getting ready for hair loss
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Well I sit here waiting like a sitting duck for my hair to fall out. Kind of like I was after chemo...a sitting duck. I am now at day 11, if you count the day of chemo. I don't have any signs yet. Can anyone tell me if I were getting ready for work in the morning and my hair started coming out do you have to shave it then or could you wait. I am just expecting it to fall out altogether but from what I have read I think it is kind of gradual...is this true? I have a wig. My family seems to think it looks just like my hair. I think it looks really close but kind of fake. Do alot of people get their wig cut or not. I am kind of afraid because it was very expensive and if it is cut to short then what? Any input would be greatly appreciated. Thanks!!!
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Hi Kathleen. Losing your hair is definitely stressful. I had exactly the same fear you are having! I wondered if my hair started falling out one morning, would I be bald by the end of the day? But what I found was that one day, about 13 days after my first AC, I noticed that if I ran my fingers through my hair, about 7 or 8 hairs came off in my hand. So I knew it was starting. I waited a few more days and then did the shaving. It was a relief because then I didn't have to worry about it anymore. I think that's why a lot of women shave their heads. It gives back a little bit of a sense of control. The first time out of the house afterward was hard, but you get used to not having hair pretty quickly!

Also, I got my wig trimmed and I really think it makes it look more natural. My hairdresser had me put it on, and then basically gave me a haircut! I've been going to her forever so I totally trusted her. If your hairdresser trims it while it's on your head, and trims a little at a time, you should be able to get it where it looks right but not too short. Good luck. And good luck with tx. #2 - sounds like you're hanging in there pretty well after the first one.
Donna -
I noticed about day 12 that my hair brush had a lot more hairs in it when I brushed. And, because my hair was layered, it was like the layers were shedding from the bottom up. Anyway, I started wearing a hat because I didn't want to switch to the wig. Then, within a week or so, I decided to shave it so I could wear the wig. Everyone, thought my wig was great. I even had a friend borrow it because she just wanted to see what she would look like with the style. I had my wig cut initially so the length and style would match my haircut and length. I ended up buying a lot of hats when I was done with chemo. I had so much trouble with hot flashes that hats were much better for me as my hair started growing in. Best of luck, Kathleen.
Rue
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I went thru chemo a year ago - and yes, the hair loss issue was of great concern! I also thought it would come out all in one day, but that was not the case with me. When it started coming out - when you run your hand thru and "lots" of strands of hair come out, you know it's happening. We had just listed our house for sale when this was happening to me. I was soooo afraid that ALL my hair would fall out with the realtor there, that it drove me nuts! The day that I was trying to clean my house, and hair kept falling out and I had to pick it up - was the day I said "heck with this" (kind of!) and I got out my clippers and shaved it OFF!
Made me feel in control - put on my wig - and that was that!
We know the hair is going to come out - so I figured, I'd cut it off before it could come out! LOL -
Nothing funny about BC for sure, but here I am a year later - just got my hair trimmed and colored today - and my best advice would be: to take as much control as you can. We have to deal what life deals us - WE decide what we do with the cards.
By the way - everyone loved my wig (and no one knew it was a wig, 'cuz I was stupid, actually, and told no one what was going on with me!) Made me think my "real" hair must have looked pretty bad!
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For me it was gradual and started around day 17 after the first chemo. Although it sucks not to have hair, the anticipation for me was far worse than the reality.
Now I am 2 years out and have tons of hair-way more than in my pic. You will get there too.
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Hey Kathleen, My hair started to fall out on the day of my 2nd treatment. I went upstairs to the bathroom and pulled bits of it out as I cried. Then I gathered myself, went downstairs and announced that we were having a shaving party.I shaved the front, my son and daughter took their turns and my husband cleaned me up. I still have stubble. I use a sticky lint brush to help keep up with them. My daughter loves to lint brush my head
.I am glad I shaved it, It would have been too hard to watch it fall out over many days. I wish you luck and send you hugs.Cheryl -
My wig lady to shave it before it could start to fall out too (she also being a cancer survivor).SInce I made that decision (and not the cancer), it was not so traumatic. Plus she had already helped me pick out, and had styled a great wig, so when I went out of there, nobody else could tell the difference (except that my 'hair' looked better than normal
. horsegal. I just sent you a PM, someone from our state is looking for friends in the same boat (or should I say snowmobile?) -
I was the opposite - I refused to shave my head. To me, it felt like it was "giving up". I cut my hair since it had been long, but that was it.
It came out gradually, and I was able to handle that. As far as covering, I'm an Orthodox Jew so I've covered my hair since I was married for religious reasons. This did NOT make the hair loss easier, since covering it made me very aware of the relationship between our hair and our identity, our femininity, and our sexuality.
It's a good idea to take a wig to a hairdresser for styling/cutting ON YOU after you buy it. If you can find someone who does a lot of wigs that's the best, since apparently there are differences to working with hair on your head and hair on your wig.
Leah
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I had my hair cut very short, think Mary Martin in Peter Pan. It started to fall out, slowly at first about 2-3 weeks after the first AC. Make sure that your drains have something to stop the the hair. I also started sleeping with a soft cap on my head (the ones you can get from The American Cancer Society TLC catalog) because I hated to see all of the hair on my pillow in the morning. Good luck.
It isn't easy, but we are more than our hair and it is an excuse to buy pretty scarves and hats. I bought a wig, but usually wore a scarf instead.
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Once my hair started falling out, I had my husband give me a buzz. Then I went on a buying spree. I think within the next 2 weeks, I bought 5 wigs, 2 scarves, 3 hats, etc. I went all out with my wigs. Long brown layered one, short red bob, really short curly one, longer red one....I even had a pink wig that I wore on New Year's eve. I decided to have fun with it. Once I left work for my medical leave, though, I never put a wig back on. I wore my scarves and head wraps. I wanted to "own it" as everyone said.
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On around day 14 my scalp started hurting and stinging and the next day it started falling out, more in the brush and then if you took a bit in your hand and pulled it came out without hurting so instead of making a mess my husband buzzed my head with tears in his eyes and offered to let me buzz his. LOL My head got cold at night but too hot and scratch to wear a wig so stuck mostly with hats and doo rags. Now i know what I look like bald and with really really short hair and all the lengths in between. I am growing it now for locks of love. A lot of ladies look pretty cool bald with makeup and big earrings.
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I had them buzz my head about 2 weeks before it was slated to fall out. I have very thick hair and I didn't want to see it fall out--my scalp was tingly for a while, so I knew it was time.... I had a human hair wig and it did the trick..... I wore it from January to June--- My treatment ended on 2/27/09 and my hair started growing back around the first week of April.... hadn't told many people, so people didn't notice.... I was happy with my wigs.... they really looked like my hair....
As for cutting them, well, once you do, there is no going back-- I had mine trimmed once because the bangs were in my eyes, but that was it. I did take one in every couple of weeks and had it styled--- I would wash it, they would style it.
My hair is a riot of curls now (it was very straight before) and it covers my neck-- growing pretty quickly- and I really like it--although I can see that it is starting to straighten out.
Losing my hair was the hardest part of this, but I can honestly tell you now that I barely remember it!!!
good luck
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I wasn't in tears over my hair. There was no way around it. It was 13 days for me, a day or 2 before all of a sudden you could pull a few hairs out, then it was like 20-30 at a time. I had my husband shave it, then razor it too. He had fun with it and we laughed. The hardest part for me was my eyelashes and eyebrows. That didn't happen till months later on taxol. I just finished my last chemo (taxol) last tuesday and my hair is starting to grow in, it's a little patchy (less on top like an old man) and my wig gets hot cuz of it. I like to wear my head wraps or whatever (silk scarves are the best) and just recently am getting sick of my wig. I got real human hair wig and no one can EVER tell it's not my hair. Just try to be strong about it. And I hate to say this but people are much nicer in public when you are wearing a headwrap ...
Either way, your wig will never feel 'right'. Next year this time it'll all be a bad memory! Just keep your chin up and enjoy life!
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