prostheses for physically active

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prostheses for physically active

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  • Beth41
    Beth41 Member Posts: 16
    edited February 2008

    Hi everyone.  I'm new to this site.  I am very grateful for all the info I've received here.  Anyway, I am having a single mastectemy with no recon.  I am a veterinary tech and I hold struggling animals a lot and also will by in close contact with people who are also holding the animal.  I am concerned if the prostheses will move with all the struggling and possible contact.  Thanks for any info, Beth

  • SusaninSF
    SusaninSF Member Posts: 1,213
    edited February 2008

    Worn in the right kind of bra with a pocket, the prosthesis will not move around much more than a real breast. Should be fine.

  • roseg
    roseg Member Posts: 3,133
    edited February 2008

    A properly fitted bra is key.

    Usually the fitting is free, but the bra itself is full/high priced.  However the expertise of the fitter is quite helpful. You can always mail order bras later. Also, different bra brands fit differently.  Find one that works for you and stick with it.

    What I found was that the bra the fitter put me in was a smaller band size than what I'd been wearing.  Yes, it was a little tighter than I was used to, but they stretch with washing and the improvement in cup size fit was remarkable. 

  • Beth41
    Beth41 Member Posts: 16
    edited February 2008

    Wow, what a relief.  I've been having nightmare images of myself at work.  I don't care about the price of the bras.  It is just great to know there are ways to deal with this.  Thanks, Beth

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited February 2008

    Hi Beth,

    I have a toy poodle that I hold all the time. I haven't had any movement of my breast forms and the dog seems to find it comfortable to lean his head against my chest, etc. He's never even sniffed me in a funny way. Either he's not aware of a difference, or he just doesn't care! 

    Barbara

    BreastFree.org 

  • Raye99
    Raye99 Member Posts: 1,350
    edited February 2008

    Hi Beth,

    I agree; a properly fitted bra is very important. You will have no problems with the prosthestic moving around. My prostheses don't move when I run (actually I look like I have implants because they do not move), when my 95 lb Lab jumps on me. You will be fine.

    Best of luck to you.

    Raye

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited February 2008

    Beth, If you are worried about the price of the prost and bras, check with your insurance to see if the cost of these things are covered as medically necessary. When I had my first lumpectomy causing the left boob to be 2 cup sizes smaller than the right, my insurance covered 8 bras a year and 2 prost every 5 yrs. I was not even dx with cancer at that time but because it was breast surgery, I was covered.

    Sheila

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2008

    Beth, I just want to emphasize what everyone else has said. I wore a prothesis for more than a year before I had reconstruction. I had bras that were fitted at a local mastectomy shop that had pockets for the prothesis. I also just put the prothesis into my well-fitting sports bras.

    I've gone hiking, rock climbing, running, chased after my kids and worked with my two large dogs and NEVER had a problem with the protheis getting out of place.

    You just have to find good bras that fit properly. Mine were covered by insurance. 

  • sunshine2003
    sunshine2003 Member Posts: 77
    edited February 2008

    Yes, the bras are great - you'll will not feel as though you've lost a breast - I mostly forget.  I also have a variety of Sport Bras - with a prosthesis - which are very comfortable.   One is like a "beany baby" made in dry fit fabric.  I'm also very active as a teacher of young children (sometimes have to pick them up too! and as well, I'm a runner.  My favourite provider gives/sells me all the latest - which I'm able to claim through my extended health insurance in Canada (employment).   I even have a leopard skin bra!   Whoo hOOO!

    J. 

  • sunshine2003
    sunshine2003 Member Posts: 77
    edited February 2008

    Yes, the bras are great - you'll will not feel as though you've lost a breast - I mostly forget. I also have a variety of Sport Bras - with a prosthesis - which are very comfortable. One is like a "beany baby" made in dry fit fabric. I'm also very active as a teacher of young children (sometimes have to pick them up too! and as well, I'm a runner. My favourite provider gives/sells me all the latest - which I'm able to claim through my extended health insurance in Canada (employment). I even have a leopard skin bra! Whoo hOOO!

  • sunshine2003
    sunshine2003 Member Posts: 77
    edited February 2008

    Yes, the bras are great - you'll will not feel as though you've lost a breast - I mostly forget. I also have a variety of Sport Bras - with a prosthesis - which are very comfortable. One is like a "beany baby" made in dry fit fabric. I'm also very active as a teacher of young children (sometimes have to pick them up too! and as well, I'm a runner. My favourite provider gives/sells me all the latest - which I'm able to claim through my extended health insurance in Canada (employment). I even have a leopard skin bra! Whoo hOOO!

  • nagem
    nagem Member Posts: 353
    edited February 2008

    Sunshine, What is the name of the "beany-baby" pros? Sounds intriguing ...

  • sunshine2003
    sunshine2003 Member Posts: 77
    edited February 2008

    Sure - The link is below - made by an individual - and now a small company - a breast cancer survivor herself - designed for the dragon boat team originally.

    I've had mine for 4 1/2 years - and the prosthesis is still like new - the bra showed wear after steady use of a year.  After having explored other options, I'm going back to this one.

    The link to the "Been-A-Boob"

     http://www.janacsportswear.ca/index/htm 

    J. 

  • nagem
    nagem Member Posts: 353
    edited February 2008

    I went to the site. They don't look very "breast-shaped." What's the fabric like? And what are they filled with? Wish they were in stores here so we could see before we bought.

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited February 2008

    Check out this website: http://www.maizygrace.com. I just heard about this site and am going to try out the breast forms and camisole. They look nicely made. I'll report back!

  • mthomp2020
    mthomp2020 Member Posts: 1,959
    edited February 2008

    Thanks for the link to the Janacs Sportswear!  I was wondering what I was going to do this summer, since I sweat like the dickens and a regular prothesis wouldn't have worked well.  My exercise is done outside - horseback riding and walking - so I really need something that's going to be comfortable, and the been-a-boob looks like it could be just the ticket, as well as the sportsbra.  I have a single mastectomy, so it's harder to find something light that will reasonably match my remaining breast.  I've been trying on various sportsbras, but not having much luck.  The bras are pricey, but may well be worth it just for the comfort factor.  Plus, the prothesis can be used for swimsuits, so that's a big plus as well. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2008

    Sunshine......I noticed you are from southern ontario. Can I ask you where I can start looking for a prothesis and bras??? I am north east of toronto. I have no clue where to begin with this.

  • sunshine2003
    sunshine2003 Member Posts: 77
    edited February 2008

    Well - I can tell you that this prosthesis is tried and tested regularly - the creator is a member of the  "Knot-A-Breast" dragon boat team in Hamilton Ontario and they all wear it (if needed) I gather.  Yes, it doesn't look like a breast shape - it's meant to squish like your real breast against your chest wall, in a sports bra.   If you're kids have any of those beany babies around still - pick one up and imagine the feel.  The fabric cover is super-soft - dry-fit (like an exercise shirt) I agree - you need to try it on before you're sure it's right for you.  You could probably e-mail her and ask about returns or American suppliers.

    Crazy Daisy -Re mastectomy products 

     I travel 50 km - to a place in Brampton - off the 407 - because she has way more "up-to-date" fashions.  She might be able to reccommend someone in your area as she's in touch with other suppliers.

    Her site is "dianne's Mastectomy"

    My favourite items were a camisole, a leopard bra, a "denim & lace" bra - very pretty!   She also has lots of others.

    Good to ask around - "breast cancer support services"  doctors etc.  I found out about her by word of mouth.

    Janet 

     

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2008

    Sunshine......thanks for the info, I need to start getting a list together of places and suppliers. Viv

  • CowgirlTuff
    CowgirlTuff Member Posts: 18
    edited March 2008

    Hi Beth--

    I don't have any answers, but I just wanted to comment because I saw that you are a veterinary technician.  I can understand your concerns because I'm a veterinarian.  I don't have to struggle with the pets quite as much as my technicians do, but I still worry.  I had tissue expanders put in after my double mastectomy, but I hate the way they feel and I had so many surgical complications that I'm planning on having the expanders removed and not moving forward with the reconstruction.

    Anyway, I'd be interested in hearing how you make out with the prostheses and would appreciate any tips you have once you've figured out what works best.  I'm having my expanders removed sometime over the summer and I'll be definitely looking for some suggestions!

    Best of luck to you.

    --Linda

  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    Beth, my two cents worth if you havn't already gotten your new "hoot".  I was fitted at Nordstrom here in Seattle.  The fitter was very professional, had been doing mastectomy patients for 10 years.  All these years I had never been fitted for a bra, wow, I look so much better ... found out I had been wearing the wrong size, cup too.  I was fitted with a amonea prothesis and bra.  I have a very physical job and also golf quite often.  I have not had to readjust my new hoot ever during my daily activities, and I look better than I did with both my own breasts in my old bras!!!

    Also, check with your insurance, my prothesis was covered 100% and 4 bras at 80%.  The perks of bc!!!

    Good luck,

    Carol

  • xxxx
    xxxx Member Posts: 30
    edited March 2008

    Another thumbs up for Nordstrom here!

    I went right after getting my drains out, spoke with the fitter, and bought a camisole.  

    The fitter was wonerderful.  I don't have enough good things to say about her!

    I was back there today with IPEX bras from Victoria's Secret; they added mastectomy pockets to them for me; that's a $15 charge.  If you buy their bras, the alterations are no charge.

    And - this works really well.  In underwear, I look completely normal.  The bra is a lot prettier than the regular mastectomy style.  I was an "A" cup before surgery and my prosthesis is size "2".  So - I look the same in my underwear.  There's only a very tiny bit of scar that is not covered by the bra.

    They don't ride up and they've very comfortable.  The first thing I did when I tried it on was to make motions like I was serving a tennis ball - everything is comfortable and nothing moves out of place. 

      

    I had a bilateral.  When I'm exercising, I don't wear the prosthesis.  Too annoying.  I'm flat, lovely, and "athletic".  It's one thing to wear prosthesis to an office to look normal; it's quite another to be out sweating in the hot sun on a bike for 5 hours.  The prosthesis just aren't worth it to me then, so I don't wear them.  But, I'm pretty sure you can buy sports bras with pockets too.

  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    Michelle, hey its not everybody that can decided if they want boobs that day or not ... I'm with you, quite comfortable with or without my hoot in place. 

    Beth, also, make sure if you are a water gal, you get a swim breast form.  Or make sure you can get yours wet.  My everyday form is not supposed to be exposed to salt or chlorinated water.  I ordered a swim form at $125 .

  • OLBinNJ
    OLBinNJ Member Posts: 236
    edited March 2008

    Also try the Amoena 126 Leisure forms.  They can get wet, when you get out of the water, jsut wrap a towel around yourself and squeeze your chest to get the water out.  And don't lie down on your chest!  They take a while to dry, but they are inexpensive.  I paid $20 for mine!  They are probably best if you are small.  I wear a 34 A/B so I use a size 5 or 6 depending on the bathing suit.

  • SamEyeYam
    SamEyeYam Member Posts: 32
    edited March 2008

    My fitter recommended popping your prosthesis into a Ziploc sandwich bag (if you're small like me) or quart/gallon size bag (for larger breasts) when you swim.  That way the chlorine doesn't touch it and deteriorate it.  I thought it was a great alternative to buying another expensive swim prosthesis.

  • lewing
    lewing Member Posts: 1,288
    edited March 2008

    Question for those of you who are runners and had unilateral mastectomies (now, there's a specialized supgroup for you!): is it possible to just wear a regular running bra w/out a prosthesis?  Or does it ride up and/or chafe?

    I had a left mastectomy last week, and am eager to get back into running.  I think I'll be comfortable with a lopsided appearance, since I'm not all that big to begin with (esp. with a running bra squashing me flat), but am wondering about the practicalities.  Seems like a prosthesis would be just one more thing to get all gross and sweaty (I sweat *a lot* when I run), and that the sensation of it bouncing/rubbing against my chest would be annoying. 

    The beanbag bra that sunshine2003 mentioned sounds intriguing, if I do find myself wanting/needing balance on my left side.

    Linda

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited March 2008

    Hi Linda, 

    Hopefully, Carol will weigh in. She had a unilateral, is small, and also runs. I believe she wears her regular breast form with no problem.

    Another idea is to use a foam form, like an Amoena, Style 126. It will give you a nice shape and won't irritate your chest. It's inexpensive (you can find them online for under $40) and the backing is very soft, with a molded front. I've had bilaterals and wear them for hiking and other exercise (I'm not a runner). To wash the forms, I just throw them in the washing machine and air dry them.

    Barbara

    BreastFree.org 

  • mthomp2020
    mthomp2020 Member Posts: 1,959
    edited March 2008

    Right now, Metro Medical on-line has a really good deal on the Amoena 126 - I think about $26 each, and an even better deal if you buy two of them.  I think I'll get a couple for exercise so I'll have a spare while one is drying.  They've also got good deals on the regular silicone prothesis, and on bras.

  • OLBinNJ
    OLBinNJ Member Posts: 236
    edited March 2008

    I endorse the 126 Leisure form.  I tried it on Barbara's recommendation, and love it for exercise and swimming.  You may have to try a few sizes to get the one that matches your squished breast in an exercise bra.  I'm small already (34A/B), and then  the bra smooshes me, so bouncing isn't really a problem.  The 126 does take a while to dry, so it's good to have extra.

  • 12954
    12954 Member Posts: 374
    edited March 2008

    Do sizes vary within a companies line? If I wear a certain size in one type, can I buy the same size for all styles as long as I stay with the same company?

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