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  • cinderella
    cinderella Member Posts: 62
    edited January 2008

    I am getting really tired and stressed out having to defend my treatment decisions.It seems everytime I go to work or see someone out that I know all they can talk about is chemo... "Are you still doing chemo? When is your next chemo?" Blah,blah,blah. They dont ask how I"M doing...I m  a nurse and get comments daily about what I SHOULD be doing.."you have a child..don't be selfish".. Thats WHY I want to be around and be healthy. I don't even want to go to work anymore to avoid listening to all this... Thanks for letting me vent>>>

  • mefimabit
    mefimabit Member Posts: 6
    edited January 2008

    Cinderella  how are you doing?  love and stuff jane xxx

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2008

    Cinderella, "you have a child...don't be selfish."  LOL  Just kidding!

    Hope you're doing well.  I didn't work so I didn't have to face all the questions.  However, when I do see family and friends they do ask how I'm doing...like, are you still okay?  Kind of timidly.  I tell them so far, so good.

    Perhaps you should say, "Yep, I'm doing fine."  Boy would they be confused.  "When's your next chemo?"  answer.."Yep, I'm doing fine."  LOL

    Shirley

  • rubytuesday
    rubytuesday Member Posts: 2,248
    edited January 2008

    Best advice.....be VAGUE!!! 

  • dash
    dash Member Posts: 766
    edited January 2008

    Right or wrong, it's your decision to stop conventional treatments and no one else's business.

    When someone asks ANY kind of question, just respond, "That's so sweet of you to ask, thank you. You always were such a thoughtful person. How have you been doing?"

    It doesn't even have to make sense and probably won't...lol...I heard this on a radio pyschologist show and have been dying to use it but no opportunites have presented yet.

  • lisametoo
    lisametoo Member Posts: 187
    edited January 2008

    Dear Cinderella,

    Tell them you're in a rush, because if you don't get home soon, your car will turn into a pumpkin and the 4 tires will run out of the parking lot squeaking all the way! 

    can you imagine the look on their faces.................

  • cinderella
    cinderella Member Posts: 62
    edited January 2008

    THANKS EVERYONE!!!

  • iodine
    iodine Member Posts: 4,289
    edited January 2008

    I like Miss Manners response: Why do you ask?  shuts them right up!

  • althea
    althea Member Posts: 1,595
    edited January 2008

    If there's ever a time to surround yourself with people who are supportive according to YOUR needs, it's now.  There's only one person who belongs in your number one priority position right now, and it's YOU!  If that's the definition of being selfish according to some people, then be exactly that.  Your coworkers can manage their own case of cancer according to them if the occasion ever arises.  If someone is genuinely concerned about choices you're making, surely they could find a loving way to express it other than making bossy comments. 

    I am forever looking for a silver lining in any dark cloud.  I think the true colors of friends, and of people you think are friends, come shining through as we endure treatments.  I hope you can save yourself some stress and use some of the great suggestions in this thread to defuse some of these comments you consider unwelcome.   

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited January 2008

    Comments like that are why I started hiding the fact that I had bc.  I just couldn't handle hearing people tell me I "needed" chemo that the stats show clearly wouldn't help me and would probably kill me  I also get really, really frustrated and upset when I run into 'support' services (support groups, the make up thing, financial support programs) that you can only qualify for if you are having or have had chemo. 

    Iodine is right--Miss Manner's "Why do you ask?" or my variation of "Why do you think a sensitive person would ask that?" has a wonderfully shutting-up effect!

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited February 2008

    "Why do you ask?"

    One of my favorite phrases!

  • OneBadBoob
    OneBadBoob Member Posts: 1,386
    edited February 2008

    I usually say "Gosh--don't you think that is an intrusive question?"

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited February 2008

    That's a good one, Jane. 

    What does it say about the state of the world's manners that you introduce your go-to phrase with the words "I usually say..." ???

  • OneBadBoob
    OneBadBoob Member Posts: 1,386
    edited February 2008

    Because I have said some other not so nice things, also--but only when absolutely called for.  (I am "usually" a very kind, diplomatic person.)

    I always remember the "Dog Rules"--"Never bite when a soft growl will do."

    But if called for, I will say "Who the f*&k do you think you are to say something like that to me?"

    Or "As soon soon as you show me your PhD in bio-chemistry or nutrition, or tell me where you went to medical school and did your residency in oncology, I will answer your question and open up this discussion.  Until that, I really don't feel I will receive any benefit from any of your uniniformed input."

    Geese, I guess sometimes this bc does make me quite a bitch!

    I "usually" find my "usual" response shuts people up without offending them or getting into a big controvery about it.

    I am usually as sweet as my little cocker spaniel, but the pit bull in me is ready, if necessary. 

  • IMThankfull
    IMThankfull Member Posts: 42
    edited February 2008

    LOL!  I went through this myself.  Many friends and family members were initially appalled by my decision to forego chemo & radiation.  This resulted in multiple conversations where I was literally grilled on every aspect of my decision.

    I finally reached a decision that I am NOT justifying/defending myself any longer.  I will explain once why I have reached this decision to someone who asks and those who don't understand just won't understand. 

    Outside of peace from God alone, the best support I have found has been my husband.  Having that special someone who supports you is truly a buffer in a storm.

    What has been amazing to me is to hear those in my circle who were staunch supporters of traditional medicine speaking more about natural treatments.  It is interesting how much mis-information there is and false assumptions about traditional medicine.  Once you begin to look into it, you begin to see that the "faith" placed in those approaches is no more sure than what can be seen in natural approaches. 

    It just feels good to think that you have access to the best the medical world has to offer.  When listening to my doctors, I felt like "The approach I am taking has been thoroughly tested and is strongly recommended by the medical community as the most effective approach.  I know that the doctors are giving me the best possible treatments to help me battle this." 

    I trusted implicitly their experience, know-how, and compassion for my situation...and I still do.  It never dawned on me to question whether all of that experience and know-how actually represented all there was.  I assumed, niavely, that they were trained in all treatment approaches, and were willing to embrace them all.  Nothing has surprised me more in this journey that the apparent wide gap between traitional and alternative approaches, which is sad.

    Mo matter how well-intentioned, if doctors are primarily taught only 1 treatment approach (surgery, chemo, radiation), then they cannot speak to the effectiveness of anything else.  It then becomes up to me examine all options and make the decision that is best for me as an individual.

    I hope that my journey can wind up being helpful to others who are also seeking options.  To that extent, I will gladly explain my decisions.  Smile

    Mia

  • cinderella
    cinderella Member Posts: 62
    edited February 2008

    Onebadboob, I love your way of thinking!!  Mia, good luck to you. I am still in the middle of a battle between conventional and traditional treatments. Guess I better decide before its too late, huh????

  • Sunshine99
    Sunshine99 Member Posts: 1,680
    edited February 2008

    I chalk it up to "Didn't your mother teach you better than that??"  I want to ask, "Why is this any of your business?  Its my body, its my cancer, and its MY decision!"  (Its right up there with "Why don't you have kids?")

    Everyone has a opinion (is there a stronger word than "opinion"?) on what will cure my cancer from fasting to raw foods to colonics to whatever....  Thank God I still have friends who just ask, "How are you?"

    I say, go with your gut and use the brains God gave you.  That's what they're there for! :)

    Sunshine

  • tygress
    tygress Member Posts: 87
    edited February 2008

    ok..how many of you had anyone actually have a like..smirk..when you originally told them of your BC? My best friend did and I thought it odd at the time. But..some of us react differently to bad situations. Like laughing when being yelled at by a parent when you were a kid.

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