The Chemosabe March Cruise

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2008

    Hi everyone,

    Speaking of Valentine's day, my best friend was here with me from Virginia Beach to help me after my mastectomy surgery on Feb 7th.  I ended up being in the hospital til the 11th and then she came on the 12th and stayed about a week. How lucky for her to get to spend Valentine's Day with a friend who just found out her DCIS was really stage 3 cancer with 7 positive lymph nodes. What a roller coaster of emotions I was going through while she was here.

    She bought me one of those Willow Tree figurines (Angel of the Heart) and told me I was the angel of her heart. She is such a sweet friend. I felt bad about taking her away from her husband on Valentine's Day, but she seemed unconcerned. I think I'll do something special for them this year. Perhaps I'll send a gift card for a dinner out!

    So, maxie, you actually had your surgery on Valentine's Day? Wow... this calls for chocolate!

    Diana, so sorry to hear about all your hubby is going through. It sounds like poison seeped into his system, making him sick like that.

    I hope you can get caught up at work. Tax time waits for no man.

    I think I have the approval for the LT now (although I'm not sure). I'm going to try to set something up on Monday. I have to go get blood drawn for my cardologist appointment on Tuesday, so I'm going to stop by personally and talk to them. I guess they can find out if I have the approval or not. I'm wearing a sleeve every day and this big contraption at night. Somehow it got swollen anyway. It could have been due to getting my port removed on that side (did you guys know my port was on my mastectomy side?), or from using it too much. I'm not really sure.

    Keenie, thanks for the massage technique instructions for the shower. I have been doing that, although I think at this point I need professional help (I know a bunch of other people who think so, as well).  Kiss

    I'm off to bed... saying a prayer for my BC friends. May God watch over each of you especially well. I also thank Him for giving you to me... to have as such sweet and caring friends. 

    Love you,

    Miss S

  • Keenie
    Keenie Member Posts: 258
    edited January 2008

    I had my MUGA test last Valentine's Day and I thought it was kinda funny to be having a HEART test on February 14!



    I got the results of my bone density test last week and I have the hip and spine of a 90 year old. :-( I started a new thread about this and lots of ladies have had this side effect from chemo. So, I'm popping calcium, vitamin D, and once weekly Fosomax. Just one more thing - as I said to my doc, Chemo is the gift that keeps on giving.



    I'm home from church today with a heavy cold - first one in 18 months. So, maybe the chemo helped stave off that particular virus. Let's pretend it did.



    Lots of love and prayers for all of my sisters!

    Christine ;-)

  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited January 2008

    Hello Everyone!

    Diana....spicy....made me laugh out loud.  Kids say the darnest things.  How's your husband doing...he has sure been through the wringer?  Prayers coming your way. 

    MissS....I agree...get yourself to the LT.  I hope by now that you at least have an appointment.  Hope things go well with you cardiologist...let us know. 

    Christine....love your new avatar.  Wow your hair is long and really looks great.  I'd say mine kind of looks like I have a brillo pad on top of my head....but at least it is hair.

    Feb 9th was my surgery....hard to believe it has been a year.  I often think...did this really happen to me?  Yep, it did!  I'm using my surgery date as the date that I became a survivor.  What is everyone else using?

    Hope everyone has a great week.

    Nancy

    Christine

  • Keenie
    Keenie Member Posts: 258
    edited January 2008

    Hi Nancy,

    I'm using December 21 cos that was my lumpectomy and that was when the BC was removed. The chemo and rads were part of my insurance policy.



    Thank you for the compliment about my hair. Honestly, it is so curly, I use my DD's straightening iron on the front. The rest is like a French Poodle!



    Stay warm!

    Fifi ;-)





  • pmarsh34
    pmarsh34 Member Posts: 108
    edited January 2008

    I also am using my surgery date as my anniversary of survival.  On 2/12/08 I will officially be a 1 year survivor.  It just took that whole year to get back to somewhat normal!!  I spent last valentine's day in the hospital, too!  Thank goodness my kids were able to come and give me some loveCool.

    I went to my ps for a follow up visit today.  She was pleased with the way the incision looked.  She even removed one of the two drainage tubes.  Now I have to see about that second one.  The only thing that she was concerned about (I called her about it as soon as I removed the bandages on Saturday so don't yell at me) was the fact that my entire right breast (radiated side and the one that just had implant exchange 4 days ago) is red and kind of warm.  I am not running a fever and have been taking my antibiotics religiously.  PS said, "I hope it's not MRSA."  Now that's not a very reassuring thing to hear.  She added two more antibiotics for me to take.  That makes three different ones all at the same time.  I am hoping that all of the icky side effects of antibiotics don't hit me too hard and I sure as heck hope that whatever this redness is goes away fast.  Only time will tell.  I am glad that it isn't worse.  I told the ps that I was pleased and she said that I was always pleased.  Is there really any reason to be any other way?

    God bless each and every one of you.

    Patti

  • Keenie
    Keenie Member Posts: 258
    edited January 2008

    Oh Patti! What a drag! I hope you're not prone to yeast infections. . . Diflucan is my friend whenever I'm on antibiotics.



    We'll be praying for you to feel better - not so warm, or red!

    Christine ;-)

  • rosebud1962
    rosebud1962 Member Posts: 196
    edited January 2008

    Wow, I'm glad to hear about the hair comments!  I truly believe it curled over night.  I can't believe this stuff on my head.  I know I am happy to have hair but this stuff is driving me nutty and I hope it doesn't stay.  After dying it back to blond, it also decided to turn a little red so, people at work started calling me Annie. 

    I'm praying for you Patty that everything will heal it's self.  Remember..The sun will come out tomorrow...Rosebud

  • maxgirl
    maxgirl Member Posts: 407
    edited January 2008

    MissS: What a great friend you had to take care of you, both physically and emotionally.  A gift card for dinner out sounds perfect since they missed Valentine's Day last year.

    I'd forgotten you already had a lot of experience with an LT.  Didn't you have body wrapping, too?

    Keenie -- I'll be heading over to that osteoporosis thread.  My spine stayed the same as my baseline about 7 years ago (-2), but my hip tanked to -7.  I'm on Fosomax too.  That diagnosis floored me more than the BC because I'm big-boned and drink lots of milk.   Thank you, BC, for one more gift.

    Hope your cold goes quickly!

    Patti -- Congratulations on getting through the last operation.  I hope the boob reaction is temporary, and the antibiotics treat you kindly.

    Sounds like many of us were busy around Valentine Day's last year.  I'll remember it especially because there was a bad storm -- snow, ice, sleet -- and we didn't know if the surgery would happen. 

  • playwriter
    playwriter Member Posts: 316
    edited January 2008

    diana -- if you get free long distance with yr cell phone, the calendar lady's number is 832-640-3670. her name is gretchen. her email should be gretchenwalton@comcast.net

    February will be quite a month of celebration for us. 2/12 is my one-year survivor date, then Valentine's Day, then DH's bday is 2/16.

    Patti -- 6 surgeries! wow! you are such a strong woman!

    i hope everyone is enjoying life this year. i went to see my rads onc today, got the all clear. i sat in the waiting room and read"beating cancer with nutrition". interesting stuff. sprouted bread, anyone?

  • dmknanny
    dmknanny Member Posts: 60
    edited January 2008

    Update:

    DH does not have MRSA, but he has C-diff.  He's been very ill but is starting to come around.

    I got all my work done before the 1/31/ deadline!  Yeah!  It meant working until 1:30 AM Tuesday morning, and late yesterday and today, but that is one stress I am relieved of right now.

    In my situation it was much easier to be the patient - I don't like watching him suffer through so much.  My surgery and recovery went so amazingly well - and his is going so amazing unwell......... 

  • Keenie
    Keenie Member Posts: 258
    edited February 2008

    Hi Diana,

    Hope your husband is on the mend. My dad had C-diff and it was a trial. He bounced back, though!

    Christine ;-)

  • maxgirl
    maxgirl Member Posts: 407
    edited February 2008

    Diana -- How is your husband doing?

    I was wondering if there was any way to edit the thread title to The Chemosabe March 2007 Cruise.  Unfortunately the new cruise of March 2008 will be sailing soon. 

  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited February 2008

    Hello Everyone,

    Patti, how are you doing....did the redness go away.  Hoping that you are fine now and that the girls are behaving.

    Christine, aka Fifi, you made me laugh.....I'd say my hair is more frizzy than curly.  Went and had it trimmed this week thinking that would help but the only thing it did was set me back a couple of weeks.  Oh well at least it keeps my head warm.

    Rosebud....Annie....do you have a dog and a rich uncle?

    Teri.....have you found a good diet ...would be interested in what your research has found.

    Diana...how's the DH?  Prayers to you both.

    MissS....where are you....how you doing?

    MIA's report in.....Angel, Holly, LisaSD, Taurie, 3 boys4me, Christine, Whitecotten, Marshabel...I know there are more but chemo brain is still around and if I go back i'll lose this post.  Everyone please check in....miss you.

    Here's wishing everyone a wonderful week.

    Nancy

  • 3boys4me
    3boys4me Member Posts: 319
    edited February 2008

    Checking in - finished chemo a month ago and I must say, I feel so much better.  I didn't realize how poorly I felt during the whole ordeal until recently.  Will be starting rads next week for 5-1/2 weeks.  Will this ever end?  I guess I'll get a break after that, then consider my options for reconstruction. 

    My oldest son has gotten responses back from some colleges - YEAH!  He's not heard from his top choices, but the UC's don't normally respond until March so we're not giving up hope just yet.  We like to say we know he's going off to college somewhere in the fall, we just don't know exactly where yet.

    Hope everyone is well,

    Lisa

  • marshabel
    marshabel Member Posts: 142
    edited February 2008

    Checking in also -

    I haven't posted in a long time, but read the posts occasionally. I finished rads in October, and had my first follow up scans last week. Unfortunately, one of my nodes lit up, and my onc wants me to see a surgeon this week to get it out so that we can see what we are dealing with. He would  not speculate, but his demeanor seemed unusually grim and urgent. Sigh....Preparing for the worst, but hoping for the best!

    I hope that everyone is doing well - I am going to try to be a better "sister" to you all and keep in touch!

    Marsha 

  • Angelflight
    Angelflight Member Posts: 163
    edited February 2008

    Hi ladies,

    Maxi so sorry to hear about your mom. 

    It's been a while since I was here but think of you all frequently. 

    I have a good friend who's mom was just diagnosed with bc a week ago.  She's going to have a mastectomy and then onto rads.  I was looking over the rads board and couldn't find anything about hair loss.  Can someone tell me if you loose your hair with radiation and no chemo?  or is it just the chemo that causes the hair loss?

    Love you all,

    Angel

  • Keenie
    Keenie Member Posts: 258
    edited February 2008

    Hi girls,

    First, Marsha, we'll certainly be praying that all is well. Let us know what happens.

    Lisa, glad the end is nearing. I'm sure you'll be ready for a break after your rads. You've had a long haul.

    Angel, the chemo makes you lose your hair everywhere, but you can lose hair with rads if you have hair in the rad field. Like, my armpit has a section that is pretty hairless, 9 months after treatment. Does that make sense? Glad to hear from everyone. I keep you all in my prayers!

    Christine

  • Angelflight
    Angelflight Member Posts: 163
    edited February 2008

    Hubby's results came back just fine............no cancer!!! yea!!!

    Mammo came out fine and so did the bone scan.  I guess it's onto having the port taken out soon.  I've had to put it off because of issues around here.

    Good wishes and prayer to those who need them.

    Angel

  • rosebud1962
    rosebud1962 Member Posts: 196
    edited February 2008

    Marsha...I'm sending a prayer your way that your node will be alright.  That's all we have is hope!

    Lisa..rads are a piece of cake compared to chemo..just ask questions about skin care and follow them.  A prayer that you have no issues with it.

    Angle..congrads on the hubby's results!!!

    I'm still plugging away at work, hair is still not normal..LOL  Hugs to all... Rosebud

  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited February 2008

    So good to hear from some of our MIA's.

    Lisa, I agree with you....I didn't realize how the chemo knocked me until after a month and it just continues to improve.  Good luck with the rads, I'll be thinking about you.

    Marsha, so sorry to hear about the light up but will be praying for a B9 results.  Please let us know how things go. (((((Marsha)))).

    Angel, that's wonderful news about your husband.  Hope the two of you can just relax and enjoy.

    Rosebud, I hear you about the hair.  Mine is a mess.  I went and had a trim thinking that would help....it didn't just set me back a couple of weeks....I guess I'm just going to be happy that I have some hair and let it do its own thing.

    Happy Valentines everyone!!!!

    Nancy

  • marshabel
    marshabel Member Posts: 142
    edited February 2008

    Well, ladies, I saw the surgeon today and I am scheduled to have that suspicious node removed on Tuesday. Then a frozen section will be sent off to the lab for testing, and I will be waiting, waiting.....well, you all know the drill!

    Angel - great news about your  husband!

    Marsha 

  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited February 2008

    Marsha, I'm happy that you have things moving but am so sorry that you have to play the waiting game again.  I am praying hard for B9 results and that you can find things to keep you busy!  Know that we are here for you.

    Nancy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2008

    Howdy everyone!

    Oh Marsha, how awful to have something popping up to worry you. I'm joining in the prayers for benign!!! Big hugs from Virginia!!

    I finally saw my lymphedema therapist and I am getting treatments daily for at least two weeks. Finished with the first week. She is wrapping my arm daily, since the sleeve slides off continuously and I am left pulling on it all day. I have to be diligent with my exercises!! She also told me to swim.

    Coincedentally, my cardiologist also told me to swim. It's too bad I don't still live in Phoenix, where I had several friends with pools at their homes!  Wow, I hit some sort of hot key and changed the font to this. LOL It's hard to type with my hand all wrapped up.

    I also want to share that something is terribly wrong with my joints. My ankles, knees, and shoulders HURT. I can barely get up and down the steps. When I get up in the morning, I almost crash to the floor. After I am up for a little while, it gets better. My wrists don't hurt, but I have lost most of my strength in them. My shoulder hurts so much, it awakens me from my sleep. I sleep flat on my back, so I'm not laying on it. I'm wondering if this is something that was caused by chemo. Some days are better than others, but I am afraid one day I will wake up and really won't be able to walk. I am beginning to feel alarmed about the whole thing!

    Sorry not to keep up here more. I think of you all the time and pray for you. I'll be checking back to find out about you, Marsha!

    Love you all!

    Miss S

  • HollyHopes
    HollyHopes Member Posts: 497
    edited February 2008

    hi dear ones - sorry to be MIA on this thread...i've been hanging out with the Triple Negs...

    all seems well...my hair is weird and wispy and totally gray - but i'm determined to let it do it's own thing for a year before i decide if i will become a blonde again...

    i count Feb 7 as my one year survivor day...that was the date of my surgery....work keeps me busy and challenged and I seem to have become the caregiver for a number of people that CA has brought into my life.  one of the members of my local support group is now on Hospice (colorectal) and another has metastatic lung...i count myself very, very blessed and lucky.

    my sister-in-law (ex actually) suffered a massive stroke a few weeks ago and is in a nursing home at age 58... completely devastated.

    my kids are good, doing well at their respective college and grad school programs and the boyfriend is behaving himself these days...

    wish i could lose about 50 lbs and am slowly working on that goal..

    sending hugs and love to each of you.

    -H

  • whitecotton
    whitecotton Member Posts: 106
    edited February 2008

    Sorry I hAVE B

  • whitecotton
    whitecotton Member Posts: 106
    edited February 2008

    Sorry I have been MIA for awhile. I have been working so hard to keep my business running. I own a scrapbooking manufacturing company and I have had to work through this whole thing. Anyway I have to tell you girls that although I did not post a lot I would check in here at least once a week to see how you were all doing. You have been a huge inspiration for me and I would like to formally thank you all. Thank you.

    I am home this weekend with the flu and it almost reminds me of how bad I felt with the chemo but not that bad. lol

    When I went to my local support group i asked them when do you record your cancer anniversary and then told me it was from the day of diagnosis. They told me that the day you found out you had cancer you were surviving everyday after that. So my anniversary was on Jan 24th.

    O my gosh my joints are a mess. I can hardly bend down. My knee's and hips are so sore all the time. I just thought I was badly out of shape.

    I have so much I want to say to each of you and will in a separate email. Just wanted to get this out to you. I am attaching my blog so you can see me and my life.

    If you take the time to look at all of it you will see a product line called Thankful. I am donating part of the proceeds to breastcancer.org.

    this site rocks

    love Melissa Frances

    http://melissafrances.typepad.com

  • Keenie
    Keenie Member Posts: 258
    edited February 2008

    Oh, Melissa, your website is amazing I wish I wasn't so craft-impaired! And your family looks beautiful too. I've got to think of something I could do with those lovely "thankful" pages . . .



    My hip and lower back have been sore, but then my bone density results showed I have the bones of a 90 year old. Sheesh. Lots of calcium, Vitamin D, and Fosomax for me. Are any of you girls on an AI? Sometimes those can give you sore joints. I'm on Tamoxifen for another 18 months. Then we'll see if I'll change meds.



    I've got me pneumonia at the moment - burning the Kindergarten candle a bit at both ends! We've got a few days off school this week, so I'm popping antibiotics and resting. I haven't felt this crappy since chemo either! I guess that will be our new benchmark for "yuckiness".



    Hope everyone is well,

    Christine ;-)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2008

    Melissa and Keenie,

    Sorry to hear you both are sick! Boo!!! Hiss!!!! Yes, Keenie, I think Chemo will be the thing to which we compare all crap that goes on in our lives henceforth!

    I, too, love the Thankful line and I think it's only right that I should make a purchase. I love scrapbooking, afterall!

    Holly, sorry to hear your hair is coming in wispy and white. Mine came in white, but pretty thick. I just have to get some length to it now. I do have a glob of curls top center and the rest is mostly straight. LOL Glad to hear your bf is behaving!

    Love you all!

    Miss S

  • whitecotton
    whitecotton Member Posts: 106
    edited February 2008

    Christine & Miss S thanks for your support on the line. I only sell to stores so I hope your local scrapbooking store carries my stuff if not please ask them to carry the Melissa Frances line please. I am hoping I can raise a lot of money for this web site.

    Christine hope you get better soon!

    Holly I hope your sister-in-law recover's from her stroke. that is so sad to have one that young.

    Marsha you are in my prayers and i wish for ned (no evidence of disease). I love those works.

    Angel I am also happy to hear the news of your husband I hope he continues on his road of recovery.

    Rosebud your daughter is in my prayers.

    Lisa, Rosbud is right rads seems like a piece of cake after chemo. Just gets tiring having to go every day. I had 33 how many do you have?

    prayers and hugs to you all!

    Melissa

  • whitecotton
    whitecotton Member Posts: 106
    edited February 2008

    I am working on a line of stickers totally about Breast Cancer but I want them fun and light hearted.

    For example I have one that says ( I am taking a break from bad hair days)

    If you have any ideas I would love to hear them. Again, part of the proceeds of these stickers will go to this web site.

    Thanks for your support.

    I am going to post this on other treads as well.

    All the best

    Melissa

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