uh,oh....already?

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marshabel
marshabel Member Posts: 142
edited June 2014 in Triple-Negative Breast Cancer
uh,oh....already?
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  • marshabel
    marshabel Member Posts: 142
    edited February 2008

    Hey, everyone - I haven't posted in forever, but need your input now. I finished chemo in Aug., rads in Oct., and just had my first set of follow up scans. One of my axillary lymph nodes lit up like a Xmas tree, so my onc is sending me to the surgeon to get it out, so we can "see what we are dealing with"  (as he put it.) Not the NED report that I wanted, of course! Has anyone else had this experience so soon after treatment?

    Marsha 

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  • Traci-----TripNeg
    Traci-----TripNeg Member Posts: 2,298
    edited February 2008

    oh GAWD...............Marsha.......

    I'm so sorry girl. I finished chemo in August and have my first scan tomorrow. I've had a very unproductive work day thinking about it.

    How fast did you get the results?

    I'm sure other girls will come along because the answer to your question is yes. In fact, one of the girls in the May (that's me) chemo thread is doing chemo again all ready.

    I'm sorry girl. Prepare for the worst and hope for the best? I hate that saying!!!!

    Please, keep us informed.

    Hugs, Traci

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  • cmb35
    cmb35 Member Posts: 1,106
    edited February 2008

    Marsha - What kind of scan did you have? I finished chemo in Oct 05, rads in Jan 06, and had a bone scan to check on some rib pain in June 06 (which was fine.) To my knowledge, I've never had my lymph nodes scanned.

    I'm sorry it sounds like you're going to be going through some more stuff so soon, and that I don't have any advice to offer.

    Hang in there and let us know what the onc says.

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  • fd411
    fd411 Member Posts: 398
    edited February 2008

    Yes, I have. I finished treatment in Jan 07 and got lung mets in early May 07. Those were my words exactly...Already???

    Hopefully it's nothing, or if it is something, it's caught early enough that you still have a shot at NED! 

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  • marshabel
    marshabel Member Posts: 142
    edited February 2008

    I had a bone scan and a CT. The bone scan was clear (yea!), but the lymph node showed up on the CT.  My onc's office called this afternoon with an appointment scheduled at the surgeon on Wednesday. Not sure if he's going to try to biopsy it or remove it first.  My onc made it sound like it just needed to come out no matter what. I'm REALLY trying to think positive, but after researching online, there doesn't seem to be anything else that it could be. My blood work was fine, so there is no evidence of infection, etc. Like you said, Traci, I will prepare for the worst but hope for the best.

    fd411 - I hope you are doing OK.

    Thanks, guys!

    Marsha 

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  • ravdeb
    ravdeb Member Posts: 3,116
    edited February 2008

    Marsha..hoping for the BEST. That is very scary. Keep us posted.

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  • sftfemme65
    sftfemme65 Member Posts: 790
    edited February 2008

    Marsha,

    That is scary but at least they found it right away, if its anything to be concerned about.  Did you have positive nodes to start with?  what kind of treatment did they do?

    Have a good day,

    Teresa

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  • Raye99
    Raye99 Member Posts: 1,350
    edited February 2008

    Marsha,

    Oh sweetie!!! Thinking of you. When you say the node lit up like a Christmas Tree does that mean it was swollen? I ask because when I was younger I had an inflamed lymph node under my arm - not sure what it was, but it went away. Wishing you the best. Please let us know what you find out.

    xoxo

    Raye

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited February 2008

    Marsha,

    I have done this a couple of times.  If it is where they can easily reach it the will cut it out with a biopsy tool.  They just want to make sure what is going on with it.  I hope the your surgeon will go after if not out with biopsy.   Not all center will go after each node they feel its to much.  Some doctor like to leave it in and do chemo again while they have something to watch to see if the new mix will work better.

    Hope you find out something soon.  And let it be nothing.

    Living in hope

    Flalady

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  • NarberthMom
    NarberthMom Member Posts: 615
    edited February 2008



    Marsha -- It's happening to me, sort of. I finished chemo in May 07, rads in early Aug 07, so I'm a couple of months ahead of you. MRI in late September showed a mass that everyone said was radiation damage and would go away. Guess what? On the repeat MRI, done last week, it was still there. Mammo was clean, but I have really, really dense breasts. I'm getting an ultrasound next week. I guess it's a tie-breaker. If the US confirms the mass, then we'll schedule a US-guided biopsy. If the US doesn't confirm the mass, then we'll wait and redo the MRI in 6 months.



    Gulp.



    Hugs,

    Hillary

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  • HollyHopes
    HollyHopes Member Posts: 497
    edited February 2008

    Gosh - Marsha - I am soooooooo sorry.  This seems totally unfair - haven't you already 'paid your dues' with this damn disease??

    I haven't had any scans or anything except tumor markers since I finished treatment in September....

    Keeping you in my prayers....

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  • marshabel
    marshabel Member Posts: 142
    edited February 2008

    Thanks  for all the well wishes, you guys. Man, it seems that a lot of us have had this scare.

    Teresa - I had sentinel node biopsy that was negative, then lumpectomy, 8 chemos of AC/Taxotere, then 34 rads. All of those little buggers should be dead, wouldn't ya think????

    Hillary - good luck on your ultrasound! 

    My appointment is tomorrow afternoon, and we'll see what the surgeon says. I will keep you posted.

    Marsha 

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  • Traci-----TripNeg
    Traci-----TripNeg Member Posts: 2,298
    edited February 2008

    Marsha,

    Please do keep us posted. We are here for you!

    Hugs, Traci

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  • ocinny414
    ocinny414 Member Posts: 123
    edited February 2008

    Marsha,

    I'm the recurrance girl that Traci spoke of in the beginning.  I finished Chemo in Aug '07 and found a lump in October.   I had clear CT scans in August.  When they reCTed me there were signs of mets in my liver and lungs.  My onc didn't say anthing to me about those he just wanted to biopsy the lump.   I ended up changing oncs and had a PET scan.  The new onc told me about the mets and I had surgery to remove the lump.  They were not sure if it was a lymph node or what.  It was in the muscle tissue on the same side as my masectomy. 

    It has been determined that I have a very aggresive cancer.  I started on a new chemo and after 4 cycles the new CT scan showed growth in my liver.  I've now started a new chemo and we are praying this will work.

    Praying for positive results for you.  I'm probably the worst case senerio.   I'm not trying to scare you just want you to be as aggressive as possible in your fight.  If it means changing oncologists etc do what you have to do.  This is a tough fight and just know you are not alone.

    Keep the faith, and if you ever need to talk just PM me.

    {{{{{{{{{{{{{{BIG HUGS}}}}}}}}}}}}}}}}

    CindyKS

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  • marshabel
    marshabel Member Posts: 142
    edited February 2008

    I saw the surgeon today, and am scheduled to have that suspicious node removed on Tuesday. Then off to the lab it goes, and I will be waiting for results, as we all have done before.

    Cindy, I am so sorry for all that you are going through. I was told that my original cancer was very aggressive, with an extremely fast growth rate, but my doctors are not ready to even say that this new issue is cancer yet. I can understand that, and while I will try to think positive, it's hard, ya know?

    Marsha 

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  • AlaskaDeb
    AlaskaDeb Member Posts: 2,601
    edited February 2008

    Marsha-

    I just wanted to send you a huge hug.  I am off to the CAT scan machine tomorrow for a lumpy-lymph-node-thing right above my collar bone.  Here's hoping both our bumps are just bumps in the road!   chanting B9B9B9 with ya.

    Hugs

    Deb C

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