IBC and Lymphedema

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amandaj
amandaj Member Posts: 13
edited June 2014 in IBC (Inflammatory Breast Cancer)
IBC and Lymphedema
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  • amandaj
    amandaj Member Posts: 13
    edited February 2008

    Just wondering if anyone out there with IBC is having or has had problems with lymphedema?  Every therapist that I talk to says that there is something "special" about IBC patients who develop lymphedema (almost a different kind of fluid).  Returning my hand and arm to its' original size has been a difficult journey.

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  • mrs_X_Sunneedazee
    mrs_X_Sunneedazee Member Posts: 541
    edited February 2008

    Hi Amanda,

    I have not developed lymphedema (thankfully) so I have no words of advice.  I am sorry you are having a difficult time, and hopefully someone will chime in soon who has experiece with it. 
    There is another active mailing list called  ibcsupport.org and it has tons of members  who are dealing with IBC, so maybe you could  do a search in the archives and get some help!
    Good luck!

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