery.  Can someone recomend one in the Renton area?

  • Vz_mom
    Vz_mom Member Posts: 63
    edited February 2008

    Hi Hannah, welcome :-( to the March thread.  sorry to meet this way, but glad you found us.  I know how you feel about way too much happening way too fast - I was 17 days from my first appt with my PCP because I found a lump to having a mastectomy.  it'll slow down for a bit after your surgery. 

    I haven't looked into reconstructive surgery, mostly because I've never been comfortable with the idea of a foreign body in my skin, and because it's recommended that they be removed and replaced every 10 years or so.  plus, I'm having radiation therapy, which will damage the skin too much to allow for reconstruction.  perhaps your surgeon can recommend someone?  or your PCP?  there's a thread somewhere on the site that discusses reconstruction; maybe someone there is also from the Seattle metro area and might have ideas.

    keep us posted on how you're doing, and hang in there.

    Kalen

  • Vz_mom
    Vz_mom Member Posts: 63
    edited February 2008

    sorry Hannah, welcome to the Washington thread!!  someday I'll be able to think for more than 2 minutes at a time :-)

    Kalen

  • PSK07
    PSK07 Member Posts: 781
    edited February 2008

    Hi, Hannah.

    I had partial mastectomy (no lump) so no PS experience. Someone on the reconstruction thread probably has a name.  Maybe a doctor at UW or Swedish?  I'm in the north end, so I'm no help at all!

    take care - you've had a lot in a very short period of time

    Pam.

  • golfer779
    golfer779 Member Posts: 1,378
    edited February 2008

    Hanna, I chose to have my surgery at the UW, but did not choose to have ps so I'm not much help either.  I went through the Seattle Cancer Care Alliance, maybe they would have some input.

    Good luck, Carol

  • golfer779
    golfer779 Member Posts: 1,378
    edited February 2008

    Kalen, was thinking of you today as I looked at the clock at  1:32pm, hope your doing well this evening and you handle the n-shot tomorrow as well.  Looking forward to hearing from you, take care, Carol

  • Vz_mom
    Vz_mom Member Posts: 63
    edited February 2008

    I just got home about 30 minutes ago.  man, that was long.  just time consuming, tho; the actual infusion was surprisingly easy and painless.  I've had a screaming headache all day, which is the only reason I didn't fall asleep in the chair!!  I just couldn't hold my eyelids shut.  plus, it was really bright.  I'm gonna add a suggestion to the Tips thread - dark sunglasses or an eyeshade.  I really could've used a nap.

    so, hopefully tomorrow I'll be able to go to work after my shot, but I'm going to take it one day at a time.  the nurses said to expect side effects in 24 - 48 hours.  also gonna start taking the advil & claritin regularly, to try to head off the nastylasta se's.  I'm more worried about that than anything else at this point.

    when I got home, my dd was terribly disappointed that I still had my hair!!  I may have to shave it sooner than later, just to get her off my back.  I think she's looking forward to drawing on my skull.

    Marsha, how did your surgery go?

    off to a meeting now.  have a nice night, everyone, and be well...

    Kalen

  • golfer779
    golfer779 Member Posts: 1,378
    edited February 2008

    Kalen, yeah one down gal!   Sounds like a good suggestion with the eye wear, thats one I havn't seen but it sounds like a great idea.  Hope the headache subsides tonight.  Too cute about your daughter wondering why you still have hair!  Hope your "nasty" shot is tolerable for you, I look forward to your updates.

    Carol

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Ladies,

    AlaskaDeb is seeking info on the Seattle area cancer centers and doctors for a possible second opinion of the rotten news she just got...

    I have directed her here in hopes that you ladies can give her some insight on that area...

    Hope all of you are doing well...I read back a little later to check up on you!!!...

    Hugs

    Jule

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