Chat Room for Young Women

mgs
mgs Member Posts: 25
edited June 2014 in Young With Breast Cancer

Would anyone be interested in a special chat room for Young Women with Breast Cancer?  This would be a place where young women could discuss our special issues such as early menopause, fertility, affect on young children, etc.

If you are interested please post here ... along with your suggestions for what to name the room.

Marsha

· Share on FacebookShare on Twitter

Comments

  • pbf69
    pbf69 Member Posts: 5
    edited November 2007

    i would!  i'm 38 years old and was diagnosed with breast cancer about three weeks ago.  what a dreaded nightmare, one in which i am still waiting to awake from.  but no such luck.  regardless, remaining quite positive and starting chemo next friday.  ready to get on with it already!  so am very interested in chatting with women in my age group who are as unfortunate as me to get this icky disease.

    · Share on FacebookShare on Twitter
  • sami36
    sami36 Member Posts: 1
    edited November 2007

    I would *loooooove* to start a chatroom for young women-- what about calling it something simple like 'Young Survivors' or 'Surviving Young'?

    I myself am new here-- this is actually my first post ever! I was dx 10/19/07, mast. 10/30, 7.1 cm Spindle Cell Sarcoma , stage 2-- sentinel nodes neg. for metastic CA. Oh and I am 22 years old.

    Hopefully, we can get this up and running! Please keep us posted.

                                        

                                          ~Sami~

    · Share on FacebookShare on Twitter
  • whoablaze
    whoablaze Member Posts: 26
    edited November 2007

    I think a chat room for a young group would be great!  Our experiences are different, any way you look at it.  It is nice to hear from everyone, but young women (for the most part) have to juggle either school, a career that you can't just take a break from, or young children and new relationships that can't support you like a long-term partner does.

    I am 33, dx at 32, and have been in treatment since April 07.  If I can help anyone or learn from anyone, it would be fantastic.  There is always something new and foreign in each step of this process... 

    · Share on FacebookShare on Twitter
  • BethNY
    BethNY Member Posts: 2,710
    edited March 2008

    sami I see that you're new...

    young survival colalition is A HUGE organization for young women with BC--- so good thinking on that name- but its already taken.

    www.youngsurvival.org

    · Share on FacebookShare on Twitter
  • stretchva
    stretchva Member Posts: 1
    edited November 2007

    This is my first time on this site.  I was diaginosed in may 05' with stage 2 breast cancer, had 2 out of 9 lymphnodes affected.  Had a lumpectomy to remove the tumor which followed 8 chemo treatments and 32 radiation treatments.  I am 35, will be 36 soon. This Feb. I will be going on my 3rd year of tamoxifen.  My question is, I want to have kids and my husband and I are back in forth on whether I should come off tamoxifen now or stay on it for another year or two.  If someone could help me out I would really appreciate it.  

    · Share on FacebookShare on Twitter
  • zuzka
    zuzka Member Posts: 4
    edited November 2007

    This is a great idea. I am 31, just diagnosed 2 weeks ago, 2 days post lumpectomy, wating to see if there was any lymph node involvment. I feel confident I can get through all this but what I want to know is about having babies afterward. Anyone with any info?

    · Share on FacebookShare on Twitter
  • zuzka
    zuzka Member Posts: 4
    edited November 2007

    I totally feel what you are going through. My doctor told me 3-5 years wait before having babies BUT I don't know.

    · Share on FacebookShare on Twitter
  • Joan
    Joan Member Posts: 13
    edited November 2007

    Actually this is the first time of comes to knowing about breast cancer. I didn't have any check up done properly over my breast. On one hand, I am at a young age, also was dumped by my so called future husband. From then onwards, i even found myself harder to seek checking over my body.

    Then one day, I saw the movie about a woman who has cancer and seeing her how to deal with it. Then on that afternoon, I went for a check up and then i was given a letter for a further check up with a specialist. I know that the doctors who has done the check up for me have given a different answer. But for me, I really had felt that there is something over my right breast. And I am going to tell that and show it to the specialist who will be seeing me. I wanna tell my specialist that I felt something and am more confident about telling her.

    I do not know what other women are feeling. But, for me, I felt that if i got breast cancer, then who will be there for me. I was dumped some times, because of other sicknesses. Somehow, if i really got the cancer, then I really feeling that I need someone to be there.

    I am really a fool in a way. Am I a fool or just dreaming too much for someone to be there for me?

    · Share on FacebookShare on Twitter
  • dlsmullins
    dlsmullins Member Posts: 1
    edited December 2007

    I am 30 years old.  I have had several abnormal mammograms.  My MRI was negative last month.  I have had genetic counseling and pending my results. My doctor has recommended Tamoxifen/chemo and/or bilateral mastectomy/oophorectomy. I have a lot to think about. I am married and have 2 kids - 6&8.  He doesn't want anymore kids.  I am still concerned about an early menopause and the emotional roller coaster. I am a nurse and work a lot and very busy with the kids. My mom was 36 when she was diagnosed and died at 40 from breast ca with mets. I am scared but I try to be brave. I feel that if I could chat someone else going thru this, I might not feel so alone.   

    · Share on FacebookShare on Twitter
  • whoablaze
    whoablaze Member Posts: 26
    edited December 2007

    Joan...

    I read your post, and just had to write.  I can understand the fear of breast cancer.  It's really nothing you want to deal with.  But your fear of it seems much more intense than the reality of going through it.  You wonder who will be there for you?  Don't worry...people are amazing when they realize someone is hurting. It is actually difficult to have someone close to you (boyfriend/husband) when you are going through it, because it is no longer just about you.  You spend as much time worrying about him and taking care of his fears, as you do taking care of yourself.  Men are not that helpful, believe me.  It's great to have love, but dealing with bc is one time in your life you need to reflect inwards, and a husband or boyfriend often makes that harder.  Don't worry...we all deal with what we're given.  You may never have to deal with breast cancer, but if you do, just remember that you are the strongest person you know...you have the power to make those words true. 

    · Share on FacebookShare on Twitter
  • Urusla
    Urusla Member Posts: 1
    edited December 2007

    Hi there, I just went to get a mammogram, and the doctor found 2 lumps on each of my breasts.

    I'm only 36 yrs old and never any breast concer in my family, My momther had one, my grandmother had 1, but no cancer, in my

    family.

    I told my family and my boyfriend, they are behind me 100%. the doctor said come back in six months, I wanted to slap her and told her to give me a biopsy in my left breast, she said no. I'm going to another doctor for another option.

    Cristina

    · Share on FacebookShare on Twitter
  • leonbradenton
    leonbradenton Member Posts: 1
    edited January 2008

    Does anyone know if 20 year olds have achanece of getting breast cancer?Or what age is it known for youn women to usually be diagnosed with breast cancer?

    · Share on FacebookShare on Twitter
  • Heymary
    Heymary Member Posts: 1
    edited January 2008

    This is a great idea! I want to add to BethNY's comment. youngsurvival.org is an awesome site. There are tons of chats to join in on. Please check it out. Female's as young as 15 get BC.

    · Share on FacebookShare on Twitter
  • Cecy
    Cecy Member Posts: 2
    edited January 2008

    i am 26 i got diagnosed with bc june of 2007. i think a chat room for younger patients is great. i too wonder if i would be able to have a baby after treatment.

    · Share on FacebookShare on Twitter
  • Dani37
    Dani37 Member Posts: 10
    edited January 2008

    I am new on this site. I was diagnosed this Dec. (2007) and am 37 years old. I just had a double mastectomy and start my chemo mid February. Is this site still up and running? Are you girls open for one more in the group? Thanks.

    · Share on FacebookShare on Twitter
  • hezzy
    hezzy Member Posts: 146
    edited February 2008

    I  think it would be great.  I find often that while in some chat rooms the ladies are older and talking about there older children.  When  I mention my daughter and fear of not being there for her as she grows older I'm not sure many understand.

    I dont know what a good name for the site would be but i think it would be a great idea for me to have someone closer to my age with young children to talk to

    hope it starts

    heather

    · Share on FacebookShare on Twitter
  • divine777
    divine777 Member Posts: 33
    edited March 2008
    sounds good to me....

    http://www.caringbridge.org/visit/divineintervention

    peace & love,

    Divine

    · Share on FacebookShare on Twitter
  • gail1h
    gail1h Member Posts: 7
    edited April 2008

    I would have loved to have a group to share my concerns and fears with when I was diagnosed.  I was 34 when diagnosed and 41 now.  I am a nurse and saw the different needs I had compared to my older patients I had cared for.  I had small children who needed me and had questions I did not know how to answer.   My physicians did not give me hope and did not seem to know how to answer my questions.  I ended up going to a specialist at DUKE University who specialized in young women with breast cancer and she was the answer to my prayers.  I think you need someone who understands the needs of young women who are trying to continue with their lives and consider this just a curve in the road rather than a dead end.  I would love to be a part of your group if you would have me!!  I have some stories to tell!!!

    · Share on FacebookShare on Twitter
  • melissa17
    melissa17 Member Posts: 8
    edited June 2008

    Hello, my name is Melissa.  I have been trying to chat with someone about the same "icky" breast cancer.  I was diagnosed, treated, still being treated for less than a year now.  I would love some insight from someone who is in this situation.  This is my first time reaching out to a support group.  Any input would be great.  Fight on, like a champ!!!!! 

    · Share on FacebookShare on Twitter
  • melissa17
    melissa17 Member Posts: 8
    edited June 2008

    Hello, my name is Melissa.  I have been trying to chat with someone about the same "icky" breast cancer.  I was diagnosed, treated, still being treated for less than a year now.  I would love some insight from someone who is in this situation.  This is my first time reaching out to a support group.  Any input would be great.  Fight on, like a champ!!!!! 

    · Share on FacebookShare on Twitter
  • nash
    nash Member Posts: 2,600
    edited June 2008

    Melissa, there are several sections of these boards that may be of interest to you depending on your situation. There is a chemo section, where you can post with other women who started chemo at the same time you did (I'm assuming you're on chemo). There's a radiation section, same deal--you can connect with women who are going through radiation. There's a surgery board, with all sorts of info. There's a triple negative board, an HER2 positive board, an IBC board, an ILC board, an IDC board, etc, etc. Just take a look around, and you'll be able to find women with similar diagnoses to yours.

    If you prefer live chat, there is also a chat room--just go to the "Support and Community" tab, and the link for the chat rooms is under the link for these discussion boards.

    Sorry you had to join us, but you'll get lots of great support here--the women are awesome. 

    · Share on FacebookShare on Twitter
  • Elliemae32
    Elliemae32 Member Posts: 72
    edited June 2008

    Do you ladies have a board yet?  I would love to join.  I am 32 yrs old.  I have a 19 month old boy and am pregnant with son #2.  I was by far the youngest person in the oncologist office. 

    · Share on FacebookShare on Twitter
  • melissa17
    melissa17 Member Posts: 8
    edited July 2008

    Thanks Nash for the advice.  I am still getting to know the site.  I fall under many of the sites.  I had chemo (still having) and radiation.  Also Her 2 neu pos.  So I will look around.  Thanks Take Care! 

    · Share on FacebookShare on Twitter
  • Still_Beautiful
    Still_Beautiful Member Posts: 6
    edited June 2011

    I would love to...I'm 33 and recently diagnosed with breast cancer.

    · Share on FacebookShare on Twitter

Categories